Katy wanted to get out so badly last night. I told her I would take her on one condition; that we use her wheel chair. It worked out very well and it wasn’t too tiring for her. I am thankful that she doesn’t feel put out with me about insisting on some things regarding her care. After observing her for so many years, I know what she can handle and she trusts me. We did have such a good time but today was spent in quiet activities.
When I told Katy that I was going to update the blog she asked me to mention the prednisone taper. It starts tomorrow. The huge amount of prednisone she has been taking will make it difficult to taper, but it must be done. Whenever we have tried to do that before Remicade, her bowel problems started acting up and it was impossible. Now that the Remicade is working, the taper might be successful. It is Katy’s desire to be off the drug completely sometime in the next three months. Her doctor has a plan to taper very slowly and only step down every two weeks. We will be careful to pray her through the changes her body will have to go through. We know that God has given Katy more time and a purpose, so we are trusting that day by day we will see signs of improvement.
In other news, while I was shopping at Sam’s Club today, my cell phone rang. It was Katy. She was beyond cheerful. She told me that Qavah’s foster mother had called and after chatting with her awhile she said, “Katy, would you like to talk with your new little sister?” Katy was thrilled with their little telephone conversation and couldn’t wait until I got home to tell me about it. Little children are so precious, and they don’t even seem to know how much joy they bring to our lives. Katy and Qavah talked about playing outdoors and swinging. Paul is going to be building a swing set in the yard over the next few weeks with the help of some friends, and I was imagining Katy and Qavah having many wonderful days swinging. To look out the window and see that will warm this mom’s heart! Some good days for both of them, that’s what I long for.Comments: