Sunday, October 29, 2006

Sweet Dreams

When the home health care nurse left last night we hoped and prayed that Katy would have the blessing of sleep. Well, 18 hours later I suddenly thought, “I can’t believe she is still sleeping! Maybe her blood sugar levels have dropped and I had better check!” A quick check showed me that God is at work in her frame. Her sugar level was normal. Her sleep was the deep healing kind that brings life to the body. God had answered our prayer for sleep and rest. It was that simple. When she woke up she had that deep bone pain that makes her cry out. I had a tip from Karen Tillman that wrapping Katy in very hot towels would do wonders. We tried it. It worked beautifully. After about 20 minutes she was more relaxed and tolerating her pain well. We are learning the basics about managing with a genetic disorder that still holds a lot of mystery for us so we continually pray for wisdom.

Colin and Jennifer came over tonight for awhile and Paul Burton was around. At one point the whole family was gathered near Katy who now has a wonderful roll-away bed on the first floor at the center of all the activity. Seeing the family together was a moment to tuck away in my heart. It is so rewarding to work through the hard times to get to the good. Jennifer is just 4 weeks away from her due date. I asked Katy if she could imagine how sweet and good it will be to tuck a little newborn next to her on her roll-away bed just to examine the handiwork of God. It is something that we look forward to with great delight and we know Colin and Jenn are going to be great parents. When everyone left and all was quiet, I read Katy the blog from yesterday and the many wonderful comments you left for her. She just loved hearing your hearts concerning the last paragraph of yesterday’s entry. It was a wonderful day.

My dear friend, Martha, will be coming to care for Katy tomorrow while Paul and I go to church. She is one of the most capable and compassionate nurses I have ever met. If you don’t have a home church please join us at Wellspring Presbyterian Church held at Lord Botetourt High School. Service starts at 10 AM. We long to worship, to pour out our hearts to God in gratitude for the many ways He has shown us His mercy. Enjoy your sabbath rest!

10 Responses to “Sweet Dreams”

  1. Aleah Yunger Says:

    Katy, I am so glad you are home! Sleep, being with family, and church in the morning - God is rich in His blessings. My prayers are with you and your family - glad there is continually something to be thankful for amidst the pain. Praise the Lord for hot towels! Thinking of you this morning - hope you are resting in the mercy of your Father.

  2. Carrie Thompson Says:

    Dear Katy,
    I am thinking of & praying for you & the family. Won’t it be fun to hold the baby soon!? :-)

    “He giveth his beloved sleep.” Psalm 127:2b


  3. Karen Tillman Says:

    Dear Dawn,

    I am so glad that the warm towels helped. And I would’ve posted before now, but I ahve been planning my daughter’s annual Halloween Party. So, the past day or two I’ve been cooking and baking like crazy. Everything turned out wonderful, except I wound up getting really tired, and had to get some much needed rest. It was so good to see all of Holly’s friends come home to visit. It is one of the many things I have missed since Holly has been at school. Katy, I am so sry about the bone pain, it brings tears to my eyes thinking that anybody else has to go through that ordeal. I personally hope that neither you nor I have to go through it ever again. Oh, and last night several people ask about how’s Katy doing, and I said that you were managing as well as you could be, but that your faith in God is keeping you and your family strong. Gotta run for now, and Katy, you just keep on getting better now. We will be praying for you.
    Take care and Lots of Love
    Karen Tillman
    Regional Coordinator Mid Atlantic USA
    Hermansky-Pudlak Syndrome Network Inc
    NC phone:336 954 3604
    NY home office 1.800.789.9477
    my email
    my website

  4. Laura Griffith Says:

    Home seems to be the right medicine. I do hope sleep continues to be good and plenty. My family was in church today and my stepmother, Donna Goff, who now lives in WV remembers you from an adoption party ya’ll had for another family (the Geigers, I think) Another prayer chain has been born :) I’ve been holding my new grandbaby this weekend…Life is a miracle!!!

  5. Martha Harrison Says:

    Dear Katy,

    Your Mom’s message today is so encouraging. I am very happy to hear that you are at home with your family and getting that blessed healing sleep and rest that only God can provide. I feel in my heart that God is healing your body, and at the same time strengthening the faith of all who are praying for you. You have touched many people through this illness. As hard as it is to see you suffering, God will use this to bring many closer to Him. His ways are not our ways, but He has taught us that ALL things work together for good for those who love Him and are called according to His purpose. Rom.8:28 My prayer is that the pain will subside quickly and that you will continue to improve and feel stronger each day!

    With love and blessings, in Jesus, for you and your family,

    Martha Harrison

  6. Aunt Doris Says:

    So glad to hear you are getting the sleep you need, Katy! And about the coming baby - let me tell you a little story about your Dad when he was tiny. Your Grandad & grandmom came “home” to visit with baby Paul (we called him “Paulie” then), and the only thing we had for him to sleep it was an old fashioned crib that my father had made. It was high, more like the height of a current style changing table, with only very short sides. Very convenient for Mom tending the baby, but he might fall out easily. He kept raising up on his little hands instead of falling nicely asleep so Mom and Dad could relax and not worry about him falling out.

    Aunt Doris

  7. Margee Beardslee Says:

    Dear Paul, Dawn and Katy,

    Who knows how many are riding this emotional rollercoaster with you! But you are in the front seats. You are experiencing everything, anxiety, frustration, helplessness, pain, love, peace, hope, even moments of joy with magnified intensity. Only God knows how many are being touched by your intimate sharing. There are no masks being worn. Thank you for allowing us to get a glimpse of what you are experiencing and what God is doing. Thank you for allowing us to lift you to Father. Inside, I’m hugging all of you right now. Can you feel it?

    Katy, Your illness is definitely not what any of us would choose. But one day you will see all that God is accomplishing through it. In that day, the pain will not be remembered…like a mother holding her baby after childbirth, your joy will be overwhelming.

    Love you all,

  8. David and Lizi Says:

    It was so wonderful to see your Mom and Dad in church today because it warmed our hearts to know you are all home! We are absolutely thrilled that you had some good healing deep sleep and all the praise goes to our King!!
    We are so much encouraged by all that is happening. It may be slow but it is sure and steadfast like our Lord who we cling to. His angels of mercy are surrounding all of you and they are ministering to you to help in the healing process! What a great comfort and hope we have.
    We love you all so very much and we are so grateful for you and your family because of the tremendous witness you are to us. Thank you. Love Lizi and David

  9. stuart blankenship Says:

    Hi Katy, I’ve been checking in on your progress and it’s so great to know that you’re home with your family and loved one’s. I guess what Dorothy said is true, “there’s no palce like home.” I will continue to pray for you and your family. Just know that there are a bunch of strangers in the loop with you. God bless you.

  10. Lillian Oliveira Says:

    Katy, Wow! Bet you set a personal record for sleep! Its amazing how some moist heat helps pain - I just fixed a hot foot soak for Uncle Tony, who’s having some acute arthritis in one big toe joint.

    So the Grape Hospital didn’t turn out to be very “fruitful” after all?! And as for the that Dr. allegedly interested in your conditon, who didn’t show up while you were there - well, in My book he’s a real “Sour Grape”!

    As for that high “crib” Aunt Doris was talking about - I can remember when I slept in it. There probably was already another baby in the house. But I remember Aunt Laurie and Aunt Middy vying for my favor, and we were whispering, so Middy wanted me to do something and Laurie whispered to me, “Say no”. So I whispered “no” right back. and she said “Say no out loud” So I whispered “No, out loud”. :-) I also remember being in that crib when Laurie sang a little song with the phrase ” the rooster gets up early, too” I thought the last three words were one, and asked, “Laurie, what’s ‘a pearly-do?’” (Probably a hair-do with a string of pearls) Speaking of pearls….

    Folks in my church have been very touched by your story, too, Katy. We pray for you in my Bible Study. Last night we had an all - music service where people requested others in the congregation to sing certain songs. Uncle Tony and I had been requested to sing “He the Pearly Gates will Open”. I took the opportunity to tell folks about your experiences with heaven, told them that I had been feeling close to heaven because of that. I was really blessed as we sang: “He the Pearly Gates will open, so that I may enter in, For He purchased my Redemption, and forgave me ALL my sin.” There was SUCH a wonderful presence of the Holy Spirit there all eve - a hushed, reverent one. I was so blessed by it all even after I went to bed my heart was filled with such a burning intensity of joy that I didn’t get to sleep for hours.
    Being in His Presence is the best thing of all, isn’t it? Even for us who don’t see Him.

    Katy and all the family, I keep you in my loving prayers. Aunt Lil

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