Friday, July 06, 2007

Friday Night

Katy wanted to get out so badly last night. I told her I would take her on one condition; that we use her wheel chair. It worked out very well and it wasn’t too tiring for her. I am thankful that she doesn’t feel put out with me about insisting on some things regarding her care. After observing her for so many years, I know what she can handle and she trusts me. We did have such a good time but today was spent in quiet activities.

When I told Katy that I was going to update the blog she asked me to mention the prednisone taper. It starts tomorrow. The huge amount of prednisone she has been taking will make it difficult to taper, but it must be done. Whenever we have tried to do that before Remicade, her bowel problems started acting up and it was impossible. Now that the Remicade is working, the taper might be successful. It is Katy’s desire to be off the drug completely sometime in the next three months. Her doctor has a plan to taper very slowly and only step down every two weeks. We will be careful to pray her through the changes her body will have to go through. We know that God has given Katy more time and a purpose, so we are trusting that day by day we will see signs of improvement.

In other news, while I was shopping at Sam’s Club today, my cell phone rang. It was Katy. She was beyond cheerful. She told me that Qavah’s foster mother had called and after chatting with her awhile she said, “Katy, would you like to talk with your new little sister?” Katy was thrilled with their little telephone conversation and couldn’t wait until I got home to tell me about it. Little children are so precious, and they don’t even seem to know how much joy they bring to our lives. Katy and Qavah talked about playing outdoors and swinging. Paul is going to be building a swing set in the yard over the next few weeks with the help of some friends, and I was imagining Katy and Qavah having many wonderful days swinging. To look out the window and see that will warm this mom’s heart! Some good days for both of them, that’s what I long for.

Comments:
  1. Lillian Oliveira Says:

    Wow, that is so wonderful, that you and Quavah got to talk, Katy! And that will help her to be looking forward to doing fun things with her new big sister. At 3, after a year, she will have only vague memories of her former life and family, and especially because I know she will have so much JOY in her new one. Am glad you were able to be quiet at home today and I will be praying very much that the prednisone taper, going slowly, will go very very well. May the Lord Jesus help those adrenal glands that produce it begin to come to life and function again after being suppressed by the larger doses for this time of distress - I ask you, Father, in Jesus’ Name.

    Love to you all, Aunt Lil

  2. Jennifer S. :-) Says:

    Katy,
    I’m glad to hear how well your spirits are holding up! God is so good! :-) It does my heart good to hear about ya’ll’s excitement over Qavah’s coming. Thanks for sharing these glimpses into ya’ll’s lives!
    Love and prayers,
    Jen :-)

  3. Karen Tillman Says:

    Hey Katy,
    I am so very glad that you are going to be able to start tapering your prednisone. I know from experience just how difficult that can be, and how careful you have to be. So I will pray that it will be successful. As for the swing set Paul is building, I think it is wonderful. As a child I used to love to swing, and as an adult I still love the feel of the wind blowing my hair as I swing higher and higher as if to touch the sky. Anyway, sry it has been awhile, but I have been in the hospital having some issues taken care of myself. Take care and know I am praying.
    Love
    Karen Tillman

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