The household is hopping. The sounds of a four year old is like music. Qavah has had such a happy day and it started early because Katy went to the doctor for a bone density check this morning. Then this afternoon it was Qavah’s turn to visit her new pediatrician. The initial visit covered a lot of ground. We are now in the Carilion system, and an appointment was made with a pediatric hematologist. I will explain Qavah’s condition in another post. For all this little girl has been through, she smiles most of the time. However, today when the doctor came into the room, I saw big tears quietly rolling down Qavah’s cheeks. She didn’t make a sound but I knew she was worried. But she soon discovered today was just a check up with no blood tests necessary.
Katy is better today, however we found out rather quickly that the Prednisone taper was not going to work yet. Yesterday evening, Katy’s energy level plummeted, and her muscles tightened down to the point where she could not talk or get a deep breath. We followed the advice of the endocrinologist and gave her 15cc of Potassium and 7.5mg of Prednisone and within an hour things were back under control. She was able to get out of bed in time to celebrate her birthday. She is back up to 20mg today and is doing much better. Her endocrinologist is going to talk to her GI doctor about increasing the Imuran dosage. We’ll have to wait until all the doctors agree on a new plan. Until then, we are having as much fun as possible, and we made the most of this day.
Paul and I are having a great time. For the first time since we started having children, there are more girls in the house than boys. Paul said,”I sure can tell the girls are taking over, all the shower soap is flowery or sweet sugar fragrances.” Tomorrow the “girls” are going shopping for manly-man soap. Any suggestions?Comments: