This morning we got up and headed to the GI doctor to have Katy’s blood tested for compatibility with Immuran. If the test shows it can be given, we will proceed. There are risks involved but we’ve tried everything else and nothing else is allowing Katy to live her life. She will remain on Remicade, but it has not worked as well as we expected. After we returned home today her spasms and breathing problems started, so I have given her more prednisone and potassium as needed.
It has been a long time since she has had a normal day. I’m praying for a couple of them to give her a spark of joy. Your cards and notes are helping so much. She really enjoys hearing from you and the things that are happening in your world. If there is anything of interest, please don’t hesitate to write. Thank you Lord for the hard days. They make the easy ones so much sweeter to us.” AmenComments: