**Katy’s Musings has been updated**
This will be a brief update since we just got in from the hospital. We have Katy at home now and her afternoon lab work showed everything in beautiful balance! Her white cell count was 20 which is a little high, but everything else was perfect and she feels it! The infusion of iron started last night around midnight and Katy had Paul Burton there with her until five this morning. He got off his hospital shift at eleven o’clock and agreed to stay so Paul and I could go home for a few hours. He knows how to balance Katy’s electrolytes by observing her and because Katy was admitted as an outpatient we were able to use all of Katy’s medications and electrolytes from home. It made it so much easier than waiting for the pharmacy to send the necessary things to her room. Within a few hours after the iron started, Katy’s body settled down considerably. She has felt a huge difference in her pain level and energy level already. She was able to get herself dressed this morning.
We have carefully and thoughtfully decided to make a change in Katy’s care after this last adrenal crash. It is in Katy’s best interest to move to a larger GI practice where emergency care is more readily available. It was a hard decision because with HPS, starting over with a new doctor means a long educational process and a six inch high stack of medical records to be reviewed. Katy has wanted to see this change happen and we will do everything we can to support her in that decision.
Qavah had a fine time with Aunt Julie and Uncle Dan last night. We appreciate them more than we can say. Paul picked Qavah up from their house this morning and brought her back to the hospital to stay there with us. She saw Katy have to submit to everything she went through herself a couple of days ago. She now knows that she is not the only one in the family that has to endure regular medical procedures.
Our first blessing upon our return was reading the encouraging comments you left. Paul was reading, or trying to read them to us, but when we got to the verse that Jes left for us we were pretty choked up. God’s word is alive and active, more powerful than a two edged sword, and our souls know it full well. Those words hit their mark and penetrated deeply. We are planning to turn in early tonight, hoping both girls will have a deep peaceful night of sleep. “But if not…” we can do all things through Christ Who strengthens us.Comments: