Friday, January 26, 2007

At Home in Roanoke

We had a very long day but the doctor appointment today was the beginning of a journey and everything had to be mapped out carefully. Our appointment lasted for several hours while symptoms were discussed and the doctors talked over a course of treatment. We are home because Katy is being treated with a ten-day round of Rocephin given by IV. Her first dose was given right in the doctor’s office before we left. While we were in Charlottesville, Katy’s doctor back here in Roanoke set up a home health care nurse to come every day for the next nine days to administer the IV Rocephin at home. This plan kept us from a ten day stay at the hospital! We won’t know for a couple of days whether this treatment will work like it did the last time, so we’ll have to keep a close watch on calorie and fluid intake. We all agreed that Katy will have to be admitted to the hospital within a few days if things don’t turn around, but we are hopeful that they will.

Next week we will be taking Katy back to Charlottesville for more testing. The doctors there want more data before trying any other drug with greater risks. We understand that of course, but we also know that the treatment of this disease has to be aggressive. We knew that from the beginning. There are many decisions to make and we need wisdom for all of them. Katy continues to keep positive most of the time. We drove as far as Fishersville last night and stayed at Mom and Dad Campbell’s house. They were away for the week. As we were unpacking luggage and pillows from the car last night Katy said, “Well this is sort of a fun adventure, kind of like camping out!” It is fun to live with someone who can find the silver lining in most everything. She has already said that if we have to stay overnight in Charlottesville next week we might be able to visit a craft store. That’s thinking positively!

We prayed for all of you, asking the Lord to bless your lives. Thank you for praying. We could actually feel the strength of the Lord’s presence with us today. We also appreciate the love and help of our children so much. Colin takes over our business when Paul is away and runs it in a truly professional manner. Jenn had dinner prepared when we arrived home, and Mom and Dad are here for the night. It’s a gift to us to have the love of family.

Comments:
  1. Marie Rankin-Moyers Says:

    There is a Michael’s craft store in Charlottesville. It is in the barracks Road shopping center not far from UVA. It is on the second floor, there is an elevator and escalator. If you need anything in Fishersville, please let me know. Still praying, Marie . Romans 8:26…but the Spirit himself intercedes for us with sighs too deep for words.

  2. Jennifer S. :-) Says:

    Katy,
    I’m glad that you are staying so positive! God is working in you, for sure. :-)
    I’ll be praying that the new treatment will be effective.
    Love and prayers,
    Jen :-)

  3. Sharon Pierce Says:

    Hi Katy!
    May God’s grace continue to uphold you and fill you with peace. It is a blessing to hear of your persevering faith and of God’s provision of dear family and friends to support and encourage you all. Our prayers are with you.
    Love from Sharon, Larry, Ingrid and Caleb

  4. Jess Lankford Says:

    Hey guys!
    We are glad that you made it home safely! (I’ve been stalking the blog - waiting for the update from yesterda!!) I’m so thankful that Katy will be able to start the meds at home - home is so much more restful than a hospital! We pray it will work - and work quickly!!

    Love you!
    Jes

  5. Sandy Says:

    I’m glad the doctor’s visit went well, and I continue to pray for healing and strength for Katy. God’s peace to you all.

  6. Karen Tillman Says:

    Dear Katy and Dawn,

    I am so glad that the trip went so well, and that you have gotten a Dr. who seems to be interested in taking the time to listen. I am in total agreement with wanting to do more tests before throwing more drugs onto the scene. I vaguely remember that being the case here in Greensboro, and my parents were so frustrated that the Dr. wasn’t giving me anything at all. I was 9 then and didn’t even realize I had HPS not did the Dr’s for that matter. PTL for good parents, as I don’t know what I wouldn’ve done without mine, and I am sure Katy feels truly blessed to have you too.
    Katy,
    We will pray that this medicine does the trick and holds you steady, so that you don’t have to go to the hospital. But remember hospitals are where you can really be a witness as you go through your struggles. so, if that is where you land, keep in mind that God has put you there for a reason. You never know who is watching. I do just love the way your spirit seems to soar amongst all this adversity, but it seems that most of the people I know with HPS are amazing and some of the strongest people I know.
    Again, I will be praying for yuo diligently that things will go your way.
    Love Always
    Karen Tillman

  7. Andrea Says:

    Katy and Dawn…I know I never write here much…but I am praying for you daily that you will get better and our God will make it happen we just have to hang in there until He is ready. I know those are tough times but He is here to comfort you all.
    Cut and Paste this link in your browser.
    Love you both!

    http://www.gospelgreeting.com/christianecards/viewCard.asp?cid=312&catid=11

  8. Tiffany Allen Says:

    Katy,

    I hope that your treatment works quickly and effectively. I think its wonderful that you are staying so positive, I’m sure that helps quite a bit. My prayers are always with you and the entire family.

    Love always,
    Tiffany

  9. Trisha Ferris Says:

    Katy & Family,
    Please know I love you folks & I pray every time I check the blog, i.e. about 5 times daily. As a matter of fact katysblog is on our toolbar. I praise God for your failt & for the many evidences of His grace in your lives. You walk in His strength & seeing that informs my own walk with God.
    In the Lamb,
    Trisha

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