Monday, July 09, 2007

Monday night

We have had a quiet day. Katy did sleep a good part of the day which was a blessing because when she is awake she is not able to handle the strain of the prednisone taper. I talked with her doctor this morning and he felt like it would be a good idea to put her back up to the 20mg again. We are going to have to try something else, perhaps another drug, before tapering the prednisone. He body went into the same problems she was having before the Remicade. We were told that after her first Remicade treatment we would be able to cut the prednisone by half. She has had four treatments and we have not been able to cut it at all. This is very frustrating for Katy, and her body is going through a big shock right now. As positive as she has been, tonight she is feeling terrible. Although we have good prayer times and Bible study, she is human and experiences the highs as well as the lows.

We have an appointment Thursday morning with a doctor specializing in genetic disorders who has just moved to Roanoke. Pray for him as we visit and run through a crash course in HPS. We also pray he will be interested in working with Katy’s other doctors. It takes a team. Thank you for your encouraging comments. We need every one.

Comments:
  1. Linda Kochendarfer Says:

    Katy,
    My mom was on prednisone for a long time due to chronic lung problems. I remember that getting and then keeping the dosage appropriate for her symptoms was very tricky. Don’t lose heart, the Lord will keep you during this alteration in your meds. Mr. K is in Paris again. He’ll be there for the week. If you are able, would you pray for him on Wednesday when he has an important presentation? The outcome will effect not just Rich but his team at Areva for the next number of months. We found out this week that we are going to be great-grandparents. Our grand-daughter Jessica is due to have a baby next spring. Her dad, our son Kurt, will be a grand-father at age 34! We love you Katy, and are praying for your rest and comfort today.
    Love,
    Mrs. K

  2. Sandy Says:

    Hey Katy,

    Hang in there with all this medical stuff. *hugs* I hope today is a better day. It was such a treat to talk with you on the phone the other day! You continue to be in my prayers. God’s peace to you and your family.

    Sandy

  3. Jes Says:

    Hey guys!
    Sorry that the taper isn’t going well…We will pray that the next few days will be better and that she will be able to sleep a ton and regain some energy!

    I went to the dr this morning for my 37 week appointment - everything is looking good and we are just ‘waiting’ for the baby to arrive! :) I’m in a state of excitement and panic…how can those two emotions exist in a body at the same time? I’m not sure - but it’s an interesting feeling!!

    We love ya!
    Jess

  4. Aleah Yunger Says:

    Katy, I’m so sorry to hear you aren’t feeling well. You are SO strong in the Lord, though, so you must know you will pull through this! I think of you every day, and pray for you and your family. I would still love to come by some time this week if you are feeling up to it. If not, I’ll still be around for a while so we can wait on whenever you feel like a million bucks! :) I pray today has been a blessing… In Christ, Aleah

  5. David and Lizi Says:

    We are faithfully praying for Katy and the whole family. We will pray that Katy will be able to find the right combination of meds so that she will be able to reduce the bad side of effects. Even though we don’t always leave a message we are constantly thinking and praying for you.
    Love,
    David and Lizi

  6. Jennifer S. :-) Says:

    Hey Katy,
    I hope you feel better soon. I’ve been a little under the weather the last two days too…I can’t imagine feeling like this all the time and all I have is a sore throat! It makes me appreciate the strength you’ve shown under much more formidable physical ailments. Thank you for letting us peek into your life and marvel at how the Lord sustains you! It is a challenge to all of us. :-)
    Love and prayers,
    Jen :-)

  7. Lillian Oliveira Says:

    Dearest Katy, in the fog of your pain and distress and frustration, I pray that the Saviour’s face will be clear to you and that His promises will constantly ring in your ears. He is the one Who is called “Faithful and True”, and His Word never fails. May He soon lift up your “drooping hands and weak knees” and bless you with peace. May the new Doctor find the combination of meds that You need to stabilitze your condition and be able to function. And may your faithfulness continue to inspire, challenge and bring hope to more and more people as your light shines so brightly in the darkness. Much love, Aunt Lil

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