This week we have gotten the results of Katy’s bone density test and they were not good. Katy has osteoporosis, and her PCP gave us some sound advice about the need for checking vitamin D, A, K, and calcium. We have been giving Katy vitamin D for over a year along with calcium, but the absorption problems have interrupted their effect on her body. Therefore the need to continue working on getting her off steroids is more crucial. Steroids leach calcium from the bone, and therefore do not help her battle bone loss. We continue to pray that her body will tolerate a taper, knowing God can do all things well. If you have seen Katy lately, toting Annelise on her hip, it is evident that the joy of the Lord is her strength. Her iron level is low enough that as a last resort she may be receiving iron by IV probably during her next Remicade treatment. The side effects of an iron infusion can be pretty bad, so we are weighing the pros and cons. Prayers for Katy are on our lips throughout the day. Her battle in this life is a hard one, but she knows Who wins in the end!
Qavah is a dear little girl. After Katy had her blood drawn today, Qavah consoled her big sister by patting her back. Qavah is no stranger to blood draws; she has it once a week. We are so pleased with her medical team here. They have been in contact with her doctor in Louisiana and have her scheduled already for a visit to the hematologist on Monday and her intravenous immunoglobulin (IgG) infusion on Wednesday. She will go into the hospital at one o’clock and have the infusion (which boosts her immune system) over a seven hour time period. So, just like with Katy, Paul and I are looking for the right bag to fill with fun things for “Infusion Day.” These girls have their challenges, but living with them is so much fun. They laugh often, and get excited about the simplest things. Their hearts are filled with joy and we are making the days count!
Tomorrow our family will set out for Fishersville, and Qavah will meet her Granddaddy and Grandma. Paul Burton and Granddaddy are going to make an electric violin together. We are looking forward to a good family time. We’ll probably even talk about some of your blog comments and maybe even soap! Thank you for visiting our site so faithfully, and especially for your prayers.Comments: