This has been a terrific day! We started out rather slowly, but by noon Katy reported that her pain level was around a 2, the lowest it has been in a while. (that’s using the scale of 1 - 10). It has made a big difference in her ability to think clearly and enjoy the day. While Katy continues to show signs of improvement she does get in a hurry to get past this. I have to remind her of all the small steps she is making and the victories she has already won. It always helps her to hear the good things. She is already planning her TPN removal party.
Katy still has not been able to manage climbing the stairs to her room, but she is determined to try to manage it this weekend. All of her vision tools are upstairs and she is starting to think about getting back to finishing her Constitutional Law class. She has a special table set up under a camera that enlarges her textbooks enough for her to read. Someday I’ll take a picture of the way she sets everything up to do her schoolwork and post it. The technology is awesome, and she has just 3 classes to finish before receiving her 4 year degree. Her goals are out in front of her and our prayers surround her so she remains hopeful.
I was reading to her this morning from Psalm 119, “If your law had not been my delight I would have perished in my affliction. I will never forget your precepts, for by them you have preserved my life.” On the way to the hospital in the ambulance last week she said, “Mom, quote scripture!” I did because His law IS her delight!
I went back to work today for a few hours. I am thankful for my friend, Linda, who came to stay with Katy. I was able to get a few things accomplished at the office and it was good to manage something I could do something about!
God Bless you…so many of you, who are praying for our sweet girl. We are so thankful for you and we are praying blessings for you as well.Comments: