It has been a good day for Katy overall. She is responding well to her steroids, although her skin is starting to look a little more flushed. She is also gaining more strength in her body as the TPN is feeding her calories. She was able to stand up in the shower for the first time in 2 weeks! We are very thankful for her strength. She also had many visitors today, which was very encouraging!
On the down side, she had a fourth bout of torticollis (muscle spasms in the neck) tonight that affected more muscles than previous spasms. She was fully aware during this time and was much more calm in spirit, able to tell visiting friends how to hold her to prevent her body from convulsing too much. This was the first spasm that neither Dad nor Mom were present to help. Fortunately, Katy’s friend April was visiting and had come to visit earlier in the week when this happened the first time, and was able to get help for Katy right away.
Please pray that the steroids continue to work without side effects, and that her doctor could get to the bottom of these spasms. Overall, it was a good day. I’m sure there will be more good news to share soon.