Friday, August 18, 2006

Katy is Home

Katy is asleep in the guest room on the first floor, and Paul and I keep peeking in on her, very much like the day we brought her home for the first time. The trip home was exhausting for her, and we are seeing the signs that recovery will be slow but now she is able to get the rest she needs. The home health care nurse met us here at the house when we arrived and we had 7 bags of her nutrition IV packed on ice from the hospital. The nurse was trying to teach us how to flush the port, add the proper amount of insulin to each bag, and how to check insulin levels and give the injections. I was thankful that Paul Burton was home and had just finished teaching his last music lesson and could join us. He had done all of those things when he worked in Oncology, and again I am astounded by God’s provision by giving Katy a brother who can care for her like that!

On the way home Katy was rather quiet. I asked her if she was doing alright and she said, “Yes, I am just enjoying everything I see.” It was one of those end of the summer days here in Virginia that was warm and breezy with low humidity, and the blue sky and sunshine made it seem to us like everything was rejoicing including us.

Our prayer for Katy is that she will soon be able to take in nutrition by mouth. She tries hard, but has to stop after just a few bites. We are also praying that her feeding line stays free of infection.

Thank you, Fairlight, for staying with Katy last night. She enjoyed that but was afraid she wasn’t much company. I also want to thank Freddy and Jennifer and their children for taking care of Ellie everyday; she’s one happy dog! Thank you also for the way you decorated the house for our homecoming! It was so festive and Katy sure enjoyed the pictures that the children drew. God just keeps blessing us with kindness from our friends and family. Katy has said many times that she feels so loved. Thank you all for that.

Comments:

  1. Heather Kirkwood Says:

    I’m so glad Katy is home!!!!! That’s wonderful news!!!! I know what she means about the car ride. When you’ve been cooped up for weeks, it’s so amazing to see the world again! Hope the birthday party goes well!

  2. Carrie Thompson Says:

    Dear Katy,
    I am so glad that PB can take care of you & give you your nutrition! I bet you are just happy to look around your home & enjoy it! I love you & am still praying for you.

    Enjoy the birthday party Sunday! Praise the Lord you are home! :-)

    Love,
    Carrie

  3. Jennifer Says:

    Katy,
    YAY!!!!!!!!!!! I just caught up with your blog after being “out of touch” with the blog world for two days. I’m SO glad to hear you’re home!!! I just know this is the best place for you to be. Tell Dr. Paul to spoil his patient a lot. :-D
    love you girl,
    Jen

  4. Aunt Jackie Says:

    Dear Katy,

    I love reading your blog. We are looking forward to seeing you all tomorrow! Love and Prayers, Aunt Jackie

  5. Great-Aunt Doris Says:

    Dear Katy,
    We have never met, and I haven’t heard much about you, but my sister Lillian emailed me and told me about your condition, and pointed me to this site.

    Thank God that you have a great family and many friends!

  6. Patricia Hagsten Says:

    PTL!!! So glad you are home and will be receiving lots of TLC from your parents. That will help you thrive! Enjoy your grandfather’s 80th birthday!
    Now that you have a definite diagnosis confirmed at least the uncertainty is behind you….and, you know that you’re not alone in fighting this condition. I know that when Lisa was finally diagnosed properly with fibromyalgia it helped to know that there are others “out there” facing the same symptoms and syndrome clusters.
    How wonderful that your faith is so well grounded and vibrant.
    Best wishes!
    Ib, Lisa and Patricia

  7. Jennifer Blugerman Says:

    Katy,
    We are so thankful that you are home! I know that the challenges are not over, but they will certainly be more pleasantly faced from the familiar and lovely surroundings of your home! Try not to overdo it at first! Your temptation may be to attempt giant leaps out of sheer excitement to be out of the hospital. Relax, rest, and enjoy these late summer days like an old, lazy hound dog! ;-) I’ll bet it won’t be long before your mom can wheel you down to the creek to sit in the glider swing! Nice place to watch the day go by! Take care. We love you!

    -Jennifer B.

    “When the LORD brought back the captives to Zion, we were like men who dreamed. Our mouths were filled with laughter, out tongues with songs of joy. Then it was said among the nations, ‘The LORD has done great things for them.’ The LORD has done great things for us, and we are filled with joy! Restore our fortunes, O LORD, like streams in the Negev. Those who sow in tears will reap with songs of joy. He who goes out weeping, carrying seed to sow, will return with songs of joy, carrying sheaves with him.” -Psalm 126

  8. Sandy Says:

    Welcome Home Katy! I found your blog through Heather’s blog. I hope the days ahead — at home! — are filled with peace and hope and increased strength. You are in my thoughts and prayers.

    I have the platelet disorder associated with HPS but do not have HPS. I just returned from the NIH. The people there are wonderful and will take excellent care of you.

  9. Fairlight Says:

    Hooray that they really let you go home! It has to be much more restful to be back with your family in your familiar surroundings…And don’t feel at all like you weren’t enough company–I was actually surprised to see you alert for as long as you were, and really enjoyed the time we had to talk after your steroid shot. (It’s probably a very good thing you got sleepy after that, too–talking half the night is probably NOT what you need right now to hasten your recovery!;-) )

    So glad you’ll get to be at home for the birthday party tomorrow, and to enjoy all your relatives…

  10. Candice & Crystal Sipe Says:

    Hi Katy,

    It’s Candice & Crystal. We aren’t sure if our last entry went through, so we’ll try again. We are also Eastern Indians, adopted at the age of one. We were diagnosed with HPS at the age of 13. I, Candice have alot of medical issues. I was on TPN for a year, no food by mouth, when I was 14. I can relate to your GI problems, but hang in there, it will get better. We are gospel vocalists and thank God for our voices, since we only use 65-70% of our lungs. We would love to talk to you sometime when you feel better. We are so glad yor home. We are praying for you.

  11. LInda BUrk Says:

    HI Dawn, Paul and Katy..wow what a time you have had..I have passed on your news to Patricia Hagsten. I had emailed ealier but want to remind you that our home is probably 45 minutes to an hour from Bethesda hospital..so if anyone wants to stay here, our doors are open.thank you for this blog..I am new to blogs but what a great way to stay in touch with everyone. We are praying for your recovery..JT is out of the marines now and living at home and working. He has signed up for a college class at night.Julianna and DeCarlo are home from their honeymoon in CAbo, Mexico..School starts for me on Tuesday.. hugs to all..Linda and Jack

  12. Elaine Newton Says:

    Katy,

    So glad you are home. I never could have imagined you would be in the hospital from the day we saw you enter until now!! We have prayed for you and thought of you, not knowing you were not home. I talked to Elizabeth Harris and she filled me in on what you had been going through.

    God is so good and has blessed you with a wonderful family. We are blessed to know you all!

    Praying for continued good health. I’ll keep up with you now that I know about the blog site. I couldn’t find it until now.

    Love you,
    Phil & Elaine

  13. Linda Kochendarfer Says:

    Katy,
    I hope you had a good night’s rest; it was great to spend time with your mom and dad at small group yesterday. The weather is suppose to get cooler the middle of this week; as you get stronger I hope you’ll be able to get to the upstairs porch, the special bed and watch the leaves begin to change colors! We love you so, Katy. You’re my hero!
    Mrs. K


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