Friday, July 13, 2007

More Energy!

The steroids are pumping Katy’s energy level back up to speed, and today was a much better day. Last night we slept seven hours in a row without waking for pain management, breathing problems, or anything! It feels absolutely marvelous to get so many hours in a row. Katy even felt like mastering the stairs to join us for breakfast.

Much of our conversation with Katy’s doctor yesterday came down to her treatment of steroids for such a long period of time. He will be developing a plan to get her off of them, but warned us that it will possibly take a year. He suspects that her sudden muscle pain, weakness, and energy drop, is related to adrenal insufficiency caused by steroids. Our prayer is that her body will recover and start producing all the major hormones she needs to be off steroids completely. We had no idea how much destruction had taken place in her body until we started trying to taper her steroids. We quickly found that her body can not tolerate a drop at this time and part of her doctor’s plan is to prepare her body for a very slow decrease sometime in the future.

Katy handled the news well. She needed to hear that it is possible for her to feel better but that it will take a long time. I like to go back through the blog from time to time to recall where we have been and to read about the faithfulness of God. Faith is a journey. It begins with a whisper and shaky knees. It progresses and strengthens like a runner preparing for a race. And it finishes with a confident shout, “I can do all things through Christ Who strengthens me!” Philippians 4:13

Comments:
  1. Lillian Oliveira Says:

    Dawn, that “Faith Journey” descriptin is marvelous! Wow! and I know that is the way you and the family have come. Praise God for this wonderful new Doctor. I just love him without having seen him and will be praying for him along with Katy from now on. I hope you have an 8-hour night tonight! Love, Aunt Lil

  2. Sandy Says:

    Hooray for better days! I am so glad you’ve found this doctor who is coming up with a plan and so committed to Katy’s care. I’ll be out of town for the next week but I look forward to catching up on how things are on your end when I get back home. God’s peace to all of you!

  3. Doris Harriff Says:

    I am sorry to hear that it will take Katy so long to get off the prednisone; on the other hand, I am glad that the doctor is seeking a way to do it with a minimal amount of side effects; the last thing Katy needs is more “side effects.” God bless you all, and bless Katy’s new doctor!
    Aunt Doris

  4. Trisha Ferris Says:

    I think I may have said something like this earlier on this blog, but it bears repeating. Katy, Hebrews speaks of a great cloud of witnesses, referring to saints who have gone on. I do believe the angels & possibly those who have died in Christ, but also, we who are living & watching this journey, are part of that group os witnesses. Your perseverance through the setbacks & the victories is informing the faith of us all & is bring God more glory than if all were going smoothly. That’s a mystery, at once both glorious & frustrating. You’re allowed to get frustrated & disappointed, because you’re human. Keep telling us about those times so the rest of us “just humans” will be able to identify a bit.
    Love you,
    Trisha

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