Katy is not doing well and could really use prayer for the jump start of her adrenal system. She was not responding well enough to the Salumedrol and by this afternoon her prescription was changed to hydro-cortisone. She prays constantly, not just for her own relief but for others. She waits for the relief that will come in time. We continue to pray for her doctors as well. They need special wisdom when drugs they’ve always used before don’t work the same on Katy.
Qavah had her transfusion and finished at RMH by 3 o’clock. She did very well and is much more lively tonight. In addition to Miss Jill spinning her magic, Qavah had a miniature DVD player waiting for her on her bed and she watched Shreck for most of the transfusion time. When the nurse came in she didn’t even look away from the movie but held her arm out for her blood pressure to be taken every fifteen minutes. She knows just what to do and is in step with the routine. The girls were just one floor apart with a stairway between their rooms. While Qavah cuddled up with a DVD and her blanket I was able to run up the stairs to Katy and help her wash and brush her teeth. Paul Burton came over to the hospital to help and it all worked out just fine.
The time we have together at the hospital is good. Katy discovered the cafeteria has soft chewy bagels and sent me for “take-out.” Both Katy and Qavah had cream cheese bagels for lunch. Julie is over at the hospital right now. I’m so grateful for her help and nurturing spirit. And in other good news, the lice are disappearing. I think we are on the up side of that challenge. Colin and Paul Burton are here this evening to try to get the lawn mowed. I am thankful again for all the love and support we are given. When people say, “I don’t know how you manage,” I usually reply,”By God’s grace and help from others.” There is no way we could do this if it weren’t for the help of friends and family. We are especially grateful for all of you.Comments: