Monday, April 02, 2007

Monday April 2, 2007

There has been no change in Katy’s pain level yet. It is still very high. We have not started her new pain management drug yet, mostly because Katy has been needing so much care in other ways. I will start it tomorrow morning. The help we are getting from an interested physician is answering a lot of questions for us. I opened my email today and found he had sent several emails concerning the balancing of minerals and vitamin D. The articles are helping us see that much of what Katy is going through (muscle spasms and bone pain) may be related to an imbalance.

Katy has had several spells of blacking out and tightening muscles the last two days so I have been having to keep a careful eye on her. One minute she seems fine and the next she is on the floor if we don’t catch her first. Today I set a cot out on our breezeway. The afternoon temperature was 78. She stayed on the cot all afternoon and we read together, sang hymns, and played with Annelise. We had such a refreshing time that the blackouts and muscle spasms were more tolerable. I made her blueberry crepes for dinner and at 10:35 p.m. she is still commenting on how delicious they were. We have had very trying times the past few days. Still, the Lord is on His throne and no matter what happens this side of heaven we have a lot to look forward to. One of the hymns we sang today meant so much to us. I know you will enjoy the words for the things you face in your own life.

Our God, our help in ages past, our hope in years to come;
Our shelter in the stormy blast, and our eternal home.
Under the shadow of your throne, the saints have dwelt secure;
Sufficient is your arm alone, and our defense is sure.
Our God, our help in ages past, our hope in years to come;
O be our guard while troubles last, and our eternal home.

  1. Karen Tillman Says:

    Dearest Katy,
    I am so glad that you have a mother that is so caring, and that she can help you to take comfort with the hymns. I find that when I am sick music makes me feel so much better, or maybe it just helps me to forget about the pain. As for blacking out that is pretty scary. I’ve had that happen quite a few times in my long history of HPS. There was even one time that I laugh about now. Trust me, at the time it was no laughing matter!! I scared my poor mom and dad to death, not to mention the nurse. I’ll have to write you about that sometime later on. Remind me. I know I personally have problems with electrolytes, but I think it is more or less due to the ostomy. I just have to make sure I don’t get dehydrated, and that I stay away from the stomach flu!!! That can put me in the hospital faster than you can say Ouch!!! Anyway, I will pray that Tuesday will be a better day. I hope to spend the day with my sister and mom who are coming to visit!!!! And am really looking forward to it.
    Take care
    Karen Tillman

  2. Jennifer S. :-) Says:

    Katy dear,
    I’m sorry you’re still having such a rough time. I hate to read that. However, outside of the spasms and blackouts yesterday, it sounds like your day was quite lovely! I’m glad you got to spend some time amidst God’s creation. I’m hoping to get a little “sun time” in this afternoon. Please know that we are praying for your relief. Better days are coming!!
    Love and prayers,
    Jen :-)