A few days ago Sara P wrote, “Let our prayers carry you through this time.” It certainly has! Katy is eating a little bit more today. It is a slow painful process, but it is still such a blessing to see her swallow and have her body receive nourishment. She even folded a little laundry today. Mom and Dad Campbell just stopped by and we had a nice visit with them. Her healthcare nurse just finished her IV Rocephin and she is sound asleep.
We are planning to take Katy to New York next weekend where she will have an opportunity to meet with several doctors, scientists, and other friends with HPS and their families. There is a once a year educational seminar and this year it is February 9-11th in New York. We need to make every effort, although we have been reluctant to commit to the trip not knowing if Katy was strong enough to manage it. Once we get there we will be able to meet face to face with many of the doctors and scientists we have spoken to by phone. Paul and I will have the added benefit of attending seminars for care givers of this disease and learn more about the treatments the doctors may try in the future. Our prayer is that we will be able to make the trip as comfortable as possible for Katy, and that she will be able to enjoy it.
Paul Burton is staying home with Katy tonight and Paul and I are going out on a real date. Going to the grocery store together isn’t classified in my mind as a real date. Tonight we are actually going to enjoy the evening together and not come home until we’ve stopped somewhere for a pot of tea and conversation. Yes!Comments: