Wednesday, August 23, 2006

A Restful Night

Katy had a much better night last night. She had at least nine hours of peaceful sleep. She had another bout of spasms yesterday afternoon but we now have the medication at home to deal with it. She was pretty well exhausted after it was all over so we are grateful for the sleep she had last night. A huge thanks to Jennifer Blugerman and Lucia Moreland for helping Dawn and Katy through the afternoon spasms, both with physical support and prayer. Jennifer came in response to Dawn’s call for help and Lucia just stopped by at the perfect time (God’s time).

For those of you who have sent special messages to Dawn, I thank you from the bottom of my heart. She has been a trooper through this entire process, from the time she first suspected (before anyone else) that this might be HPS. Dawn and Katy have a special relationship. They are mother and daughter but they are also good friends, so Dawn has been suffering both as a mother and as a friend.

There is more good news for today than just a good night’s sleep (as good as that is). Katy ate a half cup of rice for lunch. That’s the first solid food she has been able to swallow and keep down since she went into the hospital at the end of July. She had a lot of pain with it, but discovered that walking around a little helped the pain to subside quickly. It may not sound like much, but these were two major accomplishments - eating solid food and discovering that she can do something to relieve the pain instead of just enduring it.

Many people have expressed how much they appreciate this blog as a way to keep informed. I have to say that we probably appreciate it more than any of you, because of the encouragement it gives us when you all leave comments. Katy has always loved to get mail (credit card solicitations don’t count) and she now gets mail (via this blog) every day. She also appreciates the cards many of you have sent.

Thanks to everyone for the comments, prayers, and moral and physical support. We are grateful and humbled at the same time. You all are showing God’s love to us.

  1. Dear Katy,
    I am very thankful you were able to have some sleep & eat rice. Praise God! I am so glad you enjoy getting mail–I do, too. I’ll have to send you some. :-)

    Katy, I am sure you want to know how we are all doing! So, I’ll be the newspaper for our family. ;-)

    Mom, Dad, Zach, & Adam are leaving for Alaska soon. And Zach & Shophie Wilhelm are coming to stay with us–we are in for some fun!! The Cohen girls came over today for awhile. And I’m getting over my sprained ankle–Praise God!


  2. Barbara Walker Says:

    Hi Miss Katy,

    I spoke to your Mom this afternoon and I was thrilled to hear you had a better night and even managed some solid food! Your Mom is so strong and has a battle plan for your situation. God is so good, isn’t he, when he provides for us through parents and Godly friends. I have offered to help in any way that I can and hope that you’ll take me up on my offer.

    Praying for you numerous times a day!!

    Yours in Christ,


  3. Karen Tillman Says:

    Dearest Katy,

    I am so glad that Paul posted something about you today. I was really starting to get worried, as I have checked your blog at least 5 times today, knowing that I would be at the hospital volunteering tomorrow, and not be able to check quite as often. I am truly THRILLED about the rice going down and staying down, not to mention your being able to alleviate some of the pain. Rice was one of the few things that sustained me when I was dealing with any bowel issues. Not the most flavorful thing in the world, but it was REAL food!!! I think it is amazing how God always seems to send us what we need, when we need it, so I am glad that Jennifer and Lucia could be with you. I don’t want to tire you out with just this message, so I am going to run for now, but know you are in my thoughts throughout most of the day. May God Bless You and continue to give you and your family the strength ya’ll need to get through this.
    Take Care and God Bless
    Karen Tillman
    Regional Coordinator Mid Atlantic USA
    Hermansky-Pudlak Syndrome Network Inc
    NC phone:336 954 3604
    NY office 1.800.789.9477
    my email:

  4. Grandma & Granddad Says:

    Hi Katy,
    We are so glad to hear about your better day. We are praying for you always. Grandma wrote a longer note a few minutes ago, but it somehow got lost when she was doing a spell check. We will have Carrie help us figure it out tomorrow. We pray that you will have another good night.
    Grandad and Grandma

  5. Laura Says:

    Hey Katy,
    I just love leaving you comments. Hopefully they’re making you feel better. I can’t wait till you can talk on AIM because I have sooooo much stuff to talk to you about. I’m going throught a Katy withdrawl. So was the rice Wegman’s rice? hehe I wish I could make those cute little yellow smileys, but well for now these will have to do :) :) :) :) :) :) :) :) :) :) Sleep tight, don’t let the bed bugs bite. Love ya buches of bananas
    ~LAura : )

  6. Laura Says:

    OOOOOO I did make the cute little yellow smiley’s. YAY!!!! :) :) :) :) :) :) :) :) :) :) :) :) :) :) :) :) :) :) :) :) :) :) :) :) :) :) :) :) :) I think that enough fun for one night. hehe

  7. Danae Says:

    I really wish I could see you. I was so sorry to read about your spasms the other night, but I’m so glad you had a better night last night!

    I know you have been asking how I am. I called your house Tuesday night, but you were already sleeping. I gave your Mom my room phone number (now that I know it!) so you can call that or my cell phone anytime!

    Radford is good. I live on the first floor of a thirteen-story dorm!! My classes are intersting so far, but I think I will have a lot of reading; I have 9 books for my children’s lit class! I have met many cool people from Campus Crusade. My only complaints so far are that I can’t reach the tray “disposal” in the cafeteria, and that I have no roommate OR suitemates! Hopefully I’ll get one or the other soon!

    Well, I should go because it’s getting late and I have class tomorrow. My parents will laugh at the length of this “comment,” but I know you probably check this a whole lot more often than E-mail right now.

    Love and prayers,

  8. Jillcha & Sidu Says:

    Where do I start? How can I comfort you, or your family?

    Dear Katy, as you are going through this tough times, I can only encourage you to stay connected with the Lord, who is able to bring you true comfort. We are praying for you everyday.

    With Love,
    Jillcha and Sidu

  9. Carole McFarland Says:

    Hello Dear Ones! We’re eager to see Katy if she is open for a visit, long or brief. Our schedule is flexible tomorrow and Saturday if this would work. Please call rather than e-mail, if possible. We are rarely on the computer. What can we bring or do? Looking forward to seeing our sweet Katy and her loved ones. Please know that you are in our morning prayers, but we would like to put some feet on them! Love, Carole (947-5505)

  10. Gene & Shirley Murphy Says:


    We have been keeping up with your progress and rejoice with not only how well you are doing, but rejoice with the bright prospect of recovery for the future.

    Keep shining! You are definitely making an impact upon those who know and love you.

    In Christ’s love,

    Gene & Shirley

  11. Aunt Judy Says:

    Hey Katy!
    We were all so pleased to see you and to spend the day with you last Sunday. I really enjoyed the little time I had to visit with you and the rest of the family - including chatting with Jenn. I hope we see you again when we come around Christmas.
    We arrived home about three yesterday afternoon and I have been busy getting things back to “normal” mode - whatever that is. I’m mulling my first few weeks of Jr High drawing in my mind - hopefully I’ll be able to get some of my “mulling” down on paper soon.
    Great news on eating the rice - it’s a step up from baby food and it’s good nutrition!
    We are continuing, as always, to keep you ever before the LORD.
    Love, Aunt Judy

    PS Nate was really glad to see Elisabeth and vice versa :)

  12. Jess Says:

    Hey Katy-Lady!
    I just wanted to let you know I’ve been praying for you! I’m glad that you were able to eat a little. Noah has just recently discoved the joys of rice and it is so funny to watch him eat it!! It seems like there must be some kind of explosive properties in our rice because it ends up all over the kitchen!! His hand/eye coordination is not great yet so there is probably as much on the floor as in his tummy!

    I’m glad that you got some good sleep! Sounds like you have been in need of it! I am proud of you - for your strong spirit and faith! You really have been an encouragement to so many people through this ordeal! God is moving! :)

    We love you and hope you have a good day today!
    Jess Lankford

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