Thursday, November 30, 2006

Thursday Evening

It has been another happy day. We got up and had breakfast with Mom and Dad, and they left to continue celebrating their anniversary by stopping by a German restaurant for lunch on their way home. After they left, Katy and I went to the hematologist. On our last two visits Katy was in a wheel chair and couldn’t finish answering all the medical questions being asked of her because she was just too weak. Imagine what it was like for Dr. Mallidi to walk into her office and see Katy hop up to greet her. It was another “holy moment” and the happiness on all of our faces told the story. She just kept smiling and shaking her head as if to say, “This is amazing!” That’s answered prayer!

All of Katy’s blood work showed signs of significant improvement today. Although she is still anemic, an iron infusion is no longer necessary. Her levels have come up so much that if Katy continues to be able to eat, she should be at normal levels soon. Her platelet count is holding steady at 179,000, her feet and hands are healing to the point that she was walking most of the time today. One thing Dr. Mallidi encouraged us to do was back off Katy’s steroids as soon as possible. She believes the swelling in her neck is coming from the steroid use. We want to do that, but need to be more conservative this time, because she had her worst HPS flare-up when we backed her down too quickly after her first hospital stay.

The weather here has been warm and beautiful today so after we left Dr. Mallidi’s office, we drove to a favorite book store and shopped with our coupons. We stopped for lunch, then did a little more Christmas shopping before coming home. We had a real bonus day. I made up the term “bonus day” for winter days here in Virginia when the jet stream comes from the south and the atmosphere turns balmy and sunny for a day right in the middle of winter. It usually snows or turns bitterly cold the next day, but on a bonus day, neighbors come outside and wash their cars, laundry gets hung out on the line, people walk their kids and dogs, and everybody feels refreshed. That’s a bonus day. By the grace of God, we had ourselves a real bonus day.

Comments:
  1. Sarah Meador Says:

    Yes, weren’t today’s temps absolutely wonderful!! Always so glad to read of another great report from your doctors. What a treat it had to have been for everyone to see you walk in for your appointment today, Katy! Replying to the sweet message you left on my xanga page; I would LOVE to spend an afternoon with you one day over Christmas break. It would be a true blessing for me. Just let me know when you’re availible and feeling up to it. :-) Continuing to pray for you!

    Love you much,
    Sarah

  2. Heather Kirkwood Says:

    That’s such great news!!! The steroids is a tough call. I know where you’re coming from on wantint to be conservative about the taper down.

    And German food! I love to cook German food, but very, very rarely get the chance. I love Rotkohl! And Sauerbrauten! Yummy!

  3. Martha Harrison Says:

    Katy and Dawn,

    What wonderful news to hear how you have improved over the past week! Yes, God is so good - ALL THE TIME! It’s in the midst of trials that we experience his goodness, and enjoy those Holy Moments! You are reaping the dividends of one who has relinquished your total being to Him in faith. I am so thankful you are enjoying food again, and even second helpings!!

    Congratulations to all of your family on the birth of your parents’first grandchild! Speaking as a proud grandmother myself, there’s nothing any better! I know you will enjoy your new little niece….Aunt Katy has a nice ring to it; you will be a blessing to her and a good role model. I’ve been enjoying the pictures on your blog. How nice that your grandparents could spend their 60th Anniversary with you. I can see how God’s love has been passed down through the generations. That is the greatest blessing anyone could ever receive!!

    Thank you so much for the sweet note, and I do look forward to sharing time with you and your Mom sometime soon….Christmas tea sounds yummy!

    Love and prayers, in Jesus,
    Martha H.

  4. Jennifer S. :-) Says:

    Hi Katy,
    My heart is so full of joy and thankfulness hearing about how well you are doing. It simply is incredible, but then again, we have an incredible God!!
    And the pictures are wonderful!! I’m glad you guys had such a blessed time. :-)
    Love and prayers,
    Jen :-)

  5. Karen Tillman Says:

    I am with you on this bonus day stuff!!! The weather here was abslutely wonderful, even with the on and off rain showers. I even went walking myself this evening. Btw….I think you are very wise about the steroid taper, at this point. Anyway, thought I’d just check in before going to bed.
    Love Always
    Karen Tillman Regional Coordinator, Mid Atlantic USA
    Hermansky Pudlak Syndrome Network Inc.
    NY home office 1 800 789 9477
    NC phone: 336 954 3604
    my email: till3604@bellsouth.net
    my website: www.myspace.com/karenshpskorner

  6. Doris Harriff Says:

    I do know that the steroids affect the facial appearance, and in the latest pictures of Katy, her face does appear to be much fuller than in the earlier pictures. I had experience of that once many years ago, when I was in college, and taking cortisone for an inflamation of the retina. Everyone thought I was gaining weight! (I only weighed 110 then). By the way, how is Katy’s weight coming along? Mike (my son) was asking about that.

Wednesday, November 29, 2006

There are so many reasons to celebrate. The Lord gave the Israelites commands to celebrate several times a year. He knew we would need a good dose of laughter, good food, good music, and sharing memories together, to keep healthy throughout every generation. So we did that tonight. We celebrated our parents’ sixtieth wedding anniversary. We had a candlelight dinner with Paul Burton finishing out our time after dinner by playing his guitar for an hour. It was relaxing for all of us. I got a kick out of Katy having “seconds” of everything.

After dinner we went to visit Colin, Jenn, and Annelise. There were more pictures taken and Annelise entertained us making several little facial expressions that were pretty funny. At one point, Katy mentioned that since she is gaining weight she has several pairs of slacks that don’t fit. As if on cue Annelise puckered up her face and whimpered. Katy reassured her that the weight gain was a good thing.

We were driving back to our home and Grandmom grabbed Katy’s hand and said, “Oh, Katy, I’m so glad you are here!” Before Thanksgivng they had seen her very sick. So we celebrated a lot of things tonight and it was good!



Comments:
  1. Karen Tillman Says:

    WOW!!! Sounds like you guys are having a ball!!! And it is certainly about time indeed. May I add a small suggestion about the steroids as you continue to drop. When I get to the 20mg drop, we no longer drop by 5mg, as I would go through severe withdrawals. So, when we get to 20 mg, as much as I hate it, I usually drop by 2.5 mg at a time. I only mention this as Katy has had problems with withdrawals from medications in the past. I’m not sure which ones, but steroids can be very unpredictable. Now with that, we will close all talk of medicine, and rejoice in the Lord for all he has brought your family through, as well as the joys he has added to your lives. Again CONGRATULATIONS!!!!! to everyone.
    Love Always
    Karen Tillman Regional Coordinator, Mid Atlantic USA

  2. Patricia Says:

    What a special event to cherish for many years to come!!!

  3. Aleah Yunger Says:

    Love the picture of all the women! Jenn looks so beautiful and how exciting it must be to hold your great-granddaughter!! This is cause for celebration - so many blessings after so many trials, they are just all the sweeter, I know. Hoping you have a blessed Thursday!

  4. Rachel Hall Says:

    Hi Katy,
    My name is Rachel Hall - I am thirteen years old. I pray for you every night and read your blog every day! My mom knew your parents (Vicki Frye Hall) from Shennendoah Baptist. I am so happy that you have improved so much and that you can celebrate with your grandparents! Continuing in prayers,
    Rachel

  5. Doris Harriff Says:

    Sixty wonderful years! Congrats, Paul & Lucile! And a wonderful new little great-grandbaby to top it all off!

Tuesday, November 28, 2006

HI-HO HI-HO It’s Off to Work…

I went into the office today. The piles of invoices and purchase orders were two or three inches thick and waiting for my attention. But the real telltale sign that I haven’t been to work was the dust on the top of my desk. Katy was feeling so well this morning that she decided she would be fine at home. I called Jennifer Blugerman (who happens to live just a block away) and told her I’d be at work for several hours. She made herself available if Katy needed her. I appreciated knowing that she was nearby.

While I worked, Katy took care of several details at home, including her laundry. She likes to be busy and made the most of the day. I came home at 5:30 and asked her if she had taken any pain medicine today for her feet. She thought a minute and said, “I didn’t take any, because I didn’t need it!” She hadn’t even given it a thought. One thing we started doing when we recognize that things are turning around for the good is raise our arms to the heavens and shout, “Holy moment, thank you, Lord!” So that’s what we did. It may look strange but it feels right. It is also quite fun to do. It is a holy moment when we stop and recognize that God is active in our lives and astounding us.

Katy’s doctor called tonight and we talked about the drop in platelet count. We will see Katy’s hematologist on Thursday. Maybe her hematologist will have some idea of what to do to keep the platelets Katy has. We are praying about it. The Lord knows where and why they are disappearing. We’re trusting Him for answers.

Tomorrow we will celebrate the 60th Anniversary of Dr. and Mrs. Paul Campbell (AKA Mom and Dad). I think they would say that one of the secrets of their happy marriage is being a friend to each other. They even play their instruments together during the week for the fun of it. They pray throughout the day. They have made room for Christ first in their hearts, and then in their home. We will have dinner with them and take them to visit their new great granddaughter. And we’ll do it all with Katy, because the Lord has been gracious.

Comments:
  1. Sarah Meador Says:

    Aww! Your “Holy Moments” made me smile. :-) How special another joy-filled and normal day like today is! I praise God for your never ceasing faith and reliance on God!! What a joy it is to witness.

    Love you!!
    Sarah~

  2. Patricia Says:

    Another joy-bustin day at the Campbell’s!!
    Please tell your grandparents what a wonderful witness their Christian marriage is to the family, to their community, and to the world, please!!

  3. Laura Griffith Says:

    What wonderful news!!! I’m so excited to hear about the two hamburgers. Actually I can’t imagine you doing it. Did you take pics? :) Be sure to take pics of the happily married couple…60 years..WOW!!!

    Still in our prayers,
    Laura

  4. Doris Harriff Says:

    It is a real blessing to see God at work in Katy’s life. And I’m sure Paul and Lucile will think Annelise is a great anniversary gift. (I remember that Lois beat them to getting married by just a few days - 3, I think).

  5. Jennifer S. :-) Says:

    Katy,
    WOW!!! TWO hamburgers?? You go girl!!! Pretty soon you’ll be eating more than me. :-D God is so, so good.
    Have lots of fun at the party!! Congratulations to your grandparents. 60 years is an incredible blessing!!
    Love and prayers,
    Jen :-)

  6. LInda Burk Says:

    HI…loved the pictures of the anniverary party..Four generations..a blessed event!!!!!!!!!!! Katie is doing her laundry..gooo girl!!!!!!!!!!!!! hugs to all, LInda

  7. Doris Harriff Says:

    Sixty wonderful years! Congrats, Paul & Lucile! And a wonderful new little great-grandbaby to top it all off!

  8. Doris Harriff Says:

    Ooops, replied to the wrong post - I’ll repost it there.

Monday, November 27, 2006

Today I took Katy for more lab work and found that her white cell count was now down to the normal range. (from 11 last Friday to 7 this afternoon.) That was very good news. So the “lurking infection” seems to be under control and can only be explained as another answer to prayer! More bacteria cultures were drawn as a precaution due to swollen lymph nodes around the old Hickman site. Katy’s platelet count was down again. In the last ten days she has gone from 272,000 platelets to 189,000. This has prompted us to schedule another visit to her hematologist. Maybe some of the HPS community could email us if you have solved the case of the disappearing platelets!

In other news we stopped by the hospital again today to have another look at Annelise. Then on the way home this evening Katy said, “You won’t believe what I’m having a craving for; a hamburger!” She was right, I couldn’t believe it. She hasn’t eaten a hamburger in about two years. I was reluctant to get her one, knowing how hard they are to digest, but she not only ate one without pain, she ate two! For those at the National Institutes of Health (NIH) reading this blog, Katy is eating and digesting food better than she has in a couple of years. She’s now eating about 1,600 calories a day. That has made a huge difference in her energy level. It is a joy to see her back on her feet again and doing things around the house. Her steroids were cut again today by 5mg, so she will be at 45mg per day until the next reduction. Things are holding steady and it is a reminder of God’s faithfulness. In fact, during the night I gave Katy some medication at 2:00am and she slept until 7:30am. Having that many hours of sleep in a row is a real treat, and I believe a sign of healing.

We are convinced that the prayers of so many of you have sustained Katy through four months of a brutal ordeal. Prayer sustained her when she was unable to eat. Your prayers for her medical team here in Roanoke gave them wisdom to understand this disease, and then treat Katy. Our family has learned more about prayer and the power of it than we ever would have known without the trial. We have asked God for the miracles as well as the simplest things. There were days that I prayed to hear Katy laugh, just once. Thank you, as you prayed for the big things and the little things for us. I saw this quote Sunday and will leave you with it as a reminder to enjoy asking our heavenly Father for your own needs.

“Those who have not learned to ask God for the childish things will have less readiness to ask Him for great ones. We must not be too high-minded. I fancy we may sometimes be deterred from small prayers by a sense of our own dignity rather than God’s.” -C.S. Lewis

Comments:
  1. Lisa Patterson Says:

    Katy,
    I think being an Aunt agrees with you. You look great in the pictures with that sweet baby. We will continue to pray for the details in your life. What a wonderful feeling to be eating again. Such small things that we take for granted until they are gone. You are truely a miracle of God!
    Blessings to you today
    Lisa

  2. Jess Lankford Says:

    Hey guys!
    I’m glad to hear that Katy is eating so much! Two burgers - I’m impressed!!! *GRIN* I agree with Lisa - being an Aunt must agree with you!

    Dawn - it’s funny that you listed that quote…I was doing the bulletin last week and as I was putting it in, I totally thought of you guys and how you have been so faithful to pray for even the smallest things. I ALMOST sent you the quote - but figured you would see it Sunday morning! :) Too funny!

    Love ya’ll!
    Jes

  3. Julie Wensley Says:

    Katy - What a sweet picture of you and Annelise. Babies are amazing aren’t they? I can hardly wait to hold her. I’m sure there won’t be any shortage of babysitters, but if there is . . . we’re definitely available.

    I am so thankful for all of you. It is good news about your white cell count. I’m trusting and praying with you that the mystery of the platelet count will be solved soon. (That sounds a little like a Nancy Drew book!)

    We love you!

    ~Aunt Julie

  4. Sarah Escalera Says:

    Katy — I loved getting your comment on my blog! Praise God you are feeling better enough to read blogs again! I have been following your healing journey and I pray for you each time I read an update…..oh and congratulations auntie!! :)

  5. David and Lizi Says:

    We praise the Lord for his goodness. It has been a blessing to us reading about your wonderful progress!
    Love Lizi and David

  6. Adam Thompson Says:

    Yes, PTL for the good news. :-) I like the C.S. Lewis quote. Thanks.

    ~Adam

Sunday, November 26, 2006

Today I was listening to Katy telling Annelise about the creek in front of our home and all the little critters in it. She was telling her about the willow trees and all the adventures at Nonny and Papa’s house including Ellie the dog. She spoke about all the fun they will have together with the dollhouse that her dad and brothers made for her when she was a little girl. I captured the picture below during one of these conversations. All these dreams and conversations with Annelise have helped her through her foot pain over the weekend, and given her “a future and a hope” (Jeremiah 29:11). While Katy wasn’t quite up to going to church early this morning, she slept until early afternoon, then we went back to the hospital to have another look at the sweetest baby in the world.

Some of you have commented about the name Annelise Katherine. Jennifer had the idea to combine two family names to form the baby’s middle name. The combination of Kathryn (Katy) and Erin (after Jennifer’s sister) formed the name Katherine. Annelise will be proud of her name. I’m sure she will be thankful for her two Aunts. And she’ll really be impressed by her clever Mommy!

Thank you for all those wonderful congratulatory comments! We printed them out for Colin and Jennifer and took them to the hospital.

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Comments:
  1. Jen L. Says:

    Jenn…you look great! Congratulations!! =) Annelise and Annika will have great fun growing up together. I can’t wait to meet your little one and snuggling her.

  2. Davey Says:

    Well, I know Erin far better than I know Katy, but I know that Annelise will have two wonderful aunts!

  3. Cousin Vicki Says:

    Wow, she is a beauty!!! Congratulations Cousin Jennifer. Give her a kiss from me here in snowy Seattle…hope to meet her next summer!
    Love and blessing to all!

Saturday, November 25, 2006

A sweet baby girl arrived in the Roanoke Valley and is resting comfortably tonight. Her name is Annelise Katherine Campbell. She weighed 7lbs and 14oz. She has light brown curly hair and the sweetest little face there ever was! We just stared at her all evening. We had a day of delight, and Katy was there to hold the baby.

Jennifer worked hard all day but at 5:07 all that work paid off and little Annelise took a big breath of life and Jennifer took a deep sigh of relief. She delivered the baby naturally, without any pain management. The nurses said she was the best and most composed mother they had ever worked with. Colin is beaming from ear to ear. He is smitten by this tiny girl! What a day of wonder.

Our parents are celebrating sixty years of marriage on November 30th. They will be driving to Roanoke this coming week to hold their first great-grandchild. What a gift. There is going to be a lot of celebrating, and we are hopeful tonight that Katy will be able to be at home, enjoying all the festivities.

We arrived at the hospital known as Mom, Dad, and Katy. Tonight we left the hospital and have the honor of being called Nonny, PaPa, and Aunt Katy. DELIGHT!



  1. Doris Harriff Says:

    Welcome to Annelise! I bet Colin is bursting his buttons off!

    So glad to know all is well!

  2. Trisha Ferris Says:

    What a beautiful girl! Congratulations to all, especially to Jen.
    Trisha

  3. Bob, Amy, Emily, Meredith and Abby Says:

    Congratulations!!!! She looks so cute! :0) Welcome little Annelise. We can’t wait to see you–in person.

    From the Collins family

  4. Adam Thompson Says:

    Yay! Congratulations. :-)

  5. Fairlight Says:

    What an absolutely beautiful baby, and what a perfect gift for all of you! So happy that you have this new little treasure to cuddle and love.:-)

  6. Sarah Meador Says:

    What a beautiful baby girl!!! Huge congrats to everyone!! That is so exciting! Is her middle name, Katherine, named for dear Katy? What a joy a new life is!

    Much love,
    Sarah

  7. Kristin Dunker Says:

    Congrats to all: Daddy Colin, Mommy Jenn, Nonny, Papa, and Aunt Katy! She is absolutely as adorable as can be! Love the name too btw. We’ll look forward to meeting her in person at church soon :-)
    Love,
    ~Kristin

  8. Heather Kirkwood Says:

    Congratulations!!!! What wonderful news!!!! I just got home from Thanksgiving a little while ago. What great news! Katy, I’m so glad you could be there too. Wasn’t it nice to be at the hospital for someone else for a change! HA!

  9. Jennifer S. :-) Says:

    YAY!!! I’m so happy to hear that everything went well!! Welcome to our world, Annelise!!
    With love and prayers,
    Jen :-)

  10. Jen L. Says:

    CONGRATULATIONS!!! Glad the delivery went well and everyone’s doing good. I can’t wait to meet little Annelise soon.

  11. Barbara Walker Says:

    Dear Campbells,

    What a beautiful baby and what a beautiful name!! Congratulations to all of you. Again, lots of answered prayers! God is soooo good!

    Love in Christ,

    Barbara, Virgil and Ashley

  12. Doris Harriff Says:

    The pics weren’t up yet when I posted. What a little sweetheart! I’d love to compare Colin with the pic I took of him ‘way back in ‘81 - with his mom and Dad. He sure has changed! And you can see he is certainly a proud Daddy!

  13. Sandy Says:

    Congratulations on the new niece/granddaughter! I love baby news. :-) And it’s always nice to go to the hospital for a happy occasion. God Bless the new baby and her family.

  14. Aunt Judy Says:

    She’s Beautiful!!!

  15. Anne Poler Says:

    Congratulations on the birth of little Annelise! She’s a beauty. Glad everyone is doing well. Hope Jennifer can get some rest. And I’m glad Katy was well enough to go visit her new niece. Praise God!

    Love,
    Anne

  16. Kaitlyn Meyer Says:

    CONGRATULATIONS!!!!!! i canNOT wait until we get to see baby annelise in person. She looks so peaceful. Praise God that Jenn and the baby were kept safe during this wonderful miracle!

    Love,
    Kaitlyn

  17. Laura Griffith Says:

    Congratulatons!! :) I’m glad you all got to be there for this miracle!!

  18. Karen Tillman Says:

    CONGRATULATIONS to you all!!!! Nothing like a new baby to bring the family together!!!
    Love Always
    Karen Tillman Regional Coordinator Mid Atlantic USA

  19. Holly, Chris, Bev, & John Says:

    Hello from Pennsylvania!
    We are ALL so very happy to hear that Jennifer and Baby Annelise are doing so well! We were all praying for everyone up here! God Bless! *Hugs* What a beautiful miracle from God. :)

  20. Jess Lankford Says:

    Hey Guys!
    Congratulations! She is just beautiful and Colin really does look so proud to be holding her! What a precious time!!! Dawn - I’m emailing you the list of ’stuff’ this evening!! :)

    Love ya’ll!
    Jes

  21. Ana Guzman Says:

    CONGRATULATIONS to the parents and grands and Aunt Katy. And what a beautiful baby she is, with a beautiful name as well. All the best to all of you.

    Blessings,
    >Ana

  22. Anne Muttai Says:

    CONGRATULATIONS Colin & Jenn!!
    We are looking forward to welcoming Annelise to the church family…so excited for you both!

    Steve & Anne

I just talked to Dawn at the hospital. They have been there most of the day waiting for their new grand baby to arrive. Nothing yet! But they just heard from Colin that it shouldn’t be much longer. We will let you know as soon as we hear any more news! Please continue to pray for a safe and healthy delivery.

Comments:
  1. Laura Griffith Says:

    A prayer is being lifted up :)

  2. Irene Shumate Says:

    CONGRATULATIONS TO THE CAMPBELL FAMILY. WHAT A PRECIOUS LITTLE JOY!
    Love in Christ,
    Irene Shumate

  3. BEVERLY BEAN Says:

    Beautiful baby. Congratulations.
    Congratulations Uncle Paul & Aunt Lucile on your 60th Anniversary.

I took Katy to the doctor yesterday because her feet were so bad she couldn’t walk on them any more. Her platelet count has fallen by 70,000 and her white cell count is up. The doctor said, “It appears that something is lurking; I want to see her again and draw more labs on Monday.” This news was difficult. It was hard to take and I am boldly asking God for a miracle. Just the term “something is lurking,” reminded me of a prowling lion “seeking whom he may devour.” So along with our devotions last night I prayed and begged the Lord for a miracle and a delight. You probably know what a God delight is already. It’s one of those unexpected pleasures that loudly proclaims His hand at work. I wanted just a spark of His goodness that would help us through the next few days. So…..

We woke up to clear blue sunny skies and at 9:30 Colin called to say that Jennifer was in labor five days early! He just called again from the hospital and Jenn’s labor is progressing quickly and the doctor has already been called! Now, is that DELIGHT? Sometime today a brand new sweet baby will be entering this world, and right now we are thanking God for His marvelous delights. Katy is able to walk on her feet this morning, and we are all getting ready to drive over to the hospital to wait. How great is His love for us! We’ll update as soon as we can announce the arrival!

Comments:
  1. Jennifer S. :-) Says:

    WOW!!! I’m praying the new baby is delivered safely and Jenn will come through with flying colors!!
    Katy, I’m praying that the doctors find whatever is lurking. Hang in there!!
    Love and prayers,
    Jen :-)

  2. Jen L. Says:

    Praying for Jenn (and Colin too) that the delivery will go well and this new little one will arrive safely. Keep us updated!!

    Will be praying this weekend that Katy will miraculously be healed of whatever’s “lurking”.

    Hugs to you all!!

  3. Doris Harriff Says:

    Dear Dawn and Katy,
    What a rollercoaster it has been for you and your family since July! Let’s hope the medical profession will be able to quickly identify and eradicate whatever is “lurking.”

    And congrats on being a grandma, Dawn! (I have no doubt that you will be by the time you read this). It is a great profession. More fun even than being a Mom - at least, if they live relatively close to you.

    Glad you’re feeling better today, Katy.

    To God be the glory!

    Aunt Doris

  4. Carson Kistner Says:

    Dawn, Katy, and family,

    This is particularly awesome news since I awoke at 6 a.m. this morning with the distinct impression that I should pray for Colin, Jenn, and baby. Since I also got an impression as to the gender, I will be eager to hear if I was really hearing correctly! (You may remember that I thought the Lord told me that Julia would be a boy!!)

    Eagerly awaiting the news,
    Carson

  5. Julie Wensley Says:

    Wow! We have been without internet since Wednesday night. And had cell phone issues too! Exciting and wonderful news! Call me when you get a chance. We’re praying!

  6. Karen Tillman Says:

    Oh Dawn,

    I know you must be truly excited!!! Please give my best to the happy couple, and I will be remembering Katy’s upcoming labs on Monday. Take care and I can hardly wait to hear the news!!!
    Love Always
    Karen Tillman Regional Coordinator Mid Atlantic USA

Thursday, November 23, 2006

Giving Thanks

Over the last four months my parents and others have posted to keep you informed of my progress. Tonight I have some personal thoughts that are a progress report of sorts, and a message for Thanksgiving.

The day I learned I had HPS and the tests were conclusive I felt a sadness that I couldn’t do anything about. All I could do was cry. I had so many plans and hopes and it seemed like I was on a highway headed full speed toward my destination and suddenly the road disappeared. I felt like I had lost all direction, and there would be no celebration at the end of the journey.

Since that time, I have seen my family pulling together like a team of powerful work horses. They never gave up seeking answers from the Lord and finding me help. My church and our friends helped my family keep going in the face of many obstacles. The blog gave us the encouragement we needed, and Jesus came to carry me through the toughest battle of my life. How could I have thought the road was the important part of my journey? It wasn’t. It was Who was on this journey with me. That’s what will determine where I end up. I don’t want to become a bitter old woman. I don’t want to close up my life like a bankrupt shopkeeper. I want to live. I want to live for Jesus and do His will until He takes me home.

Tonight I want to thank God for my parents. There are things about the past four months that they would not write, but I want to. When I was starving and could not eat, I would cry for food but I knew my body would reject it. I had to settle for the white liquid that flowed into my veins and know that even though I was so hungry, the TPN would keep me from starving. But during that time, my mom cooked in the garage so I wouldn’t have to smell the delicious odors and salivate for something I couldn’t have. Even at the hospital when my mom got her food tray she would spray the room with lavender then go into the tiny bathroom, sit on a stool and eat her dinner next to the commode. My dad sat in my hospital room while the work piled up on his office desk. I’ve seen Jesus in those things. I’ve felt His nearness through those who love me. I have been held by my Savior. I’ve seen the nail scars in His hands. I have never suffered physically like I have over the last four months, but I’ve also never seen Jesus at work in my life like I have these past four months. I thank God for HPS.

In thanksgiving to God, I choose life. In His grace alone, I can face the future. I thank Him tonight for the meal I ate today, including cranberries, and I thank Him for the manna of His word that sustains me everyday. In closing tonight I will leave you with a portion of a song by Twila Paris that has come to mind often and it expresses where I find myself today:

This is the faith
Patience to wait
When there is nothing clear
Nothing to see
Still we believe
Jesus is very near
I can’t imagine what will come
But I know that I have made my choice
And this is where I stand until He moves me on
And I will Listen to His voice.

Could it be that He is only waiting there to see
If I will learn to love the dreams that He has dreamed for me?
I can’t imagine what the future holds,
But I know that I have made my choice
And this is where I stand until He moves me on
And I will listen to His voice.

“I will Listen” by Twila Paris

Comments:
  1. Jennifer S. :-) Says:

    Ah Katy, it does my heart such good to read this, and from your own hand too!! You are such a blessing and encouragement, and now, through your eyes, I see what a blessing your parents are. Thank you for that glimpse.
    I’m so thankful and happy that you got to eat a full-blown meal today. I can’t imagine how incredibly wonderful that felt, and tasted. I hope that you have a blessed rest of the week!!
    Love and prayers,
    Jen :-)

  2. Jennifer Wellington Says:

    Dear Katy,
    Thank you for sharing with us a real life picture of what Jesus looks like through the acts of your parents. God is good, all the time, all the time, GOD IS GOOD.
    Jennifer Wellington
    (the other “Katie’s” mom)

  3. Annie Kibler Says:

    Katy,
    When I couldn’t eat I used to watch cooking shows and make lists of things I was going to eat when I was finally able to tolerate it. (I was on tpn and could not eat for about 2 months back in 1995 b/c of ulcerated colitis). I remember the doctors saying that young people usually keep their hunger even with tpn, while older people usually lose their appetite with it. Something with the young body and mind being full of life and wanting to thrive? I forget the reasons exactly. My mom and I thought that was interesting since I was still technically getting nutrition through the tpn, but in my mind and aching belly–I was starving! My mom also lost weight while I couldn’t eat. She felt guilt she said for eating b/c I couldn’t. She would go down to the hospital cafeteria and eat real fast and come back to my room. I loved when she came back b/c I could smell the foods lingering on her clothes. It’s amazing to think about it now. I thought it would always be so fresh in my memory b/c it was such a traumatic experience. I promised myself and God that I wouldn’t forget what God has done for me and never take the simple things (like food and freedom from a hosptial bed) for granted as long as I lived. At the time, I couldn’t imagine my suffering not being constant and vivid in my daytime thoughts and night time dreams/nightmares. With time my memories have faded, I guess for good and bad. For good–b/c it seems to be a blessing from God not to remember and relive some of the procedures and nightmare-ish sufferings that I endured; and for bad–b/c I sometimes find myself being complacent and forgetting how blessed I truly was and am now. Everyone, whether suffering or not, is being carried along by Jesus and needs to remember Him as their purpose in life–good times and bad. Your story and blog has helped me remember once again. Thank you. And when you have days, years from now when you need reminded, your blog will be an excellent resource. Life sure is interesting, huh?! I hope you have continued days of health and happiness. I’m glad to hear that you and your family had a happy Thanksgiving.

    Now faith is being sure of what we hope for and certain of what we do not see. Hebrews 11:1

    Love Annie

  4. Patricia Hagsten Says:

    Thanks for the glimpse, Katy!
    Yes, your parents are special….but even more, so are you…a fine example and withness for Him.
    Ib & Patricia

  5. Laura Griffith Says:

    Good to hear from you Katy. I’m so excited you got to eat on Thanksgiving Day. I hope all went well. Ya’ll will continue to be in our prayers.

  6. Sarah Meador Says:

    Katy,

    You are an angel and a true testimony of God’s greatness and His beauty. My eyes filled with tears as I read the words you were able to type yourself. You are such an encouragement. You said that many times during these past 4 months you saw Jesus in your family. Katy, I see Jesus in you so powerfully. Even in your darkest and most difficult days, you were a beautiful shining light to us all.

    Yesterday during the Thanksgiving meal, I thanked God for you, especially when I ate the cranberries. :-)

    Thank you Katy, for listening to God so willingly, and for allowing me to share in this portion of the great journey with you. I love you, dear friend.

    Sarah

  7. Grandma & Granddad Says:

    Dear Katy,

    What a joy it was for Granddad and me to be there with you yesterday to celebrate Thanksgiving. And especially what a joy it was to sit across the table from you and watch you eat that delicious banquet your Mom prepared for all of us. Your plate was as full as mine with all the turkey, dressing, mashed potatoes, etc. that makes for a Thanksgiving dinner. You looked so content eating that yummy cranberry salad and so very thankful to be sitting at the table with your family. God is so good and we thank Him every day for His many blessings.

    Your blog this morning and your testimony touched our hearts. You are truly a witness for our Saviour and we praise Him for that. We are looking forward to our next time to be together.

    Lots of love and continued prayers,
    Grandma & Granddad

  8. Karen Tillman Says:

    Dear Katy,

    I just recently posted a section on my website, dealing with how to deal with HPS. I hope you will give it a look see as I think you can see where you have come from and where you have progressed to, and where you may go again. Heather said that it really is a piece that completes my website. Instead of as if I am talking from outside myself like a reporter. It was a piece I had wanted to complete for you, but couldn’t bring myself to write. It took me 2 hours to compose it. I shed many tears as I thought about you, myself and others that have gotten the news of having HPS. Also, yuor pastor’s wife Jennifer inspired me to write that entry, as we had quite a long talk about you one night, as I was desperate to find out how you were.
    And now I am shedding tears of happiness for you, as we celebrate God’s goodness, and how he has worked in your life, and the life of others as they have gotten to know you.
    I am so glad that you had a great Thanksgiving, and like you Katy I have much to be thankful for. To God be the glory great things He hath done.
    Take care, and enjoy those cranberries!!!!
    Love Always
    Karen Tillman Regional Coordinator Mid Atlantic USA
    Hermansky-Pudlak Syndrome Network Inc
    NC phone:336 954 3604
    NY office 1.800.789.9477
    my email: till3604@bellsouth.net
    my website: www.myspace.com/karenshpskorner

  9. Carson Kistner Says:

    Katy -

    My heart is full of thanksgiving for God’s faithfulness in your life and your choice to stand in His grace. Your remarks reminded me of what Edith Schaeffer said in her book, What Is a Family?, when she explains that we must learn to see the times by the sickbed as a PART of the journey, not a DISTRACTION from the journey. You obviously are learning that lesson from experience instead of from reading her book! I know that your parents have modelled that truth for you through the years as well in ministry to others.

    May God continue to show you signs of His goodness.

    Love,
    Carson

  10. Lillian Oliveira Says:

    Katy, All heaven stood up and applauded when they heard your testimony and your choice. And I just cried.

    Aunt Lil

  11. Sara Says:

    Katy,
    I too, was crying as I read your blog. You are by far one of the bravest people I know. You are strong and beautiful and courageous. Thank you for sharing your heart with us through this site. We are so thankful that you had a great day and were able to eat the things you love. We will continue to pray for your health and strength. I read this verse in a Christmas card today and it reminded me of you: Show the wonder of Your great love,You who save by Your right hand those who take refuge in You. Psalm 17:7
    We have all been blessed to witness the awesome power of God Almighty working in your life!
    We all love you very much.
    Love,
    Sara

  12. Candice & Crystal Sipe Says:

    Dear Katy!

    Thank you for sharing this powerful message with all of us during this time of Thanksgiving. As I read your blog I was also touched by your words of inspiration. Your testimony shines bright for Christ. You and your mom are wonderful, we are so thankful that the Lord has brought your whole family into our lives. I know as we continue to battle sickness together, that God is using us to lift each other up. Meeting you all has been a highlight for us and we pray that we will share many more years of friendship together.

    May the Lord continue to bless you Katy!

    Love your sisters in Christ,
    Candice & Crystal

  13. Adam Thompson Says:

    Hey Katy,

    I just now read this, as my RSS reader hasn’t been running (and I didn’t notice). But anyways…

    Thank you for sharing! Your post reminds me of the song “Held” by Natalie Grant:

    “This is what it means to be held…
    This is what it is to be loved.
    And to know that the promise was
    When everything fell, we’d be held.”

Wednesday, November 22, 2006

Thanksgiving Eve

This evening we had the good news that Katy’s blood work is showing signs of great improvement. Her lipase and amylase levels were a little high yet but consistent with the pancreas problems from not eating for so long. The bacteria cultures after twenty-four hours were negative. The lab will continue to check them for any bacteria growth for another forty-eight hours. Her platelet count is at 256,000. All of this news was very encouraging. While the swelling in her neck is gone, Katy’s hands and feet are still giving her a problem, but she walked into the surgeon’s office on her own two feet. That visit was also encouraging and tonight Katy is free of the tubing and adhesives that are all a part of IV feeding and medications. She is happy in her home tonight. Right now she is sitting beside me making place cards for tomorrow’s family dinner.

We’ll be thinking of you tomorrow as you celebrate God’s faithfulness. We wish you all a happy Thanksgiving.

Blessed be the Lord God of Israel from everlasting to everlasting, and all the people said, “Amen!” and praise the Lord. I Chronicles 16:36

Comments:
  1. Sara Says:

    Praise God!
    He is so good.
    I will be thinking of you all at the table tomorrow, smiling and eating and laughing and maybe even crying, just a little.
    Thank you for blessing me with all of your lives. You are all so special to me. Have a wonderful day and may God continue to richly bless you.
    Love,
    Sara

  2. Sarah Meador Says:

    Updates like this one brings tears to my eyes. Praise God for the great results you received today, Katy!! What joyous news to send us in to tomorrow’s Thanksgiving celebrations!! I pray that you all will have a peace and joy-filled time as you celebrate all of the blessings we have to be thankful for. I will definitely continue to thank God for the gift I have been given through you. Happy Thanksgiving!

    Much love,
    Sarah~

  3. Patricia Hagsten Says:

    Praise God from Whom all blessings flow!!!…..the the blessing of improved health certainly stands high on the list!!!
    Ib & Patricia

  4. Jennifer S. :-) Says:

    Thank you all for being such an encouragement to me and my family of God’s continuing love and faithfulness!! We are indeed a blessed people, and I say AMEN!!
    May the Lord richly bless your family tomorrow as you rejoice in Him!
    Love and prayers,
    Jen :-)

  5. David Poe Says:

    “Enter into His gates with thanksgiving, And into His courts with praise. Be thankful to Him, and bless His name. For the Lord is good; His mercy is everlasting, And His truth endures to all generations.” - Psalms 100:4-5

    Katy,
    What a wonderful testimony you are of the mercies of God. What a wonderful story you have to tell to all generations. It’s amazing to think that God can use so much suffering to bring Himself so much glory. Your trials have been the catylist for so much prayer and praise, crying out and rejoicing, supplication and thanksgiving. I thank God for the spiritual edification that your journey has produced in you, your family, and so many of us that you have allowed to have a small taste though this blog. I thank God for you, Katie; your faith in the goodness of God, your joyful spirit in spite of the circumstances, and your thankfulness for the mercies of God. I thank God for your family who have been fighting for you both physically and spiritually, and who have been faithfully updating the rest of us each step of the way.
    I pray that you have a wonderful thanksgiving, celebrating the goodness of God in your life.
    David, Heather and Noel

  6. lea turner Says:

    Hey Katy! thats wonderful that you are feeling better! thank god! he is truely so amazing in all the acts of our life no matter how small or large they may be. i am so happy that your are finally feeling better! and what a wonderful holiday to celebrate this good news!! hang in there girl! we love you so much. you are truly a fighter.

  7. Dan Wensley Says:

    Katy and Family

    Julie, Danae and I are at the Tuckaleechee Retreat Center near Pigeon Forge Tenn for annual Kendall Family Thanksgiving/Christmas gathering. We’re having a great time and thinking of you. So glad you’re in your own home, sleeping in your own bed, and eating your own Thanksgiving food. Praise the Lord! We love you so much and are so glad you are beginning to feel better.
    Have a great day of rest, relaxation, family fellowship, and THANKSGIVING!

  8. Grandma & Granddad Says:

    Katy, that is a beautiful testimony. I just hope that there will be those who don’t know our Savior who will read it.
    Love
    Granddad (and Grandma too.)

Tuesday, November 21, 2006

Tuesday Night

The wind is from the north and has a bit of a sting to it tonight. I thought Ellie wanted to go outside but when I opened the door for her, even she decided it was too cold. But inside, our home is warm and our hearts are even warmer. We are getting ready for our Thanksgiving feast. The turkey is defrosting. Grandmom is bringing her best loved pies, and we girls are pulling out the family favorite recipes.

As you prepare for your Thanksgiving celebration, please know how thankful we are for you. You have stood with us and prayed with us through so many hardships and challenges over the past four months. Know that when we say our Thanksgiving prayer we will be remembering you around our table. Know that when Katy takes a bite of her cranberries, you can share in the joy of answered prayer. You can rejoice that God hears, even when it seems like nothing is happening. You can know that when it is your time to walk through deep water or fiery trials, the God who heard your prayers for Katy is in the water and fire with you, too. Thank you, family, friends, and the many prayer partners we have never met.

We did not hear any news from Katy’s doctors so there is nothing new to report today. Tomorrow morning we will be seeing Katy’s surgeon for the removal of the central line. Katy is looking forward to that as it will make getting dressed and bathing so much easier. We’ll have blood test results tomorrow so we will post those.

Katy made the most of her day by napping in the sunshine while I sewed the cradle sheets, blankets, and bumper pad for our first grandchild. When Katy woke up we assembled everything and she stood back and said, “Oh, Mom, now all we need is the baby!” Our cradle is handed down to us and it is probably more than one hundred years old. Colin slept in it when we brought him home from the hospital almost twenty-nine years ago. It was so much fun for me to have a little sewing project this afternoon. I’m thanking God for another “normal” day.

Comments:

  1. Adam Thompson Says:

    That’s really cool that Colin & Jenn’s baby will get to use the same cradle Colin slept in…

  2. Jennifer S. :-) Says:

    Katy,
    I’m so thankful. My heart is full of everything, and especially knowing that you’re home and feeling so much better. :-)
    May your Thanksgiving be truly blessed and a joy! And eat lots of cranberries!!
    Love and prayers,
    Jen

  3. Sharon Pierce Says:

    Katy and Dawn,
    It’s a pleasure and joy praying for you and witnessing God’s awesome power at work. My faith has grown as a result, and I’m able to trust God more for the impossible things.
    The cradle is beautiful! Yep, all we need now is the baby! In God’s perfect time.
    May your family Thanksgiving celebration be a time of great joy and praise to our glorious God!
    Love and blessings,
    Sharon

  4. Aunt Carrie Says:

    All,
    I’m very happy for you! “Normal” is answered prayer. :~) Have a wonderful Thanksgiving.

    Aunt Carrie

  5. Karen Tillman Says:

    Dear Dawn,

    We all have so much to be thankful for this Thanksgiving, and I hope your day goes smoothly. So, let me say Happy Thanksgiving as I don’t know if I will be online much this week. We leave to go to my sisters house tomorrow, and I’d like to give her an update. Her husband is the pastor of Summerfield Baptist Temple, and they have been remembering you in their prayer time as well. I thought you might like to know that. Anyway, the cradle is absolutely beautiful, and it is wonderful to see Katy up and enjoying life. You guys take care and Have a HAPPY THANKSGIVING!!!

  6. Lillian Oliveira Says:

    Dearest ones, I am remembering with SUCH POIGNANCY our Thanksgiving with you all in 1989. The day after we arrived Katy saw her first snow! do you remember, Katy?
    and went sledding down the hump in the back yard. And Paul and Cile and Jackie and John and family were there, am not sure Judy was? but what a family feast of food and love we had! And you had the Christmas decorations all up, Dawn, and we celebrated Christmas with you… the last time I got gifts for everyone, I think! And a few years later it was a wonderful Christmas - was that the time I was so sick? I pray God it may happen again, (NOT the sickness!) and may you all just be SOAKED in the glory of the Lord as you celebrate this Thanksgiving together. “Bless the Lord, OH MY SOUL, AND ALL THAT IS WITHIN ME, BLESS HIS HOLY NAME!” Much love, Aunt Lil, for Uncle Tony, too.

  7. Rich Kochendarfer Says:

    Katy,
    I love reading the comments from your family and friends about “good times” in your past. The most recent one from your Aunt Lil was a beautiful memory. Mac and Carole McFarland and Nathan and Toni-Anne are coming for dinner tomorrow; I’m looking forward to the fellowship. On Friday afternoon, Rich and I are going to the Green Valley Book Fair (if you’ve never been, I’ll tell you about it soon). If there are any subjects you’re interested in, let me know by Friday. I would be glad to see what we can round up for you to enjoy. (Gardening, cooking, civil war history, travel, classic literature, etc.?) It was so good to have you in church Sunday; may God give you a blessed Thanksgiving with your family; rest in the Savior, Katy.
    Love,
    Mrs. K

  8. Gene & Shirley Murphy Says:

    Dear Campbell Family,

    We are so glad that Katy is doing better and that she is able to participate in the Thanksgiving and baby preparations. We have so much to be thankful for and Katy and her family rank among the top! May your day be filled with praise to the One who gives so graciously! You are all so special to us! Looking forward to news of the baby! Guess what-I’m going to be grandma again! Miriam is due in June!

    Love,

    Shirley and Gene

Monday, November 20, 2006

Monday Afternoon

We went to visit the doctor today and Katy had quite a bit of blood drawn. We will have to wait for twenty-four hours on the bacteria cultures since it takes time to grow them. We hope the bacteria in her bloodstream is completely gone. The other tests might reveal what is wrong with her hands and feet. Today Katy’s feet are too tender to walk on them without intense pain but she still wanted to go into the health food store and walk with me. We found an herbal body soak that is supposed to draw toxins out of the skin. It smells like juniper and eucalyptus. So we came home, made ourselves a cup of tea, and soaked her hands and feet in this fragrant hot water therapy. We bought a big bucket for soaking her legs back when she had all that bone pain, so I set it up for her and she slipped her feet into the water. She sighed and said, “Oh Mom, I feel so loved!” Maybe I have the world’s most tender heart, but it does something to me to see her so miserable and yet so thankful. It has humbled me to tears many times and today was one of them.

This morning we read from Lamentations 3:58. “Oh, Lord, Thou has pleaded the cause of my soul.” Of this passage Spurgeon wrote, “A grateful spirit should ever be cultivated by the Christian; and especially after deliverances we should prepare a song for our God. Earth should be a temple filled with saints, and everyday be a censer smoking with the sweet incense of thanksgiving. How joyfully Jeremiah seems to be while he records the Lord’s mercy.” “Oh Mom, I feel so loved,” sounds like a great song to me.

Comments:

  1. Heather Kirkwood Says:

    I was just checking in to see if there were any doctor developments today. Ohhh…I bet that leg bath smelled GREAT! I”m on a tea kick right now so the tea sounded good too. I went to the store and every kind of tea sounded wonderful! I bought mint tea, orange spice tea, chai tea, and apple cinnimon tea - aaaahhhhhh…..just the tea bags smell wonderful. Grin!

  2. Jennifer S. :-) Says:

    Katy,
    A nice long soak? Wow that sounds wonderful!! I sure could go for that.
    Thanks for so faithfully keeping us updated! I’m praying that the bacteria is GONE and that you’ll find relief from this foot and hand pain. Keep enjoying those soaks!!
    Love and prayers,
    Jen :-)

  3. Heather Kirkwood Says:

    Hey Katy, Just popping in to see how things are going and hoping all the blood work came back okay. I’m frantically trying to get ready to leave for Wichita and I’m not sure how much computer access I’ll have over the next few days - so if I don’t pop in for a while you’ll know where I’m at! Grin!

    Praying for you always!!!!

Sunday, November 19, 2006

Sunday Night

Katy was up and ready to go to church this morning by 9:30 AM. She was excited and as we drove along it was great to be with her and pray with her before we got to church. It has been a very long time since she has been able to go. We walked in, and we heard a ripple of voices saying, “Katy’s here!” Then during the children’s time, Pastor David explained to the children why Katy has to wear a white mask and gloves when she is in public. It helps protect her body from germs. He explained that her immune system was tired and that it was best for her to protect herself with a mask. Then he handed out a mask for each of the children to wear. A few children came up to Katy after church with their masks on to talk to her. It was so dear! As the pastor prayed for the children he asked the Lord to give them a “heart” for wanting to go to church even when they are older and could find many reasons not to. Many of us have memorized the little verse, “I was glad when they said unto me, let us go in to the house of the Lord.” Today it was Katy’s reality.

Tonight Katy has been having some difficulty with soreness and redness on the palms of her hands and the bottom of her feet. It has gotten worse all day and she is having trouble walking because of the soles of her feet being too sore. She also has some swelling in her neck. She told us that she isn’t feeling as well tonight. Tomorrow she is going to the doctor for her lab work to be drawn, so we plan to check all of this out. Last week during a phone call from NIH, I discovered that there are people there reading Katy’s blog and they are finding out how she is doing medically by keeping up with the blog. So I have included this medical update for their benefit. I’m also including it because we know that many of the problems Katy has had have only been solved after a multitude of people prayed.

Comments:

  1. Jennifer S. :-) Says:

    YAY Katy!!! I’m so glad you got to go to church today. I’m sorry though, that you’re having a rough time tonight. I pray that everything will get better, and quickly.
    Aren’t children the dearest things? They certainly brighten life up. :-)
    Jen

  2. Candice & Crystal Sipe Says:

    Dear Katy,
    We were so happy to hear that you had the opportunity to go to church this morning. I bet that was such a wonderful feeling, to worship with your church family. That is so awesome that your Pastor handed out masks to each of the children, how precious. I am so sorry that your dealing with some soreness on your hands and feet tonight. Hopefully the doctor will have an explanation for you when you go there tomorrow. As far as the swelling in your neck, Crystal and I have had that before too. I wonder if that is a thyroid issue. I know our thyroids will just swell up and get big, but we have never been able to get to the bottom of what is causing this. Other than it’s probably HPS related. Please let us know what you find out, as we continue to pray for you daily. We love you, Katy!

  3. Trisha Ferris Says:

    HI, Katy-Bug,
    I saw you from arar yesterday, but I kept my distance because of my cold. We will have a face-to-face I promise.
    Here’s a good Thanksgiving Scripture for you. The NIV version says it bese, I think.

    Psalm 31:19

    How great is your goodness, which you have stored up for those who fear you, which you bestow in the sight of men on those who take refuge in you.

    Happy Thanksgiving to you & your dear family.
    Trisha

  4. Jess Lankford Says:

    Hey Katy!
    I’m so glad that you were able to go to church! Anne came this morning to babysit and she told me about the masks before I read the blog - what a neat idea!

    I’m sorry your hands and feet are hurting - I will pray for you this morning! It was good to see you last week - you really are looking great!

    Love ya!
    Jes

  5. Doris Harriff Says:

    Katy, my prayers are constantly with you. You have been such a shining example of faith and trust in God, that I have found that my faith, too, is growing. God bless and keep you well!

    Aunt Doris

  6. Pete Pearl Says:

    Katy,
    I was so glad to see you in church yesterday. You continue to be an inspiration to my family and me. God’s blessings on you and your family. Have a wonderful Thanksgiving.
    Pete

  7. Lillian Oliveira Says:

    Katy, dear, just read your Sat, Sunday reports. I usually don’t open my computer on Sunday, often Sat, too. I’d just like someone to tell me whether you report these new kinds of symptoms to the research people on this disease. I just can’t help believing that God wants to use Katy to reveal a lot of the secrets about this condition, so that others can greatly benefit from them. I’ve forgotten what the NIH is? Katy, you’re a wonderful, valiant, wounded warrior for the Lord. May the world continue to be blessed by how you and your family have endured this “fiery trial”, which truly is PROVING that your “faith, which is more precious than gold… is GENUINE,” which will all turn out for the GLORY OF THE LORD MOST HIGH! How I love and praise Him! Much love, Aunt Lil

  8. Heather Kirkwood Says:

    Hey there,
    Give you pastor a big, fat, BRAVO! for me. I thought what he did with the kids’ time was just great! I’m intrigued to hear that Candica and Crystal have also had that hand and feet swelling. I’ve had that too. I don’t know if it’s my thyroid, but there have been times when my neck has swollen up, almost like there’s something in my throat. But, usually by the time I can get to a doc. it’s gone and my blood work is normal and they look at me like I’m nuts.

    Let me know when you’ve got your NIH dates.

    Hope you’re having a good doctor visit today!