Katy with her equipment
Katy looking great!
My parents were actually able to go to church this morning for the first time in several weeks. That was really refreshing for them. Then, we all met at the hospital around 3pm and had a time of worship together with my brother playing guitar. It was a sweet time of prayer, singing, praise, thanksgiving, and reflection on God’s goodness. Katy really enjoyed it.
Five minutes after Katy got in bed for a nap, she sat upright and said she didn’t feel right. We had learned that this meant we had about 20 seconds to get into position to prepare for a spasm attack. It took my dad and me both to hold her arms from flailing. Her spasms made her look like she was rowing a boat in bed. She wins the award for strength, because she moved her arms, legs, and did sit-ups like that for just under 2 hours!!! Ativan and Benadryl finally stopped the spasms, but it took a lot more than before, and the spasms lasted much longer than before. A neurologist said it looks like Katy’s body is still reacting to traces of Reglan, which her doctor originally believed was the culprit and took her off early last week. Tomorrow, she’ll have an MRI and EEG to check for normal brain activity to see if they can pinpoint where the spasm problems are starting. They are also going to give her a little medication on regularly intervals to try to prevent any more spasms. Katy was really thankful that these spasms are not a symptom of HPS, but only a temporary reaction to some medications. The amazing thing about all this was how calm we all were, especially Katy. Several times she calmly said, “I’m trying to make them stop, but my muscles aren’t listening!”
Katy also had an X-ray of her belly tonight because it was a little bit distended (bloated).
- For Katy’s body to rest up from all that physical activity (good thing she’s on pain meds).
- For no more spasms!
- For an accurate report from the MRI, EEG, and X-ray.
- For Katy to continue gaining strength.
Thank you so much for the many comments we’ve gotten this weekend. They’ve been such an encouragement! I wish we had time to respond to all of you individually!