Tuesday, October 31, 2006

Tuesday's Blessings

By faith I am believing that there is a lot of healing going on inside Katy’s body that will bring glory to her Healer soon. Her steroids and other medications are beginning to settle the swelling in her abdomen. She had broth this evening without an increase in pain as it traveled through her body. How often have we sat down to a meal and said, “bless this food to our bodies,” and never thought about what it is like for people suffering with intestinal disorders who pray that same prayer with fervor, begging God for the food to be a blessing. Katy’s last meal was a jar of baby food on October 7th. Yet, today we can say with full delight, “Oh taste and see that the Lord is good.”

We had another precious day in the Word. Our devotions and prayer centered around the book Praying God’s Word by Beth Moore. It is one of those books to keep handy when you want to pray using God’s own words as you speak to Him about your difficult circumstances. We prayed for many of you and your ministries, as you asked.

If you can imagine us with bed head, in our PJ’s, with the sunshine streaming through the lace curtains at noon, then you have a picture of our perfect day. After the noise and activity of the hospital, the relief we feel to be home is enormous. Praise Him!

Comments:
  1. Aleah Yunger Says:

    It’s true! I stalk this website, ever waiting for new updates :) Tonight I just wanted to share with you some beautiful words, lyrics from “Jesus, I Come” - I thought of you as we sang this tonight…

    Out of earth’s sorrows into Thy balm,
    Out of life’s storms and into Thy calm,
    Out of distress into jubilant psalm,
    Jesus, I come to Thee.

    Praise God for broth and PJ’s! Thinking of you as always…

  2. April Lang Says:

    My Precious Friend,
    What a joy it is to hear that you have eaten some broth and it just seems like the Lord is allowing you and your mom to enjoy some precious time together and a time to study His word - to know Him more!!! What a precious Savior we know and serve!!! Keep smiling dearest friend!!! :-D

    Luv you!
    April

  3. Sonia Says:

    So happy that you guys are home and that Katy is feeling a little better! Praise God!!!

  4. Jess Lankford Says:

    Hey Katy!
    I’m so glad that being home is more restful! You really do have a wonderful place to recooperate! I’m thankful that the broth didn’t create more pain and that the medications seem to be taking effect!

    I’ve found a new interesting website recently - when you are stronger and can spend some time on the internet - we should talk! I think it might be right up your alley and I would love to have a friend volunteering with me! :) (And the best part is everything can be done remotly - via internet!)

    Thinking of you and praying for you often!

    Jes

  5. Linda Kochendarfer Says:

    Katy,
    When I dropped by the other day while you were resting, I wanted you to know how you made me smile. As I drove up, your mom had her sheets and towels out drying on the line . . . I just knew that while that task can sometimes be a real chore, Dawn was joyful to be at home taking care of such everyday things. When I stepped into the foyer, there you were sleeping on your cot and the life of the household was going on all around you! Even Ellie was there adding her “Woofs” to the chorus. Rich and I are so glad you’re in your own home and feeling a bit better. I am assuming you know Candice is having surgery next Wednesday on her lung. As you pray for the many requests people have been sending you, would you also remember her and her dad? I know they are anxious to talk to you as soon as you’re strong enough. I’m on the way to the Church Revitalization Conference in North Carolina with Mr. K. We’ll be back Saturday but will keep up with what’s going on through the blog. Bunches of love to you, Katy.
    Mrs. K

  6. Jan Domalski Says:

    You two are such an inspiration to me! I really did imagine bedhead, etc! Dawn, you have such a great gift of expression.
    John has been inspired as well, Katy, by your firm commitment to our Lord under such hard circumstances. You really have no idea how many lives you are touching spiritually - as the scriptures say, our sufferings will be used to help others. We all want to have your faith, dear child. You are living out Job 23:10. Maybe that sunshine coming through those lace curtains is as bright as it is because it is beaming onto all that gold in that bed!
    Praying for you all.

  7. Trisha Ferris Says:

    Katy,
    Like Mrs K., I’m going to be traveling for a few days. Maybe next week will be a good time for me to visit. I’ll bet you’ll be eating filet mignon by then! Do get someone to take a pic of you & your mom with bedhead. I’ll reciprocate by showing you a really bad one of me.
    My soul feels peaceful, knowing you are in a place of peace & rest. What a gracious home you & your mom have created, much lovlier than any hospital room, right?
    But whereever our Lord has you, you are in His strong, neverfailing hands. Rejoice that you are His.
    In the Lamb, Trisha

  8. Barbara Walker Says:

    Dear Miss Katy,

    I was just reading my Bible and thought of you instantly when I read this passage:

    The Lord Your God is with you,
    He is mighty to save.
    He will take great delight in you,
    He will quiet you with His love,
    He will rejoice over you with singing.

    Zephaniah 3:17

    Can you picture yourself being rocked in the Lord’s arms as He quiets you?! Pajamas, bed hair and all!!

    Love to you in Christ,

    Barbara

  9. Jane Slocomb Says:

    October 29th, 2006
    “She voiced her concern that she was not contributing much to the family or anyone else and it was a source of frustration.” Oh Katy, you don’t even know me and I have felt what I cannot even put in words from your bed of suffering. I can sense the peace, joy and love that pours forth from the Christ in my heart. I absolutely know without any doubt that all my fears, anxieties, losses, pain will be so completely enveloped in the arms of my precious Savior when I am with Him walking on those jeweled streets you saw. You have touched my heart so completely. You have breathed into me the fragrance of Christ’s love. I know that nothing on this corrupted earth has any value, except Christ and Him glorified. Not even the hurt of not seeing my son for three years or my grandchildren. I know so well that all will be right one day in His presence. All will be completely covered and completed in the love of Christ. I will know love as you have known, I will be at peace as you have been, I will be cherished as you are. And even now I have such a part in those things and dear Katy you are a part of the Lord’s wonderful work in my heart. Katy one thing I have learned during much suffering…whatever befalls me is precious and good because nothing can befall me unless the Lord allows it. His love is so full and complete I am safe walking through the shadow of death…He is with me. You dear one, are such a blessing to me. I have seen the wondrous love in the presence of the Lord with you. You have wrapped me in the joy of the Lord. My heart overflows with Christ and the completeness of His love and you have given me a window, a view of the fullness of love. Thank you, dear little sister, you are my daily blessing.
    Jane Slocomb (gramma to 4 plus one coming)

  10. DeeDee Says:

    Dear Katy,
    I was reading through Ps. 119 this morning and when I came to verses 73-77 you were instantly placed in my mind and on my heart. They read as follows…
    * Your hands have made and fashioned me;
    give me understanding that I may learn your
    commandments.
    * Those who fear You shall see me and rejoice,
    because I have hoped in Your word.
    * I know, O LORD, that Your rules are righteous,
    and that in faithfulness You have afflicted me.
    * Let Your steadfast love comfort me according to
    Your promise to Your servant.
    * Let Your mercy come to me that I may live: for
    Your law is my delight.

    Oh Katy, if you only knew how many people see you and rejoice because of your hope in our great God, I know you would be overwhelmed.
    Amidst the struggles that you have endured, I so appreciate the smiles that have peppered your journey. What a vivid picture your creative mom painted in my mind of two pajama clad bed-heads snuggled in bed on a glorious sunny day. Thank you for sharing the sorrows and the joys with us.
    How thankful I am in knowing how near to the Father’s heart you are. Love, DeeDee

Monday, October 30, 2006

Mercy and Job

Between soaks in hot towels and medications, Katy and I invested the day in study and prayer. Her Sunday School teacher gave us a book by John Piper called The Misery of Job and the Mercy of God. It is the story of Job in poetry. We talked about the lessons we are learning about suffering and pain and our home felt like a sanctuary all afternoon. We recalled how many times we felt the presence of God in suffering and how it delivered mercy to our spirits. Her tears are precious to me, so I can only imagine how blessed the Lord is to be the silent witness in our conversations.

(excerpt from the book)

The Lord has made me drink
The cup of his severity
That he might kindly show me
What I would be when only he
Remains in my calamity.

There are days when we ponder the hardship, but then there are days sprinkled with joy. Even the hardest days are laced with laughter. A few weeks ago Katy wasn’t able to swallow but she was so hungry she was licking the salt off Sun Chips. As she licked off the salt she placed the “used chips” in a bowl on the table. The next day, after a friend had come to clean I noticed the bowl on the table was empty with only crumbs remaining! I was horrified! I was sure this friend saw them, felt hungry, and ate them! I ran to my husband and explained what I thought had taken place and he said, “You can relax, I fed them to the dog last night.” We laughed until our noses needed blowing. Ah, laughter, another form of mercy!

Comments:
  1. Helen Mast Says:

    Dear Paul, Dawn and Katy,
    I have only recently learned that Katy is still very ill. I had lost the website address and mistakenly thought she was doing better. Katy, you are so dear to me. Your mom and dad are too.I remember when I first met all of you. It seemed I had been given a mission to help this family with this tiny child. I wanted to guide you through the special ed process and support you in all the meetings with the “big wigs.” I wanted to help you succeed. You were such a hard worker and so eager to learn. What a blessing you were to me! We have been in and out of touch over the years, but I have been able to keep up through all the other people who love you and your family. Dawn, I will never forget how you took so much of your precious time to listen to me and to comfort me in Belk that day. I have forwarded your website to others who care. I continue to pray for all of you during this difficult time.
    Love, Helen

  2. Karen Tillman Says:

    Hey Dawn,

    I will have to say that sometimes laughter is the best medicine, and that is why I think God gave us that emotion. Katy licking those Sun Chips reminded me of when I used to lick Lance Toastchee Crackers. The nurses always seemed to be amazed that I could just be satisfied with just licking them. And my reply was, who wants to writhe in pain for a bite of food. They just would look at me strangely and laugh!!! What else can you do but laugh? Besides crying just makes it harder to breathe, so I choose laughter, even when it seems so hard to laugh!!! You guys take care and keep on laughin’!!!!
    Love Always
    Karen Tillman

  3. Jennifer :-) Says:

    Keep laughin’, Katy and family. It really is good medicine. :-)

    He is FAITHFUL and will continue to meet all of your needs!!

    With love and prayers,
    Jen :-)

  4. Heather Kirkwood Says:

    That is too funny!!!! So, what would you have done if he hadn’t fed them to the dog? Ha ha ha!!! Thanks for making me giggle! I needed it!

  5. Annie Kibler Says:

    Katy and Dawn,
    I have licked things the same way with my mom watching in awe. I’ve never heard of anyone else say they’ve done the same thing. I had to LOL when you wrote of what you thought happened to them. I can’t wait to share this funny story with my mom. Thanks for sharing. Hang in there and keep laughing when you can. HAPPY HALLOWEEN!!!!
    Love Annie

  6. Laura Griffith Says:

    Just thinking of you and wishing you much comfort. Ya’ll are still in our prayers.

  7. Jennifer Blugerman Says:

    Hey, I think I see a new marketing angle… Introducing NEW from Nabisco…”Lick-O-Chips!” Now you can satisfy your taste for salt AND provide man’s best friend with a tasty treat! Simply lick to your heart’s content and then give the remaining chip to your dog for a satisfying, healthy snack! Comes in bacon, cheese, and NEW meaty beef flavors! YUM!

    Keep laughing!

    -Jennifer :-)

  8. Justin Sowers Says:

    I am a member of Wellspring Pres. Church and i have met Katy on a few occations and the times that i have met her she was a verry sweet person and you guys do a wonderfull job on this website. I also am a friend of Paul Cambel and he has been seing a bright side of the world through this hard time of suffuring and discomfort. I just wanted to let you guys know that i have been praying for the family ever since i herd about the tragedy. Thanks for your time.
    Yours Truely,
    Justin Sowers

Sunday, October 29, 2006

"Go In The Strength You Have"

There are times that I see the discouragement in Katy’s eyes that comes from a lengthy recovery. I wondered if I should venture into that with her when I suddenly found the perfect opportunity. She voiced her concern that she was not contributing much to the family or anyone else and it was a source of frustration.

The Lord brought this verse to mind over the past few days and a “teachable moment” presented itself with Katy’s statement. I shared this with Katy last night. Gideon was so small and overwhelmed by the command of the Lord to go into battle to save Israel out of Midian’s hand. But that didn’t matter to God. Judges 6:14 says the Lord turned to Gideon and said, “Go in the strength that you have.” I asked her if she had enough strength to pray. She said, “Yes.” So I asked her if that is all the strength she had, would she be willing to use that energy to pray? She said, “yes.” So Katy has begun her prayer ministry. It is all the strength she has, but prayer is a powerful weapon and there will be some serious changes happening for the people that she will pray for. James 5:16b states, “The prayer of a righteous man is powerful and effective.” YOU GO GIRL, IN THE STRENGTH THAT YOU HAVE!

16 Responses to ““Go in the strength that you have””

  1. Jennifer :-) Says:

    Dawn, thank you for that encouragement. So often it’s easy to get wrapped up in our trials and have tunnel-vision…we forget that He has promised to never give us more than we can handle. And that verse about “Go in the strength you have” goes right along with that. :-)

    I’m so thankful, Katy, to hear that you’ve gotten so much good sleep and also are learning to handle the pain. That’s truly an answer to prayer. Hang in there and keep strong in HIM!!
    love,
    Jen

  2. Aunt Carrie Says:

    Katy,
    Of course you are contributing! Think how many prayer lives you have improved! :~) Think how your blog keeps your extended family in touch. Think how people have rallied around and built faith through the way you find blessings in some of your most miserable periods. Think how you have given people a way to reach out and exhibit caring they may not have known they were capable of. You are indeed righteous and powerful.

    Let me tell you that when you were just a picture on the refrigerator for your family (Kinda like being a gleam in your Mommy’s eye…) They told Uncle Dave and I that a doctor had looked at the picture and commented to them that you would certainly require medical care. That only strengthened their resolve that you should join their family.

    Do everything that your strength allows. (We pray for you physical strength to improve and for a lengthening of those periods that are free from pain.)

    As I write this, Uncle Dave is playing a CD he recorded last night. It is from a benefit concert for a friend of ours that had a stroke this summer. Many of the bands had someone that just wanted to give back to a community that had helped them in a time of trial (Leukemia, Heart Attack, Car Accident…) Now is your time to accept help. Later, will be your time to give back!

    Hang in there! Love and prayers,
    Aunt Carrie

  3. Aleah Yunger Says:

    Inspiration! That’s all you all are - truly! What a wonderful mother, to point you in the right direction.

    I could use a prayer warrior, Katy - I think you are the right one for the job :) Please pray for me about the rest of this semester at school. I can feel myself straying from God and forging my own path through the wilderness - and I can see that it isn’t working! I could just use prayers that I will ignore all the thorns and blinders that I put up to keep myself from looking fully at my Father and following His ways.

    I would love to come visit with you over Thanksgiving break or during my month in for Christmas break if you’ll be too busy over Thanksgiving. I would love to share some of the stuff I’ve been doing at school with you :) I know how you love politics and government stuff! We can have prayer with one another too - I would dearly love that. Praying for you!

  4. Sarah Meador Says:

    Katy,

    Echoing your mom, I want you to know that you are most definitely an encouragement to so many of us. I read this blog daily and am always blessed and uplifted by you. You, my dear, are a blessing and a source of God’s grace and beauty. I continue to lift you up to our great and merciful Father each day. I love you and am so thankful for you.

    Thank you Dawn, Paul, Colin, and Julie for keeping us so thoroughly updated. I truly appreciate the time you give to keeping us all up to date on Katy’s status.

    Much love to all of you,
    Sarah

  5. Lucia Says:

    Dear Dawn,
    Greetings in our Lord Jesus. Praise to His Holy Name. The girls copy your blog site for me-I staple the days together. I read all the updates they print out for me- then, I read them again. I’m reading this living journal-and anticipating God’s special work in your families lifes. This is the first time I’ve gotten myself on the computer-what a lovely picture of Katy with the purple, white flower mix! I’ve been planning to write for some time now-I finally get up here on the computer-I read Katy’s last comment (about adopting her if you knew all these things would pass) Then I cried more and more.I
    thought- I can’t think of what I want to say now! Thanks Katy! Thank you to all your family for keeping this journal going. Thank you for being such an encouragement to those of us listening in watching you walk like Jesus.
    Everyday we pray for “Katee Cambull ” Julianna brings up her name throughout the day. Even when the day may seem busy and too much to do- Juli leans over and whispers, “pway por Katee Cambull” She requested to come and visit Katy. We hope someday soon that will be possible. We prayed again this morning for all of you at One Faith Fellowship- You have been on my heart all week,at different times of the day. I have asked God to help you have the energy to accomplish your new daily tasks.
    This past week, I would talk to God and wonder why all this is happening to Katy. I began praying for her birth family. I began coming against generational curses-then tonight as I sat here writing -God has shown me John 9. The story of the blind man. His disciples questioned Jesus as to why he was blind. He told them it was not because of any sin he commited or any sin of his parents. His blindness was an opportunity for God to show his glory and power. Jesus said, “that the works of God should be made manifest-revealed- in him.”
    Your family is very special. Recently, Shane was recalling one of Katy’s visits to the channel 10
    newsroom. He was very impressed with how she has grown up and carries herself very professionally.
    “Hast thou not known? hast thou not heard, that the everlasting God, the Lord the Creator of the ends of the earth, fainteth not, neither is weary? there is no searching of his understanding.
    He gives power to the faint; and to them that have no might he increases strength.” God Bless you today Dawn, Paul and sweet,precious Katy. May His merciful strength be upon you.Love in our Lord Jesus Christ, Lucia

  6. Candice & Crystal Says:

    Dear Katy,

    I agree with the words your mom has shared with all of us tonight. Prayer is a powerful tool. It is a gift that the Lord has given us so that we can communicate with him. It is wonderful to know we can share our hearts and words with our loving Lord. Even when we don’t have all our strength and energy. I want you to know that we are all praying for your recovery and we can’t wait to hear your angelic voice on the phone. You have been a blessing and an encouragement to all of us and we miss you much. Thank you Paul, Dawn, Colin, Julie and Dan for keeping all of us posted on Katy’s health. We love you all!!

    Your sisters in Christ,
    Candice & Crystal

  7. Aunt Judy Says:

    Thank you Katy, for being willing to be a prayer warrior. That is no little thing. What a blessing to draw near to the lord in prayer, knowing that as you intercede for others your own sweet fellowship is growing. I will ask for intercession for our family. As we complete our years of homeschooling this spring Uncle Todd and I need direction for our next step. A job for me - new possibilities for him - and of course direction for the boys as they make decisions about careers and schooling. As you have time and opportunity we would desire your voice lifted in prayer for us, and know that our voices are daily lifted in prayer for you.
    We love you and we are glad that you are a part of our family.
    With love abounding,
    Aunt Judy

  8. Trisha Ferris Says:

    Katy,
    Your walk through this suffering to which you have been called, & it is a calling, has so encouraged my faith. Your contribution to my life has been immeasurable, & I have been strengthened to do the things God has called ME to. So often we don’t get to see how our little lives are of any value in the Kingdon of God, but He makes no mistakes & each of our lives, whether “busy” or laid down, are part of the beautiful tapestry He is weaving. A tapestry called His glory. What a day it will be when we can see the whole fabric & finally see how our particular lives were woven in so perfectly.
    I covet your prayers for me as a mom, grandma, wife, neighbor & friend.
    In the Lamb,
    Trisha

  9. Linda Kochendarfer Says:

    Katy,
    Good morning! It must be wonderful to wake up in your own bed in that very special room of yours. I am imagining that you will be able to sit up for a while and look out the window at the creek and the beautiful fall leaves. Rich and I went to the Reformation Service at Westminster Presbyterian last night. It was amazing to talk to those who were aware of your illness and see what a blessing you’ve been to so many. Sarah Meador and I got to chat for just a moment; what a sweet young woman and a dear friend she must be. As you gain more strength I would enjoy coming to help you scrapbook. Mr. K has pictures of the wedding and some gorgeous autumn photos he wants me to bring to you to enjoy. Katy, we love you and want you to know that God brings you to our minds numerous times during the day - we pray for you and rejoice in your precious ministry to those of us who are learning from your perseverance.
    With thankfulness for you,
    Mrs. K

  10. Kendall Pelish Says:

    Katy,
    If I understand this post you are now establishing yourself as a prayer warrior. I wouldn’t want to burden you with my requests, but it seems like that’s your job right now. So, I’m not going to pass this opportunity to be prayed for by a person who’s been fasting more than a monk, and has actually spoken with Jesus.
    My request is for faith that God can break from me sins that have been with me longer than I’ve been a Christian. Essentially I want to be granted a true repentance.
    Thank you,

    Kendall

  11. Jess Lankford Says:

    Hey Katy!
    I’m so thankful for you too! You have given back so much already - just by being who God created you to be! I encourage you, my friend, to look at all these wonderful posts - testifiing to how you are changing lives! You have reached more people in the last 3 months than many will reach in a lifetime - all because Jesus’ light is shining through you and showing His perfection in your weakness! You and your family have not been afraid to share your trials, sorrows, struggles and even anger. God has taken that open brokeness and redeemed it!

    Thank you for boldly approaching the throne - on the behalf of others! I would ask for prayer for Josh’s job and his travel - he’s projecting that he will be on the road about 50% of the time next year - and it’s going to be hard on all of us.

    We love you Katy!
    Jess

  12. April Lang Says:

    Dearest Sister,
    Never think you are not making a difference… your very presence and just knowing you as a friend what a difference it has made in my life and in the lives of so many! Stay strong!

    I miss you…
    Love ya,

    April

    P.S. A SMILE FOR YOU :-D !

  13. Barbara Walker Says:

    Dear Sweet Katy,

    You are contributing to the world much much more than you think!!

    I see Jesus reflected in you as fine gold. You see, Job knew (Job 23:10) that God had not overlooked one moment of his agony, but knew that after the agony, he would come forth as gold! That’s you, sister in Christ!

    Love in Christ,

    Barbara

  14. Carson Kistner Says:

    Katy -

    What DOES your mother mean when she says, “Your prayer ministry has begun”? The day we came to see you at UVa after you had had such a miserable few days, you grabbed our hands and prayed for us a prayer that touched our hearts immeasurably. That was right before you took your ride over to see little Jacob (and, I am sure, pray for him!) Perhaps your prayer ministry is “official” now; but don’t doubt that you have been practicing it all along, dear sister.

    We love you and continue to pray for you too!

    Carson

  15. Jan Domalski Says:

    Dear Katy and all your family,
    A friend at my church encouraged me to go to your blog, in fact, she actually called me and left your entire day on my answering machine prior to my first visit. It was really neat because there were four young women here for bible study and they heard the entire message and we prayed for you at the end of the evening.
    Katy, I was a part of the group of people who prayed for you when you were still in India—your family waited patiently for their little girl and were overjoyed when you finally arrived. And now, these many years later, I find out how God has blessed you with such rich faith! Praise Him!
    Thank you for sharing your life with us. We stand amazed at the love and grace of God to you and will continue to lift you up in
    prayer. John and Jan Domalski

  16. Delmar Short Says:

    I had thought earlier that we ought to be asking you and your family to pray for us- please pray for our ministries with children, for continued strenthening of our faith, for those we are attempting to lead to the Lord. thank you.

Sweet Dreams

When the home health care nurse left last night we hoped and prayed that Katy would have the blessing of sleep. Well, 18 hours later I suddenly thought, “I can’t believe she is still sleeping! Maybe her blood sugar levels have dropped and I had better check!” A quick check showed me that God is at work in her frame. Her sugar level was normal. Her sleep was the deep healing kind that brings life to the body. God had answered our prayer for sleep and rest. It was that simple. When she woke up she had that deep bone pain that makes her cry out. I had a tip from Karen Tillman that wrapping Katy in very hot towels would do wonders. We tried it. It worked beautifully. After about 20 minutes she was more relaxed and tolerating her pain well. We are learning the basics about managing with a genetic disorder that still holds a lot of mystery for us so we continually pray for wisdom.

Colin and Jennifer came over tonight for awhile and Paul Burton was around. At one point the whole family was gathered near Katy who now has a wonderful roll-away bed on the first floor at the center of all the activity. Seeing the family together was a moment to tuck away in my heart. It is so rewarding to work through the hard times to get to the good. Jennifer is just 4 weeks away from her due date. I asked Katy if she could imagine how sweet and good it will be to tuck a little newborn next to her on her roll-away bed just to examine the handiwork of God. It is something that we look forward to with great delight and we know Colin and Jenn are going to be great parents. When everyone left and all was quiet, I read Katy the blog from yesterday and the many wonderful comments you left for her. She just loved hearing your hearts concerning the last paragraph of yesterday’s entry. It was a wonderful day.

My dear friend, Martha, will be coming to care for Katy tomorrow while Paul and I go to church. She is one of the most capable and compassionate nurses I have ever met. If you don’t have a home church please join us at Wellspring Presbyterian Church held at Lord Botetourt High School. Service starts at 10 AM. We long to worship, to pour out our hearts to God in gratitude for the many ways He has shown us His mercy. Enjoy your sabbath rest!

10 Responses to “Sweet Dreams”

  1. Aleah Yunger Says:

    Katy, I am so glad you are home! Sleep, being with family, and church in the morning - God is rich in His blessings. My prayers are with you and your family - glad there is continually something to be thankful for amidst the pain. Praise the Lord for hot towels! Thinking of you this morning - hope you are resting in the mercy of your Father.

  2. Carrie Thompson Says:

    Dear Katy,
    I am thinking of & praying for you & the family. Won’t it be fun to hold the baby soon!? :-)

    “He giveth his beloved sleep.” Psalm 127:2b

    Love,
    Carrie

  3. Karen Tillman Says:

    Dear Dawn,

    I am so glad that the warm towels helped. And I would’ve posted before now, but I ahve been planning my daughter’s annual Halloween Party. So, the past day or two I’ve been cooking and baking like crazy. Everything turned out wonderful, except I wound up getting really tired, and had to get some much needed rest. It was so good to see all of Holly’s friends come home to visit. It is one of the many things I have missed since Holly has been at school. Katy, I am so sry about the bone pain, it brings tears to my eyes thinking that anybody else has to go through that ordeal. I personally hope that neither you nor I have to go through it ever again. Oh, and last night several people ask about how’s Katy doing, and I said that you were managing as well as you could be, but that your faith in God is keeping you and your family strong. Gotta run for now, and Katy, you just keep on getting better now. We will be praying for you.
    Take care and Lots of Love
    Karen Tillman
    Regional Coordinator Mid Atlantic USA
    Hermansky-Pudlak Syndrome Network Inc
    NC phone:336 954 3604
    NY home office 1.800.789.9477
    my email till3604@bellsouth.net
    my website www.myspace.com/karenshpskorner

  4. Laura Griffith Says:

    Home seems to be the right medicine. I do hope sleep continues to be good and plenty. My family was in church today and my stepmother, Donna Goff, who now lives in WV remembers you from an adoption party ya’ll had for another family (the Geigers, I think) Another prayer chain has been born :) I’ve been holding my new grandbaby this weekend…Life is a miracle!!!

  5. Martha Harrison Says:

    Dear Katy,

    Your Mom’s message today is so encouraging. I am very happy to hear that you are at home with your family and getting that blessed healing sleep and rest that only God can provide. I feel in my heart that God is healing your body, and at the same time strengthening the faith of all who are praying for you. You have touched many people through this illness. As hard as it is to see you suffering, God will use this to bring many closer to Him. His ways are not our ways, but He has taught us that ALL things work together for good for those who love Him and are called according to His purpose. Rom.8:28 My prayer is that the pain will subside quickly and that you will continue to improve and feel stronger each day!

    With love and blessings, in Jesus, for you and your family,

    Martha Harrison

  6. Aunt Doris Says:

    So glad to hear you are getting the sleep you need, Katy! And about the coming baby - let me tell you a little story about your Dad when he was tiny. Your Grandad & grandmom came “home” to visit with baby Paul (we called him “Paulie” then), and the only thing we had for him to sleep it was an old fashioned crib that my father had made. It was high, more like the height of a current style changing table, with only very short sides. Very convenient for Mom tending the baby, but he might fall out easily. He kept raising up on his little hands instead of falling nicely asleep so Mom and Dad could relax and not worry about him falling out.

    Aunt Doris

  7. Margee Beardslee Says:

    Dear Paul, Dawn and Katy,

    Who knows how many are riding this emotional rollercoaster with you! But you are in the front seats. You are experiencing everything, anxiety, frustration, helplessness, pain, love, peace, hope, even moments of joy with magnified intensity. Only God knows how many are being touched by your intimate sharing. There are no masks being worn. Thank you for allowing us to get a glimpse of what you are experiencing and what God is doing. Thank you for allowing us to lift you to Father. Inside, I’m hugging all of you right now. Can you feel it?

    Katy, Your illness is definitely not what any of us would choose. But one day you will see all that God is accomplishing through it. In that day, the pain will not be remembered…like a mother holding her baby after childbirth, your joy will be overwhelming.

    Love you all,
    Margee

  8. David and Lizi Says:

    Katy
    It was so wonderful to see your Mom and Dad in church today because it warmed our hearts to know you are all home! We are absolutely thrilled that you had some good healing deep sleep and all the praise goes to our King!!
    We are so much encouraged by all that is happening. It may be slow but it is sure and steadfast like our Lord who we cling to. His angels of mercy are surrounding all of you and they are ministering to you to help in the healing process! What a great comfort and hope we have.
    We love you all so very much and we are so grateful for you and your family because of the tremendous witness you are to us. Thank you. Love Lizi and David

  9. stuart blankenship Says:

    Hi Katy, I’ve been checking in on your progress and it’s so great to know that you’re home with your family and loved one’s. I guess what Dorothy said is true, “there’s no palce like home.” I will continue to pray for you and your family. Just know that there are a bunch of strangers in the loop with you. God bless you.

  10. Lillian Oliveira Says:

    Katy, Wow! Bet you set a personal record for sleep! Its amazing how some moist heat helps pain - I just fixed a hot foot soak for Uncle Tony, who’s having some acute arthritis in one big toe joint.

    So the Grape Hospital didn’t turn out to be very “fruitful” after all?! And as for the that Dr. allegedly interested in your conditon, who didn’t show up while you were there - well, in My book he’s a real “Sour Grape”!

    As for that high “crib” Aunt Doris was talking about - I can remember when I slept in it. There probably was already another baby in the house. But I remember Aunt Laurie and Aunt Middy vying for my favor, and we were whispering, so Middy wanted me to do something and Laurie whispered to me, “Say no”. So I whispered “no” right back. and she said “Say no out loud” So I whispered “No, out loud”. :-) I also remember being in that crib when Laurie sang a little song with the phrase ” the rooster gets up early, too” I thought the last three words were one, and asked, “Laurie, what’s ‘a pearly-do?’” (Probably a hair-do with a string of pearls) Speaking of pearls….

    Folks in my church have been very touched by your story, too, Katy. We pray for you in my Bible Study. Last night we had an all - music service where people requested others in the congregation to sing certain songs. Uncle Tony and I had been requested to sing “He the Pearly Gates will Open”. I took the opportunity to tell folks about your experiences with heaven, told them that I had been feeling close to heaven because of that. I was really blessed as we sang: “He the Pearly Gates will open, so that I may enter in, For He purchased my Redemption, and forgave me ALL my sin.” There was SUCH a wonderful presence of the Holy Spirit there all eve - a hushed, reverent one. I was so blessed by it all even after I went to bed my heart was filled with such a burning intensity of joy that I didn’t get to sleep for hours.
    Being in His Presence is the best thing of all, isn’t it? Even for us who don’t see Him.

    Katy and all the family, I keep you in my loving prayers. Aunt Lil

Saturday, October 28, 2006

Home

We are home. Katy is in her own bed sleeping. I just hugged the home health care nurse goodbye and she told me that several of her friends are praying too. Our luggage is in the hall and bags of pharmacy supplies need to be put in order, but I wanted to write a message to you.

All of last night I walked around Katy’s hospital room praying. She sat in bed in utter misery with dry heaves and shivers. The lab reports this morning had no answers as to why she had such a horrible night. I waited until 5 AM to call Paul and when I did I found myself saying, “We have to get her out of here!” By noon we had made a plan to bring Katy home. Paul drove to Charlottesville to bring us home, and by 7:30 tonight the new TPNs were delivered to our door by Advanced Homehealth Care. I have discovered what many people with HPS know all too well. Sometimes with the flare-ups the body is in such despair that rest and the comforts of home are the truest healing forces. Once we spoke with the NIH doctor this morning we were satisfied that Katy is physically stable enough to be at home. The rest of the healing process will involve time, quiet, prayer, and love. All of which is better at home. I wish I could say that Katy is in great shape, but I can’t. However, God gave us the tools we need physically and emotionally to handle this, and that is what we will do.

I have had some great times of worship and prayer with Katy over the past three weeks. One night we were quieting down in our hospital room for the night and she quietly asked, “Mom, if you had known how much trouble I would be for you, would you and dad still have wanted me?” There it was, a raw and biting question. It was such an honest question that it caught me by the heart and I felt the sting of it. “Katy, Katy, Katy, what is a family for but to prove the love of God to a watching world?”

16 Responses to “Home”

  1. Davey Says:

    I found myself crying through that last paragraph. I’ve never had experience in adoption, nor do I have children. But Katy’s question reminded me of a question I sometimes ask God:

    “God, You knew how much I trouble I would be for You, why did You still choose me anyway?”

    An answer to that, if I could possibly come up with a correct one, is probably too long to speculate. But, He loves us, no matter how unbelievable it seems sometimes. I am overwhelmed by the love and support shown by the family and the church. I’ve been on the end of support of that kind, even as recently as this past summer.

    May God continue to show you all how to love as perfectly as you are.

  2. Julie Wensley Says:

    Welcome Home! Enjoy your cozy room and peaceful home tonight! I pray you will all get a sweet deep rest.

    We just got back from Danae’s choir concert in Radford. It was beeaauutiful! The concert was called “Our Spiritual Heritage”, so they sang a variety of styles from sacred to “spirituals”. We took her out to Ruby Tuesdays afterward and got caught up on her week. It was a great visit.

    Sleep well. I will talk to you tomorrow. We love you!

    ~Aunt Julie

  3. Delmar Short Says:

    Katy’s heavenly encouragement has been a great blessing to my family and me, and others we know. It is a real blessing to have the privilege of knowing you all. I was reminded of a verse I have on my desk- “Blessed are the pure in heart, for they shall see God.” I think Katy, like Stephen, Paul, and John, is the sort of person, God would reveal himself to. Please let us know if there is anything we can do.

    (from one of those weird psychiatrists, Del Short)

  4. Bob, Amy, Emily, Meredith and Abby Says:

    I, too, found myself crying thru the last paragraph and thought how sad it would have been for me to never have known Katy! We are all so glad that she became part of your beautiful family. :0)

    And we are so glad that you were able to come home yesterday. I pray that you all had a peaceful night of sleep last night. Home is always better!!

    We love you all. May God bless you richly today.
    Amy (for the Collins)

  5. Aunt Doris Says:

    I, too, took note of that last paragraph. I’ve found the thought entering my mind from time to time, and I’m sure that you and Paul wouldn’t trade your experience and love for Katy for anything. I have yet to meet her, but I am developing a strong love for Katy myself!

    Aunt Doris

  6. Sandy Says:

    That last paragraph had me in tears too. Adopted or not, I think we all have that question in our hearts sometimes.

    I’m glad you are home, and I pray for healing and patience and peace that passes all understanding. Take care.

  7. Heather Kirkwood Says:

    Dido on the last paragraph. I’m not adopted, and I’ve wondered the same thing about my parents. Katy, I hope you get a good rest and know that we’re still here praying for you and rooting for you to get better. Sandy posted a brief update to the HPS adults yahoo group, and I know that there are so many of us who care so much about you - even though we’ve never met. I’m looking forward to being able to trade e-mails again!

  8. Jennifer :-) Says:

    Katy girl–I’m glad you’re home. :-) It truly is the best place to rest and I hope that it strengthens your mind, heart, and body.

    We’re praying for you!!
    Jen :-)

  9. Patricia Says:

    Hi Dawn and Katie Beth:
    Both of you…. rest in the engulfing arms of a loving Father.
    Pancreatitis, in and of itself, can be mean and nasty and has excruciating pain…..and doctors have a difficult time getting a handle on it, even in otherwise healthy individuals. One of our local friends has been in ICU with it for 10 days now. 50% of the chronic cases is among alcoholics but for the other 50%, as our own physician has personally stated to us with a shrug, “there are some things known only to God.”

  10. Kristin Dunker Says:

    Hi All-
    How delightful to hear(read) the word “home” in your last post. It is a place of strength, rejuvenation, peace, comfort, and safety to all of us. I know you are glad to be back there Katy. We will pray that your homecoming will speed your recovery by leaps and bounds!
    Love and a hug,
    ~Kristin

  11. Brooke McGlothlin Says:

    Katie,
    Your precious family loves you so much! And as a mom (although a relatively new one :-) I can tell you that hours and hours of pain can all be washed away with one simple smile that reminds them of why they love you so much. Years of joyous memories remind them daily of how special you are and what a gift your birth has been to their family. Your are so valuable that the precious Son of God died for you. No amount of discomfort can change how loved you are.
    Blessings,
    Brooke McGlothlin

  12. April Lang Says:

    Oh Katy! I write this with tears in my eyes….I am so GLAD you are home! I pray that you will truly begin to heal and be able to get strong again! I love you and miss you!

    April

  13. Mariah La Brie Says:

    Hi Katy,

    I am glad to hear you are home. I am sorry about your sickness and I will continue to pray for you. Give Gideon a kiss for me. He is so cute!

    Love,

    Mariah

  14. Kathy Osorio Says:

    God’s blessings to you tonight, Katy! I pray for your peace, comfort and rest. You may not remember meeting me, but your story and your mom have been a blessing to me from the Lord. May the God of all comfort give you rest at home tonight.

  15. Heather Kirkwood Says:

    I’m just about to go to bed and I had to check in one last time before going to sleep. I’ve spent the day working on HPS fundraisers and HPS conference planning. You know that song Candice and Crystal picked out for the conference theme - “Fron the Beginning” - I went and bought it today and have been listening to it all day as I worked on conference stuff (a little inspiration). And, then I started thinking about you - and it had me in tears. Tears because although this HPS thing can be so tough, so miserable, so frustrating at the same time it’s what has caused me to know so many wonderful people that have blessed my life, such as you (even though we haven’t met yet) and the Sipe twins, and Karen and Sandy and Sheena and so many others you haven’t met yet. Rest well, and get better soon. We continue to pray here in Kansas!

  16. LInda Burk Says:

    Hi … Sweet Katie we are sooo happy to hear you are home..so many happy things are coming your way in the next month with the new baby arriving. It looks like some warm weather this week..enjoy the sunshine …blessings to all, Linda Burk

Friday, October 27, 2006

Sleepness Night

Katy was unable to sleep at all last night because of the pain and nausea that resulted from one teaspoon of pureed banana. Dawn was awake right along with her so they are both exhausted.

We ask that you would pray for Katy and Dawn that the pain would subside and let them rest, and also for their doctors as they attempt to determine what is causing this and what to do about it.

Comments:

  1. Sally Ludwig Says:

    Dear Katy,
    Our roles have clearly been reversed. You are now the teacher, and I am the student learning from you and your family lessons far more important than any I could ever have taught. Your faith, patience and devotion are truly awesome. I can tell by the comments here that I am not the only person for whom you have been an inspiration.
    I am praying for you and your family and working to become a better Christian myself.
    In His Peace,
    Sally

  2. Linda Kochendarfer Says:

    Katy and Dawn,
    On this rainy day I am asking that Christ would gather you in His arms and give you sweet rest. Dawn, I am able to come to Charlottesville and give you a respite. I’d be happy to read to Katy, pray, or just sit and be a presence with her. Let me know if I can help. You remain a constant reminder of the “perserverance of the saints.” May God bless you for your faithfulness and give you grace to continue this battle.
    Mrs.K

  3. Laura Griffith Says:

    I’m so sorry to hear about the slow progress on finding out what’s causing Katy so much pain. I do pray that Jehovah Rapha will give the doctors wisdom and that He will wrap His loving arms around you and give you comfort. I pray for safety as ya’ll travel.

    In Christ,
    Laura

Urgent Prayer Request

We are once again asking for your prayer this morning. Katy’s condition is not good and has not improved since moving to UVA. Paul & Dawn feel like they’ve come to a standstill with the hospital staff and that it is best to move Katy either to another hospital or home.

  • Please pray for wisdom as they make this decision today. They are exhausted and need divine intervention to make good decisions.
  • Please pray for relief and rest for Katy. She had a miserable sleepless night last night and is not in good condition for a move right now.
  • Please pray that “the peace of God which transcends all understanding will guard their hearts and minds in Christ Jesus.”

Thank you once again for your petitions on their behalf.

Comments:

  1. Davey Says:

    Our God will supply all our needs. He has promised it to us! Praying for you all.

  2. Sandy Says:

    Prayers continue! I will let the HPS group know about this too.

  3. Barbara Walker Says:

    Dear Katy, Dawn and Paul,

    It is so difficult being in a different hospital away from home!!

    Praying for rest and peace for all of you in this stressful (putting it mildly) time. Doing without the needed rest clouds everything!

    Our Lord promised us in Phillipians 4:6,7 that if we pray about everything and not worry, that the peace that passes all understading will be ours. Praying for that for all of you. May God bless you with his power and grace right now in a huge way.

    Love in Christ,

    Barbara

  4. Karen Tillman Says:

    Dear Campbell family,

    Dealing with the issues surrounding HPS can be very difficult and frustrating at best I’m afraid. There were times when I just wanted to give up, but fortunaately God nor the doctors gave up on me. It is so hard and I know very exasperating when there seems to be no easy answers. It is funny how all of us with HPS are so different, but I can assure you that we have all endured the struggle of unraveling what is the best treatment options for us in the beginning. As a matter of fact I’ve gone through it twice in my life, and each time it took months to develop a line of treatment. Once as a child and once as an adult, and both times we wondered if I would make it. And by the grace of God I did. The problem is…there are no HPS experts per se’ in the world. You may have a doctor here or there that have treated a patient or two, and that doc can tell you that each of us have our own unigue set of problems. You do not know how badly I wish Katy didn’t have to suffer, as suffering is so difficult, and watching someone especially your child suffer is literally almost unbearable. I will continue to pray for God’s hand on your family, and still recommend keeping in touch with the staff at NIH and the network as much as possible. While they may not have quick answers they can surely be a mountain of support for you during this time. I will pray that God will give you the patience to make good decsions, and pray that the doctors would hang in there with you. I will also pray that Katy will improve VERY VERY soon. I know that God hear and answers prayers, as I shouldn’t be here but I know that because people prayed for me I withstood the storms, and know that it will help me withstand the storms to come. God bless you all, and try to get some rest. Thanks again for keeping us updated.
    Love Always
    Karen Tillman

  5. Adam Thompson Says:

    Praying for you!

    ~Adam

  6. Elizabeth Harris Says:

    Sweet Katy,

    I am so sorry you are having so much pain. I pray that God will releave your pain so that you, and your mom, will get the rest you need.

    I read the blog about you being able to go out and about the hospital. You are your mother’s girl. I had to smile when I read you put on your make-up and off you went! :)

    I pray that Jesus will hold you close tonight.

    I love you girl,
    Elizabeth

Thursday, October 26, 2006

Thursday Update

Thanks to all of you prayer warriors for being patient with our slow updates. It has been more difficult to blog accurate reports since Katy moved to UVA. Because of distance and playing phone tag, details are often obsolete by the time we think about blogging.

At this point UVA seems to be in good communication with the NIH. That took awhile to get going, but it looks like the UVA doctors are catching on to the root problems of HPS, rather than focusing on peripheral symptoms which would be almost anyone’s tendency. Katy will probably be at UVA for several more days at least because she is still completely on TPN and in much pain. They did start her on some new pain medication yesterday but that drug takes about a week to affect the nerves enough to make noticeable changes. We just have to wait and see…

She has had some really good nights this week and that has helped her emotionally as well as physically. She is hoping to have enough energy today to visit a five yr old boy who is at UVA with cancer. Spasms are still intermittent, and she has discovered that she can tell when they are about to start and end. Despite previous guesses by neurologists, Katy believes that she has them due to the intense pain surges that she is currently feeling. Hopefully the spasms will go away when the pain does.

Please pray…

  • That Katy continues to improve rapidly and gets the rest she needs.
  • That Mom will get the rest she needs.
  • That the right pain medication combination will be found soon.
  • For safety on the road for Dad and others who have gone to visit Mom and Katy.

Thanks everyone!
Colin

Comments:
  1. Maylin Rowe Says:

    Katy, I’m still praying for you. I miss you so much, but I hope you benefit from your time at UVA, and I know God will bless others through you. I love you, Katy.

  2. Dawn Ives Says:

    Katy,
    I’m praying for you and I hope this new pain medicine will work for you. Then you will be able to get some strength and get better. I think about you all the time and one of these days I’m going to pop up there to see you. I heard you can’t have any bed partners. Does that mean no more sleep overs. That makes me sad.
    Just keep your eyes on the Lord and remember how many people are lifting you up. What a special woman you are. I’m still thinking about your little trip. Thanks so much for sharing it with us. It has brought tears of joy to my eyes often.
    Love you,
    Dawn Ives

  3. David and Lizi Says:

    Dear Katy and Dawn,
    We are watching the blog daily and are keeping very current on your condition. We are praying for you and your family daily.
    We would like to come to see you but it is impossible to leave the business. But even though we are not there physically we are there in spirit.
    We pray that your pain will stop with the new medicine and that it will work quicker than they think.
    Love,
    David and Lizi

Ups and Downs

Katy had a great night’s sleep last night, a long deep sleep that she calls a “healing sleep”. The sleep continued throughout the day today, with occasional waking to greet visitors. Late in the afternoon, she woke up feeling good and strong enough for some adventure. So she put on her makeup and got in her wheelchair, and we took her for her first trip outside of her hospital room (other than trips on a gurney, which don’t count). She took pictures out windows and pictures of paintings on the walls, and a picture of an eight-year-old boy we visited who has cancer. When we got back to her room, she got out her laptop and began organizing files. That’s the good news.

Because of the pancreatitis, Katy has swallowed nothing but an occasional sip of water for several days. The new pain medication she is taking (lyrica) must be taken orally, not through the Hickman port like everything else. She took the first dose last night, and had a very hard time getting it down even though it’s a very small pill. After discussions with her doctor at UVA and some people from NIH and the HPS network, we decided to try the next one with something a little thicker than water. She took her pill this evening with a half teaspoon of baby food banana pudding (one of her all-time favorites). It went down better and she loved the flavor, but now (three hours later) she is nauseated and in excruciating pain. It looks like it’s going to be a very hard night. Any of you who read this before morning, please pray for her during the night. She says she feels like she has been poisoned. It’s pretty obvious that her system is not ready for any food yet. We had planned to try a spoonful of banana pudding every four hours if the first one was ok, but that plan is now out the window.

These are the times when we can do nothing but call on the Lord. Psalm 119:49-50 says “Remember your word to your servant, for you have given me hope. My comfort in my suffering is this: Your promise preserves my life.” Katy firmly believes that the Lord has more work for her to do here on earth, and so do we. God’s promises, and your prayers and encouragement, help us to keep going even through the setbacks.

Comments
  1. Jess Lankford Says:

    Hey there!
    I was just checking in before going to bed and I will pray before going to sleep! I’m so thankful for the good day - with the outing and the pictures. I’m really sad to hear about the pill. Katy is so right though - God is doing more work through her even now than she will ever know!

    When people ask me about Ellie - because she is such a fun new addition - I get to tell them Katy’s story and relay what a faithful witness she has been to her Lord and Savior! It’s really fun to see people who are not believers try to process the fact that she has peace in the midst of pain and hope in the midest of this trial! :)

    We love ya! Ellie sends doggie kisses as well!

    Jes

  2. Bob, Amy, Emily, Meredith and Abby Says:

    Katy,

    I am so glad to hear that you had a little outing around the hospital today. I know that you were an encouragement to all the people that you encountered!

    I am also sorry to hear that the yummy banana pudding is not being so nice to you now. :0( I am still up late for a reason. I wasn’t sure why until I just read this…now I know I will be praying for you until at last I drift off to sleep. You are constantly in my thoughts and prayers, and I am still constantly awed by the things that you told me. You are definitely one special girl.

    Hugs and kisses to you until I see you again. I’m dying to get up to UVA and see you, but my schedule has not allowed it thus far.

    Much love,
    Amy and family

  3. Julie Wensley Says:

    Katy,

    Dan and I are up late (very late!) working on a project and we are praying you through the night. I miss seeing your sweet smile and your hugs. You continue to be a blessing to me. I know you are touching many, many people with your testimony. We love you!

    Paul & Dawn - your strength and faith is amazing. I know you must feel like you’re falling apart sometimes. We are continuing to lift you all before the throne.

    Is. 40:31
    but those who hope in the LORD
    will renew their strength.
    They will soar on wings like eagles;
    they will run and not grow weary,
    they will walk and not be faint.

  4. Trisha Ferris Says:

    Katy, I hope to see you soon. It’s been too long since we’ve had a girl talk. I look forward to more times of sitting cross-legged on the library sofa, reading Psalms & talking boys!
    Love in the Lamb,
    Trisha

Tuesday, October 24, 2006

On Second Thought...

After carefully reviewing Katy’s test results, the surgeon has decided not to remove her gall bladder after all. He said that it will probably recover once some of the other issues are resolved, and that the possible benefits of removing it are not high enough to justify the risks involved. So we are focusing on those other issues.

The UVA staff is making good progress on the steep HPS learning curve. One of the doctors at NIH told me today that there are probably only about 1500 confirmed HPS diagnoses in the entire world, so every time we see a new doctor he (or she) has to learn about HPS before understanding Katy’s needs. We are once again moving forward albeit slowly. Katy no longer requires full-time oxygen, and she now has a pain medication pump that lets her give herself an additional boost of pain med for breakthrough pain. No more running for the nursing staff and hoping enough time has elapsed since the last injection so that the orders will allow for another one. We are also about to try a new pain medication called lyrica that works on the nerve endings, so please pray that it will be effective and that it will not have adverse side effects. It takes about a week before the effects are known, so we will have to wait and see. Meanwhile we are waiting for the other medications to reduce the imflammation so she can start eating again.

Speaking of waiting, that’s what a lot of this struggle is about. Improvements happen so slowly, and we want results now - especially when we watch Katy struggle. We want to make things happen, and we don’t understand why it takes so long to see results. This is the time when we need to “Trust in the Lord with all your heart, and lean not on your own understanding.” (Proverbs 3:5). When we lean on our own understanding, we just get frustrated. When we trust in the Lord we can have peace, knowing that He is in control of even this.

Comments:
  1. Heather Kirkwood Says:

    Paul,
    Thanks so much for the update. There’s definately a steep learning curve with HPS. 1,500 seems kind of high actually, but I don’t doubt that there are that many cases, even more, out there. In fact, it’s not uncommon for someone to never get an accurate diagnosis because HPS is so rare. We’ve had families where one sibling gets a diagnosis, and come to find out they’ve got a brother, sister, cousin etc. whose spent a life going through all this medical trauma and was never diagnosed. There’s a saying in medical schools which generally goes something like this - when you hear hooves, don’t always assume it’s a horse. It might be a zebra. We’re the zebras! There’s learning about HPS, and then there’s learning about Katy’s specific needs related to HPS. So, I’m sure there are folks at UVa cracking the books late into the night!

    Katy,
    I’m so glad to hear they gave you a pain pump. Those things are awesome! You get to the pain faster, and well, you feel like you’ve got more control. There’s something psycological about being able to push that button - just pushing it makes you feel better! When you’re in the hospital sometimes you feel like you lose control of so many basic things - it’s nice to be able to click on your own pain med!

    Dawn,
    I’ve been thinking of you a lot lately and praying for you, Katy and your family often. I hope you’re able to get enough rest. Don’t neglect taking care of yourself and getting plenty of rest. (That’s a common problem when you’re caring for someone who’s ill. You don’t want your own immune system to get worn down from exaustion.)

    Know that everyone in the HPS community is thinking of and praying for your family daily!

  2. Jennifer :-) Says:

    Hang in there Katy. Things WILL get better because He has promised to not give us more than we can handle. He is a good God and will provide for all your needs.
    With love and prayers (from the whole family!!),
    Jen

  3. Linda Kochendarfer Says:

    Dear Paul, Dawn, and Katy,
    I go to bed thinking and praying for you and wake up doing the same. We love all of you so-o-o-o much!
    Mrs. K

  4. Sonia Says:

    Paul, Dawn and Katy,

    Still praying…praising God for the pain pump!
    Love you,
    Sonia

  5. Martha Pelish Says:

    Dear Paul,Dawn,and Katy, how I wish that we could just fast forward this part of your lives and get to the part where Katy is feeling better.But as I type this, I know that there are many people that you are encountering that you are blessing with your faith and your joy in the LORD just as you have done for me and my family. Just remember the ripple effect that GOD has. By your being a blessing in people’s lives and reflecting GOD,this in turn affects others.Dawn I can only imagine how family members who are going through a tough time are finding such comfort from you. GOD is the great comforter. I pray for you all daily. Love, Martha

  6. Karen Tillman Says:

    Paul,

    You just said a mouthful. As humans it is so hard to remember sometimes that God is in control, and what we want isn’t necessarily what is best for us as a whole. I am always amazed how those of us with HPS have survived the struggle, expecially in the beginning. I think sometimes God needs for some to suffer so that He can be glorified by those with such strength and lead others to Christ, or that is at least what I like to think anyway. That is what really keeps me going when things start taking a turn for the worst. Although, people think we are such towers, I often feel so inadequate at times, and wonder how they can think such things. To dear Katy, I am so glad that you have that pain med pump. Those things are the best invention since toilet paper. When you are better, I will have to share a very pain ridden day with you, that after the seriousness wore off, we as a family have been able to look at the humorous side of it. I am sure before this is all over, you will have plenty of stories to share with other too.
    All of you please take care of yourselves, and we will continue to be faithful in prayer!!!
    Love In Christ
    Karen Tillman

  7. Sarah Meador Says:

    Hey, Katy!

    So thankful to hear that you do not have to have another surgery right now. Praise God that you are off of the full time oxygen. I am always excited each time I read of any improvement and steps of progress toward getting better that you make. :) I’m familiar with the pain medicine pump and what a great thing that is from when my grandfather recently had surgery. What a great invention! God’s goodness is so amazing through the benefits we receive even through technology like that. :) Hang in there dear! Continuing to pray for all of you daily that God would provide strength, perseverance, and patience as we daily wait upon the Lord. I love you!

    Sarah

  8. Lisa Patterson Says:

    Dear Ones,
    When I continue to read what Katy is going through, it puts into persective the other things of the world. I don’t understand, nor do I pretend any longer to wonder why God sends stuff like this to us because it is just as painful for the loved ones as it is for the sufferer. It seem God has this valley that we must walk through and he gives us a hand once we ask for it, but we get so focused on the issues at hand that we forget to ask for that hand. We will continue to ask God to give you that hand as long as it takes. Please take care of yourselves so that Katy has that strong shoulder to lean on and keep your family together. You will come out at the other end of the valley and in the end you will think back and think “that wasn’t so bad”
    Know that we are always praying for your family and especially Katy. Lance is always asking how she is doing.
    Blessings for you
    Lisa

  9. Sandy Says:

    Prayers continue from me and all the HPS group. I was thinking of you all during worship the other day as we sang the hymn “Healer of our Every Ill.” In particular, these lines made me think of Katy…

    “In the pain and joy beholding
    how your grace is still unfolding,
    give us all your vision: God of love.”

    I hope the folks at UVa are continuing to be a blessing to you all. God’s peace.

Monday, October 23, 2006

Surgery

This is just a quick update to let you all know how to pray. Katy had a radionucleide scan yesterday and the results came in today that she has gall bladder disease and will need to have her gall bladder removed. We don’t know any more than that yet, in terms of schedule, but she is in intense pain. Thanks for praying.

Comments:
  1. Aunt Doris Says:

    Thanks for the update, Paul! I wonder how much of the gall bladder disease is responsible for her pain. I just want to see her relieved of so much pain. I’ve been keeping my church updated about her, and our pastor remembers her in his pastoral prayer on Sunday mornings. He is impressed by her wonderful testimony. I’m sure she has touched many lives. You know, the lives that you & your brothers & sisters & their families are living is a great testimony to the lives of your parents. God bless you all, and give you the rest you need.

  2. Karen Tillman Says:

    Dear Campbells,

    I can tell you from watching my husband suffer with gall stones that they are EXTREMELY painful. And once it was out, he was like a different person. I will pray that there will be smooth sailing with the medications, the surgery, and that the docs there can continue to unravel the mystery of Katy. Katy girl you are a special one, and I am so glad that you feel much better at UVA. Feeling secure is very important, and you just keep looking up there sweetie!!!
    Karen Tillman

  3. Jennifer Blugerman Says:

    Katy,
    Praise God that the doctors at UVa caught that! I pray that your pain will be greatly reduced and you can begin to regain your strength! Dawn, hang in there! I know you’re worn out watching Katy go through procedure after procedure! We are all praying that this will be a real breakthrough!

    Praying continually,
    -Jennifer

  4. Trisha Ferris Says:

    Katy & Dawn,
    I hope you enjoyed meeting my dear friend Sunny. Now that she knows you, there’ll be another prayer warrior interceding for you! I’ve been praying the prayer you taught me, Dawn, that anything hidden would be revealed during your stay at UVA & surely the Lord is answering that prayer already. He does much of his work through wise medical personel.
    Love in the Lamb,
    Trisha

  5. Lillian Oliveira Says:

    Katy, so the Grape Hospital has already discovered a problem that should relieve your abdominal pain! That’s the “firstfruit”. Praise the Lord! Love, Aunt Lil

  6. Jennifer :-) Says:

    Katy dear, we will be lifting you up in prayer even more over the next few days and as you have this surgery. I’m so thankful the doctors found the cause of your pain and I hope that everything goes smoothly from here on out.
    with love and prayers,
    Jen

  7. Heather Kirkwood Says:

    Hey Katy,
    I’m anxious to hear more about your surgery and what exactly is going on with the gal bladder - I pray it goes well and that you find some relief. I know you will.
    I’m thinking of you too Dawn and Paul. You must be feeling so tired.

  8. DeeDee Says:

    Dear Katy, Dawn and Paul,
    When I read a passage in II Cor. this morning you all immediately came to mind…
    II Cor. 2:14&15….Now thanks be to God who always leads us in triumph in Christ, and through us diffuses the fragrance of His knowledge in every place. For we are to God the fragrance of Christ among those who are being saved and among those who are perishing.
    And what a fragrance you all have been…an incredibly sweet aroma. Thank you for being so faithful in this journey. I expect you to put your heads together and one day write a book…”Journalling the Journey”. God’s faithfulness to us all speaks loud and clear through your lives. Thank you and be assured of petitions on your behalf. DeeDee

  9. Kara Doran Says:

    Katy,

    I’m a friend of Jenn’s from Grove City College and we met when we were both in Jenn & Colin’s wedding. She sent an email explaining what you’re going through. Though we only met briefly, I could tell that you were a woman who appreciated the daily joy of the journey and had already persisted through hardships and came out smiling. My heart breaks to know what pain and struggles you now face as you fight to keep that joy. I will be praying for you and the Campbell family.

    Romans 15:13…May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit.

  10. Jess Lankford Says:

    Hey Katy!
    I’m glad that they found out about the gall bladder - perhaps having the thing removed will give you some relief!! We sure do hope so!

    Ellie is with us - Paul Burton brought her over yesterday. She is such a sweetie! I am totally enjoying her - and so are the kids! Noah tried to read her books yesterday and take her to phone, several times…It’s hard to explain to a two year old that the dog can’t talk on the phone!! :) This morning Noah was sitting on the floor and she came and put her head on his lap - he was so happy! :) Thank you for letting us ‘borrow’ her! It’s so good for them to have exposure to animals!

    Love ya!
    Jes

  11. Deana and Phyllis Says:

    Hey Katy and Family

    We just wanted to let you know we are keeping up with what is going on, and continue to think of you and pray for you. Best of luck with your upcoming surgery.

    Phyllis and Deana (CRMH Pain Team)

  12. Joe Sipe Says:

    Dear Katy.

    We haven’t left a comment for you in a while. We are praying for you and your parents daily. Crystal and I along with our parents were so glad to hear that the doctors at UVA were finally able to get to the bottom of what is causing all yoour pain. Katy, we are so much alike in many ways. I had my gal bladder removed in April of 2005 because mine was diseased. Once they remove yours, you’ll feel so much better. We are praying that your surgery will go smoothly. We love you and can’t wait until we have the opportunity to talk to you again.

    Your sisters in Christ,
    Candice & Crystal

  13. Paige Patterson Says:

    Paul and Dawn,
    Our whole family reads your blog every day to check on Katy and you. It is amazing to us all that this has happened. I’m sure there is a reason behind it all, but we were at your house the week before this all started. I just can’t help but think that God hd brought us together at that time for a certain reason. I’m sure it will soon reveal itself to us all, but know that we were very greatful for the hospitality that you provided us, and if there is anything that we can do for you, please let us know!
    You are all in our prayers!

  14. Aunt Judy Says:

    Katy,
    We’ll be praying for your gallbladder surgery and that you’ll be feeling better very soon.
    Dawn,
    It’s been a long time since we had a cup of tea and a quiet chat - I’m glad you have a few sweet ladies at the Hospitality house to share and pray with. We always say we are praying for Katy but those prayers include the whole family - now even more when you are separated by many miles.
    Love,
    Judy

  15. April lang Says:

    Just wanted to say hi! Love you! Miss You!

    ~April :-)

  16. Oma Collmus Says:

    Dear Katy, I’m praying for successful surgery soon and that your pain will be all gone. You are an inspiration to everyone. I love you.
    xoxoxoxoxoxo
    Oma