We had a very long day but the doctor appointment today was the beginning of a journey and everything had to be mapped out carefully. Our appointment lasted for several hours while symptoms were discussed and the doctors talked over a course of treatment. We are home because Katy is being treated with a ten-day round of Rocephin given by IV. Her first dose was given right in the doctor’s office before we left. While we were in Charlottesville, Katy’s doctor back here in Roanoke set up a home health care nurse to come every day for the next nine days to administer the IV Rocephin at home. This plan kept us from a ten day stay at the hospital! We won’t know for a couple of days whether this treatment will work like it did the last time, so we’ll have to keep a close watch on calorie and fluid intake. We all agreed that Katy will have to be admitted to the hospital within a few days if things don’t turn around, but we are hopeful that they will.
Next week we will be taking Katy back to Charlottesville for more testing. The doctors there want more data before trying any other drug with greater risks. We understand that of course, but we also know that the treatment of this disease has to be aggressive. We knew that from the beginning. There are many decisions to make and we need wisdom for all of them. Katy continues to keep positive most of the time. We drove as far as Fishersville last night and stayed at Mom and Dad Campbell’s house. They were away for the week. As we were unpacking luggage and pillows from the car last night Katy said, “Well this is sort of a fun adventure, kind of like camping out!” It is fun to live with someone who can find the silver lining in most everything. She has already said that if we have to stay overnight in Charlottesville next week we might be able to visit a craft store. That’s thinking positively!
We prayed for all of you, asking the Lord to bless your lives. Thank you for praying. We could actually feel the strength of the Lord’s presence with us today. We also appreciate the love and help of our children so much. Colin takes over our business when Paul is away and runs it in a truly professional manner. Jenn had dinner prepared when we arrived home, and Mom and Dad are here for the night. It’s a gift to us to have the love of family.Comments: