Thursday, October 26, 2006

Ups and Downs

Katy had a great night’s sleep last night, a long deep sleep that she calls a “healing sleep”. The sleep continued throughout the day today, with occasional waking to greet visitors. Late in the afternoon, she woke up feeling good and strong enough for some adventure. So she put on her makeup and got in her wheelchair, and we took her for her first trip outside of her hospital room (other than trips on a gurney, which don’t count). She took pictures out windows and pictures of paintings on the walls, and a picture of an eight-year-old boy we visited who has cancer. When we got back to her room, she got out her laptop and began organizing files. That’s the good news.

Because of the pancreatitis, Katy has swallowed nothing but an occasional sip of water for several days. The new pain medication she is taking (lyrica) must be taken orally, not through the Hickman port like everything else. She took the first dose last night, and had a very hard time getting it down even though it’s a very small pill. After discussions with her doctor at UVA and some people from NIH and the HPS network, we decided to try the next one with something a little thicker than water. She took her pill this evening with a half teaspoon of baby food banana pudding (one of her all-time favorites). It went down better and she loved the flavor, but now (three hours later) she is nauseated and in excruciating pain. It looks like it’s going to be a very hard night. Any of you who read this before morning, please pray for her during the night. She says she feels like she has been poisoned. It’s pretty obvious that her system is not ready for any food yet. We had planned to try a spoonful of banana pudding every four hours if the first one was ok, but that plan is now out the window.

These are the times when we can do nothing but call on the Lord. Psalm 119:49-50 says “Remember your word to your servant, for you have given me hope. My comfort in my suffering is this: Your promise preserves my life.” Katy firmly believes that the Lord has more work for her to do here on earth, and so do we. God’s promises, and your prayers and encouragement, help us to keep going even through the setbacks.

Comments
  1. Jess Lankford Says:

    Hey there!
    I was just checking in before going to bed and I will pray before going to sleep! I’m so thankful for the good day - with the outing and the pictures. I’m really sad to hear about the pill. Katy is so right though - God is doing more work through her even now than she will ever know!

    When people ask me about Ellie - because she is such a fun new addition - I get to tell them Katy’s story and relay what a faithful witness she has been to her Lord and Savior! It’s really fun to see people who are not believers try to process the fact that she has peace in the midst of pain and hope in the midest of this trial! :)

    We love ya! Ellie sends doggie kisses as well!

    Jes

  2. Bob, Amy, Emily, Meredith and Abby Says:

    Katy,

    I am so glad to hear that you had a little outing around the hospital today. I know that you were an encouragement to all the people that you encountered!

    I am also sorry to hear that the yummy banana pudding is not being so nice to you now. :0( I am still up late for a reason. I wasn’t sure why until I just read this…now I know I will be praying for you until at last I drift off to sleep. You are constantly in my thoughts and prayers, and I am still constantly awed by the things that you told me. You are definitely one special girl.

    Hugs and kisses to you until I see you again. I’m dying to get up to UVA and see you, but my schedule has not allowed it thus far.

    Much love,
    Amy and family

  3. Julie Wensley Says:

    Katy,

    Dan and I are up late (very late!) working on a project and we are praying you through the night. I miss seeing your sweet smile and your hugs. You continue to be a blessing to me. I know you are touching many, many people with your testimony. We love you!

    Paul & Dawn - your strength and faith is amazing. I know you must feel like you’re falling apart sometimes. We are continuing to lift you all before the throne.

    Is. 40:31
    but those who hope in the LORD
    will renew their strength.
    They will soar on wings like eagles;
    they will run and not grow weary,
    they will walk and not be faint.

  4. Trisha Ferris Says:

    Katy, I hope to see you soon. It’s been too long since we’ve had a girl talk. I look forward to more times of sitting cross-legged on the library sofa, reading Psalms & talking boys!
    Love in the Lamb,
    Trisha

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