Friday, November 10, 2006

Friday Update

Katy’s Hickman port was removed last night about 11:30. She had gotten progressively worse throughout the evening, with fever, dizziness, occasional blackouts, and severe deep bone pain. It became apparent that the infection was winning, so a surgeon was called in to remove the port. We praise God that the procedure went smoothly and there were no bleeding problems even though her platelet count is still very low. She felt better almost immediately, although the bone pain persisted throughout the night.

Since her platelet count has dropped again slightly, she is scheduled for a platelet transfusion this afternoon. She is also scheduled to have a new Hickman port installed Sunday morning, assuming the infection has been brought under control. Please pray about both of these scheduled procedures. Meanwhile, she continues to snack on crackers and baby food whenever she feels hungry.

Katy has developed a craving for fruit-flavored lifesavers, a craving she is unable to indulge very much because the transition from total TPN feed to a combination of TPN and regular food tends to cause her sugar levels to spike. Last night before the Hickman port was removed, we told her that if she did well during the procedure and her sugar level was ok, she could have a lifesaver. Katy’s first request after the procedure was finished was to check her sugar. Sure enough, it was ok, so she got to have a banana flavored lifesaver she had been saving in her bedside stand. The look on her face when she popped that lifesaver in her mouth was priceless. You would have thought she had just taken a bite of the most fabulous chocolate dessert imaginable. That’s Katy - grateful for even the smallest blessing, and self-disciplined enough to delay gratification until the proper time. She knew exactly where that lifesaver was, but she left it there until the time was right.

One thing Dawn didn’t mention in yesterday’s post is that when she and Katy went down to the hospital library yesterday, they left a sign on Katy’s bed that said “Katy escaped”.

Thank you for your continuing prayers, comments, and encouragement. Katy really misses the “outside world” when she is in the hospital, and your notes and the knowledge that you are praying are encouraging to her.

Comments:
  1. April Lang Says:

    Oh how precious you are dear friend!!! Praise the Lord for Lifesavers!!! I must say you and your mom have some sense of humor - “Katy Escaped” - HOW CUTE!!! :-)

    Love ya sweet friend!
    You and your Mom and Dad hang in there!
    What a joy you ALL are!

    Love,
    April :-)

  2. Heather Kirkwood Says:

    Oh Katy! I’m sitting in my office laughing! Everyone’s going to want to know why! HAAAA!!!! I love the sign, and your lifesaver story makes me laugh because I had the SAME experience! I was on a feeding tube (and GI tube) for two months once and not allowed any food. But, after much begging the docs agreed to let me suck on life savers if my sugar was okay, and if I PROMISED to only suck on them. OHHHH……nothing has ever tasted so good! Banana, butter scotch and cherry were my favorites! I was on this feeding tube thing in the hospital over Valentine’s Day, and one of the hospital volunteers came in while I was sleeping one day and left a little basket of chocolates, which I couldn’t eat. Talk about TORTURE! I could smell them all the way across the room, but I saved them for my mom. She will probably never really realize what a gift that was! HA!!! It took every ounce of will power I had to not try to sneak a bite of them because they smelled so good! You never realize how many food commercials are on TV until all you can do is watch TV and yet are unable to eat. But, when you get to the stage where you can start to eat normally again, man, everything tastes ssoo good. I sort of never got over that stage - my round figure is evidence! But now, I can’t even stand to look at chicken broth or jello - after living on it for nearly a year I just can’t stand it anymore.

  3. Laura Says:

    I’m just waiting to read a post that says that you ate the Wegman’s rice.:) hehe Hopefully they saved some for you. If they didn’t well then we’ll just have to send you some more, and I’ll make sure to put a note on it that say’s “Reserved for the stomach of Katy.” hehe :) I’m glad to hear that you’re doing better. :) :) :) :) :) :) (it just wouldn’t be a comment from me without those cute smilies. hehe

    Love ya bunches of bananas!

    +Shine the Light+
    LAURA

  4. Linda Kochendarfer Says:

    Katy,
    Do sugar free life savers work or are they not as good? Let me know; we could smuggle in a “stash.” Rich and I are headed off for “Coffee at the Well.” We’ve invited our daughter-in-law, Toni-Anne, (Nathan is hunting) and hope to introduce her to many of the Wellspring folks. As soon as you’re feeling better, we’ll settle you in one of the plushy sofas at Dee Espressos, wrap you in your blanket and enjoy the music together (don’t forget to bring Gideon, too). I’d love to hear your take on the recent elections and what you think the changes in Congress might bring. Have you had a chance to make contact with Candice or Crystal since the surgery? Rich will be out in Phoenix the end of this month; if there’s anything you want to send along to them, he would be happy to deliver it. Wanting to see you and sending lots of love.
    Mrs. K

  5. Lynda and Jim Says:

    Dear Katy,

    We love you and are praying for you. We loved reading about your delicious banana lifesaver. It is so uplifting to our spirits to read about your gratitude for even the little blessings. We love the sense of humor that your family shares with us. You encourage us to press on and stop whining, so we thank you for your great example.

    Love,

    Lynda and Jim

  6. Kelly Stanfield Says:

    I’ve been reading about your story on my friend Heather Kirkwood’s blog and figured I’d check your blog out for myself as well. My doctor wants me to lay off the sugar some, so I keep some sugar free pepper mints in my pack I wear to church for when everyone else is sharing desserts around me. I’ts been very uplifting reading about how your whole family has pulled together to help get through this continuous struggle. I can only try to imagine. Good to get to know you some through this blog. Kelly Stanfield, Leavenworth, KS.

  7. Jess Lankford Says:

    Hey Katy!
    I’m glad that enjoyed the lifesaver! Bannana was always one of my favorites too!

    Ellie has settled in and the kids are loving on her LOTS! Noah has resumed calling her ‘my little doggie’ and the water bowl has become a source of much amusement for Lydia. She loves to stick her little hands in it but since she’s not sneaky yet, we can always tell what she’s been up to because of the wet sleeves! Ellie sends her love - she is curled up in her basket at the end of my bed right now – sleeping soundly! I hope you are able to sleep well tonight as well my precious friend!

    Jess

  8. Lillian Oliveira Says:

    Hi, loved ones,

    Its Aunt Lil, I’m getting around in a wheelchair with one sore toe - I’m sure you wish that’s all you had, don’t you, Katy, dear?! My bunion surgery went well and hopefully in a few weeks I”ll be back to normal - and wish I could hope that for you, my dear. We applaud your courage, your discipline and your faith, and pray that the Lord will continue to sustain with His love and grace. We know He will. Prying for the transfusions and Hickman replacement. May the Lord protect from all ill and evil. In Jesus’ dear Name I pray, Aunt Lil

  9. Jennifer :-) Says:

    Katy, I’m praying you’ll be able to escape the hospital permanently soon and be back home again!!! And when you get better, I’ll buy you a whole big bag of Lifesavers. :-D
    The Lord is strengthening you, even through this. I can see it in even these few words. He is faithful to complete His good work in you–and He will!!! So take heart and stay strong in HIM. :-)
    Love,
    Jen

  10. Karen Tillman Says:

    Hey Katy,

    Sry once again that this is so long in coming, but we have had mission’s conference this week, and it is truly my favorite time of year as Westover brings missionaries in from all over the world. It has been a fascinating week indeed. As for the Lifesaver thing, mine used to be Werther’s Originals!!! My brother in law is a minister and he would come and visit every day, and he started bringing those Werther’s and spoiled me rotten with them. So, I always watched him carefully to see if he would pull some out of his pocket. Isn’t that funny!!!! Finally, he decided it was just cheaper to buy a whole bag of them, as it became quite apparent it would be awhile before I would come home!!! To this day, he still brings me Werther’s originals, even if I can have food when I am in the hospital!!!!! Besides, anything is better than nothing or hospital food right? :-)
    Hope all goes well with the insertion of the new Hickman, and my prayer is that this one will be much nicer to you. And I hope that today finds you feeling much better. Oh btw….I am feeling a bit better these days myself.
    Take care
    Karen Tillman Regional Coordinator Mid Atlantic USA

  11. Adam Thompson Says:

    Escaped, aye? :-D

    Hope they get the new port fixed up for ya without complications. :-)

    ~Adam

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