Wednesday, September 06, 2006


Katy and I had a great day. We waited until tonight to share the news that at noon today, Katy ate her first few bites of chicken. Real chicken! Not ground, pureed, or from a jar! We waited because we wanted to be sure it stayed down and didn’t cause a problem. She is feeling great. Her outlook this afternoon was downright bubbly. She is counting on getting free from the TPN soon. There are several HPS friends that have endured many months on TPN. Our hearts go out to them; it is not easy to deal with week after week. I count them among some of the most courageous people I have had the joy of getting to know, and I am grateful for the way they have encouraged Katy by saying things like, “It does get better!”

The chicken was a rotisserie chicken that I bought and brought home hot. The aroma filled the kitchen and Katy decided to chance a few bites, because the smell was getting to her. She chewed it slowly with her eyes closed. I wish I had taken a picture.

Many of you prayed specifically that Katy would be able to eat. Today was a giant step forward, and an answer to prayer. Thank you all so much for your prayers. We’re so happy to report this news!

  1. Jess Lankford Says:

    Yeaaaa for chicken!!! I’m so happy for you Katy! I’m glad that it didn’t cause you pain and that you were able to savor the taste! It will be no time until you are able to eat that big chocolate birthday cake!! I’m sitting at the kitchen table - staring at my computer with a big silly grin on my face - happy for my friend and thankful for a God who answers prayers!! :)

    We love ya!

  2. Heather Kirkwood Says:

    Bok, bok, gobble, gobble, let’s hear it for chicken!!! I pretty much live on chicken! My dad couldn’t eat red meat when I was growing up, so we ate chicken and fish. For a month I had to track everything I ate not too long ago, so I put it on the blog - and pretty soon all the google ads (placed via words that appear often) were for chicken recipies! HA!!!!

    I’m so glad you were able to eat some “solid” food, and that it went so well. Way to go! And yes, God does answer prayer, and it DOES GET BETTER!!!! Grin!

  3. Lynne Kilburn Says:

    Oh Katy! That Death by Chocolate Cake is not far away! I can hardly wait!

    Glad you enjoyed your chicken and pray you have a restful night!



  4. Barbara Walker Says:

    Praise the Lord - He is so good!! Direct answer to prayer gives us such joy!!

    You’re doing great Katy!



  5. Laura Griffith Says:

    Just letting you know I’m still reading the blog everyday and sometimes checking several times for the update. I don’t always comment but maybe I should until you can figure out the counter thing for your site. I know the picture of the cake makes my mouth water. Do you know that there is also “Death by Chocolate” ice cream. It’s a premium Kroger brand, very good. Glad to hear the chicken stayed down and pray that your menu gets to expand soon.

  6. Sarah Says:

    Katy!! That is such good news!! What a tasty first thing to eat, too! :-) Praising God with you as you continue to improve day by day. His mercies are new every morning!!

    Love and prayers going out to you!

    Btw… LOVE the banner pic! Yum!! :)

  7. Karen Tillman Says:

    Hey Katy!!! Way to go!!!! I certainly know how you felt getting those first bites of food after being on TPN for a month. I remember one of the first meals I had was meatloaf, and it was soooooo goooood!!! Anyway, I will continue to pray that you will keep improving, and so will my family and friends locally and in the HPS Network. Take care and good night.
    Karen Tillman
    Regional Coordinator, Mid Atlantic USA
    Hermansky-Pudlak Syndrome Network Inc
    NC phone # 336 954 3604
    NY phone # 1 800 789 9477
    my email:

  8. LInda Burk Says:

    HI..I love the picture of you today with the roses…I sensed a feeling of calmness…….Paul Burton is another blessing with his medical knowledge..I feel the same way with my daughter Maggie..we had a neighborhood picnic at someone’s home on SAt for about 80 people..I was on the committee./glad the rain stayed away..everyone had fun..back to school night last week went well.. praise the Lord..hugs to all, Linda

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