When the home health care nurse left last night we hoped and prayed that Katy would have the blessing of sleep. Well, 18 hours later I suddenly thought, “I can’t believe she is still sleeping! Maybe her blood sugar levels have dropped and I had better check!” A quick check showed me that God is at work in her frame. Her sugar level was normal. Her sleep was the deep healing kind that brings life to the body. God had answered our prayer for sleep and rest. It was that simple. When she woke up she had that deep bone pain that makes her cry out. I had a tip from Karen Tillman that wrapping Katy in very hot towels would do wonders. We tried it. It worked beautifully. After about 20 minutes she was more relaxed and tolerating her pain well. We are learning the basics about managing with a genetic disorder that still holds a lot of mystery for us so we continually pray for wisdom.
Colin and Jennifer came over tonight for awhile and Paul Burton was around. At one point the whole family was gathered near Katy who now has a wonderful roll-away bed on the first floor at the center of all the activity. Seeing the family together was a moment to tuck away in my heart. It is so rewarding to work through the hard times to get to the good. Jennifer is just 4 weeks away from her due date. I asked Katy if she could imagine how sweet and good it will be to tuck a little newborn next to her on her roll-away bed just to examine the handiwork of God. It is something that we look forward to with great delight and we know Colin and Jenn are going to be great parents. When everyone left and all was quiet, I read Katy the blog from yesterday and the many wonderful comments you left for her. She just loved hearing your hearts concerning the last paragraph of yesterday’s entry. It was a wonderful day.
My dear friend, Martha, will be coming to care for Katy tomorrow while Paul and I go to church. She is one of the most capable and compassionate nurses I have ever met. If you don’t have a home church please join us at Wellspring Presbyterian Church held at Lord Botetourt High School. Service starts at 10 AM. We long to worship, to pour out our hearts to God in gratitude for the many ways He has shown us His mercy. Enjoy your sabbath rest!