Katy had a great night’s sleep last night, a long deep sleep that she calls a “healing sleep”. The sleep continued throughout the day today, with occasional waking to greet visitors. Late in the afternoon, she woke up feeling good and strong enough for some adventure. So she put on her makeup and got in her wheelchair, and we took her for her first trip outside of her hospital room (other than trips on a gurney, which don’t count). She took pictures out windows and pictures of paintings on the walls, and a picture of an eight-year-old boy we visited who has cancer. When we got back to her room, she got out her laptop and began organizing files. That’s the good news.
Because of the pancreatitis, Katy has swallowed nothing but an occasional sip of water for several days. The new pain medication she is taking (lyrica) must be taken orally, not through the Hickman port like everything else. She took the first dose last night, and had a very hard time getting it down even though it’s a very small pill. After discussions with her doctor at UVA and some people from NIH and the HPS network, we decided to try the next one with something a little thicker than water. She took her pill this evening with a half teaspoon of baby food banana pudding (one of her all-time favorites). It went down better and she loved the flavor, but now (three hours later) she is nauseated and in excruciating pain. It looks like it’s going to be a very hard night. Any of you who read this before morning, please pray for her during the night. She says she feels like she has been poisoned. It’s pretty obvious that her system is not ready for any food yet. We had planned to try a spoonful of banana pudding every four hours if the first one was ok, but that plan is now out the window.
These are the times when we can do nothing but call on the Lord. Psalm 119:49-50 says “Remember your word to your servant, for you have given me hope. My comfort in my suffering is this: Your promise preserves my life.” Katy firmly believes that the Lord has more work for her to do here on earth, and so do we. God’s promises, and your prayers and encouragement, help us to keep going even through the setbacks.Comments