Today, Mom and I got up early to get ready for my doctor’s appointment. It takes me a long time to get ready now, because of the TPN. My mom has a way of wrapping my arm with a plastic trash bag and tape. This enables me to take a shower by myself, but as you can imagine, everything takes longer when you’re hooked to a feeding line.My doctor’s appointment went well. I told my mom I really like Dr. Dye because he is calm. Because HPS is so rare, we find that at least half of the doctor’s appointment is spent educating the doctor about this disease. Dr. Dye was a good listener. I have to go back to the hospital for a couple of tests. Then I will see Dr. Dye again in mid-September.
On the way home, I was feeling pretty good, so we stopped at Wal-Mart. They have a wheelchair with a basket attached and I rode around in that. This is first time I got to shop for my baby food! You should try the vanilla custard sometime. Yum! Shopping is so theraputic, but now I’m ready for a nap. I guess I shopped until I dropped!