Monday, July 30, 2007

Week Six

Katy was told her recuperation time would be six weeks after surgery. She is in the sixth week and she has needed them all. There are times she has wanted to get out but when we did go out she would have a difficult time and felt like the outing wasn’t worth it because of the physical toll it took on her body. As she comes to the end of her imposed rest, she has been feeling more like getting back to her school work. Today she actually got out her Constitutional Law book and started looking over her course requirements again. I want to pray her through this one big goal; to finish school!

She has been dealing with a sinus headache all day, so her doctor is thinking a CT scan could show whether infection is at the root of her headaches and eye strain problems. That will be later in the week. We want to ask for continued prayer for her doctors. They are dealing with a relatively unknown syndrome and often question why Katy’s tests show “normal” readings but her body is not functioning normally. We question the same thing, yet in all we have seen Katy go through this past year, it is obvious to us that her platelet dysfunction is causing other problems on the cellular level that human minds and the latest technology have not yet discovered. We may never have those answers this side of heaven, but we are praying that at least one of her doctors will keep seeking.

For the patient who is diagnosed with an unusual disease or disorder, there is a learning period that has to take place. They have to learn to live differently. Katy has had to change her diet, her routine, and personal preferences, in order to accommodate her syndrome. Her future is as certain as yours and mine. She will not live to see all of her dreams come true. Neither will you and I. The scriptures are clear that we will all die one day. Whether she believes her doctors will eventually figure things out, or whether she has a better life after Immuran isn’t really her focus. She has steadfastly held on to the hope that if the Lord calls her home right now, she is ready. She is ready to face Him with joy and gladness. She believes the promises of His word; that there is life after this life. She believes that there is a home for her in heaven and that there is there is a Savior, Christ the Lord. Her salvation from an eternal hell and death were won for her on a hill called Calvary. Her hope transcends the struggles of this life.

  1. Karen Tillman Says:

    Hey Dawn,
    You are correct, that we all will one day die. God also doesn’t promise us tomorrow. However, I would like to think that just because Katy and I have a disease where most people die in their 30’s or 40’s, that we are living in a time where modern medicine will help us find if not a cure a better quality of life. It is very interesting to note that with HPS there are some people who are in their 60’s, and Lord willing that is the category, even with all my medical issues I hope to one day be in. The struggle with this disease is hard and often times long and draining, but it is my hope that people will see us fight the good fight, and marvel at our long standing faith in our Saviour Jesus Christ.
    Much love
    Karen Tillman

  2. Jennifer S. :-) Says:

    Praise God for that transcendence! I think sometimes we downplay the role that hope plays in our daily lives. Can you imagine living without it? You couldn’t truly live. I praise God for the hope I see in Katy. :)
    Love and prayers,
    Jen :-)

  3. Jes Says:

    Dawn -
    I am praising God this morning that he has given this eternal perspective to Katy…It’s no small thing when we live in a age where everyone wants to live for the moment. I am so thankful that she can rest in that security - knowing that her Lord loves her so much that he sent his ONLY son. When I look at my children, lying peacefully in bed after a long day of romping in the sun and playing in the sandbox…their hair still damp from the evening bath - I marvel at how much God must love us to send that precious son….

    We love ya’ll - thank you for the reminder to keep a heavenly focus as we do even the mundane things!


  4. Doris Harriff Says:

    I have been going through a bunch of old hymnals just to see what I have - lots of stuff I haven’t heard or even thought of in ages. One I took particular notice of - “When I Get to the End of the Way.” I thought that the second verse is so apropos of Katy’s life in the past year:

    There are so many hills to climb upward
    I often am longing for rest;
    But He who appoints me my pathway,
    Knows just what is needful and best.
    I know in His Word He hath promised
    That my strength “it shall be as my day;”
    And the toils of the road will seem nothing,
    When I get to the end of the way;
    And the toils of the road will seem nothing,
    When I get to the end of the way.

    Aunt Doris

  5. Heather Kirkwood Says:

    Way to go Katy!!!! I was so tickled to hear you broke out the text book today. It put a big smile on my face. Good luck with the new med. Keep marching forward!

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