Wednesday, May 30, 2007

Our House

We are all at home. We have been all day. Paul and I woke up in the early morning hours with a suspicious churning feeling in our tummies. We’ve spent the rest of the day trying to keep something down. Katy has spent the day upstairs in her room with HPS related problems, while we have used the bathrooms downstairs. We are not a healthy looking bunch tonight. When you think about the number of germs and viruses that surround us everyday, it is amazing that we only feel like this about once every two years.

We’ll feel more like posting tomorrow. It was fun to read your stories today! When I asked for them I didn’t know how much Paul and I would appreciate them also. Last night, Paul’s funny story had to do with catching a mouse in a bucket by balancing a ruler over the top of the bucket with a treat on the end of it. The mouse was supposed to walk out onto the ruler, tip it into the bucket, and be trapped in there until freed. I thought he was very clever to try that. However, the mouse fell into the bucket as planned, then used the ruler like a little ramp to take himself back out! HA!

We look forward to a good night’s sleep and hope for a better day tomorrow for all.

Comments:
  1. Linda Kochendarfer Says:

    Dawn,
    I had that same “churning” in the wee hours of Saturday morning . . . however, mine blossomed into a full blown gastrointestinal bug. Thankfully, it doesn’t last very long! Take heart, you and Paul will feel better soon.
    Love,
    Linda K

  2. Doris Harriff Says:

    Sorry you all are not feeling well. You are in my prayers. And on a lighter note, I want to tell the world what I just found out - Yesterday morning, my third great-grandchild was born. She was 20 inches long and weighed 7 lb. 2 oz. Her name is Keely Susanna Littrell.

  3. Doris Harriff Says:

    Correction. Keely was born Wednesday night.

    Aunt Doris

  4. Karen Tillman Says:

    Hey Dawn, wow, it seems like when it rains it just pours!!! Hope you are all feeling better real soon. Oh, and please don’t send your bug down here!! GRIN
    Love
    Karen Tillman

  5. Doris Harriff Says:

    I still got it wrong; Keely was born Tuesday night. I had my days mixed up.

  6. Lillian Oliveira Says:

    Dear ones, I surely hope everyone is feeling much better by now and that you’ll all be able to be in church tomorrow! We got back from Brazil yesterday, glad, SO GLAD for a warm, spacious home! The temps in S. Paulo took a most unusual May dip right after we got there, and homes are not heated! Low 50s to mid-60s and NO HEAT IN THE HOMES! Well, we wore a LOT of clothes and rejoiced in the warmth of fellowship with dear Christian family we had not seen for several years.

    Katy, dear, I hope you will be greatly encouraged by the church services tomorrow, I pray that Jesus will give you a special message of comfort and courage! Have you ever since Chalcedony? I think I told you about it - one of the stones in the 13 foundations of the New Jerusalem. I am going to bring you a piece of it in “pedra bruta”, unpolished ore.

    Love you much and always praying! Aunt Lil

Tuesday, May 29, 2007

Praying Time

Katy has struggled with severe abdominal pain all day. Katy said she suspects the antibiotics are doing it. Today was her last day to take them and her sinus infection has cleared up. We are praying the intestinal issues will clear up on their own and, in the meantime, we are making her as comfortable as possible with the pain medication we have.

Truthfully, she is a bit discouraged. Paul and I are going to sit on her bed for awhile tonight and tell her funny stories we remember from our childhood. If you have one of your own, we would love to hear about it. Paul and I may even share one with you tomorrow.

“A happy heart makes the face cheerful, but heartache crushes the spirit.” -Proverbs 15:13

“All the days of the oppressed are wretched, but the cheerful heart has a continual feast.” -Proverbs 15:15

“A cheerful look brings joy to the heart, and good news gives health to the bones.” -Proverbs 15:30

“A cheerful heart is good medicine, but a crushed spirit dries up the bones.” -Proverbs 17:22

Comments:
  1. Danae Says:

    I meant to post this earlier, but I just wanted to say how much your post about Paul Burton and the lemmings made me laugh! It brought back all kinds of memories of my visits. Remember how we used to play school and Paul Burton was always the classroom pet?!? He would be whatever animal we wanted! In particular I remember a parrot and a hamster or some other kind of rodent!!

  2. Aleah Yunger Says:

    My closest childhood friend and I used to host our own radio show. We loved listening to the Top 40 songs of the week and we always had the radio on, so we decided to make our own! We would script segments about the weather (based on what it looked like outside) and write all about the news (based on our own healthy imaginations). Then we would record songs from the *real* radio and use them to make our radio show tapes! I still have the tapes stored somewhere to use as blackmail against Brittany someday ;)

  3. Doris Harriff Says:

    Katy, I have a story about myself & your granddad. If you have ever visited my website, you may have read it, because I already posted it there. I only remember very small bits and pieces of it, because I was only 2 or 3, and your granddad was 11 or 12. Aunt Mildred (Middy) was present at this incident, and she filled in a little bit of it for me. Anyway, Paul had built a dam on the little run that went through our property, and he was fishing in it. I was running around making a lot of noise, and chattering away (Middy says I was stomping around), and Paul kept threatening to “drownd” me if I didn’t be quiet, because I was scaring all the fish away. I didn’t remember clearly, so I have been thinking for years that he actually did duck me, but Middy says he accidentally knocked me into the water. He made Middy give me her panties, and he made Laurie (Leora) give me her dress “because I was little, and I was soaking wet” - Middy told me that bit. The other bit I remember was coming back to the house and telling our mother, “Mom, Paul drownded me!”

  4. Jennifer Blugerman Says:

    Katy,

    When Emma was 2 or 3 I remember driving one night after dark and observing her looking intensely out the window. I asked her if she was looking at all the things outside. She gave a heavy sigh and said, “I’m trying to, but the dark is in the way!” :-)

    Blessings,
    -Jennifer

  5. Karen Tillman Says:

    Katy, I am so sry that you aren’t feeling quite so up to par. but, if your parents would like to do a bit of reading to you. You can check out 2 things on my blog. 1 the video of Holly, my daughter and I siniging our version of Lollipop, with a surprise guest and 2 The caption that reads “Flying the Friendly Skies?” It’s pretty interesting my thoughts on how people treat you when carrying your white cane. My blog address is www.myspace.com/karenshpskorner I hope you are soon feeling better, and up to doing more fun stuff. I would venture to say that the antibiotic may very well be the culprit! I have a hard time with strong ones myself.
    Take care and love always
    Karen Tillman

  6. Beth Sprankle Says:

    Funny stories…well, there was the time my dad took me, as a very little girl, and my 3 older brothers, on a summertime hike up a pretty big Pennsylvania “hill”….or maybe it was a small mountain. Anyhow, we gathered a light picnic lunch and ice water to be enjoyed at the very top of “the hill,” affectionately known at Devil’s Peak. Just the sound of that, “Devil’s Peak” made it seem like a dangerous adventure to a little girl, and I felt very important, going along with the guys!

    My brother, Paul, probably about 10 years old at the time, was in charge of the ice water. Little did we know, he planned a surprise for us…he put sugar in the water, as a treat…..LOTS of sugar. It was indeed a surprise, once we got to the very top of Devil’s Peak, hot, tired, and VERY thirsty from a couple of hours of hiking in summer heat…only to be presented with sickenly sweet sugar water for our refreshment!

    My brother’s surprise was not the treat he had hoped it would be, and it was a very long hike back home! Cold, clear water never tasted so good as it did that day, when we got home! The sweet part of this story is that it reminds me of my brother’s fun-loving, generous, happy nature, always seeking to be a blessing to others. We survived our sugar-water “treat”, but we never got over the joy of having him as a part of our family!

    Oh, and I learned 2 things that day….1) nothing refreshes like cool, clear water, and, 2) when you let 10-year-old boys pack your lunch for you, there may be some surprises involved!

Sunday, May 27, 2007

Memorial Weekend

We are having a good weekend with many opportunities to visit with friends, eat good food, be in the great outdoors, and enjoy the goodness of the Lord. On the way home from small group tonight, Katy said, “Haven’t we had a wonderful weekend?” Paul said, “Actually Katy, this weekend is similar to many we’ve had in the past, we’ve just become more grateful.” How true!

Katy’s health is stable. We watched her get back on her feet last week and she was able to attend everything we had planned. That is the Lord’s doing and our gratitude goes to Him.

Comments:
  1. Trisha Ferris Says:

    Katy,
    I got to see you at one of those weekend events, & I must say, you are one intelligent, beautiful, stylish, vivacious woman. You rise above all that HPS tries to do to you. You are a lovely handmaiden of the Lord.
    Trisha

Saturday, May 26, 2007

Friday Evening

Good evening and happy weekend to you! Paul Burton and I are actually about to head out to a home-school graduation ceremony. I’m so thankful to have a brother who enjoys taking me places. I’m also thankful to feel well enough to attend the graduation.

I have such fond memories of Paul Burton and me growing up together. I used to also do things with my oldest brother Colin, but Paul Burton and I were closer in age, so we were often playmates. We used to dress up in the “grown up” fur coats, retrieve some lettuce from the refrigerator, and pretend we were lemmings. We’d even used the laundry baskets as animal cages. Paul Burton also enjoyed decorating my doll house at Christmas time. And when Colin and Paul Burton had to babysit me, they’d sing “Father I Adore You” at bedtime. My siblings were, and still are today, my friends.

In other news, Dad and Mom should be home around 3 or 4am tomorrow. They have actually been on a business trip in Missouri. At the last minute, Mom decided to go with Dad to help with the driving and cooking of meals. Thank you to the family and friends who either stayed with me or checked in on me daily to make sure I was doing alright.

Comments:
  1. Delmar Short Says:

    “Cousin Mike”- please see comment # 7 from previous comment section.

  2. Doris Harriff Says:

    Katy, so nice you could have a night out with your brother. And Delmar, thanks for your response to my son.

Wednesday, May 23, 2007

Answered Prayer

“I urge you, brothers, by our Lord Jesus Christ . . . to join me in my struggle by praying to God for me.”
Romans 15:30 (NIV)

Many of you have joined me in my health struggles by praying for me. The Lord is faithful in hearing your cries, groans, and prayers! In general, I am now feeling better than I have since I was first diagnosed with HPS in August of 2006. My prayer for you is that, as you join me in my struggles, you will also reap the blessings and rewards of a close relationship with the Lord. In addition, please let me know how I can join you in your struggles. The prayer ministry that Mom and I started last year has not stopped!

Today, was a wonderful day that was free from muscle spasms, muscle weakness, and fatigue. I was even able to entertain a friend for the entire day! We talked, cooked together, and accomplished some projects.

As a side note, I have updated Katy’s Musings with pictures of my “closet office”. Last night, Dad installed the ceiling fan, so the renovation is now complete.

Comments:
  1. Andrea Says:

    Katy,

    Praise the Lord for how good you feel and sound :)
    I am so glad to hear good news from you, that just makes my day!

    I will see you soon :)

    Love and Blessings
    Andrea

  2. Jennifer S. :) Says:

    Katy,
    Praise God!! His goodness is amazing :) I’m so thankful and happy to hear that you’re doing better. I would love to come see you sometime, but my schedule’s pretty hectic right now with my brother’s graduation on Saturday. I will call you when things slow down. :)
    Love and prayers,
    Jen :-)

  3. Linda Kochendarfer Says:

    Katy,
    You’re new office is fantastic! And just let me say, that’s some closet . . . It was good to see new pictures of you; your sweet smile makes my day. I’m looking forward to seeing you on the tenth of June. Have a blessed day in the Lord.
    Love,
    Mrs. K

  4. Mike Theesfield Says:

    “…please let me know how I can join you in your struggles.” Interesting that you say this now. I’ve had heart trouble for some years, and it it acts up more some times than others. Last night it was acting up, all the more alarmingly because I haven’t been really exerting myself. The upshot is that I’ve been feeling my mortality, but I don’t have the comfort of the religious beliefs you hold dear. I know you so passionately believe in God, and I’ve read what you and others have written in this blog. But for a variety of reasons (many of which I’ve argued recently in the religion forum of a political website), I cannot. I feel like I’m in the ocean and I’m clinging to a leaking life preserver. I know I’m going to sink sooner or later. I cry out in the no-athiests-in-foxholes manner, but I feel that there is no response.

    I’m practically a stranger to you, and I kind of hate to burden you with this because you have and have had so much on your own plate, and the only comprehensive solution you can offer is the one I don’t believe in. I suppose that I felt like sharing this with you because I feel that you have some unique empathy for my situation, even though it’s different from yours. I’ve shared it with another internet friend, but she’s got plenty on her own plate. Also, in her case, I’ve been trying to meet some of her emotional needs, and I don’t want my death (whenever it comes) to blindside her.

    Anyway, for better or for worse, you did ask, and also for better or for worse, this all came from the heart (no gruesome pun intended), and talking it out helps a little. I hope you don’t burden yourself too much with it. Sorry for such a grim post.

    Cousin Mike

  5. Sally Says:

    Hi Katy,
    I am rejoicing to hear that you are feeling so much better. I answered your email about school work several days ago. I was unclear about what you were asking me, and my email in response clarifies the status of the assignments.
    I am praying for you and your family.
    Sally Ludwig

  6. Jes Says:

    Hey Katy girl!
    It’s so good to get another post from you! :) I’m glad that you are feeling a little better today! This remicade is great stuff! I am rejoicing in your current state - we continue to hold you up before the throne. Please keep us in your prayers too - the next two weeks will be full of travel and reuniting with Josh as he comes off of his ‘big bad travel’….homecomings are wonderful but also an adjustment for everyone! So pray our transition to having daddy back will be smooth!

    Cousin Mike - I will pray for you this evening - Katy isn’t the only one out there praying and our Lord hears. There is no way that Katy and her family could have made it through the dark valley that they have walked if Jesus wasn’t walking with them! I will pray for your heart and for someone to come along w/ answers to the questions you have!

    Love to you all!
    Jess

  7. Delmar Short Says:

    Some suggestions maybe for cousin Mike, and anyone else who may have doubts: 1. If you send me your e-mail (mine is DelmarCEF@aol.com) I will send you some things I have sent to others recently about some very serious questions, including most recently about religion and wars and before that some things on science and religion as well as some summaries and quotes from some of the following books. My wife and I have also taught on such subjects as “Why there is suffering”, and “Prayer Busters” (from a book by Hybel’s, called “Too Busy Not to Pray”) 2. Some books that may be helpful: “Letters to a Skeptic”, Josh McDowell’s “New Evidence that Demands a Verdict”, Stroble’s “Case for Christ”, “Case for Faith”, and “Case for a Creator”, C.S. Lewis’s “Case for Christ”, and a very interesting easy-read, called “Dinner With a Perfect Stranger”. 3. Katy’s blog :) (and I may be in a fairly unique position to explain why her experiences are very difficult to explain medically or psychiatrically)

  8. Aunt Lil Says:

    Dear Katy, I also am so glad to hear that you are up n perkin! We just got back from the very beautiful beach called Guaruja down the long escarpment from Sao Paulo. We went to Santos, Pele~s hometown and on to a hilltop high above the bay, watching series of waves wash white and blue on the shore. We had a marvelous lunch there.

    I was reading the comments, and would like to ask that all who read this pray that Cousin Mike, my dear nephew, will be miraculously healed of his heart condition, both physical and spiritual. God is able to heal the wounding of both body and spirit. I write with tears. I have heard that many many people read this who never comment. Please help us pray, and thank you so much for all the wonderful support you are giving my dear Katy niece.

    Katy, the Lord willing I~ll be with you in a couple of weeks. I hope you will be doing well, and if not, remember I~m the housekeepér and cook.

    May the Lord give you a blessed Sunday, AT CHURCH! Love much, Aunt Lil

Tuesday, May 22, 2007

Goodness and Mercy

Antibiotics fall into the “goodness and mercy” category. Goodness and mercy are following Katy all the days of her life! By the fifth dose, Katy is feeling relief from her sore throat! She worked on laundry today and did a little catching up on her paperwork. Her appetite picked up today, too. We are so happy for her.

I was in the grocery store today and saw a bag of sun chips. I had a flashback to several months ago of Katy licking the salt from them while the TPN kept her alive. The Remicade is working. This morning she was hungry for blueberry pancakes and ate every bite on her plate without trouble.

Lord, it would have been enough that you saved us from hell and damnation by the death of your Son. But you are the giver of every good gift and the shepherd that promised goodness and mercy to us all the days of our lives. You give us far more than we deserve. Amen!

Comments:
  1. Linda Kochendarfer Says:

    Katy,
    I was just reading your blog and wanted to share what I’m seeing outside my window. Under one of my bird feeders is the brightest reddest cardinal you’ve ever seen; right beside him is the most beautiful bright turquoise blue bird ever! They look like part of a Crayola crayon box. But in the middle of the twosome is a fat and sassy squirrel. All three are picking up dropped seed and having what I suspect is a terrific breakfast (which probably doesn’t quite compare with the pancakes you had, but might be pretty close). I’m glad you’re feeling better today, Katy. Have a blessed day in the Lord and know we love you and keep your name before the Savior.
    Love,
    Mrs. K

  2. Bob Cirba Says:

    Katy, I wish I could give you a bearhug! I hope the antibiotics give you continuous relief. May your courage and faith in God continue unabated. Love, Bob in Scranton, Pa. *Smiles*

Sunday, May 20, 2007

A Good Idea

Katy wasn’t any better this morning, so I took her to the local doctor on the advice of another physician who suggested that whenever Katy has swollen glands a white cell count should be taken just to rule out a hidden infection. The blood work today did show an elevated white cell count and after Katy explained how she was feeling it was decided to put her on an antibiotic. After three doses she is already seeing improvement in several ways. Hopefully the antibiotic will kick this little infection to the moon and she will resume life again! Katy thinks that because her face and eyes hurt so much, she may have had a sinus infection.

The Lord has again given the doctors good insight into what might be going on before matters worsened. I’m so grateful for the help. We are a blessed family and have learned to count our blessings one by one.

Comments:
  1. Jes Says:

    Hey Guys!
    We are praising God with you for good doctors! It’s amazing what an antibiotic can do to kick those nasty infections to the curb! I remember one time when Noah was really little - he had a nasty infection and they gave him a shot in the office - by the time we got him, he was already looking better and within 3 hours - you would never have known he was sick! I was amazed! I hope your improvement this morning continues and that you get to feeling better! We love ya!

    Jess

  2. Sandy Says:

    I am glad the antibiotics are helping! Hang in there and take good care.

  3. Linda Kochendarfer Says:

    Katy,
    I’m sorry I missed you and your mom when I stopped by yesterday. I’ll try again next week. I’m looking forward to seeing that beautiful new office!
    Continuing to pray God’s blessings and sanctification on you.
    Love,
    Mrs. K

Sunday night

Katy has hit a speed bump again. This time it may be a simple virus, but she has had a very sore throat since the middle of the night on Thursday. It is not improving but the strep test on Friday was negative. She has not had much strength or energy and has stayed in bed over the weekend. I’ll take her to the doctor tomorrow to see if her white cell count is up. We are hoping there will be a simple explanation for the sore throat and swollen glands.

We are learning that Remicade treatments have certain side effects for Katy. She has had three of them now, and each time it has taken her awhile to get back on her feet. When she is feeling better I’m sure she’ll contact some of the people in the HPS network to find out if this is a normal occurrence.

This has been a beautiful day here in Virginia. The trees on the mountainside are fluffy green, and on the way to church this morning Paul and I were looking at a field of red poppies in the foreground, the beautiful Blue Ridge Mountains in the background, and felt blessed to live in such a beautiful place. Our drive to church is our worship before the worship!

Comments:
  1. Jennifer S. :) Says:

    Katy,
    I do hope and pray that your sore throat goes away soon. They’re no fun! Enjoy your extended bed time (I wouldn’t mind it some days! ;) ) and hopefully you’ll be back on your feet again soon. :)
    Love and prayers,
    Jen :)

  2. Jennifer Wellington Says:

    Hi Katy,
    I am sorry to hear about your sore SORE throat. I will pray that it goes away quickly, and you are feeling better. For some reasons, sore throats seem to be particularly painful.
    Reading this web site has been a hug blessing for me. I am sorry that I don’t comment often, but I do pray for you.
    In Christ’s love,
    And only because of Him
    Jennifer Wellington
    (a friend of the Poes)

Saturday, May 19, 2007

Rejoice!

Just a quick post, since I know many of you check this blog daily for health updates. Thursday night, I woke up from sleeping with a sore, raspy throat. Mom got me some spray and Tylenol, so I could get back to sleep.

Yesterday, my throat wasn’t any better, and since I didn’t have much nasal congestion, we were afraid I might have strep throat, which is common for patients who are on Prednisone and/or Remicade. So, I went to the doctor at 4:00pm and discovered that I didn’t have strep throat, but a virus that is going around. According to the doctor, I will need to let this virus “run its course”.

While Mom and I were at the doctor’s office, we were praising the Lord that I was there for something as “normal” as a sore throat! This is the first time in a year that I visited the doctor with a sickness unrelated to HPS. Philippians 4:4 says, “Rejoice in the Lord always. I will say it again: Rejoice!” Although being sick with a virus isn’t fun, there are many reasons to rejoice: I’m able to walk, I don’t have muscle spasms, the Remicade is working, I’m not at the hospital, it’s a beautiful day outside, and I’m a child of the King of Kings.

Comments:
  1. Sandy Says:

    I totally know what you mean about having something “normal” for a change! My primary care doctor is always relieved when I come in with something ordinary because he doesn’t have to consult a bunch of other doctors about how to treat me. :)

    You are a gift, Katy! And you continue to be in my daily prayers.

  2. Jennifer Blugerman Says:

    Thank you, Katy, for reminding me that every day is filled with God’s blessings, and full of things to rejoice about!

    -Jennifer

Thursday, May 17, 2007

Getting Better All The Time

Although Katy had to sleep a good part of the day, she is now feeling her strength return and the “poisoned” feeling she talks about is lifting. She is working on her Bible study at her desk while I am in her little office working on an update.

I told Katy that when I wake up in the morning I have a feeling of joyful expectation. I can’t explain it, but we are all feeling that way around our house. I’ve observed that so much of what the Lord does is quiet and secretive until the fullness of time. Then He reveals His plan and delightful surprises when we least expect it. He gives us something to cheer about everyday. Tonight the cloud formations over our home just before a storm took us by surprise. They were beautiful and we had to stop what we were doing just to stare in awe.

Your mercy, Oh Lord, reaches to the heavens: Your faithfulness to the clouds. Psalm 36:5

Comments:
  1. andrea Says:

    I am so full of joy today for different reasons. And it is a tremendous joy to see how good Katy is doing! :)
    Here is a little poem for you…………..
    The Hand of God

    May the new day bring you blessings,
    as the light comes filtering through.
    May your sunrise be as lovely,
    as a morning draped in dew.

    May the wind blow forth a promise,
    sending sweet bouquets your way.
    May life seem a little brighter,
    as you rise to greet the day.

    May the daybreak render pleasure,
    as the birds begin to sing
    May the distant roll of thunder,
    bring forth a touch of Spring.

    May the mist embrace the stillness,
    like a fire fly in the night.
    May an angel walk beside you,
    to hold you in the light.

    May the rain caress your body
    and life drops flood your soul.
    May His Spirit come upon you,
    to cleanse and make you whole.

    May the showers come so softly,
    running gently through your hair.
    May you touch the living water
    and know that He is there.

    May the freshness bring you new life,
    pushing through the tender sod.
    May you pause to pick a flower
    and brush the hand of God.

    by Marilyn Ferguson

    Hope you lied it
    Love and Blessings
    Andrea

  2. Aunt Lil Says:

    Well, I don~t know if this will go or not, using my email on Emilia~s computer! If not, I~ll ask her help later, can~t remember her email by heart.

    I am in Sao Paulo now - we flew in late yesterday PM, flight late, got here about 6 instead of 5. And today we went shopping at our favorite Brazilian stone and artifact shops that we used to frequent when we lived here. And yes, I found two crosses with amethyst stones! If one of you would like to change your stone, I can get them in other ones, like blue topaz, red garent, not sure what else. I also bought some chalcedony things and I just LOVE IT! The beads are pale blue with something of opal in them, they look like they are lighted inside! Remember they are in the foundation of the city -^the beautiful City of God^ - from the hymn We~re Marching to Zion. I wanted to put quote marks but they are taken up by ^ that sign! Now you know! I~m reading a book by a Chinese man called Brother Yun, who has suffered more than I have ever read of anyone suffering in our times, for Jesus, terrible tortures and imprisonments. Once the Lord sustained him miraculousy for 74 days in prison without food OR WATER! as he prayed for his country. I don~t know whether these stories encourage or depress in hard times, but if you need a contemporary Job story, that is it. The title is THE HEAVENLY MAN, by Brother Yun with Paul Hattaway, Monarch Books, London and Grand Rapids.2004. He was born in 1958 so is only 49 now. I read it on the way down and am nearly through it a secnd time! I need to be reminded. God used suffering to work great miracles and redemption!

    Emilia~s apt is very small but SUPER ELEGANT! We have many old friends to visit here, so have a full schedule! We love and pray for you all.
    She has gone to check on her optical shop.

Wednesday, May 16, 2007

Remicade and Pedicure

Today’s treatment was successful and I am still feeling pretty good tonight. Mom had the idea to take along the items needed to give me a pedicure during my treatment. I chose princess pink for my toenails. Mom and I had our own ideas about redeeming the time, but Paul Burton really made it fun because he came to visit us twice on his shift.

Although the Remicade gives me a feeling of being poisoned for a couple of days afterwards, I have to say this treatment has been the easiest by far. I was able to walk out of the hospital at the end of the day. The nurses were pleased to see me looking so well before and after the treatment.

Thank you very much for all of your prayers today. The Lord answered them. His lovingkindness endureth forever!

Isaiah 38:15-17:

15 But what can I say?
He has spoken to me, and he himself has done this.
I will walk humbly all my years
because of this anguish of my soul.

16 Lord, by such things men live;
and my spirit finds life in them too.
You restored me to health
and let me live.

17 Surely it was for my benefit
that I suffered such anguish.
In your love you kept me
from the pit of destruction;
you have put all my sins
behind your back.

Comments:

  1. Heather Kirkwood Says:

    I’m glad it went so well! I probably won’t be able to check out the blog for a few days. I’m getting ready to leave to go to the American Thoracic Society meeting. These are all lung doctors and researchers, so we’re trying to build awareness so people get accurately diagnosed. We’re also trying to get the word out about the drug trial in case anyone has a patient that fits the criteria. It’s always a very busy, busy week and internet access is fleeting. So, stay well okay!

  2. Trisha Ferris Says:

    Katy,
    How good it is to read a medical post written by you! Thank the Lord for Remicade & for His servants who developed it. Every good & perfect gift comes from Him. The Psalm you quoted was a blessing to me.
    Trisha

  3. Jes Says:

    Hey Katy!
    I agree w/ Trisha - it is so great to get a post from you! I’m glad you had a chance to get a pedicure and redeem the time a little! And how thoughtful of PB to come see you twice! You have such an amazing family!! :) We love ya and I hope this treatment kicks in quickly and you are able to get out there and weed those beds and kill those dust bunnies! :)

    Jess

  4. Karen Tillman Says:

    Dear Katy,
    WOW, a post from you!!! Something I have truly missed. I am so happy that the Remicade went so well, and hope that you continue on the path to recovery!!! Take care and I will try to check a couple more times before I leave.
    Love
    Karen Tillman

  5. Sandy Says:

    Katy!!

    I’m so glad that your treatment went well and you were able to be online afterward! My cousin’s little boy (who is almost 2) would love your toenails — he’s currently fascinated by painted toenails and was so disappointed when he had me take off my shoes the other day that my toes were so ordinary!

    Take good care, my friend! Prayers continue from here.

    Sandy B.

  6. Jennifer Blugerman Says:

    OK, so now we know the formula — prayer, bananas, more prayer, donuts, pray some more, veggie sub, repeat…. ;-)

    So thankful that you’re feeling well enough to post a message yourself! We are rejoicing with you and pray that God will indeed reveal to you a consistent, predictable pattern that will enable you to manage your health long term. Thank you all for blessing us daily!

    -Jennifer

  7. Linda Kochendarfer Says:

    Katy,
    What a blessing to hear from you personally! A pedicure while you get your treatment? Your mom has ideas the rest of us would only dream of! Thank you for the verses from Isaiah, they were a particular blessing to me today. I have written one of them on an index card where I can refer to it often. You continue to be such a bright light for all of us who know you.

    Love,
    Mrs. K

  8. Jennifer S. :) Says:

    Katy,
    Hooray!! What a blessing. And a pedicure? How fun! What a great idea. I’m glad you’re feeling well and your spirits are so high. You are a blessing to all of us! :)
    Love and prayers,
    Jen :)

Tuesday, May 15, 2007

Remicade Eve

Katy and I are so delighted. We just got back from a quick shopping trip. It is amazing how well she looks on the day before her next treatment. Katy is actually going to be able to walk into the hospital tomorrow for her Remicade. We’ll leave the wheel chair in the trunk! It will be fun for the hospital staff to see her this time. She is much more the Katy we all remember. Her next treatment is actually a stronger dose and should last for a full eight weeks. She has been feeling well enough to write and therefore submitted a paper to one of her professors. Yesterday, by faith, she filled out the information to be printed on her diploma next year. The Bible says that good news gives strength to the bones. So all of you who have been longing for good news for Katy may want to jump, shout, and enjoy the strength that good news brings! We’ll do the same.

The times we have like this are so thrilling. Everyday normal things are such a marvelous treat. We’re happy just to be home having some fun. We bought some fancy trim for the bottom of a lampshade and can hardly wait to glue it on. That is a big deal. There are times I have a fleeting flashback to the months at the hospital and they quickly disappear as gratitude comes back like a rushing stream!

Thank you, Lord, for the times of refreshing. The joy is always deeper than the sorrows of this life because of knowing You. Amen!

Comments:
  1. Doris Harriff Says:

    This is great news! Isn’t God good! Has Katy been able to reduce the cortisone yet again?

    Aunt Doris

  2. andrea Says:

    WOW, Katy looked so good today when I saw her at “Stuff-Mart”…LOL
    And you too Dawn :)

    I am so glad for all of you. What you been through in this passed months, some people dont go through in a lifetime. I read something in the Bible about it I think it was Job???

    Anyways, I am very happy for your whole Family. And I pray that the next treatment will be even better than the last one :)

    Love you all
    Andrea

  3. Jennifer S. :) Says:

    Katy,
    My heart fills with such joy to read this. I praise God for His excellent work in you!!
    Love and prayers,
    Jen :-)

  4. Rich Kochendarfer Says:

    Katy,
    As I go to prayer this morning I will be thanking God that you can walk into the hospital! Enjoy the benefits of your treatment and this beautiful day the Lord has made.
    Love,
    Mrs. K

  5. Karen Tillman Says:

    Hey Katy,
    I am so glad that you are much better these days. I know that it has been long time coming. I wish for you every good thing that God has to give, and that the Remicade will stay with you much longer. I leave for San Francisco, CA on Friday to attend The American Thoracic Society Conference with Heather and Donna, so please pray traveling mercies for me, as I have never traveled that far alone before. Flying to NIH is a piece of cake as I had been to the same airport a couple of times with my hubby Tommy, before I started going to NIH alone. Anyway, I guess it is time for this little timid country girl to grow up, and put her trust in God for big things to come yes? Take care, and try to stay well until I get back, as I probably won’t have computer access while I am away.
    Love always
    Karen Tillman

Thursday, May 10, 2007

Happy Mother’s Day

I just returned from a lovely evening at a local church, where I was the guest speaker for a Mother/Daughter banquet. The food was so delicious. I love southern cooking. We had hoped Katy would be able to join me for the evening, but her health has not held steady today. Julie and Danae came though, and it was a real treat for me to watch them win two of the door prizes.

The last Remicade treatment has not effectively continued to work for Katy. She is having a difficult time with the bleeding issues and inflammatory bowel problems again. However, we have been enjoying our days and having good times together. This morning she weeded another part of a flower bed, while a good friend came and put in a beautiful flower garden for me. It is so pretty! My friend is a true gardener with many years of experience. She had carefully selected plants that should do well in the soil around the two birch trees. I was very impressed with her work and since I worked along with her I could see the little things she was doing to prepare the soil. I actually think I may have success with outdoor landscaping as a result. By early afternoon Katy had so many health issues going on she decided to stay home from the banquet, and we are praying for her strength and comfort.

As I reflect on Mother’s Day, I think of what a gift it has been to raise children. They keep you busy, active, entertained, and help you understand your computer. Colin gave me a card that said, “Mom, I can’t imagine what life would be like without you. I’d probably be eating candy from strangers,talking with my mouth full, waving around sharp objects, while sitting too close to the TV in yesterday’s underwear.” I had a good laugh over that. Our role of mother is often “teacher.” This Mother’s Day I would like to say “thank you” to all the moms out there who continue to show by example what it means to lay down your life for another.

Comments:
  1. Bob, Amy, Emily, Meredith and Abby Says:

    Dawn,

    Happy Mother’s Day to you!!! I just have to say that Colin’s card is laugh out loud funny!!! Imagine the whole world going around just as the card described!!!! :0)

    See you soon,
    Amy and family

  2. Jennifer S. :) Says:

    Katy,
    I’m sorry today was rough for you but it’s nice that you got to be outside some. It’s been beautiful weather! I’ll continue to pray for you as you approach your next Remicaide treatment. Hang in there!
    Love and prayers,
    Jen :-)

  3. Karen Tillman Says:

    Earest Katy,
    I am sitting at the hospital taking some time out of my schedule today to let you know that I am thinking and praying for you constantly. I know I haven’t checked in much lately, but I have been dealing with some of my own issues, and spending more time at the hospital. I have been filling in for people so that they can take their vacations, and the first week of June our secretary will be headed on a missions trip to South Africa!!!! How exciting. I hope to hear good reports on that end. It is nice to work with people who are christians. It does make our walk with Christ so much easier.
    Dawn, thank you so much for the kind mother’s day words, and Iam sure that we all appreciated them. I always enjoy reading your posts as they are so well written, and I can tell that much thought goes into them.
    Gotta run. Much Love and the Lord’s Blessing to you and your family.
    Love
    Karen Tillman

  4. Shari Crenshaw Says:

    Dear Dawn,
    What a blessing it was to have you visit our church for the MotherDaughter Banquet. While we were so saddened to hear of Katy’s medical problems, we were uplifted to hear of her incredible spirit and faith in the Lord, and her experience in heaven. Yes, she is truly a beautiful young woman, with a fantastic smile that beams joy, a radiance that comes from her love of God, and a talent for expressing her love and desire for everyone to know Him. It was an honor to meet you, and to be introduced to Katysblog where we can read entries from both of you. We will be praying for Katy and for your family. May God touch others through you.
    In His love,
    Shari

  5. LInda Burk Says:

    HI..happy mother’s day to you DAwn…….your mothering abilities have been tested and you have won the prize…….you amaze me with your constant positive attitude and loving spirit….we had a nice mother’s day with our children . we visited the newly restored basilica in downtown Baltimore..the first in this country…….enjoyed Mass together and then had dinner……….it is a blessing to be in church with my children…….hugs to all, LInda

  6. Sheila States Says:

    Hello, Katy:

    I met your Mom at the Mother Daughter Banquet of Mill Creek Baptist Church where she came to speak to us and gave us her Testimony (and yours) about choosing LIFE and how the Lord has blessed them with YOU! She also told us how badly you had wanted to come with her. We wish you could have also. You would have been very proud of her. She told us all about your blog and now you have many more people praying for and with you. We were all touched by your story and feel you have been especially blessed by your glimpse into Heaven! How wonderful!!! I just wanted to say hello and tell you that I will be keeping you close to my heart and in my prayers and thoughts. I will keep contact on how you’re doing through this website. You are a beautiful young woman, inside and out. May the Lord continue to use you (and all of us) according to His Purpose.

    Blessings,

    Sheila States

  7. Heather Kirkwood Says:

    Hey there,
    Just wanted to say good luck with Remicade day tomorrow!

Wednesday, May 09, 2007

A 1000 Calorie Day!

We are encouraged! The next Remicade treatment is less than a week away and Katy’s condition is remaining stable enough to eat and drink. We drove to Subway to satisfy another veggie sub craving, then to Wal-Mart where I bought all the fixings to make my own veggie subs for Katy. She wanted another one last night about ten and no one wanted to go out to get her one so she settled for bananas with ice cream.

We worked in the flower beds for about fifteen minutes today and it is clear that Katy will have to build up her strength before we can weed a whole bed at one time. We managed to clean up old leaves and rake a little before settling in for the evening. As we worked we talked about all kinds of things. I love having her with me, and stopped to pray once, because I was overwhelmed with gratitude that we could be standing in the yard together weeding. It is such a gift to have these times of refreshing.

Comments:
  1. Aunt Lil Says:

    Dear ones, I have just gotten on the computer at Vera~s house for the first time and read the last several blogs. I~m so glad Katy is through another hard time and enjoying life (in a weedy garden!) again. We think of you so often and pray for you. I still haven~t had a chance to look for your crosses - I expect to get them in Sao Paulo where I found mine before. Do you both want them in all amethyst stones, or would either of you like another kind, or a mix of Brazilian stones, such as blue or yellow topaz, garnet, rubelite (ruby color) peridot (light yellow-green) etc. They are usually available.

    We have been having a great time, spent the last two days at the Luxor Hotel at the famous Copacabana beach where Tony~s niece Vera works. They put us on the VIP list because we were here aunt and uncle, and upgraded us without charge to one of the deluxe rooms at the front of the hotel facing the gorgeous circle of beach with all its palms and the lovely green mountains rising behind the city. If you want to see the hotel, you can find it on the web at Luxor Hotels. Ours was the Luxor Regente on Copacabana beach. Tony also took me to HSterns and bought me a lovely dainty blue topaz ring with 4 diamond brilliants. Mr. Stern himself walked in and out while we were there - only Vera knew him, because she used to work for Stern. Its equivalent to Tiffany~s in NYC. He is very old now, she said he is so nice, used to come and talk to all the employees personally and ask if they were happy or if they had suggestions. She didn~t tell us it was he, because he doesn~t like attention…

    Tomorrow we are going up through some gorgeous mountain passes, all forested and stay overnight in a quaint little town where Vera and Ed have a trailer at a resort. They have great inexpensive handmade sweaters and jackets - its pretty chilly up there, and I hope to replace a sweater I got there while we were teaching in 91!

    Tony says its time to go, but wants to say hello to you and tell you that he is already homesick! The apts here are very tiny! I~m not homesick yet, love the warm weather - very moderate as its fall here, and am looking forward to seeing so many friends here.

    Tony preached or taught three times in our FM church here and they were so encouraged as this is our first church in Rio and they feel quite isolated. Both the pastor and his wife are practicing medical doctors!! doing the church as well. The assitant pastora was one of our students at the Seminary is it was a joy to see her doing so well. She was also delighted to see us. So its all very interesting. I don~t know when I~ll have a chance to get on the computer again, as this is at Vera~s house and we stay at her mother~s house and it gets complicated with very busy schedules. I~ll try to check in again before we go to SP., if not I~ll be looking you up at Emilia~s there.

    Love you all much and pray for you! Deus vos cuide e ajude.

    Aunt Lillian, for Uncle Tony, too

  2. LInda Burk Says:

    HI..such good news for Katie these days..yeah……….working in the gardens is soothing to me too……tomorrow I will babysit Katie’s Burk’s 4 children. Katie was able to get away overnight with girlfriends to celebrate her mother’s day. Jack and I will meet our children in Baltimore for Sat evening Mass at the newly restored Basilica. Sunday my girls will visit their mother in laws…a good thing. Hope your mother’s day is special DAwn. Hugs to all, Linda

  3. Jennifer S. :) Says:

    Katy,
    HOORAY!!!! Praise the Lord for stability. I’m so glad to hear that!! :)
    Oh, and I’M GRADUATED!!!!!!!!!!!!!! I’m so excited and happy. God has been, and still is, so good to me!! :)
    Love and prayers,
    Jen :-)

  4. Heather Kirkwood Says:

    That’s great Katy! You must be doing well if you can eat veggie subs! When my tummy troubles kick in, I can’t eat any veggies unless they’re cooked to mushdom - which doesn’t make them terribly appealing. I was able to eat some strawberries last night, which was a big deal for me. Grin! But, the funny thing is I have no trouble with chicken, or soft breads, or bad stuff like french fries. It’s fruits and veggies that do it to me. But, it’s been a better week.

An 800 calorie day

I’m happy to report tonight that Katy had a good day. It started at 2:00 am when her dad got home. We all met him in the kitchen and chatted until 3:30 am. We loved seeing him walk through the door! When we all went to bed I left Katy her next dose of medication on the night side stand and when I woke up late this morning I went to her room and discovered that she did not wake up to take it! I knew her pain level had to be lower for that to happen. It remained at a level 4 all day and she was able to eat another thing she had been craving. I took her out for a veggie sub at Subway. She enjoyed a six inch sub and we went to a park and a fabric store after that. It was a beautiful day, and she was feeling good. I can’t explain how she has made this turn around but we see the hand of God and His goodness in it. I know it wasn’t the donuts but your funny comments cheered us. We are in constant prayer and praise around here. Every day brings some new surprise and blessing.

Comments:
  1. Jes Says:

    Hey guys!
    Just checking in before I turn into a pumpkin for the evening! Yea for the 800 calorie day!! That is great news that the pain was more manageble and you were able to get outside and enjoy some of this wonderful weather!

    We have been in and out all day long as well - Lydia has discoved the joy of bubbles so I spend a lot of time sitting in front of the house, blowing bubbles and watching my two little ones chase them! I’ve noticed that boys like to stomp and pop - girls like to chase and try to catch…It’s been wonderful because I can sit while they wear themselves out!!!

    I had another OB visit today and everything is still going well - 28 weeks!! I had to drink a sugar solution for the 1 hr glucose test that they give to test for gestational diabetis and it was terrible!!! Totally set me teeth on edge - so on the way home - I endulged in cheese sticks from Sonic! After the sugar drink I was craving salty - I’ve never had them before - and like Dawn (when I’m not pregnant) I can be a bit of a health nut - but they were yummy! So if you ever need to kick those calories up - I’m betting that would definitly help!! hehehehe!

    Love ya’ll! Praying for good rest this evening!
    Jess

  2. Karen Tillman Says:

    Hey Katy,
    I am so glad that you had a good night’s sleep, as that is so important to helping a person to feel better.
    As for the donut……well…..you must have great self control to have left Paul Burton one. Me….I’m a pig, I would have eaten them all!!! GRIN
    Our computer was attacked by a virus, and I have been able to use it although rather sparingly, and we think that Tommy has finally gotten rid of it.
    Anyway, I am counting the days down til your next Remicade treatment, and hope you continue to hold your own with God’s help of course.
    Take care
    Karen Tillman

  3. Jennifer S. :) Says:

    Katy,
    HOORAY!!! I’m so pleased and thankful to hear of your good day. I’ll be praying for another one for tomorrow! And aren’t those Subway subs good? I love ‘em. :-)
    Love and prayers,
    Jen :-)

  4. Heather Kirkwood Says:

    So glad to hear things are a bit better. Hmmmm….wonder if that fatty foods thing only applies to flare ups - seems I crave all the naughty foods in life ALL THE TIME! Grin. I think part of it is stress and part of it is doing too much etc.

    What I wouldn’t give for a few weeks off just to detox my life - from house cleaning to healthier eating. Be careful what you wish for though. Grin.

  5. Sandy Says:

    It is so nice to know that these days are a bit better than you expected. Praise God! I think of you all so often and pray for you every chance I get. Take care!

  6. Mike Theesfield Says:

    Katy ate a sub? The Navy is gonna be ticked…

    Cousin Mike

  7. Jennifer Blugerman Says:

    I dunno, “veggie sub” sounds like an oxymoron! I think you need a trip to the New Yorker deli on Williamson Road where they pile like 2 pounds of kosher salami, bologna, and pastrami on a 14 inch roll and top it with drippy cole slaw and banana peppers! Now there’s a sub to be proud of! Then you chase it with a huge slice of NY-style cheesecake smothered with gooey cherries. There’s enough calories to last you through Thanksgiving! ;-)

    -Jen

Tuesday, May 08, 2007

Carried by Prayer

We are very thankful to have had a wonderful day. Circumstances don’t control whether we have had a good day! We’re growing up! It feels so good to say that.

Katy has been getting up and around and we even did a little shopping together this evening. I drove across town to buy her a donut. Yes, can you believe she woke up craving a donut? She has had two Boston Cream donuts from Dunkin’ Donut. I have read this before about patients that have Crohn’s flare-ups. They crave bulky, fattening, foods. I am a health nut and it went against everything I believe about eating right but both donuts settled nicely and she was one happy girl about that. I figured that was about 500 calories, so I was happy too. I wrote her doctor an email today to let him know about the donut and said, “It gives new meaning to Oh taste and see that the Lord is good!” Katy’s pain medication is working fairly well, and her hives are being managed better by Benadryl. So I pray that we will have a better sleep tonight. But if we don’t we can always keep praying for the needs of others. We are going to watch another movie in a little while, then turn in early.

Paul will be home in the middle of the night from a business trip to Springfield, MO. We have missed him so much and look forward to greeting him at 3:00 am. Katy saved him a donut.

Comments:
  1. Jennifer S. :) Says:

    Katy,
    I’m glad to hear about your donut day!! I love donuts and whenever I get them it’s a real treat. I will continue to pray for your strength and perseverance over the next nine days. You can do it with God’s help!!
    Love and prayers,
    Jen :)

  2. Aleah Yunger Says:

    A donut is a wonderful cure for any problem, I say! ;) It’s such a blessing to hear that you can feel the Lord with you, comforting you and bringing you peace through the pain. Praise Him that your pain medication is helpful and that your hives are manageable. I’ll pray for sweet sleep for you tonight! Well, except for that midnight snack time with Paul :D See you soon, Aleah

  3. Danae Says:

    Do you have any more of those donuts? I think we need to plan a visit!

  4. andrea Says:

    Yeah, me and my great figure need some donuts too :lol:
    So when should I be over????

    I am glad that you at least eat donuts though!
    Thanks for stopping at my blog Katy :)
    Hope to see you soon again, I’ll always got you in my prayers.

    Love
    Andrea

  5. Jennifer Blugerman Says:

    When I was little, our family would play games together and we would often become quite silly and punchy! Sometimes in the midst of giggling and laughter someone would shout, “Cream Puff Attack!” At that cry, everyone would immediately grab shoes and dash to the car and we’d be off to the Krispy Kreme on Melrose for donuts! It is one of my fondest memories of my childhood — that spontaneous burst of fun and silliness that forged strong family bonds of love. Last week I happened to be over on Melrose to pick up a part to our stove. I saw the Krispy Kreme across the street and couldn’t resist! The kids and I went in and enjoyed donuts and chocolate milk, and surely thousands of calories! BTW, I think if you order a dozen they give you a free sample of Lipitor! ha ha!

    Enjoy your spontaneous cravings (you too, Dawn!) for they can be the catalyst to much laughter and fun. And you know that laughter is truly good medicine!

    We love you all!
    -Jennifer

  6. Mike Theesfield Says:

    “Donuts… is there anything they CAN’T do?” Homer Simpson

    Couldn’t resist!

    Cousin Mike

Monday, May 07, 2007

Our greatest need

The flare-up that Katy is experiencing is causing inflammation in her intestines and esophagus again. She has had maybe 200 hundred calories today. She’s hungry and can’t eat very much. She is trying to drink to stay hydrated. She has nine days until her Remicade treatment. We know humanly speaking that it seems impossible that she could be traveling this road again, but with prayer and focus she will get through it and will learn more about holding on by faith in the process.

The suffering is the hardest part to observe, but even that is easier when we know that the Lord will carry her. He has promised her that. We don’t want to be anxiously waiting for May 16th, so instead we are planning something special for every day. We have a movie to watch tomorrow, and scrapbooking if she is up to it. We’re thankful that you have made yourselves available to pray. That is our greatest need.

Comments:
  1. Heather Kirkwood Says:

    May 16th is the magic day eh? For me too - I can FINALLY get in to see a doc on May 16th. Thanks for the info by the way!

  2. Jes Says:

    Hey guys!
    Once again I commend you on your creative ways to help Katy make it to the 16th! You are showing us how to live every day to the fullest - to the Glory and Honor of our Lord! Thank you, we continue to pray for comfort, peace, patience and healing! We love you guys!

    Jes

  3. Sandy Says:

    May 16th is also the day my cousin Amie is having her baby after several weeks of bedrest and complications. What a great day to look forward to!

    But I am glad that you are taking each day as a gift and planning something special. If you haven’t seen “Because of Winn Dixie”, it’s a very sweet and uplifting movie that I like to watch if I’m having a hard time.

    I continue to lift you all in prayer.

  4. Linda Kochendarfer Says:

    Katy,
    I saw the most beautiful blue birds around our bird feeder this morning. Don’t quite know what they are but will look them up in my identification book. When you are feeling better I’ll drop by; I have something that might perk up your room now that it is redone. I have prayed for you again today and know that God will keep you until the 16th. If you and your mom have time when I come to visit, I’d love to see some of your scrapbooking ideas.

    Love,
    Mrs. K

  5. Doris Harriff Says:

    An internet friend recommended salt tablets to help keep her hydrated. I don’t think she could take them, but I remembered about the time when she was so hungry and licked the salt off the potato chips. I wonder if that would help? Or will it knock her electrolytes out of balance?

    Aunt Doris

Sunday, May 06, 2007

Three Great Weeks

After the second dose of Remicade it took Katy awhile to get back on her feet. But when she did, she was like the energizer bunny. We made the most of every day. We sure know how to enjoy ourselves and we did for the past three weeks. However, last night when the Remicade began to wear off, the signs of HPS reappeared in an overwhelming manner. Today the pain has returned. With ten days until the next treatment, we again ask for your faithful prayers. We plan to make it through each day as we have during the last flare-ups, by the grace of God. He teaches us so much during these times. He is ever faithful and in the suffering shows us more of Who He is!

I will call her GI doctor tomorrow to let him know what’s going on and will keep you informed.

“Behold I am the Lord, the God of all flesh. Is anything too difficult for me?” Jeremiah 32:27

Comments:
  1. Jes Says:

    Hey guys!
    I’m sorry to hear that the pain is back! I was so enjoying the good days with you all - just reading about all the cleaning was wearing me out!!! *grin*

    We will continue to pray for you and for your doctors. We have 16 more days and nights with out Josh…then he will hopefully be ‘done’ with this yucky work project. So — we will be counting down the days with you, trusting in the Lord, and leaning on Him during this tough time!!!

    We love you guys!
    Jess

  2. Jennifer S. :-) Says:

    Katy,
    I’m sorry the pain is back. Hopefully the doctors can figure out what dose to give you so it will last the whole amount of time and not wear off like this! I’ll be praying for your relief and comfort. Take courage, dear one!
    Love and prayers,
    Jen :-)

  3. andrea Says:

    Heavenly Father, You are aware of the struggle Katy is experiencing, the pain and the despair. You know the desire of her heart to be healed of this illness. I ask now for Your healing touch. I know that You are able and that just like in Bible times, You can heal her.

    I know that You will choose what is best for her. I pray that through this trial, she will draw close to You, that You will be her comfort and strength. I pray that ultimately, whatever happens, You will be glorified through her. I pray this in Jesus Name
    Amen

  4. Doris Harriff Says:

    It is always sad to hear that Katy is in pain again. I have wondered, has the prednisone been lowered again yet? I’m not a medical person, but I wondered if it is possibly interfering with the remicade.

    God bless you all, and give you peace, and give Katy pain-free rest.

    Aunt Doris

  5. Aleah Yunger Says:

    It hurts to hear that once again, you aren’t feeling well. What a roller coaster! I’m beginning to see that, though your life seems to be rather unpredictable, never knowing from one day to the next how you will feel, all of our lives are like that — most of us just don’t realize it. I’ve really come to understand how to lean on my Father in every moment, not just the ones where I can see my need of Him - I need Him at all times! God is still using this blog to minister — I hope that gives both of you the strength to keep on keepin’ on, knowing the the Lord is using you still. I pray for peace for your hearts. Love always, Aleah

  6. Sandy Says:

    Praise God for those good weeks! I hope a peace that passes understanding covers you all as you wait for Katy’s next treatment. Prayers continue from here.

Friday, May 04, 2007

Decorating mania

Katy and I kept up our scrubbing, cleaning, and painting routine today, as once again she is feeling terrific. We are in a joyful state of praise as she does the littlest things that gives her pleasure. We are seeing so many answers to prayer! Thank you all so much for your continued prayer. This remission is giving her more strength and physical healing than at any time since last July. Praise is continually in our mouth.

Comments:
  1. LInda Burk Says:

    HI..what glorious news!!!!!!!! Yeah for Katie and her family…graduation from college is a fabulous goal..Our Julianna took many years to complete her education..what a blessing to see Julianna in her cap and gown..a dream come true..now she is working on her masters and team leader for Kindergarten. Sometimes our time table has to be altered but that can make attaining the goal even sweeter.
    We are having a birthday celebration for Mr. BUrk this weekend. He is 85. We are celebrating life!! Mrs. Burk’s 70th surprise birthday party was at our home. Mrs. Burk died at 73. We were so happy we had that party. This weekend the weather should be perfect. We pray Katie continues to enjoy good health and many of her goals and dreams materialize soon.
    Happy Anniversary Katie!!!!!!!!!!!! hugs, Jack and Linda

  2. Doris Harriff Says:

    It is so good to read about Katy’s good days! I pray they may be many, and the bad ones few.

    I just wish I had the energy you two have, though!

    Love, Aunt Doris

  3. Jennifer S. :-) Says:

    Praise the Lord for He is good, His mercy endures forever!! May ya’ll’s Sabbath be blessed and joyous!
    Love and prayers,
    Jen :-)

  4. Linda Kochendarfer Says:

    Katy,
    As Rich and I are doing much spring cleaning, laying of new floors, painting, etc. in preparation for putting our house on the market, it’s good to know that you and your family are busy with this season’s duties also! I’m so glad your Remicade is helping. I continue to pray that our Father will sanctify you to deal with each day, but the good days are so glorious to hear about. I too am changing diapers and enjoying taking care of Kristin as you are Analise. Aren’t babies ever so much fun? I hope your flowers by the side of the house are blooming and you are able to see them each day. Also, I know you will delight in getting your last two classes underway; I would love to see your new office. Have a blessed Lord’s Day, Katy,
    Love,
    Mrs. K

  5. Adam Thompson Says:

    Yay for feeling good. Especially in this loverly weather! :-)

  6. Patricia Says:

    Seize the moments!!!

    Last weekend Ib & I were in Branson, MO attending the Biblical Worldview Weekend….amazing. One of the speakers heads the soon to be opened (May 28, 2007) Creation museum in greater Cincinnati. Ib can hardly wait to go see it in person! Answers in Genesis has constructed it….a division of Billy Zeoli’s Gospel Communications, I see from their web-site. (www.creationmuseum.org and www.answersingenesis). Maybe you could make that a “stop” on your cross-country jaunt! They take the first 17 chapters of Genesis and prove creation and biblical truth using state of the art surroundings for this biblical apologetics museum.

    Praise God from Whom, indeed, all blessing flow!