We are home. Katy is in her own bed sleeping. I just hugged the home health care nurse goodbye and she told me that several of her friends are praying too. Our luggage is in the hall and bags of pharmacy supplies need to be put in order, but I wanted to write a message to you.
All of last night I walked around Katy’s hospital room praying. She sat in bed in utter misery with dry heaves and shivers. The lab reports this morning had no answers as to why she had such a horrible night. I waited until 5 AM to call Paul and when I did I found myself saying, “We have to get her out of here!” By noon we had made a plan to bring Katy home. Paul drove to Charlottesville to bring us home, and by 7:30 tonight the new TPNs were delivered to our door by Advanced Homehealth Care. I have discovered what many people with HPS know all too well. Sometimes with the flare-ups the body is in such despair that rest and the comforts of home are the truest healing forces. Once we spoke with the NIH doctor this morning we were satisfied that Katy is physically stable enough to be at home. The rest of the healing process will involve time, quiet, prayer, and love. All of which is better at home. I wish I could say that Katy is in great shape, but I can’t. However, God gave us the tools we need physically and emotionally to handle this, and that is what we will do.
I have had some great times of worship and prayer with Katy over the past three weeks. One night we were quieting down in our hospital room for the night and she quietly asked, “Mom, if you had known how much trouble I would be for you, would you and dad still have wanted me?” There it was, a raw and biting question. It was such an honest question that it caught me by the heart and I felt the sting of it. “Katy, Katy, Katy, what is a family for but to prove the love of God to a watching world?”