Friday, September 28, 2007

Friday Night

Katy is not doing well and could really use prayer for the jump start of her adrenal system. She was not responding well enough to the Salumedrol and by this afternoon her prescription was changed to hydro-cortisone. She prays constantly, not just for her own relief but for others. She waits for the relief that will come in time. We continue to pray for her doctors as well. They need special wisdom when drugs they’ve always used before don’t work the same on Katy.

Qavah had her transfusion and finished at RMH by 3 o’clock. She did very well and is much more lively tonight. In addition to Miss Jill spinning her magic, Qavah had a miniature DVD player waiting for her on her bed and she watched Shreck for most of the transfusion time. When the nurse came in she didn’t even look away from the movie but held her arm out for her blood pressure to be taken every fifteen minutes. She knows just what to do and is in step with the routine. The girls were just one floor apart with a stairway between their rooms. While Qavah cuddled up with a DVD and her blanket I was able to run up the stairs to Katy and help her wash and brush her teeth. Paul Burton came over to the hospital to help and it all worked out just fine.

The time we have together at the hospital is good. Katy discovered the cafeteria has soft chewy bagels and sent me for “take-out.” Both Katy and Qavah had cream cheese bagels for lunch. Julie is over at the hospital right now. I’m so grateful for her help and nurturing spirit. And in other good news, the lice are disappearing. I think we are on the up side of that challenge. Colin and Paul Burton are here this evening to try to get the lawn mowed. I am thankful again for all the love and support we are given. When people say, “I don’t know how you manage,” I usually reply,”By God’s grace and help from others.” There is no way we could do this if it weren’t for the help of friends and family. We are especially grateful for all of you.

  1. Doris Harriff Says:

    Sometimes I am disinclined to post a comment, because I just don’t know what to say. My heart aches for Katy. I am praying for you all.

    Glad to hear you are on top of the lice problem, though!

    Love, Aunt Doris

  2. Karen Tillman Says:

    I think you gave the perfect answer, cause without God’s grace, i think we would all surely fall apart!!! Again, I am sry to hear about the change in medication, and as I was thinking back over my young medical history…I think it took a coule of years to get things right the first time. Unfortuntely though steroids often have played a big part in the recovery process. Tell Katy, any prayers she can throw my way right now are certainly more than appreciated, and I will continue to fervently pray for her as well. i am glad that things went well for Quavah, and thought it was sweet that she and Katy both had bagels with cream cheese. Believe it or not that is also a favorite of mine, especially if my tummy is upset. Although, I usually have to leave off the cream cheese. Bummer for sure!!! Anyway, as usual it is late, and I am awake, asking for God’s peace to let me fall asleep without having to resort to meds. I tend to get a little stubborn about that at times, but have grown use to the “bumps in the road” as you call them.
    Love and prayers for you and your family,
    Karen Tillman

  3. Jennifer S. :-) Says:

    I know God is with you, even though this valley seems dark. I pray that you find His light of comfort in it.
    love and prayers,
    Jen :-)

  4. Jennifer Blugerman Says:

    Our hearts ache for you! How we long to see your family living once again in calm waters. We pray that the shroud around Katy’s body would be lifted — that her doctors would be granted insight as to how to treat her. But until then, we are praying that God will grant you peace which is greater than knowledge.


  5. Patricia Hagsten Says:

    How wonderful that His grace and comfort are sufficient …. and what a testimony your lives are in being so willingly open to His will and grace!
    What a blessing that this first transfusion experience in VA went so well for Qavah! What a blessing for both her and you. And, yes, we’re certain many of Katy’s prayers helped bring to fruition Qavah’s peace and calm.
    Bombarded on many fronts, we continue to pray for God’s insight, peace and calm for each of you …… as well as for new sunrise rainbows and seredipities along the way!!

  6. Lillian Oliveira Says:

    How good it is for Katy to have some friends who are veteran warriors of this condition, who also trust in the Lord to get them through. Katy, I’m praying that you will get home for Sunday - that the steroids will kick in.

    But I believe my most urgent prayer is for a doctor, better, a team of doctors who will get a passion for getting to the bottom of- the real solution for, some of the malignant mysteries of this condition. I know that, in science as well as in the spiritual realm, God rewards those who passionately, intensively seek to find out the truth. He has a blessing for that doctor who is willing to invest himself in this disease, for Katy’s sake and the many others. Where, oh, where is that doctor?! Lord, we’re asking for a COMPELLING desire to strike the right one, so You can bless your world through him.

    We love you Katy! Aunt Lil

  7. Patricia Says:

    Did Qavah have to spend the night last night at the hospital following her transfusion, or was she able to come home with you later??? (sorry, but since you haven’t yet been able to share here protocol and needs on the blog, we’re a bit uncertain as to what to expect).
    When does Paul return from Houston??? …. none too soon for you, I’m certain.
    Hope Katy is much improved by tonight.
    We just pulled into the driveway here in Kansas City less than an hour ago after a grueling week and driving over 2,500 miles once again.
    Time for bed … then up at 5 a.m. to shampoo/shower and be IN the choir by 8 a.m.
    Lots of love!
    Patricia & Ib

  8. Candice and Crystal Says:


    I’m so sorry to hear that you are back in the hospital and going through another bump in the road. We hope and pray you will be back on the smooth road again real soon. Please know that we are praying for you, that the Lord will give you strength to get through this health challenge. Keep your eyes focused on HIM.

    Love In Christ,
    Candice and Crystal

  9. Heather Kirkwood Says:

    Hey Katy,
    I’ve been peeking in several times over the weekend. Thought I’d post this time and let you know we’re still praying for you and hope you are doing better.

  10. Sandy Says:

    You all continue to be in my thoughts and prayers. I keep checking back for an update!

  11. Lillian Oliveira Says:

    Dear Katy, for you and Qavah: (I see I’m on my second post, too!) The poem/song belong is one my Daddy and perhaps your granddaddy sang to me when I was little. I saw a wonderful picture of an old-time choo-choo train at a restaurant Saturday that Christian friends own. It evoked the memory of this little poem, and I was SURE that it said something about at “mighty wooden trestle”… turns out I was wrong! I had to ask Aunt Doris for the right words and she sent them to me; seeing that there was no sign of a “mighty wooden trestle” I said I was NOT SATISFIED! and in fun commissioned her to write me a verse that had one! And She DId! Look at verse two! Isn’t that great! If your Dad, Paul, doesn’t know the tune, I’ve already told Granddaddy that I’d like to enlist him to sing it to you, so you can sing it for Qavah. :-) It has a catchy rhythmic tune.

    Chooka of the Stack

    How I love to watch the local winding up around the hill
    In the sunlight of the morning when the autumn air is still
    And the smoke-like loosen tresses seem to float along her back
    With the chooka, chooka, chooka, chooka, chooka of the stack.

    Winding up around the track
    With the chooka of the stack;
    With the chooka, chooka, chooka, chooka, chooka of the stack.

    When the train has reached the hilltop with the valley down below
    And it runs above the treetops where the shining waters flow,
    There’s a mighty wooden trestle and the train rides on its back
    With the chooka, chooka, chooka, chooka, chooka of the stack.


    How I love to hear the music of the whistle and the bell
    And the drumming of the furnace more than any tongue can tell;
    And the mighty massive mogul always seems to call me back
    With the chooka, chooka, chooka, chooka, chooka of the stack

    As you can see, I’m looking forward to fun times ahead for you sisters, as I continue to pray. Much love, Aunt Lil

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