Thursday, September 06, 2007

Medical Issues

This week we have gotten the results of Katy’s bone density test and they were not good. Katy has osteoporosis, and her PCP gave us some sound advice about the need for checking vitamin D, A, K, and calcium. We have been giving Katy vitamin D for over a year along with calcium, but the absorption problems have interrupted their effect on her body. Therefore the need to continue working on getting her off steroids is more crucial. Steroids leach calcium from the bone, and therefore do not help her battle bone loss. We continue to pray that her body will tolerate a taper, knowing God can do all things well. If you have seen Katy lately, toting Annelise on her hip, it is evident that the joy of the Lord is her strength. Her iron level is low enough that as a last resort she may be receiving iron by IV probably during her next Remicade treatment. The side effects of an iron infusion can be pretty bad, so we are weighing the pros and cons. Prayers for Katy are on our lips throughout the day. Her battle in this life is a hard one, but she knows Who wins in the end!

Qavah is a dear little girl. After Katy had her blood drawn today, Qavah consoled her big sister by patting her back. Qavah is no stranger to blood draws; she has it once a week. We are so pleased with her medical team here. They have been in contact with her doctor in Louisiana and have her scheduled already for a visit to the hematologist on Monday and her intravenous immunoglobulin (IgG) infusion on Wednesday. She will go into the hospital at one o’clock and have the infusion (which boosts her immune system) over a seven hour time period. So, just like with Katy, Paul and I are looking for the right bag to fill with fun things for “Infusion Day.” These girls have their challenges, but living with them is so much fun. They laugh often, and get excited about the simplest things. Their hearts are filled with joy and we are making the days count!

Tomorrow our family will set out for Fishersville, and Qavah will meet her Granddaddy and Grandma. Paul Burton and Granddaddy are going to make an electric violin together. We are looking forward to a good family time. We’ll probably even talk about some of your blog comments and maybe even soap! Thank you for visiting our site so faithfully, and especially for your prayers.

Comments:
  1. Karen Tillman Says:

    Dear Dawn,

    I was telling Katy that I have had many treatments with iron infusions over the years, and I think one of the main risks usually occurs right after the drug is administered, and they watch for allergic reactions. It is so hard when you have absorption issues, not to mention the bone loss from the steroids. I also told Katy that usually for me after 2 or 3 doses things would kind of kick back in. I will say though, that I still had to continue to use some form of oral iron until the levels got back around 12 or so. I am currently dealing with osteopenia, and some bone death in the knees issues myself. Just know that you are in my thoughts, and I do feel for the tough decsions you guys have had to make.
    Love and blessings
    Karen Tillman

  2. Linda Kochendarfer Says:

    Dear Katy,
    My mom was on steroids for years due to her COPD and I remember her saying that they were both a blessing and a curse. Rich and I will continue to pray for you, especially that you will be able to take less steroids as time goes on.

    Our daughter-in-law Teena and three of our grandchildren will arrive next Wednesday for a three week visit. Kurt will be here the 21st. Everyone will stay until October 1st. We are so excited to have them come for such a long stay!

    On a recent hike Rich and I took, we were quite surprised by crossing paths with a black bear! We were thankful that after making much noise, standing our ground and waving dead tree limbs the bear ran in the opposite direction from us. The local rangers said the bears are traveling farther than usual as they look
    for water during this drought.

    Thanks for keeping us updated on how Qavah is enjoying her new home, family and friends. I was glad she could go with you to the hospital.

    Have a blessed day, Katy. Best wishes as you finish your last two classes for Mary Baldwin.

    Love,
    Mr. and Mrs. K

  3. Patricia Says:

    Thanks for the update and the specific prayer request needs. You indeed do have your hands full … but God is making them (your hands) and you folks able.
    We’re so sorry you are all once again faced with challenges and hard decisions; how wonderful for you that both of the girls are facing life with grace and appreciation and now, for Qavah, with stability and security in her life. Yes, God IS the rock … but the humanness of your hearts is a critical component!!!
    Ib is in norther IL for several days; we both fly to Detroit Sunday afternoon for
    10+ days on the road together reaching every nook of Michigan. We’re looking forwarding to watching God in nature with seasonal changes as we work hard.
    Love,
    Ib and Patricia

  4. Jennifer Blugerman Says:

    I guess we all knew the medical rollercoaster wasn’t going to completely stop for you all, but were enjoying the slower pace for sure! Sounds like you are handling everything will your usual strength and joy in the Lord! As far as your previous post regarding soap… David and have a great compromise — Caswell Massey Almond soap. It smells wonderfull — not flowery, but not too “manly” and one bar lasts and lasts! Three Graces in Daleville carries it. We love the matching body lotion too.

    Have a blessed day in the Lord!

    -Jennifer

No comments:

Post a Comment