Wednesday, January 31, 2007

One small sip at a time

Katy successfully completed her Barium Swallow test today, but it took nearly six hours. Normally the test would take about two hours. She was able to swallow a full cup of the Barium mixture, one small sip at a time. She was determined to get through it, no matter how long it took, because she wants to give the doctors as much information as possible as they seek answers on how best to treat her. After further conversations today with another doctor in New York who treats several HPS patients, they concluded that they need to do further tests before making any decisions. The doctor in New York said Katy’s symptoms are not like any other HPS patient he has seen.

Meanwhile, Katy and Dawn are resting at Mom and Dad’s tonight, in preparation for their trip home tomorrow. They were both too tired to drive home tonight, and decided the risks of fatigue tonight were greater than the risks of possible bad weather tomorrow morning. Please pray them home safely.

Katy has been able to drink enough that dehydration is less of a concern, and if she needs additional IV fluids she can get them in Roanoke as easily as in Charlottesville. God willing, she will stay home until the next round of tests are scheduled, whatever and whenever that may be.

I watched a little portion of our “Katy’s First Christmas” video yesterday. Katy was five years old, wearing pigtails and huge glasses (they were actually normal size glasses, but her face was very small), and Dawn was telling her the Christmas Story as she pointed out the characters in the Manger Scene. What memories!

Comments:
  1. Jess Lankford Says:

    Paul -

    Thank you for the update!
    It is so good to know that Katy was able to complete the tests today! Katy sure is a spunky girl - I can see her with a determined look on her face - drinking that nasty liquid! I’m glad that they will be able to come home tomorrow - what a blessing! We will pray for their drive home!

    Jess

  2. Heather Kirkwood Says:

    That stuff is truly nasty! Go Katy! I struggle to get it down when I’m relativly well - yuk!

  3. Andrea Russell Says:

    Mr. Paul,

    THANK YOU!, for keeping us all posted about what’s been going on with Katy while on her trip in Charlottesville. I have Katy in my Prayer’s daily, and now the congregation of a Baptist Church in Healing Springs has Katy also in their prayers. They pulled the Blog on their computer and are reading her progress daily too. We are all so encouraged by her in our walk with the Lord. It is great that she has now a team of doctor’s that are working on her to get her healed. And you have a ever growing prayer team. Your Family faith is such an encouragement to everyone!
    Love and great Blessing

    Andrea

  4. Tiffany Allen Says:

    What a trooper you are! I’ve heard that the barium swallow is pretty terrible. Keep on fighting the good fight!

    Tiffany

  5. Doris Harriff Says:

    I’ve done the barium thing. It’s nasty enough when you’ve got a healthy digestive system. Katy, you’re a trooper!

  6. Karen Tillman Says:

    Oh yummy…..Barium cocktail…..my favorite!!! NOT!!!!! You poor thing, it used to take me awhile just to get past the taste, and then the after affects were definately no picnic either!!! I am so glad that you were able to give the docs what they needed, and hope the rest of your tests go much more smoothly.
    Love
    Karen Tillman

Tests and Blessings

With Dawn and Katy at UVA hospital and away from computer access, it’s up to me (Paul) to update the blog. I apologize for the delay; I know many of you have been waiting for word.

Dawn mentioned the other day that we feel like we now have a medical team that is really plugged in, and that becomes more evident every day. The doctors who are seeing Katy at UVA have been wonderful and are truly committed to her long-term care, not just getting over this hump. They are in close communication with the other members of her medical team on a regular basis. As all of you who have been following this blog know, that is a huge praise.

Katy continues to struggle to eat and drink. She received two bags of IV fluid yesterday after her initial tests, and will receive more as necessary after her tests today. She has lost five pounds since last week, but fortunately she had a lot of reserves this time so she is still not down to her normal weight. The good news about all of these tests and treatments is that she is being treated as an out-patient. She is adamant about not staying in the hospital unless it is absolutely positively no-other-choice necessary. So at the end of the day, she and Dawn return to my parents’ home in Fishersville, where they snuggled in bed together last night and watched Jane Eyre.

Please continue to pray for Katy’s hydration and for wisdom for the doctors as they work on both long- and short-term plans. We are optimistic. Dawn told me this morning that she can feel your prayers.

Comments:
  1. linda kochendarfer Says:

    Paul,
    Thanks for the update! It’s good to know that Dawn and Katy are with family at the end of these busy days. Please tell them both that Rich and I continue to pray for them and the rest of the family. If you need anything while they are gone, know that we are just a phone call away and ten minutes down the mountain.
    Loving each of you,
    Linda K

  2. Lisa Patterson Says:

    Paul,
    I will continue to pray for Katy! It sounds like she is hanging in there, I hope that Dawn is staying rested, because it is so hard to stay up, when you are emotionally drained. I understand and will support you in anyway necessary. Keep up the good fight.
    Keeping you all in prayer
    Lisa Patterson

  3. Jess Lankford Says:

    Hey guys!
    Thanks so much for the update! I’m so glad that the girls get to go back to a cozy home at the end of a long day! What a nice way to wrap up the day - with a good movie and a good friend! PTL for the doctors! I’m so thankful that they are working on the long and short term and I’m so glad that she’s been able to get some fluids! That’s a huge relief!

    Ellie is doing well! Every time she lays down on the floor - Noah wants to lay beside her and pet her head….Lydia cries if she loses sight of her - which is enough to make me batty! :) If the dog has to go outside for a bathroom break - Lydia runs to a window so that she can watch and then runs to the door to let her back in as soon as she is done! I’m finding it facinating wacthing the little personalities God has given my children come out in their care and love for her…Noah is the nurturer, he wants to love on her and feed her and care for her (he found a “people” brush and wanted to use it on her…YIKES!) and Lydia is the good times girl - she wants to give her balls and play chase! :)

    We love ya’ll so much and are praying for you continually!
    Jes

  4. Sandy Says:

    Dear Katy’s Dad — Thank you for the update. It sounds like Katy does have a wonderful care team in place now, to go along with her wonderful prayer team! Prayers continue from here.

  5. Doris Harriff Says:

    Thanks for the update, Paul. I’m sure Paul & Lucile are enjoying having Katy & Dawn with them, even though the circumstances are less than ideal.

  6. Tiffany Allen Says:

    Uncle Paul,

    It’s so wonderful that you all have found a team of doctors that are committed to getting Katy well. Praise God! Please let Katy know that she is always in my prayers.

    Tiffany~

  7. Heather Kirkwood Says:

    Paul - thanks so much for the update. Please pass along our love - more later - I’m at work - wink!

  8. Freddy Chakhachiro Says:

    Praise God for providing doctors that are in tune. We’ll all keep praying that they are able to do miracles with and for her. In the meantime, please know that your family’s faith through all this is such an encouragement to the rest of us. If there is anything our family can do to help any of you, please don’t hesitate to call.

    Freddy

  9. Jennifer Blugerman Says:

    Katy and Dawn,

    Our prayers are with you as you meet each day at UVa with steadfast determination and hope! We hate not having you down the street, but pray that the doctors there can offer new insights and dedication! I’m so glad you don’t have to stay inpatient! I will pray that you will remain able to receive out-patient care! Katy, our worship services just are not the same without you! I and the children miss seeing you sign the praise songs! We too are waiting on the Lord! Take care, and may the God of grace uphold you and give you great joy!

    -Jennifer B.

  10. Karen Tillman Says:

    Dear Paul,

    I am so glad that things are going so well with the new medical team, and that is truly an answer to prayer. Please let Katy and Dawn know that we are pulling for them and am certainly elated that there can be a happy medium when it comes to Katy’s wishes. Please know that we think about you too, and know that it is hard to see family members struggle in difficult times. Our family will pray for your needs to be met during this time as well.
    Love Always
    Karen Tillman

  11. Jennifer S. :-) Says:

    Katy,
    I’m so glad to hear that you’re staying so optimistic during this bump in the road!!
    Thank you, Mr. Campbell, for keeping us updated. :-)
    Stay strong darlin’–this too shall pass!!
    Love and prayers,
    Jen :-)

Monday, January 29, 2007

Praying with friends

Yesterday friends and church family came and had prayer for Katy. We sang a couple of hymns together. Friends, you have done more than you know to help us keep going. Your comments after yesterday’s post meant so much to us, too. I’ve printed them out to take with us to Charlottesville to read to Katy during her tests. Your encouragement is such a great help to keep her in a positive frame of mind.

I received an email from NIH this afternoon restating the purpose of their mission, which is research. They are kind and said they would help by talking with any of Katy’s doctors but their involvement in any other way at this time is just not possible. I also sent an email to her doctor in Charlottesville to let them know of Katy’s condition. I received a phone call from one of the physicians at UVA a few minutes ago expressing concern that Katy is not improving in a way that we had all hoped. Therefore her suggestion was to stay in close contact with them and keep a careful eye on her weight and hydration. We will keep the appointment for tomorrow for the tests that were scheduled, but we will pack our things in the event that she would have to stay.

Meanwhile, our spirits are free of worry today. God has been faithful to keep our hearts in perfect peace. We had a good prayer time this afternoon and then put the speaker phone on the bed and called a few friends that we have been wanting to visit. We talked to each of them a few minutes. Each phone call was a lovely visit. The speaker phone idea worked so well that we are planning to make a list for a few more telephone visits. So have your cup of tea ready, one of these days we may be calling you! After our phone calls, Paul called us. When we told him about our speaker phone visits we put him on the speaker phone while he read Isaiah 41 to us. “For I am the Lord your God, who takes hold of your right hand and says to you, Do not fear; I will help you.”

Comments:
  1. Aleah Yunger Says:

    It is such a blessing to read that so many people were praying for you yesterday. I joined them all and reached out to many of my friends, other “prayer warriors” in my life :) They were all ready to lift your family up before the Lord and petition on your behalf. We will all be praying for your doctor visit tomorrow - answers are sure to come soon! Love to you all!

  2. Ib & Patricia Says:

    We’re currently in Indianapolis….drove across yesterday and went one day without checking Katysblog…what a mistake.
    However, down on our knees now on Katy’s behalf. Our hearts are broken as I’m certain yours are.

  3. Karen Tillman Says:

    I am so glad that you posted, as I have checked your site a couple times already today. Actually as soon as I got home from the Dr.’s office. Anyway, I am sorry to hear that NIH cannot honor your request, and that Katy has to endure these tests again. Maybe with new eyes, a better treatment plan can take place. Sometimes one doctor can focus on something different than another becasue of their specialty. I hope that Katy doesn’t have to stay in the hospital, but let’s look at it like this. There are worse places right? GRIN Although, I can’t think of to many myself. And we will all be bathing you in prayer as you struggle with this trial. Gotta run as the hubby just pulled up, and I haven’t felt much like cooking today, so he and I will get to enjoy each others company in the kitchen tonight. Take care
    Love
    Karen Tillman

  4. The Williams Family Says:

    Dear Katy and Family,
    What a sweet time of prayer yesterday! We are still relishing every word that was spoken. Katy, we were honored that you roused to speak and spoke a word to Mom and me. You always bless us so. You have been on our hearts and minds last night and all through today. We are so glad that you have felt His peace today. We will continue to pray, especially tomorrow as you see the doctors at UVA. Even in the “waiting room” He IS faithful. We love you all so much.
    Effie

  5. Candice & Crystal Says:

    Dear Katy,

    I am so sorry to hear that you are going through a difficult time right now. It is comforting to know that you both have peace with everything. I was glad to read about your afternoon. Candice and I talk to all our friends on speaker phone. It is so much fun! :)
    Please know that we are praying for you as you go through the tests tomorrow. We love you.

    Candice and Crystal

  6. The Williams Family Says:

    Dearest Katy,
    Tonight I was pouring over some hymns and came across the well-known Be Still, My Soul. As I was reading the words, I couldn’t help but have you on my mind. Because I know how much you love hymns, I thought I would remind you of its message. I love you so much!
    ~ Effie

    Be Still, My Soul
    Words By:Katharina von Schlegel, 1752

    Verse One:

    Be still, my soul: the Lord is on thy side.
    Bear patiently the cross of grief or pain.
    Leave to thy God to order and provide;
    In every change, He faithful will remain.
    Be still, my soul: thy best, thy heavenly Friend
    Through thorny ways leads to a joyful end.

    Verse Two:

    Be still, my soul: thy God doth undertake
    To guide the future, as He has the past.
    Thy hope, thy confidence let nothing shake;
    All now mysterious shall be bright at last.
    Be still, my soul: the waves and winds still know
    His voice Who ruled them while He dwelt below.

  7. Jennifer S. :-) Says:

    Katy,
    I’m so thankful for the peace God has placed in your heart. I know that through His strength you can handle anything this life throws at you!! Keep your chin up–we love you and are praying for you!!
    Love and prayers,
    Jen :-)

  8. Jess Lankford Says:

    Hey guys!
    Ellie is settled in and adjusting to life with 2 little ones again! They are sooo excited to have her - I can’t even tell you! Lydia is walking around panting like a dog and Noah thinks that he should be with her non-stop! (Thankfully - the dog and I can both retreat upstairs while Anne watches the kids in the morning! A good break for all involved! *grin*)

    We will be praying for the 11:00 apt. today!
    Jess

  9. Lael Moreland Says:

    Dear Katy! I am so out of the loop…for I haven’t checked your blog in DAYS! The Lord kept telling me…”check her blog……go check her blog!” And I finally have. I think when the Lord tells me to do something…that I should pay closer attention from now on! We are all praying for you. I keep mom updated too….because with her being so busy at home, sometimes she can only get an update if I tell her.
    I am praying for peace in your hearts…
    trust in the Lord, for He is faithful…
    and healing for you Katy.
    What a journey He is taking you on! What a journey we are all on! Thank you for sharing it with us.
    We love you Katy!
    Love Lael
    (on behalf of all the Morelands too!)

  10. Jess Lankford Says:

    Katy -
    I came across this scripture this evening and thought of you and your family! The Lord is so good and He is creating rivers in this widerness you are walking through!

    We love you!
    Jes

    - from Isaiah 41:17-20 “17When the poor and needy seek water, and there is none, and their tongue is parched with thirst, I the LORD will answer them; I the God of Israel will not forsake them. 18I will open rivers on the bare heights, and fountains in the midst of the valleys. I will make the wilderness a pool of water, and the dry land springs of water. 19I will put in the wilderness the cedar, the acacia, the myrtle, and the olive. I will set in the desert the cypress, the plane and the pine together, 20that they may see and know, may consider and understand together, that the hand of the LORD has done this, the Holy One of Israel has created it.

  11. Heather Kirkwood Says:

    Hey there - just checking up on you to see if there’s any news. I’ve had several HPS’ers e-mail me today wanting to know if there was any news. We just want you to know you’re in our prayers and everyone is concerned and cares for you.

Sunday, January 28, 2007

Sunday

We are having a prayer service at four o’clock today in our home to pray over Katy. Please join with us where ever you are at that time as we once again go to our Father on Katy’s behalf. Her condition has worsened throughout the night and she is not able to eat. We thought we could keep her hydrated with liquids but they are not staying down as of this morning. Her pain can no longer be managed and it shows on her weary face. We are asking for a miracle. We are asking the Lord to move on her behalf and show us again that His amazing glory surpasses all human wisdom and knowledge.

During the night I wrote an email to the HPS research team at NIH asking them to consider seeing Katy for the purpose of finding and diagnosing the problems she is having. We know that this is not something they normally do, but they are the only people in the world to have access to all the information about other patients with these problems. If the Lord chooses not to bring miraculous healing to Katy, we are asking Him to open the hearts and doors of those who could possibly help her.

In yesterday’s post I wrote that we have a medical team plugged in now. But the fact remains that the GI doctors in Charlottesville have never seen an HPS patient before and this is not the time for a crash course. We are looking forward to a time of prayer with family and friends today. As you can imagine our hearts are aching for Katy.

Comments:
  1. Sandy Says:

    I prayed for Katy this morning during worship and will pray with you at 4 p.m. today. God’s peace to you all.

  2. Danae Says:

    I will be praying and so will my Bible Study girls. I love you!

  3. Marlin Says:

    I joined you in prayer this Sunday. May God provide the miricle you desire to the glory of his name.

  4. Heather Kirkwood Says:

    I missed this post until now - but I continue to pray for Katy (and make inquiries on her behalf.) I know this is hard. But, wheels are turning and things will get better! I know I keep promising you that, but I wouldn’t say it if I had any doubt. Hang in there!

  5. Karen Tillman Says:

    I obviously checked in a little to late, but rest assured that Katy is constantly on my mind and in my prayers. My real concern is the hydration issue, and I do hope that you post with good news either later tonight or in the morning. I will be having my PFT’s done tomorrow, and will probably read yoour blog much later in the day or evening depending on when my parents go back home. If it makes you feel any better, most all of us with HPS had doctors who’ve had to deal with us in an emergency situation. It is a miracle that I am even still here, as I was diagnosed with colitis at age 9 and never even knew I had HPS until I was 38 years of age. So, take solace in the fact that even though they are getting a “crash coarse” it is more than most of us had and we survived and had our symptoms treated even without the knowledge of HPS. I do feel with time and working closely with a team of good doctors (not necessarily those from NIH, although I’d like to see that happen for you) that Katy will eventually come around. I will pray tonight that things will go well, and that you will hear good things from NIH tomorrow.
    Love
    Karen Tillman

  6. Julie Wensley Says:

    We just got back in town. Our hearts are breaking for you. We are praying fervently. I’ll call you in the morning. We love you.

  7. Jen Larson Says:

    I missed seeing this newest setback since I was in the hospital with Annika this past weekend. God brought you all to mind a few times and I prayed that He would lift you up. I’m still praying He will bring healing to Katy’s body and strength to the rest of the family. He is able to do more than we imagine!!

  8. Jennifer S. :-) Says:

    Katy,
    He is with you, and we are with you in prayer and hearts. Please don’t give up–He will provide a way when all others are dark!!
    Love and prayers,
    Jen :-)

  9. Sarah Meador Says:

    Katy,

    I continue to pray fervently for our Abba Father to provide healing and full restoration. He will never leave you nor forsake you even in these most difficult hours. I love you much and pray that today is a better day and that this new treatment will kick in and be greatly successful! “… The prayer of a righteous man is powerful and effective.” James 5:16b

    Much love,
    Sarah

  10. Joan Colwell Says:

    Katy

    I am so sorry to hear of this another battle in your little body. God is allowing you to go through a lot of pain and tremendous sickness. He so knows you and knows you are stronger in spirit than most people I know (myself included). When I think of you Katy, I think of Job. I know Job must have thought, how much more???? I am sure you are thinking the same thoughts. God was there for Job and He is there for you too. The frustrating part for us your friends is that we want to do something for you to take the pain away. But we don’t have the power or wisdom to do that. Just know you are in ours prayers. I know you are in God’s care. I know He loves you very much or He wouldn’t have chosen you to go through all of this. You will and do have a story to tell. What a blessing you have been to me already just knowing you and your story. Your story is still being written. Aren’t you glad that you know God will be there with you no matter when or how your story ends? I know God has great things in store for you, Katy. You are such a special young lady. It is such a privilege to know you. I’m looking forward to hearing good news from the doctor and your situation.

  11. Delmar Short Says:

    On the radio yesterday, a minister said something like the following: “He speaks to us in our pleasure, but He shouts to us in our pain.” Through Katy and her family, He has shouted to all of us.

  12. Sara Says:

    Katy and family,

    We are praying for your healing and for God’s hand to work in a mighty way for you. Let the prayers of all of us who love you carry you right now.
    Love,
    Sara P

  13. Lillian Oliveira Says:

    OH, my dears, I just got this Monday afternoon. I grieve and fervently pray for you all, esp. Katy. A lady at our church was healed of breast cancer this past week. HE IS AMONG US WITH HEALING POWER! And He heals our hearts when His wisdom does not allow for the healing of the pain at this point. Much love, Aunt Lil

Saturday, January 27, 2007

Saturday Night

Katy had a second infusion of Rocephin today at two o’clock. She is feeling pretty bad tonight and we aren’t sure if it is a reaction to the drugs or not. It was also not a good day for caloric intake. We are praying, as we know you are, that the Lord will reveal the proper course of treatment for Katy. I remember the doctor in North Carolina saying that with the right treatment Katy will be able to have a better quality of life. I’m reminding myself daily that God knows and sees the suffering of His servant.

It has taken some time to get the right help for Katy. We seem to have a good medical team now. While we hope and pray for answers and test results it seems to be taking an eternity. That reminds me that one morning I was making breakfast and Paul came into the kitchen to get the coffee ready. He said, “Dawn, do you know what the definition of eternity is?” I was all prepared for a theological definition when he said, “It’s how long it takes the toast to pop up when you haven’t plugged in the toaster.” Well I feel like a medical team is plugged in now, and we know what doesn’t work, so any time now we may see results. We pray for that day, and look forward to it. There will be great rejoicing when Katy is free from the pain she’s experiencing. We look forward to what God is going to do.

Comments:
  1. Jennifer S. :-) Says:

    Katy,
    I had to laugh a little at your dad’s definition of eternity. It’s pretty true!!
    Don’t despair–God has promised to keep you in the palm of His hand–He will never let you go!!
    Love and prayers,
    Jen :-)

  2. Karen Tillman Says:

    We are praying for that day too!! And I loved the definition of eternity!!! GRIN Please give Katy a hug from me, and may God see to give you some rest.
    Love and Prayers
    Karen Tillman

Friday, January 26, 2007

At Home in Roanoke

We had a very long day but the doctor appointment today was the beginning of a journey and everything had to be mapped out carefully. Our appointment lasted for several hours while symptoms were discussed and the doctors talked over a course of treatment. We are home because Katy is being treated with a ten-day round of Rocephin given by IV. Her first dose was given right in the doctor’s office before we left. While we were in Charlottesville, Katy’s doctor back here in Roanoke set up a home health care nurse to come every day for the next nine days to administer the IV Rocephin at home. This plan kept us from a ten day stay at the hospital! We won’t know for a couple of days whether this treatment will work like it did the last time, so we’ll have to keep a close watch on calorie and fluid intake. We all agreed that Katy will have to be admitted to the hospital within a few days if things don’t turn around, but we are hopeful that they will.

Next week we will be taking Katy back to Charlottesville for more testing. The doctors there want more data before trying any other drug with greater risks. We understand that of course, but we also know that the treatment of this disease has to be aggressive. We knew that from the beginning. There are many decisions to make and we need wisdom for all of them. Katy continues to keep positive most of the time. We drove as far as Fishersville last night and stayed at Mom and Dad Campbell’s house. They were away for the week. As we were unpacking luggage and pillows from the car last night Katy said, “Well this is sort of a fun adventure, kind of like camping out!” It is fun to live with someone who can find the silver lining in most everything. She has already said that if we have to stay overnight in Charlottesville next week we might be able to visit a craft store. That’s thinking positively!

We prayed for all of you, asking the Lord to bless your lives. Thank you for praying. We could actually feel the strength of the Lord’s presence with us today. We also appreciate the love and help of our children so much. Colin takes over our business when Paul is away and runs it in a truly professional manner. Jenn had dinner prepared when we arrived home, and Mom and Dad are here for the night. It’s a gift to us to have the love of family.

Comments:
  1. Marie Rankin-Moyers Says:

    There is a Michael’s craft store in Charlottesville. It is in the barracks Road shopping center not far from UVA. It is on the second floor, there is an elevator and escalator. If you need anything in Fishersville, please let me know. Still praying, Marie . Romans 8:26…but the Spirit himself intercedes for us with sighs too deep for words.

  2. Jennifer S. :-) Says:

    Katy,
    I’m glad that you are staying so positive! God is working in you, for sure. :-)
    I’ll be praying that the new treatment will be effective.
    Love and prayers,
    Jen :-)

  3. Sharon Pierce Says:

    Hi Katy!
    May God’s grace continue to uphold you and fill you with peace. It is a blessing to hear of your persevering faith and of God’s provision of dear family and friends to support and encourage you all. Our prayers are with you.
    Love from Sharon, Larry, Ingrid and Caleb

  4. Jess Lankford Says:

    Hey guys!
    We are glad that you made it home safely! (I’ve been stalking the blog - waiting for the update from yesterda!!) I’m so thankful that Katy will be able to start the meds at home - home is so much more restful than a hospital! We pray it will work - and work quickly!!

    Love you!
    Jes

  5. Sandy Says:

    I’m glad the doctor’s visit went well, and I continue to pray for healing and strength for Katy. God’s peace to you all.

  6. Karen Tillman Says:

    Dear Katy and Dawn,

    I am so glad that the trip went so well, and that you have gotten a Dr. who seems to be interested in taking the time to listen. I am in total agreement with wanting to do more tests before throwing more drugs onto the scene. I vaguely remember that being the case here in Greensboro, and my parents were so frustrated that the Dr. wasn’t giving me anything at all. I was 9 then and didn’t even realize I had HPS not did the Dr’s for that matter. PTL for good parents, as I don’t know what I wouldn’ve done without mine, and I am sure Katy feels truly blessed to have you too.
    Katy,
    We will pray that this medicine does the trick and holds you steady, so that you don’t have to go to the hospital. But remember hospitals are where you can really be a witness as you go through your struggles. so, if that is where you land, keep in mind that God has put you there for a reason. You never know who is watching. I do just love the way your spirit seems to soar amongst all this adversity, but it seems that most of the people I know with HPS are amazing and some of the strongest people I know.
    Again, I will be praying for yuo diligently that things will go your way.
    Love Always
    Karen Tillman

  7. Andrea Says:

    Katy and Dawn…I know I never write here much…but I am praying for you daily that you will get better and our God will make it happen we just have to hang in there until He is ready. I know those are tough times but He is here to comfort you all.
    Cut and Paste this link in your browser.
    Love you both!

    http://www.gospelgreeting.com/christianecards/viewCard.asp?cid=312&catid=11

  8. Tiffany Allen Says:

    Katy,

    I hope that your treatment works quickly and effectively. I think its wonderful that you are staying so positive, I’m sure that helps quite a bit. My prayers are always with you and the entire family.

    Love always,
    Tiffany

  9. Trisha Ferris Says:

    Katy & Family,
    Please know I love you folks & I pray every time I check the blog, i.e. about 5 times daily. As a matter of fact katysblog is on our toolbar. I praise God for your failt & for the many evidences of His grace in your lives. You walk in His strength & seeing that informs my own walk with God.
    In the Lamb,
    Trisha

Thursday, January 25, 2007

Today the symptoms of another HPS flare-up increased. Katy is no longer wanting to eat. Her esophagus is swelling and that makes it harder for her to breathe. This is the fourth time this has happened since last July. I felt overwhelmed tonight when Katy started having trouble getting her breath again. Finding a position to make her comfortable is a challenge. I know it will be hard but Katy will get through this. I just hate to see her suffer.

I looked at the clock. It was around seven thirty, and I was feeling frustrated that this next doctor appointment is not until Friday. I wanted to run away. So I left the house, got in the car, and headed for the craft store bawling my head off! I’m not talking dainty tears here. By the time I reached Michaels my nose was red and my eyes swollen. I had the presence of mind to adjust the rear view mirror and put lipstick on before leaving my car. Katy would have been so proud.

I walked into Michaels and straight into the arms of two girlfriends who had just read the blog. We hugged, we cried, they listened, we laughed, looked at some craft things, and left the store. I didn’t end up finding a thing at Michaels, but what I did find was a gift from God. The encouragement of my friends meant so much to me. I honestly felt like they were there just for me and told them so. With smiles and cheerful waves my friend said, “Now you call me if you need to do that again!” I told her I felt so much better that I might just do that. Friends are great. God sure knew what He was doing when He created us to enjoy friendships. What a gift. What a God.

Comments:
  1. Marie Rankin-Moyers Says:

    Hi, My name is Marie, I am so lucky to know Katy’s Grand parents Paul and Lucile. I have been reading and praying for you for a while now. Also our Sunday School class “The Homebuilder’s” @ Tinkling Spring continue to lift you all in prayer. I am always impressed by how strong you are. This message touched me especially, so I felt I had to reply. Although I cannot imagine how difficult this is, I really think that this is the best time for the new Doctor to see her. If they can see the challenges she faces, they may be able to help that much more. I think you got exactly what you needed at Michael’s. Friends are the best! We will be praying for you again tomorrow morning at our monthly Sunday School breakfast.

  2. Patricia Says:

    Friends are God’s arms here on earth!!! But when they’re not with you, try hugging yourself as you visualize His arms around you!
    Shalom,
    Patricia

  3. Jennifer Wellington Says:

    I have been thinking about friends a lot lately, and that post was so encouraging to me. I pray for Katy often, and will do so for the appointment on Friday.

  4. Heather Kirkwood Says:

    I’m thinking of you guys today leaving for the big appointment. I pray that they’re able to do something that will cause some immediate relief. I wonder if they’ll want to keep you all a little longer than just a short appointment.

  5. Jen S. :-) Says:

    Hi Katy,
    I hope that you’re able to eat a little today and that the pain will subside. Hang in there, I know it will get better soon.
    Did you see the snow flurries? It was so pretty!!
    Love and prayers,
    Jen :-)

  6. Jen S. :-) Says:

    PS. the new look is great!!

  7. Jenice Pearl Says:

    Dawn,
    The Pearls are praying for you, Katy, and family. Thank you for reminding me that God is always faithful and merciful and our best friend. He meets us face to face in our darkest and neediest times to give us hope and to remind us that we are not alone. You continue to inspire me in Him.
    Jenice

  8. Lisa Patterson Says:

    Dawn & Katy
    Let me tell you how sorry I am. I have not checked your sight lately, life
    has just gotten in the way. I feel I have neglected to pray, Katy was doing better and so I let up. I will renew my efforts again. I am so excited to hear that Katy has gotten into that Dr., I will pray that the doctor will see all that needs to be seen to make a good decision.
    Blessings to you
    Lisa

  9. Sandy Says:

    I will definitely be lifting you in prayer for this doctor’s visit tomorrow and improved health and a lot of strength in these days ahead. Hang in there.

  10. Jess Lankford Says:

    Dawn and Katy -
    I’m so sorry that the pain is so bad - but i totally agree w/ the person who said that this is the PERFECT time for the new doc to see her! God’s timing is always PERFECT and this is just another way He is proving it to all of us watching! I’m praying for Katy daily - I want so badly for tomorrow to be productive and for them to whip out some amazing drug that will just ‘fix’ everything! I’ve been praying for a miracle - I don’t know if God has that in store for Katy - but her condition has been teaching me to think BIG GOD thoughts and pray for radical things!

    Pettitioning the throne on your behalf-
    Jess

  11. Karen Tillman Says:

    Dearest Dawn,

    Please let Katy know that I am thinking about her, and that I will be glad when she heads to the doc in the morning. I have only had real trouble getting my breath a couple times in my life, and the times that it ocurred it scared me to tears. Which of course is the last thing I needed as that just made it even harder to breathe. GRIN But again, I got through it all with the help of God and with the help of good friends like you described. Isn’t it awesome how God can put people in our path just when and where we need them. Take care and call if you ever need to just talk.
    Love
    Karen Tillman

  12. Tiffany Allen Says:

    Katy,

    Hope that all goes well with your appointment today. I continually pray for strength and wellness for you. It’s all in God’s timing and what He has planned for you. Continue to hang in there.

    Tiffany~

Wednesday, January 24, 2007

A New Doctor

We have had the call we were waiting for. This Friday at eight in the morning, Katy will be meeting Dr. Bickston at the University of Virginia Hospital in Charlottesville. Normally it takes months to get an appointment as a new patient, therefore we know Katy’s need has drawn special attention from those who can possibly help her. We will travel to the Charlottesville area on Thursday evening so that the early morning appointment will not be as difficult for Katy to manage. The timing of this appointment could not be better. Katy is struggling to eat. She was only able to eat about six hundred calories yesterday and that was with a lot of courage on her part.

We spent about four hours during the night praying for others. Morning came and went and we woke up at noon feeling hopeful. Then we got the call from Charlottesville to further encourage us. Actually Dr. Bickston’s nurse said, “We’re working on this case, don’t worry Mrs. Campbell, we want to help your daughter.” As fervently as we have been praying for something like this, we feel very humbled that it is happening. Our hope is in the Lord, and nothing would please us more than to see Him work through the doctors and medications that He has put in place for this time in Katy’s life.

For those of you who have stopped by to see Katy recently I know it is very hard to see Katy in the condition she is in right now. You may be thinking, “Is God seeing all this?” Is He going to get to work here?” Let me assure you that He knows exactly what He is doing. Last night, I had to feed Katy her cooked carrots while she was lying down because she isn’t able to sit up very long. Her job was to chew and swallow while we chatted about various things. During the night she said, “You know Mom, I have come to really appreciate the help I get from others. It used to make me feel angry and helpless, but I can now say I really appreciate the help and mean it.” The things we have learned from this experience would fill a book. We needed to learn it all. Learning to trust God and to let go of everything else has brought so much healing to our lives that our spirits are stronger and healthier than ever. I’ll leave you with a picture of Katy that I love because it captures her happy, healthy spirit. Even when I look at her today, this picture is what I really see. No matter what, she is going to be just fine!

Surprise1.jpg

Comments:
  1. Heather Kirkwood Says:

    That’s a great picture! Please tell Katy we’re all thinking of her. We know it will get better - but the ups and downs can be tough none the less. You guys sound in good spirits, which is so encouraging to me. We learn so much through these trials of ours and I’m truly grateful for that. At the same time yesterday when the doctor told me, “You’re one of the more unique patients I’ve ever had. You’re special.” I wanted to answer, yeah, that kind of special I don’t need thank you very much! Grin! Oh well - it is what it is for a reason.

    We’ll keep praying in Kansas.

  2. Jess Lankford Says:

    Dawn -
    Thanks so much for the visual! I loved seeing Katy so happy and full of life!

    You guys really are learning a ton - I read and I’m humbled. My attitude has been so bad lately and when I read what you guys are going through - my little bumps in the road just pale in comparison! I am so challenged…I find myself reading the Word more closely, trying to find those nuggets of wisdom that you always seem to be able to pull out at a moments notice! That doesn’t just happen by chance - it’s by study and diligence…I know that and I thank you for the silent reminder!

    We love ya’ll and are praying for Friday!
    Jes

  3. Jess Lankford Says:

    PS - I picked up 40 baby bottles from BRWC this evening! Pray that people would be moved to fill those little bottles for the clinic!!!

  4. Sara Says:

    Katy

    I just want you to know that we are still praying everyday and that I think of you often. The news about the doctor’s visit on Friday is wonderful. We will be praying for a successful trip.
    God is never late to any appointment. He always shows up on time!
    In your prayer time, can you please pray for our church? We are facing some really hard times. We are waiting for God to show up for this appointment!Thanks
    We love you all very much.
    Love,
    Sara P

  5. Sarah Meador Says:

    Katy and Dawn,

    I am truly again inspired and encouraged all over again by your amazing joy and peace that “surpasses all understanding”!! Katy, what an encouragement you are as you have gone from dreading being helped to this point where you have gained a genuine appreciation for all forms of help from others. It is something few of us truly know how to appreciate.

    Praise God for the GREAT call from the new doctor. God is at work, and He’s continuing to reveal the power of His mighty hand in all circumstances. I will be praying for your trip up on Thursday evening, and also for the appointment itself, that God would fill the doctor and his staff with wisdom and insight so that when you leave there you may truly see that God’s handiwork in every aspect of the visit.

    Dawn, I was so stirred by your ending sentence “No matter what, she is going to be just fine!” What beautiful words of hope and peace in our Lord. Give thanks to our God for His promises to “never leave us nor forsake us”! How great is our God.

    Much love to you,
    Sarah

  6. Martha Harrison Says:

    Dear Dawn and Katy,
    Oh what a beautiful picture of Katy! I just wanted to let you both know that I continue to pray for Katy, and am humbled by the way you have allowed God to work in and through Katy’s illness. What a testimony to your love for Him and unwaivering faith! I stand with you in believing that God IS doing a mighty work in your life and many others…His wonders to perform!! We just don’t want to see Katy suffering. It is wonderful that you have the app’t in Charlottesville with the new Dr. on Fri., and I am praying for your traveling mercies as well as a breakthrough into the treatment Katy needs to be healed.

    We have had sadness in our family this past month with the death of a special nephew (40 yrs. old) who had colon cancer and a dear aunt who was 103 on Dec. 27 and the Lord called her home on New Year’s Eve. Praise Him who never leaves nor forsakes us. We know these loved ones are both with our Father in heaven, but it is so hard to give them up, especially Marty. When you are praying, if you think of Marty, please pray for his dear young wife and children, a son-9 and daughter-5, also my sister, Marty’s mother.

    Blessings and love to you, Katy and Dawn,and all your family,
    Martha H.

  7. Jennifer S. :-) Says:

    Katy,
    What wonderful timing God has!! He knew you needed that call. :-)
    I am praying for your strength. He will keep you safe in His arms!!
    To encourage you… I had a lousy day today where nothing seemed to go right. My room has been very messy the last couple of weeks and it was really bothering me because I couldn’t find anything and I knew I wasn’t going to have time to clean it within the next two weeks. I got home from class tonight and came up to my room to put things away…and it was CLEAN!! Everything had been organized and put away and dusted and vacuumed…it was amazing!! There was a note on my bed from my mom and sister saying they had cleaned it for my birthday (which was yesterday). God knew I needed that pick-me-up, and He so graciously provided it through the love of my mom and sister. Isn’t that so cool?
    Love and prayers,
    Jen :-)

  8. Patricia Says:

    Your peace and joy in all this is an encouragement to everybody who reads this…..it’s amazing to see how much God has been and is teaching you as you traverse this valley. You’re definitely “tuned in” to His mind.
    Yes, I remember seeing that terrific picture of Katy, I believe it was from the fall conference in DC…..hold on to the vision of that happening again and again and again.
    The doctors are God’s ears and hearts and hands here on earth. How graciously He has provided us with tangible evidences of His love and concern.
    May God carry you on His wings to Charlottsville!
    Ib & Patricia

  9. Jennifer Blugerman Says:

    Katy,

    Speaking with your mom yesterday left me greatly encouraged regarding your upcoming visit to Charlottesville! We are praying that this will be the beginning of a great turnaround for you! We are expecting great things from the Lord, and continue to be thankful for your family’s steadfastness and joy throughout the ups and downs you are experiencing. May the God of peace go before you to prepare the doctors and caregivers to give their very best! We love you all!

    -Jennifer B.

  10. Candice & Crystal Sipe Says:

    Dear Katy!

    What wonderful news!! We too were encouraged by your blog update. We missed talking to you today. Hopefully, today has been a better day for you. I love that picture of you Katy, that was the night we met you at the Gala. That was one trip we won’t forget. Our family is truly blessed to know yours. We will be anxiously waiting to hear what Dr. Bickston has to share with you and your parents. Praying for you always. Love, Candice & Crystal

  11. Karen Tillman Says:

    I am so glad that you guys got the call from the Dr.!!! I will be praying that the visit will be productive, and I am glad that if Katy were going to be sick, it is when she is seeing someone who may offer a new insight or two. Just wanted to stop by, and let you know we are thinking and praying for you guys daily.
    Take care and lots of Love and Positive thoughts
    Karen Tillman

  12. Aleah Yunger Says:

    What wonderful news! I will be praying over your trip for both of you ~ I pray you’ll find somewhere accommodating to stay & your visit with the doctor will be helpful! Dawn, your hope and trust in the Lord is truly inspiring. It is so wonderful to hear of your visions of Katy healed and see pictures of her in joy. I know that is contagious for Katy and is surely a source of strength for her. Praying for your whole family ~ can’t wait to hear how this doctor visit goes!!

Monday, January 22, 2007

Keeping Warm

We have been so spoiled here in Virginia. The weather had been balmy and kind to us. However, this weekend the temperatures took a sudden plunge, ice fell from the sky, and suddenly we are thinking of creative ways to stay warm. Later today Katy and I are planning an afternoon movie with our electric blanket wrapped around us.

I took Katy to our family physician this morning and she was not really able to offer her any help. She drew blood labs to see if that will tell a story. Katy is forcing herself to eat but every swallow is painful again. We are very thankful for the twenty extra pounds she has on her right now. She is stronger with the extra weight and if she has to stop eating for a little while she has some weight to spare. We are awaiting a call from the doctor in Charlottesville. He will be telling us how to proceed.

For the past few weeks I have had a vision of Katy walking across a stage headed for a podium. She is smiling and waving with strength and vitality. That vision has come to my mind often. I am believing that it is a picture of something God is going to allow Katy to do in the future and that I will be there to see it. It helps so much to have a positive mental picture on days like this. A vision like that is the substance of things hoped for. Thank you for keeping her in your prayers.

Comments:

  1. Sandy Says:

    Praying that Katy’s body will experience a blast of calmness and health in these hours and days ahead. Meanwhile, enjoying a movie under an electric blanket sounds like such a wonderful idea! Wish I could join you!

  2. Carson Kistner Says:

    Dear Katy,
    I hadn’t read your blog for a while and was saddened to hear that you are struggling to eat again. But I am thankful to hear of the medical contact in Chapel Hill. And I am happy to hear that Jenn has helped you get started on your scrapbooking project. I can relate to your mom’s calling it an addiction! January is my big scrapbook month when I usually try to cover an entire year’s worth of photos. So I also am knee deep in pages and stickers and cropping tools. I continue to pray for you each time I pass your house, dear one.
    Love, Carson

  3. Trisha Ferris Says:

    Dawn, could it be that your vision of Katy walking toward a podium is occurring right now? She IS speaking to a great crowd, the readers of this blog, as well as the great cloud of witnesses mentioned in Hebrews 11 who are watching this drama of Katy’s & all the Campbells lives. Thank you for helping be her voice. You all are getting a standing ovation from me.
    Trisha

  4. Colleen Knox Says:

    Hey Katy,

    Since moving to our new house we haven’t had internet, so I haven’t been able to keep up with how you’ve been doing. I’ve missed reading the blog! I’m sorry to hear that you’re not doing as well. I’m just getting over some stomach trouble of my own (an ulcer) so I can sympathize a little bit. We’re praying that things really smooth out for you soon. Dawn, let me know if there’s anything I can do!
    Colleen

  5. Karen Tillman Says:

    Dear Katy,

    I feel bad that I haven’t checked your blog since Sat. I was getting ready for this interview with the press here in NC, and my feelings have been all over the place. Btw…..were your ears burning this morning? I didn’t mention your name or show these folks your website, but I talked to Janine about how sick you had been, and how much the people from the HPS Network had been pulling for you. Unfortunately, I didn’t know the agony that you have been suffering these past few days. Now that I know though, I can lift you up in prayer and hope that things get better again soon. and believe me I will be checking on you every day til things turn around again.

    I have a question, do you think that you could call the Dr. in Chapel Hill, and let her know what is happening with Katy, to see if the Dr. in Charlottesville could get to you sooner? Sometimes, strings can be pulled and favors called in if they are friends. I don’t know if she could make it happen, but it would be great if she could.

    Dawn, I am so glad that God has given you the strength not to panic. This stuff does take a little getting used to. To say the least, and there are unfortunately many bumps in the road along the way. And I like you feel there are great things in store for Katy, as she seems like such a dynamic individual from everything I’ve read. Not to mention the fact that she has survived it all!! PTL for that, so He must have something special in store for her.

    Gotta run, and if you need anything please let me know how I can help and I will do my best.
    Love Always
    Karen Tillman

Saturday, January 20, 2007

Brief Update

Katy has been feeling pretty bad all day, unable to enjoy her food, and very tired. Her GI tract was inflamed enough to cause her to refuse food most of the day. However, tonight she was able to eat a bowl of soup and just finished a plate of cheese crackers. This is a good sign that the increase in steroids may already be making a difference. We pray every meal that Katy will be able to continue to eat. I am not frantic, as I was the first time this happened to her. I know that there are means to keep her alive, and there are many more physicians here in Roanoke that know how fast they need to move if Katy starts losing ground. We are praying for the mighty hand of God to steady her situation until her alternative treatment begins. Thank you for encouraging her with your comments and thank you for praying for her so diligently.

Comments:
  1. Aleah Yunger Says:

    I am so sorry to hear of this - for your whole family. I know it is not easy to keep your eyes focused on your Lord and ignore the temptation to worry and be distraught. I pray that today is a true Sabbath for you, Katy - that today will be full of rest and peace that allows you to give praise to your Savior. Love you to pieces! Praying for you continually…

  2. Heather Kirkwood Says:

    Oh dearest Katy,
    I’m so sorry to hear you’re having a rough day. Hang in there because it’s going to get better. It’s been a snowy day here, and I can’t seem to get my feet warm. That’s weird eh?

  3. Jennifer S. :-) Says:

    Katy,
    I’m sorry you’re still having a rough time but I know that things will get better for you soon. God won’t give you more than you can handle!! So hang in there, dear.
    Love and prayers,
    Jen :-)

  4. Jess Lankford Says:

    Hey guys!
    Sorry that things are still rough - I know you all have to be so weary! We love you and continue to lift you up this snowy, cold winter day! Today, I’m praying that God’s love and warmth will fill your home and provide you with rest and good fellowship in Him and other believers!!

    Love you!
    Jess

Friday, January 19, 2007

“Katy can eventually get back to her normal daily life.”

That’s what the doctor in Chapel Hill told us! She was very attentive. She listened to us describe the last six months with all its ups and downs, and calmly stated that Katy should be seeing much better results after six months of treatments. She had already read the records that had been sent to her by Katy’s Roanoke doctors. From there she formulated a plan and told us about the details which will include working with a specialist from the University of Virginia. The plan is to treat Katy with a drug that will help her cells cooperate and stop attacking her digestive system. It is not without risks, but we are all at peace about trying something that could help Katy have a better quality of life.

When we drove into the driveway a few minutes ago Katy said, “God answered all our prayers.” He had. She coped very well with the traveling. With a little pain medication and her favorite blanket and a pillow, she slept most of the way there and back. She was also able to eat something for lunch. This weekend we will increase her steroids back up to their previous level, try to get her GI tract to settle down, and next week begin this new therapy. We thank the HPS family in North Carolina for telling us about your doctor in Chapel Hill. She really is amazing and thorough. We know the knowledge she has of this disease is a result of all you have been through. Our hearts go out to you.

We are again relying on the truth of the word of God. Our hope is in Him. We hope Katy can tolerate the new drug, and that is how we will pray, but we are content to leave the results to Him.

Comments:
  1. Doris Harriff Says:

    That is fantastic news, Dawn & Katy! I’ll continue to keep you in my prayers.

  2. Heather Kirkwood Says:

    I am so glad the appointment went well!!!! What wonderful news. This has been an all around good news day!

  3. Adam Thompson Says:

    Great. PTL! :)

  4. Jen Larson Says:

    Wonderful news!! Praise the Lord for providing sleep, rest, and answers to prayers.

  5. Jess Lankford Says:

    Yea for the good car trip and the productive visit! There is nothing quite like a good blanket and a pillow for traveling in my book - I would much rather sleep and just appear at my destination than sit for hours - maybe it’s because all I can think about is sleep right now!!

    We are praising God for all the answered prayers!
    Love you!
    Jes

  6. Sarah Meador Says:

    What beautiful words!! Praise God for the good report and the continued vision and plan for success! Praying for a full and refreshing good night’s sleep tonight after such a long and blessed day.

    Love you much!
    Sarah~

  7. Tiffany Allen Says:

    Katy,

    I’m so glad that you got a good report from your doctor yesterday. It’s so wonderful that you will be able to get back to your normal daily life! Praise God!

    Love,
    Tiffany

  8. Sandy Says:

    Great news! Praise God! Prayers continue from here.

  9. Aleah Yunger Says:

    KATY!!! What wonderful news! It literally brought me to tears :) what a beautiful picture of the promise of deliverance from our suffering. Continued prayers for you, dearest!

  10. Karen Tillman Says:

    Good morning Dawn,

    I am so glad to hear that your trip to the doc was so productive, and that she has recommended some things that you are comfortable with. Just to let you know, we are still keeping our fingers crossed, and hope that Katy will continue to improve.
    Take care
    Karen Tillman

  11. LInda Burk Says:

    HI..wow this new development sounds great. Jack is in TExas at the home office for a few days. I saw the movie Freedom Writers last night with some teachers. Enjoyed it. LOVED the pictures of your family..the baby is soooo cute..hug everyone for us..love, Linda

  12. Jennifer S. :-) Says:

    Katy,
    I’m so glad to hear that your doctor’s appointment went well!! We’ll be praying for the success of this new treatment!! Hang in there, dear. :-)
    Love and prayers,
    Jen :-)

Thursday, January 18, 2007

Your Prayers Are Appreciated

We are getting ready for our trip to Chapel Hill tomorrow. I am asking for special prayer for Katy to be able to tolerate the trip. She has had a very hard day. The inflammation of her disease has again attacked her body. She has not been able to eat very much and is in great pain when she tries. As we know according to God’s word that “all things work together for our good, for those who are in Christ Jesus,” we believe this flare up is the best way for this new doctor to assess the problems she is experiencing. We are thankful that we have the comfort of the Holy Spirit to keep us calm and hopeful.

I will write an update as soon as we arrive back home. We plan to leave the Chapel Hill area as soon as the appointment is over in the early afternoon. Thank you for encouraging us with messages and prayers.

Comments:
  1. Jennifer S. :-) Says:

    Katy dear,
    I’ll most definitely be praying. I’m sorry you’re having a flare-up, but I’m sure the Lord has His reasons. Stay strong!!
    Love and prayers,
    Jen :-)

  2. Julie Wensley Says:

    Tomorrow is an exciting day! We are praying for you all - that Katy will feel a little better, that you’ll have safe travel and widsom for the Dr. and all of you. We are praying that God will go before you. We love you!

    The LORD your God, who is going before you, will fight for you.
    Deut 1:30

  3. Patricia Says:

    Sleep well….all of you.
    We pray travel mercies, comfort of Katy, and a peace of mind for each of you.
    May the Great Physician grant the doctors His insight and wisdom.
    Shalom,
    Ib & Patricia

  4. Patricia Says:

    P.S. With many of these coditions with various clusters of symptoms, flare-ups are often triggered and definately intensified by stress. Although you all are trusting in God’s guidance, any type of testing (in addition to travel) is a stressor for the patient. There’s the stress of strange surroundings, of having to convey explanations once again to a new person, etc. Maybe a long hot soak in the tub with those calming ingredients might be good prior to “take off” for N. Carolina….and back off to “gentle foods” for breakfast (unless they are requiring Katy arrive on an empty stomach, for testing’s sake).

  5. Jess Lankford Says:

    Hey guys!
    Dawn - it was soo good to talk to you last night. You are such an amazing, Godly mom. Every time we talk - I feel like I walk away with a renewed sense of my calling as a mom…

    We are praying for you today - that the car ride would be easy, the doctor would be wise and that the trip would be overall profitable!

    We love ya’ll!
    Jes

  6. Heather Kirkwood Says:

    I can hardly wait for you to get home. I’m praying the doc will have some ideas for you. It’s funny - as I started to read this post I thought, what great timing for a flare up, and then I got to the next sentence and you all had the exact same thought.

    As for scrapbooking, I’d be happy to leave all the scrapbooking up to Katy! Grin!

  7. Sandy Says:

    Praying that you had safe travels and a hope-filled visit with the doctor.

  8. Tiffany Allen Says:

    Katy,

    Hope all went well with your doctor’s appointment today.

    Love and Prayers,

    Tiffany