Katy’s Hickman port was removed last night about 11:30. She had gotten progressively worse throughout the evening, with fever, dizziness, occasional blackouts, and severe deep bone pain. It became apparent that the infection was winning, so a surgeon was called in to remove the port. We praise God that the procedure went smoothly and there were no bleeding problems even though her platelet count is still very low. She felt better almost immediately, although the bone pain persisted throughout the night.
Since her platelet count has dropped again slightly, she is scheduled for a platelet transfusion this afternoon. She is also scheduled to have a new Hickman port installed Sunday morning, assuming the infection has been brought under control. Please pray about both of these scheduled procedures. Meanwhile, she continues to snack on crackers and baby food whenever she feels hungry.
Katy has developed a craving for fruit-flavored lifesavers, a craving she is unable to indulge very much because the transition from total TPN feed to a combination of TPN and regular food tends to cause her sugar levels to spike. Last night before the Hickman port was removed, we told her that if she did well during the procedure and her sugar level was ok, she could have a lifesaver. Katy’s first request after the procedure was finished was to check her sugar. Sure enough, it was ok, so she got to have a banana flavored lifesaver she had been saving in her bedside stand. The look on her face when she popped that lifesaver in her mouth was priceless. You would have thought she had just taken a bite of the most fabulous chocolate dessert imaginable. That’s Katy - grateful for even the smallest blessing, and self-disciplined enough to delay gratification until the proper time. She knew exactly where that lifesaver was, but she left it there until the time was right.
One thing Dawn didn’t mention in yesterday’s post is that when she and Katy went down to the hospital library yesterday, they left a sign on Katy’s bed that said “Katy escaped”.
Thank you for your continuing prayers, comments, and encouragement. Katy really misses the “outside world” when she is in the hospital, and your notes and the knowledge that you are praying are encouraging to her.