Friday, September 08, 2006

More Good News

We went to a Doctor’s appointment early this morning and had a chance to see one of Katy’s doctors who had not seen her since she left the hospital. This dear lady was such an encouragement and I think Katy’s good health may have surprised her! Dr. Emily Doherty has just moved to Roanoke with her husband, and she has had experience with HPS and worked in Bethesda with the doctors there who will be seeing Katy. Dr. Doherty has been helpful in putting a team together to manage Katy’s care here in Roanoke. We have had some great care for Katy right here in the Roanoke Valley and it has made all the difference in our ability to meet Katy’s needs. We are so thankful for that.

One of the great surprises of this morning happened when Dr. Doherty asked Katy to let one of her colleagues check a problem Katy was having with her knee. When the doctor came into the room I recognized her as the Indian woman who spoke Gujararti (Katy’s native language) to Katy when she first arrived in Roanoke and didn’t understand English. That was 18 years ago. Dr. Desai was just as amazed as we were. She had often thought of Katy and remembered her as a 4 year old in this strange new land. It was Dr. Desai who taught her to sit on a toilet rather than stand and squat as she did in the orphanage. It was a fun reunion and we all hugged in the end! And in other good news it appears that the damage to Katy’s knee during her spasms may heal on its own with time and exercise.

The recovery from this bout of intestinal inflamation is going very well. That means that by this time next week, if Katy is still eating 800 calories a day, her TPN will be removed for 8 hours a day. This news has her thinking. She said with a grin, “I just am happy about doing normal things like taking a shower, going places, and freedom.” Ah, thank God for the little things!

Comments:

  1. Linda Kochendarfer Says:

    Katy,
    My grandson Adam and my granddaughter Alyssa are with me while I type this. We have all just looked at the pictures of you on your blog. I am so happy you got to eat some chicken yesterday! How wonderful that you could also meet the doctor who helped you when you were just four. We miss you and are sending along a postcard of some pretty country we hiked in yesterday; Alyssa sends her love and Adam says hi to you. Know that we continue to pray for you each day and are excited God is blessing you with strength. We can’t wait to see you without your TPN backpack. Freedom at last!
    Love,
    Mr.and Mrs. K and Adam and Alyssa

  2. Carrie Thompson Says:

    Dear Katy,
    It is so wonderful to hear you are doing better! Won’t it be good to have that kind of freedom.

    ‘Round here everybody is in bed–the rest of the family is somewhere in Ketchican, AK!

    Lots of Love,
    Carrie

  3. Heather Kirkwood Says:

    Wow! It’s really amazing the doctors God has put in your path during this journey! I’m still just amazed that you’d find someone with experience with HPS so close to home. There’s no one in Kansas City that has any experience with it. My doctor and I just wing it together with the help of NIH if anything worrying comes up. And then to find this long lost connection - how amazing is that! Miracles do happen! Isn’t it funny how some people never notice the miracles all around them? But, I know you and your family have seen them all along this journey.

  4. Aunt Judy Says:

    Hey Katy!
    Chicken sounds good! It won’t be long ’til you’re eating all kinds of food! Yum!
    I was showing Uncle Todd the pictures from Granddaddy’s birthday party and when he saw the picture of Aunt Jackie, Heather and Laura he said, “Simon says, ‘Hold your ankle.’” That’s Uncle Todd for you.
    Love,
    Aunt Judy

  5. Karen Tillman Says:

    Hey Katy,

    I am truly thrilled at the progress you are making. Our god is truly an awesome God!!! Take care and will write again soon. Been up since 5am doing the yard sale thing!! Ugh!!!!
    love
    Karen Tillman

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