Wednesday, October 31, 2007

Wednesday night

I feel like a spectator watching a very interesting sports event. At any given moment things change and it sends a little awe through the crowd. A sudden change in direction is something I am poised and ready to cheer about. I’ve done some cheering today. Very early this morning, Katy and I went to see her GI doctor. While her pain levels and nausea are keeping her from eating and functioning well, all her lab work was better than it has been in a very long time. Even her amylase and lipase levels were in the high/normal range (126 and 192). So Katy was feeling exasperated over the fact that her body is telling her one thing, but her labs say another. It comes down to cells and inflammation and both are hard to examine. Her pancreas is still behaving like she has pancreatitis but she does not. So I asked the doctor what he thought about the fact that she has had so few calories over the last month but her labs are great. Actually I asked, “Is this a God thing?” He laughed and said, “Yes, I believe it is.” A good measure of that is her albumin level (4.0). It shows that her body and muscles are not breaking down. Although she has had an average of 200 calories a day for about a month now, and very little protein, her weight has stayed steady. So what we are looking at is God’s sustaining grace. As long as she can sip something a few times an hour it is enough to stay hydrated. So Katy has been sipping. Small sips are staying down. She was asked to stay on liquids for two more days then try baby food again. Katy is willing to do that in order to stay out of the hospital.

Qavah went to the hospital lab this afternoon for her cross-matching. The Red Cross will send a bag of transfusion blood to RMH for Qavah on Friday morning. I’ve asked people to pray for Qavah’s emotional maturity and today the result was astounding. She held out her little arm and did not even flinch when her blood was drawn. She had determined in her mind to be brave like “sister Katy” and she was! In the past she struggled so hard she had to be strapped to a board. That was traumatic for both of us! But today was different. She earned her Dora stickers and lunch at Burger King. The doctor’s office called this afternoon and told me her hemaglobin had dipped to 6.7. The nurse asked me if she was still getting up out of bed and playing. Not only was she out of bed, she was out on the driveway riding her bike. As I say, I am watching all this with interest. The girls have strength for every day although they both have these challenges. I think when I see that, it helps me to recognize that as God pours His strength into the girls, He is not limited by too few calories or red blood cells. It is a gift that builds my faith as I witness His provision daily.

Comments:
  1. Patricia Hagsten Says:

    Wow!!!

    Enjoy your visiting Trick or Treaters’ costumes tonight and laugh and have fun!!

  2. Aleah Yunger Says:

    God is so good to us and gives us encouraging news when we need it! I’m glad to hear about all the good things going on right now. It really is true that God’s blessings abound most clearly in our struggles. It seems I tell someone about Katy and the Campbell family every day :) Someone always needs to hear the encouragement of knowing that it is possible to persevere and trust God even when we don’t necessarily know what’s going on! Praying for Katy and Qavah and all of you tonight. In Christ, Aleah

  3. Lillian Oliveira Says:

    What a clear and wonderful witness to the fact that our God IS and that He is doing miracles today! Those calorie and hemoglobin facts and the labs and how the girls are doing physically can only be His blessed work. We Praise you, Father! Please tell little Qavah that her Aunt Lil is very proud of her that she decided to be brave like Sister Katy! It will be SO much less traumatic for her, as she sees that it can be done without fighting and screaming, and over so much sooner! Katy, your Aunt Lil is so proud of you, too! Oh, my goodness, but I am. God bless you’re cotton-pickin’ little heart, as they used to say in No’th Carolina! Did you know I went to High School there? Used to talk just like a Tar-heel!

    But I hope Katy, you will soon begin to lose the water weight from the prednisone. And I’m all stretched out waiting for you to be able to EAT A BLUEBERRY PANCAKE AGAIN! Love you all, Aunt Lil

  4. Jennifer S. :-) Says:

    Once again we join you in praising God for His sustaining work in Katy and Qavah’s lives. It is a wondrous thing to see! Thank you for sharing. We continue in prayer for ya’ll and for the doctors.
    Love and prayers,
    Jen :-)

  5. Sandy Says:

    Keep sipping away, Katy! Dehydration alone can make a person feel pretty nauseated. I hope the next couple of days bring a turn around in how Katy feels. I’m glad the labs look OK — that truly is a wonder and a miracle!

    So glad that Qavah is finding huge amounts of courage to carry her through difficult medical procedures. Nobody should have to be poked so much when they are so small!

    I send lots of hugs and prayers to all of you.

  6. Preacher Says:

    Wow, what a truly Amazing God we serve.

    May we always give Him the honor and praise he deserves.

  7. Lael Moreland Says:

    Tell Qavah that we are so proud of her!! What an improvement! I can’t wait to meet her someday soon.

    And proud of Katy too! We LOVE you!! I’m so thankful that God is giving you the strength that you need.
    Love and hugs

  8. Laura Griffith Says:

    This update has brought me to tears. The grace the Lord has poured upon your family is amazing. I’m so proud of Qavah. I know that took a lot of courage for a four year old. I want her and Lorien to play together. I’ll give you a call when you are having some good days. We are praying for you all.

  9. stuart blankenship Says:

    Really glad to hear things are improving!! Happy Birthday to Paul. I’ll be there soon. God bless you all.

Tuesday, October 30, 2007

Tuesday night

Other than a few sips of water, Katy is not able to take in enough to keep hydrated. We are relying on the mercies of God. Her labs were drawn this morning but the results won’t be back until tomorrow morning. She will see her GI doctor at eight in the morning and we’ll have wait to see what he suggests.

Life goes on as usual here. Today Mom and Dad drove down from Fishersville for a harp lesson. Mom is learning to play Christmas music. While Mom and Whitney played, we all fell asleep. Can you imagine how we appeared? First we went to different rooms and got comfortable. Then as the soft harp music drifted from room to room it put us all to sleep. It was one of those good power naps, too.

Tonight we plan to watch a movie about the life of Martin Luther. He stood fast against the evil of his day, and made known the light of God’s word in a very dark time in history. We would rather have things different. We’d rather see Katy at her desk studying tonight and eating a bag of chips. But right now we are in God’s classroom. He has more for us to learn about His timing, His power, and His healing.

Comments:
  1. Jennifer S. :-) Says:

    Katy,
    We continue in prayer for you. I know that this too shall pass. Keep your beautiful eyes fixed on Christ! We’re all in God’s classroom with you. He is the best teacher. :)
    Love and prayers,
    Jen :-)

  2. Jennifer Wellington Says:

    I will continue to pray and pray. God is faithful.

  3. Fairlight Says:

    So sorry that you’re suffering again…Praying for you!

  4. Sandy Says:

    I hope the labs were helpful in indicating next steps and that the doctor’s appointment went well. Prayers continue from here.

  5. Kendall Pelish Says:

    Happy Reformation Day!

Monday, October 29, 2007

Monday night

We are hopeful tonight because we are choosing to believe that all things are working together for Katy’s good. Her back pain, shortness of breath, and nausea started in the wee hours of Sunday morning. The vomiting started again this afternoon. Her labs will be drawn tomorrow, but Katy already knows the numbers will be high. She’s resting and quiet tonight. We are putting hot pads on her back and abdomen to keep her comfortable. I’ll post tomorrow as soon as I have lab results back and a decision is made. We love being here at home tonight. It is such a place of refuge and peace.

Comments:
  1. Patricia Hagsten Says:

    I hope the two CD’s for Katy have arrived by now, but I have no clue whatsoever about their “turn around time”.
    Last night I attended another of Greg’s concerts … truly uplifting. He now resides outside Los Angeles. When we first heard him perform back in the late 80’s, he was living here in the greater KC area and his 3 children were enrolled in the Christian School. He was a frequent guest soloist at Youth for Chirist back in those days, too. Last night his driver, a young extremely gifted young pianist, closed out the evening’s performance.
    Once again, know that God IS in control. We love you!

  2. David and Lizi Says:

    Katy and Family,
    We are continually praying for you. We will pray that you have a good nights sleep and be refreshed in the morning.
    We love you guys!
    Love,
    David and Lizi

  3. Lillian Oliveira Says:

    My dear ones, how hard it is to know that Katy’s symptoms have recurred. How thankful I am that you are remaining hopeful, because you know that “He who called you is Faithful, and He will do it.” He will yet bring about Katy’s good and blessings to countless others because of her suffering. I am glad you are home tonight in that refuge. And Katy, Blessed congratulations on finishing another paper and test for your course! Your determination and persevance in the face of pain, nausea - such odds are wonderful to see. May the good shepherd be very near to you and all your family tonight.

    Much love, Aunt Lil

  4. Jennifer Blugerman Says:

    Reading your post I could only think to myself and cry out in my heart, “How long, O Lord, how long? Maranatha, Lord Jesus! Come and rescue your child Katy!” I am aching for you all and pray that Christ will do a supernatural work of healing in Katy. She has persevered for over a year, enduring every conceivable discomfort with grace and patience as you all wait on the Lord. I long for Katy’s healing, but isn’t is wonderful to know that we don’t have to be physically strong to be a mighty warrior for Christ! We can be weak, tired, and even in great pain and be a stronger witness to the grace, power, and love of Christ than the most able-bodied.

    In Christ,
    -Jennifer

Monday night

We are hopeful tonight because we are choosing to believe that all things are working together for Katy’s good. Her back pain, shortness of breath, and nausea started in the wee hours of Sunday morning. The vomiting started again this afternoon. Her labs will be drawn tomorrow, but Katy already knows the numbers will be high. She’s resting and quiet tonight. We are putting hot pads on her back and abdomen to keep her comfortable. I’ll post tomorrow as soon as I have lab results back and a decision is made. We love being here at home tonight. It is such a place of refuge and peace.

Comments:
  1. Patricia Hagsten Says:

    I hope the two CD’s for Katy have arrived by now, but I have no clue whatsoever about their “turn around time”.
    Last night I attended another of Greg’s concerts … truly uplifting. He now resides outside Los Angeles. When we first heard him perform back in the late 80’s, he was living here in the greater KC area and his 3 children were enrolled in the Christian School. He was a frequent guest soloist at Youth for Chirist back in those days, too. Last night his driver, a young extremely gifted young pianist, closed out the evening’s performance.
    Once again, know that God IS in control. We love you!

  2. David and Lizi Says:

    Katy and Family,
    We are continually praying for you. We will pray that you have a good nights sleep and be refreshed in the morning.
    We love you guys!
    Love,
    David and Lizi

  3. Lillian Oliveira Says:

    My dear ones, how hard it is to know that Katy’s symptoms have recurred. How thankful I am that you are remaining hopeful, because you know that “He who called you is Faithful, and He will do it.” He will yet bring about Katy’s good and blessings to countless others because of her suffering. I am glad you are home tonight in that refuge. And Katy, Blessed congratulations on finishing another paper and test for your course! Your determination and persevance in the face of pain, nausea - such odds are wonderful to see. May the good shepherd be very near to you and all your family tonight.

    Much love, Aunt Lil

  4. Jennifer Blugerman Says:

    Reading your post I could only think to myself and cry out in my heart, “How long, O Lord, how long? Maranatha, Lord Jesus! Come and rescue your child Katy!” I am aching for you all and pray that Christ will do a supernatural work of healing in Katy. She has persevered for over a year, enduring every conceivable discomfort with grace and patience as you all wait on the Lord. I long for Katy’s healing, but isn’t is wonderful to know that we don’t have to be physically strong to be a mighty warrior for Christ! We can be weak, tired, and even in great pain and be a stronger witness to the grace, power, and love of Christ than the most able-bodied.

    In Christ,
    -Jennifer

Sunday, October 28, 2007

The “To Do” List

Katy finished another paper and a test for her Mass Media Law and Ethics class over the weekend. When the days were passing by at the hospital she complained about how far behind she was getting in her school work. So at the top of her “to do” list is finishing her course work. Today I had hoped she would be able to get up and go to church with us, but her back pain and nausea started up again during the night. She thinks her labs this coming Wednesday will probably show elevated levels of amylase and lipase again, but she has been careful about her food choices. If it happens that she is not able to eat yet, I am confident her doctor will have some recommendations for her. Her spirit remains hopeful and she is about to watch a movie with us. Paul went to the store to buy her some more corn chips to lick tonight. If you can picture Katy here at home, wrapped in a green blanket, watching a mystery movie, and happily licking chips, then I’m sure you have something to smile about.

We hope your Sabbath Day rest was everything you needed it to be for starting your week with strength.

Comments:
  1. Lael Moreland Says:

    Praise God! I am trying to keep up with reading your updates every few days…and am always seeing something to praise God for. Even when it seems you all are having a really rough time, there is always SOMETHING to praise God for. What a joy.

  2. Candice and Crystal Says:

    Hi Katy,

    Thanks for your comment on our blog. We apologize for being on the quiet end lately, it’s been kind of busy around here. You have been in our thoughts and prayers, and I’m so glad that you are back home and on your computer again. Hopefully, will be able to catch up sometime this week. How exciting, that you finished another paper. Good for you. I know that is a goal for you to finish school.

    Love and prayers,
    Candice and Crystal

  3. Jennifer Wellington Says:

    Yes, what a joy to read these updates. My heart is always encouraged, whether it be from your improvement, or the lovely picture of Jesus your family paints.

  4. Jennifer Blugerman Says:

    I am constantly amazed at Katy’s unquenchable spirit and spunk! To be even attempting to get caught up on her college coursework while feeling so poorly is incredible. A mere cold or sniffles seems to knock me out for days from doing anything meaningful! You’re my hero, Katy! Thanks for keeping the rest of us honest! …OK, I’m off to begin lessons with the kids. And that headache I woke up with? I’ll just have to deal with it! :-)

    -Jennifer

  5. Cousin Shannon Says:

    Licking chips sounds like a great way to cut down my calorie intake, and lose those last ten pounds!! Thanks for the diet tip!! :) Cousin, in the School of Life, you earn an A+ for making lemonaid out of lemons.

    I’m so glad you are HOME!

Saturday, October 27, 2007

Family time

We have all been enjoying a sunny Saturday at home. Katy came home from the hospital yesterday in a hard driving rain but nothing dampened her enthusiasm for coming home. She enjoyed a good night of sleep in her own bed. We woke up to clear skies and plenty of sunshine. Colin, Jenn, Annelise, and a family friend joined us for lunch. We had all the family around the table for soup and dessert. There were interesting conversations, and a lot of laughter. I can’t even describe the way we felt last night when we passed by her bedroom door and saw her bedside light shining from beneath the door. She’s really home. She looks wonderful, and we hope and pray for many more sunny days like this, filled with lots of laughter.

Comments:
  1. Lillian Oliveira Says:

    What a wonderful picture you have painted for us, AT LAST! God is so faithful…but this time I think it truly was darkest just before the dawn…and no wonder.

    Katy, we are SO THANKFUL you are home in your pretty room, and all over the house, I’m sure you are full of joy in the Lord as well as in being with family at home. Aproveite! As we say in Portuguese! Savor it! Much love, Aunt Lil

  2. Sandy Says:

    A huge hug to all of you!!! I am so happy that Katy was able to come home (hopefully for a good long stretch this time!) and that you all can enjoy a great weekend. Take good care! And know that you continue to be in my thoughts and prayers.

  3. Jes Says:

    Yeaaaa for another homecoming!! I was waiting and hoping to see that Katy was able to come home…I’m just begining to understand what mothers mean when they say ‘it’s so good to have all your chicks under one roof!’ We love ya’ll and rejoice with you this beautiful fall day!

    Jess

  4. Patricia Says:

    What a blessing!!! Have a good weekend!! Hope Katy is strong enough by tomorrow morning to be able to be wheeled to church to be with her local church family unless, at this time, she’s still too vulnerable to infection, of course.

  5. kim rose Says:

    oh Praise the Lord! I have been away for the weekend and couldnt wait to get home to check and see if Katy got to come home… What wonderful news. Many people I visited with over the weekend have been praying for Katy and the entire family.

    God Bless
    Kim

Thursday, October 25, 2007

A Gift

When I went to the hospital tonight Katy was fully dressed sitting on the edge of her neatly made bed, laughing and playing with Qavah. She looked so healthy and “normal”. She has made such improvement in the last few days, and if all goes as expected tonight, she’ll come home tomorrow. Dawn said they feel like they’ve been given a gift. They continue to thank God for their new Doctor, who prayed with them tonight before he left. And he continues to give God the glory for every improvement in Katy’s condition. Thank you for praying for him as he is God’s instrument of healing to Katy.

~ Julie

Comments:
  1. Heather Kirkwood Says:

    Katy, I so hope you get to get to come home tomorrow! That’s great news!

  2. Jennifer S. :-) Says:

    I praise God for this good turn of events! I hope you get to come home tomorrow Katy, and I’m so thankful to hear that you are better! :)
    Love and prayers,
    Jen :-)

  3. LInda Burk Says:

    GREAT NEWS!!!!!!! I can just see the girls dancing for joy…your strong faith is an inspiration to all who know you and your family.
    love, Linda B.

  4. Doris Harriff Says:

    Our God is an Awesome God!

    Aunt Doris

  5. Jennifer Wellington Says:

    Wow~

  6. Jes Says:

    Definitly praying for the doctor - you know Satan would just love to take him out….How wonderful to be able to come home - Praise God!! :)

    Love you!
    Jess

  7. Ruth Ann Says:

    Thank God for Divine Connections!!!!! Yippee!!!

  8. Lillian Oliveira Says:

    Well, I’m saying again its high time to start planning a Hallelujah Party! I can’t come but I’ll send a card! Pity, PITY the people who find reasons not to believe in this AWESOME GOD!

    Love, Aunt Lil

Wednesday, October 24, 2007

Strength

I got to the hospital late this afternoon and found Katy looking radiant. This morning her doctor ordered meat in puree form. She had protein for breakfast and again this evening. If her amylase and lipase levels don’t change very much after that test, she may be able to come home soon. The food stayed down and she had very little nausea. That is quite a change from two days ago.

Tonight when her GI doctor came to check on her, she told him how much better she felt. He discussed with her the possibility that much of her pain, nausea, and GI trouble for the past year could be coming from an overgrowth of bacteria in her small intestine. He and his partner had decided to start her on a course of antibiotics four days ago that targets the bacteria in the bowel without circulating through her entire system. Yesterday, that “poisoned” feeling she has been complaining about for weeks had subsided. Her food, although just a few bites, was actually enjoyable for her today. When her doctor talked with her about the overgrowth of bacteria, he said, “Katy, I’ve been thinking about this and praying for wisdom for the last four days.” And at the end of the conversation he said, “I just want you to know that my partner and I are really excited that we are able to take you on as a patient.” Then he talked to her about being sure her Remicade treatments are given when they are needed; not waiting until things are so bad. He gave me the homework assignment of finding a home health care agency we liked and trusted so that he could make arrangements to have her receive Remicade infusions at home. I don’t want to be afraid of enjoying this turn of events. We’ve all seen how quickly things can change. But tonight I feel like jumping for joy. If so many of her troubles have come from a simple bacteria, then there may be an equally simple solution to get her feeling a lot better. There is no “cure” for HPS, but we have been told all along that it is possible to live a much more normal life with HPS than what Katy has experienced so far.

Thank you, Father, for giving us a doctor who knows where to go to acquire wisdom. Thank you for the loving care Katy has received at this new hospital. Thank you for the peace and radiance that Katy has because of her total faith in your plan for her life. In Jesus’ name, AMEN!

Comments:
  1. Patricia Hagsten Says:

    That the Lord for somebody who cares enough to think “outside the box” and who relies on the Great Physician’s wisdom and guidance. We just pray that this is no “fluke”, but that, indeed, it is the answer for which all of you have been searching. Dannon has some yogurts which get balance in one’s system, I believe: DanActive with probiotics and Activia (both available thru Wal-Mart Supercenters and some supermarket chains). Ellen first got Lisa started on these several years agofor her IBS.

  2. Jennifer Wellington Says:

    You have started my day with great encouragement and awe of our wonderful God. No circumstance is wasted…ever. Praise the Lord for the Christian doctor!

  3. Jes Says:

    I agree with Jennifer - what an encouragement! The fact that the doctor has told her that he is praying about her situation - that is just AWESOME! I’m rejoicing with you all this morning!

    Jess

  4. Barbara Walker Says:

    More answers to prayer for the right doctor/doctors for Katy! Makes me want to shout, “My God is an Awesome God…..”

    Love to you Katy and Family,

    Barbara

  5. Sandy Says:

    Wonderful news! Praise God!

  6. Anne Poler Says:

    Praise God that Katy is feeling better, able to eat, has a doctor who prays, and that this doctor is willing to work with you. All answers to prayer!

    Continuing to pray for all of you.

    Love,
    Anne and Mark

  7. Jennifer Blugerman Says:

    Our hearts are leaping for joy at this post! We are praising God that He has sent you doctors who not only want to take on Katy’s case, but actually seek God’s wisdom in doing so!! I can’t imagine how good that little bit of food must have tasted, and how your burdens seem lighter in just a matter of a day! We are praying that Katy continues to improve and her doctors continue to be vigilant in their efforts! Hope you’re able to come home today, Katy!

    In His grip,
    -Jennifer

  8. Martha Harrison Says:

    Dawn, I’m just SO THANKFUL for this encouraging news about Katy, her new Dr. and the response from this hospital. Bless you for keeping us posted. God truly is answering prayers. Love, Martha

  9. Aunt Julie Says:

    Pureed ham! Yum!! We are just so thrilled with your new Doctor and his humble attitude, who knows that God is the One who heals. God is holding you firmly in His hand. Even when you feel like you can’t hold on any longer, just continue to let Him hold you. He won’t let go!

  10. Lillian Oliveira Says:

    You must have posted so late, Dawn! I went to bed at 10 - 1 Am your time, and you still weren’t there! Well, I guess its time to really start planning a Hallelujah Party! even if we’re not quite there yet. Its hard to believe that there are people who think that God is not there and that these answers to prayer do not come from One who deeply loves us. Love much, Aunt Lil

  11. kim rose Says:

    Praises going up down the street….

    We are continuing to pray for your entire family daily. Some day when you are feeling better, I hope to be able to share with you the Multitude of what your story has done to minister to so many. I have shared your story with several, both saved and non saved. I can not begin to tell you how your story has inspired each one that has heard it. You have a lot of prayers going up for you… and you have a few people on the road to seeking the Lord after hearing your testimony.

    Your entire family is a wonderful inspiration to us all… Know you will remain in our prayers.

    God Bless
    Kim Rose

Tuesday, October 23, 2007

Tuesday Night

Katy and I spent the afternoon and evening together finishing another chapter of Daniel. It is good for us to keep our minds active and to discuss the truth of God’s word. As I mentioned in yesterday’s post, it is all too easy to lose sight of His promises when the pressure is on. The historical accounts recorded in Daniel are so marvelous to us because they were only a vision of what was to come. Most all of the prophecies of Daniel were fulfilled long after Daniel was gone. What appears to be a great mystery to us is fully known to God. He knows how this chapter in our lives is going to end, and we know we have to patiently wait to see it unfold.

Katy’s amylase and lipase levels are still elevated but she had a real treat tonight. I let her lick the salt off corn chips. I don’t know how she can manage to be so disciplined, but it tasted good to her and she was satisfied to lick the salt and throw the soggy chips away. We finished off the evening watching the DVD that accompanies the Daniel study. We sat together licking chips and sipping water. We had several laughs, and I still am amazed at how terrific she looks. Her weight and lab work shows her doing very well. Her GI doctor will be seeing her again tomorrow. Her Remicade treatment was given during the night, so in many ways she was feeling better today. I took her for a ride in a wheel chair out to a beautiful waterfall and garden area. We sat outside in a sheltered grassy area enjoying the balmy air. I loved her parting words tonight as I was getting ready to leave the hospital. She said it had been a great day. Then she said, “Hold on Mom, you are doing so well!” I thought that was supposed to be my line!

Comments:
  1. Patricia Hagsten Says:

    We never really do know when we are somebody else’s life line, do we?? But there was progress today in Katy being able to keep water down … bit by bit; step by step … always one day at a time. He never gives us more that we can handle and rarely lets us have a glimpse ahead of time as to what our next needs and his sufficiency will reveal.
    Patricia

  2. Jennifer Wellington Says:

    Yep, hold on Mom. I like that.

  3. Mike Theesfield Says:

    “Hold on, Mom, you are doing so well!”

    That’s so typically Katy, isn’t it? She was in a brief lull in the midst of some of her current problems when she sent me a birthday e-mail, and she apologized for being late!

    It’s like, come on, girl; don’t worry about ME!

  4. Trisha Ferris Says:

    I know I sound like a broken record, but my faith is strengthened daily by your journey as you faithfully record it for the rest of us. Thank you for being honest about times of discouragement & challenged faith. We all “hold on” & we need to hear about the times when God Himself does the holding because human strength has given out. Actually, He’s always the one doing the holding, for without His power, none of us even be able to take the next breath. So I guess “hold on” means keep trusting God.
    In the Lamb,
    Trisha

  5. Jennifer Blugerman Says:

    Dawn, as I was reading your post about how Katy continues to look good despite the lack of food, I was reminded of how God sustained His people in the desert. Never did their sandals wear out, or their feet blister. God is clearly sustaining Katy through this desert journey, which is further proof of His divine plan for her, which is obviously not over yet!

    We love you all,
    -Jennifer

  6. Jennifer S. :-) Says:

    Katy,
    I haven’t been a faithful commentor the last couple of days but I haven’t gone away. Life is just staying busy. We are praying for your strength and healing!!
    Love and prayers,
    Jen :-)

  7. Cousin Shannon Says:

    The words “Daniel Study” immediately caught my eye — are you doing the Beth Moore version?? Me too!! I just finished the last lesson on Sunday, and it was wonderful. The thing that excited me so much about it was knowing that the end times prophecies are OUR FUTURE! (The other thing that excited me was that when I’m the bride at THIS wedding, all the planning will already be done!!) This is one time when knowing how the story ends is almost better than the story itself. You will love the last few weeks — we’re all in it together. :) Love — Shannon

Monday, October 22, 2007

Monday night

I have a few minutes before getting Qavah ready for bed to fill you in on Katy’s day. The good news is that Katy’s amylase and lipase levels have dropped to reasonable numbers. Her back pain has subsided. Her GI doctors are also arranging to give her the next Remicade infusion a week early to avoid the bowel problems and bleeding that usually starts in the fifth week. The digestion problems remain. When Katy tries to swallow liquids they come back up, sometimes very forceful and unexpected. Her other labs do not show any strictures or bowel blockage. It is a mystery as to why this is all happening again. All attempts to place a feeding line into Katy’s small intestine failed today. Her body would not accept it and while they tried for over an hour to get the line placed she was not able to stop vomiting. It caused such intense vomiting that there was no point in continuing to try. I watched on the monitor while the doctor tried to advance the tube through the stomach into the duodenum and it was as though an invisible force pushed it away every time.

For Paul and I this challenge is in part mental. We have to continually pray for more strength as we observe Katy’s struggle. When something as basic as eating is disrupted for twenty-two days we are tempted to ask, “What if something doesn’t change?” I have questioned God these past few days. I’ve sobbed my way through telling Him that I don’t see His goodness and then feel guilty for saying it. The truth is, I have seen His hand of mercy in my own life as far back as I can remember. The last thing the doctor said before leaving the room this morning was, “For someone who hasn’t eaten in so long, Katy’s blood labs look remarkable. Her body is holding steady.” Lord, that is YOU holding Katy’s body steady. You are the giver and sustainer of life. Please sustain our faith in the same way. Show us your glory. Amen!

Comments:
  1. Bob, Amy, Emily, Meredith and Abby Says:

    Thank you for the update. We’ve been praying but wondering what was going on. We will add extra prayers for strength for Paul and Dawn. Please contact us if you need anything. We love you all!

  2. Aunt Carrie Says:

    How discouraging :~(
    Katy, you are already a miracle and a wonder. Your body and spirit continue to amaze everyone; sometimes with the amount of suffering (or healing) you experience, usually with the amount of grace with which you experience it. You continue in our prayers and our fervent hope is for easing in the near future.

    Dawn, as I was preparing for working with our youth group on Psalms, I noticed how many (almost 70) were Laments or part laments so many more than the joyous hymns. Pouring out your agony to God, is a completely valid and time-honored response to the suffering of your dear one. You and Paul remain in our prayers as well.

    (Aunt) Carrie

  3. Patricia Says:

    Mixed blessings once again … yet the agony is so very real for Katy and each of you. We have a friend whose daughter has had a tube permanently implanted below her stomach and liquids are really poured directly into her through that tube 3 times a day. That is inserted probably when she was less than a year old and she’s doing great now at 11. There are options but Godly wisdom and solutions are far preferable.

    On-going supplications and prayers.
    Patricia

  4. Jes Says:

    Dawn - It is so good to look back over those times of sustaining, healing and mercy. You have tasted and seen that the Lord is good, loving, kind and merciful. We love you guys and continue to lift you all up….

    Lord - I know that these are hard, dark days - in this vally but we pray that you will redeem this. We know you have a plan and a purpose. I pray that Katy will continue to feel the peace of Your presence today. I also pray for strength and courage for Paul, Dawn and Qavah as they continue to care for and love on your precious child, Katy. Thank you heavenly father - for keeping your hand on Katy today. I pray you would put a hedge of protection around this family. Thank you Father, for hearing our prayers and for caring about us so much! Amen.

Saturday, October 20, 2007

Saturday night

I left Katy around ten o’clock tonight. Her doctor gave her permission to try a few sips of herbal tea today, but it was still too soon for her digestive tract. Every ounce came back up. This inability to eat has happened four times over the past fifteen months. In the past, Katy has received nutrition during these times by having a central line placed into a vein to receive total parenteral nutrition (TPN). However, every TPN line has ultimately led to a serious infection, so she has refused another line. Her doctor started another drug tonight in the hope that she will be able to tolerate a light nutritional supplemental drink by Monday. If that doesn’t help she will be given a feeding tube on Monday that will go through her nose down her throat and into the small intestine (bypassing the stomach) where a steady drip of basic proteins and vitamins will keep her body functioning until the pancreatitis clears up.

We are thankful for the wonderful afternoon we spent together reading a good book. We are thankful her skin problem related to MRSA has cleared up completely. We are thankful that she is resting well, and at peace. It has been almost three weeks since Katy had a normal meal, so in order to avoid tormenting her with the aroma of food I leave the room and go to the cafeteria to eat. When I returned after dinner tonight she was looking out the window watching the sun go down behind the mountains. She said, “Mom, I’m so content.” I’m thankful that by the Grace of God, with all she is going through, she can still say that and mean it.

Comments:
  1. Laura Griffith Says:

    Katy,
    Qavah was so pretty at church today. I hope you get to see her all dressed up. She will certainly brighten your day. I can not fathom how you can be content in all the struggles you are going through but gain comfort knowing that the Lord does provide grace sufficient for our present needs. I will be praying that the new doctors will gain insight that the others have missed. Take care, and hope to hear you are doing better soon.

    Prayerfully,
    Laura

  2. Patricia Says:

    Contentment and peace … all through HIS sufficient grace. Wonderful! Oh, that we each might experience that!
    Patricia

  3. Lillian Oliveira Says:

    King James version: “Thou wilt keep him in perfect peace, whose mind is stayed on thee, because he trusts in thee.”

    We know the contentment comes from a perfect trust. You continue to be such an inspiration and example for us, Katy.

    I pray you are having a blessed Sunday. Love, Aunt Lil

  4. Jennifer S. :-) Says:

    Katy,
    I praise God for your contentment in Christ. I pray that you continue to find strength in Him as your body heals. I’m so thankful that you have a listening doctor now. :) We are praying that you get to come home soon!
    Love and prayers,
    Jen :-)

  5. Sandy Says:

    Katy has the peace that passes all understanding! I hope things are improving. You all continue to be in my prayers.

    Sandy

  6. Uncle Tim Says:

    Katy,

    Aunt Laurie and I have been following your blog for some time. You and your family are always in our prayers. I know all things are possible in Christ, I’m living proof of that. Please drop me a quick Email so I have your address. Hope you are having a better day.

  7. Jennifer Wellington Says:

    I continue to pray for you, Katy. Thank you for sharing your story with all of us. We all need to be reminded of God’s constant goodness to all of his children…including the ability to be content in our circumstances. God is so very good.

Friday, October 19, 2007

Dignity

Paul went to the hospital this afternoon and took Qavah while I stayed home to get some things accomplished. After leaving the hospital, Paul called me about three o’clock and said, “Dawn, Katy was great, she talked a lot.” (When she is really sick she curls up and doesn’t say much to anyone.) He was expecting her to be feeling quiet today. I asked if he noticed that she looks radiant, and he said, “Yes!” We can’t explain it at all but the glory goes to the One Who made her! Although Katy has this serious thing going on in her body, she looks like she is glowing. I got to the hospital tonight around six o’clock and peeked in her room to see her lying there smiling!

Her new GI doctor visited with us tonight. He just got home from Russia and told us a very moving account of the three little children he and his wife are adopting. Their adoption is still in process so they had to leave the children in Russia, but they will be bringing them home to the United States in a few months. Katy and I were moved to tears by his story. God is faithful. It is a pleasure to be able to speak to a doctor who understands our total reliance on God. We told him that there were a few thousand people praying for him and he very much appreciated it. He had us tell Katy’s story from the time she first got sick, stopping us from time to time to ask questions. Then we watched as he turned things over in his mind. He asked a lot about her last bout of pancreatitis a year ago, and as I was talking I recognized a pattern. So did he. He will be watching what happens to her amylase and lipase levels with just IV fluids over the next couple of days. Then he is thinking of running some very simple tests looking for an overgrowth of bacteria in her digestive tract. No one has ever done that before, but his reasoning was very logical to us. In just one visit he managed to restore Katy’s dignity. He listened.

Katy has some little sponges she uses to moisten her lips but she is not allowed to swallow anything. Her pancreas is completely resting, her amylase and lipase levels are going down, and she already felt a little better today as a result. We worked on the tenth chapter of Daniel tonight and read the account of the return of the exiled Israelites from their Babylonian captivity. Daniel was taken from his homeland at the age of fifteen, and at the age of eighty-five watched many of his people leave Babylon to return home to Jerusalem. Imagine longing for home, knowing God had other plans for you, and you were to remain in a strange land alone watching the backs of your people as they headed home without you, their silhouettes fading into the horizon. I guess we really got into Daniel’s feelings because when I got up to leave for home, Katy started to cry. I came back in the room and wrote these words on her white board from Revelation 19:11. “I saw heaven standing open and there before me was a white horse, whose rider is called Faithful and True.” There is no verse like it girls, when your heart is lonely, to think of your beloved coming for you on a white horse, and the Rider is the One who has known you from before you were born and loves you with an everlasting love!

Comments:
  1. Jes Says:

    Katy - Isn’t it amazing to have a mom who KNOWS scripture? I was sitting here reading, moved to tears by the description of yesterdays events. Your mom has such a gift for writing and for comforting those in need! I’m so thankful that God placed you in this family. Hang in there sweet girl - the new doctor is on the case and it sounds like he’s already starting to think of things!!

    Love you!
    Jess

  2. Linda Kochendarfer Says:

    Katy,
    I enjoyed visiting with you yesterday! I agree with your mom and dad, you looked great and were much more animated than I expected. Take care and have a restful weekend.
    Love,
    Mrs. K

  3. Lillian Oliveira Says:

    Katy, Dawn, that was, indeed, a very moving note from yesterday! My eyes are moisted, too. And how DEEPLY GRATEFUL I am, and I know we all are, that Katy is doing better, with Christian doctors who understand, care and will be dedicated to finding the best treatment for Katy! What a relief to know she is in a new place where she is treated with dignity and respect. How wonderful it is to know that she is aglow with the Spirit of God! I’ve seen that glow on many faces from time to time, and it comes from the presence of the Holy One of Heaven setting up a burning joy in the heart; it brings healing, rest and hope. God bless you, Katy, dear! May things go uphill for many moons now! Love, Aunt Lil

  4. Sandy Says:

    It’s always a great sign when a doctor not only wants to hear the whole story and listens to it, but also asks questions along the way. Praise God for this encounter! I hope today has been a good day with continued movement in the positive direction. Please give Katy a big hug from me!

  5. andrea Says:

    Now that is God working for us. Our prayers concerning Katy and her doctors have been heard and are answered as we speak. He is so great!!!

    And I felt goosebumps reading the part of Revelation 19:11. “I saw heaven standing open and there before me was a white horse, whose rider is called Faithful and True.”

    An EVERLASTING LOVE….ahhhhhhhhhhh how sweet ! :)

    Blessings
    Andrea

Wednesday, October 17, 2007

New Start

I woke up this morning feeling refreshed and got Qavah bathed and dressed. While I was getting ready for the day, Katy got up and offered to read our morning devotion. She started out fine and suddenly she couldn’t get her breath. She really struggled like the wind had been knocked out of her. She started to shake and I got her seated. I started praying, not knowing what I could do that would really help much. As I prayed I had a strong feeling that I needed to take her to the emergency room but this time I took her to a different hospital in our area. She was taken back to the triage area pretty quickly and labs were drawn. She told the ER doctor that she had been at another hospital for the past two weeks and felt terribly nauseated. She explained that her amylase and lipase levels got higher every day but she was told to go home, eat, and she would get better. She didn’t.

Her labs came back with her amylase and lipase levels having tripled since last Friday. She was admitted with the diagnosis of full blown pancreatitis and will be seeing all new doctors tomorrow. Their fresh insight is what is needed. While Katy tried at the other hospital to defend herself against the opinion that she had an eating disorder, her pancreatic problems worsened and I knew if I took her back to the same hospital she would have been seen by the same physician upon her admission. Tonight I left Katy in an unfamiliar place, further from home, but she is at peace. It seems that this is a new beginning somehow. We are praying continually for her. She is in a real battle for her health and it will just take one persistent doctor with a bulldog attitude to find the answer. We think we have found more than one at this new hospital. We pray God’s wisdom will fill their hearts and minds as they work with Katy tomorrow.

Paul has been able to set up a temporary office at home and is working from home to take care of Qavah. Today he brought Katy’s doll house out of storage and she played for hours while he worked. They had lunch together and Paul read to her. She is very easy going and is taking everything in stride. When I drove up in the driveway tonight she came out to greet me. Paul Burton was right behind her and I was greeted with hugs and kisses from both of them. I’m a blessed mom. Their love and respect during this time of Katy’s challenges is a gift. I’m so grateful that resentment doesn’t live here. We love Katy, and supporting her is a healing force in her life. As Qavah would say, “Love you sister Katy!”

Comments:
  1. Aleah Yunger Says:

    Dawn, I don’t know how you do it. One minute fine, the next minute not — the rest of us would crumble. I know Katy said to me when I visited, “When it’s your life, you just live it.” So I know that’s what you’re doing, but believe me… we are all marveling at your strength. And so much for waiting for that new team of doctors — looks like everyone will be jumping in head first! I will be praying for that bulldog of a doctor. I will be praying for your strength and Katy’s. The greatest blessing is to know she is at peace! Rely on the people around you… God has given you a team of warriors by your side to help you so that you can live life too. We all love and pray for you!! Love in Christ, Aleah Marie

  2. Patricia Hagsten Says:

    How wonderful … also that you felt comfortable leaving Katy there tonight. The yo-yo of your daily struggles in mind boggling. What a fabulous support system you have in place and what strengths you are each able to display day by day.
    What hospital is this? Will the physician you have been waiting for to return to the States, have hospital rights at this other hospital??? Hopefully so!
    We’re continuing to pray for insights and wisdom for each of the doctors.
    So glad Qavah is doing well … and that Paul will be able to work out of your basement. I’m sure it’s as inviting as the other one you had so beautifully renovated for him.
    Love you guys! Ib and Patricia

  3. Lillian Oliveira Says:

    Hi, dear ones, I’m back after a couple of days at the beach. Stormy days! But this morning as we sat in the 5 Star restaurant of this small but classy motel, we looked through the fir trees way down to the beach and saw miles and miles of breakers foaming up in their restless rhythm, under a dark sky. Suddenly some sun broke through and all that lacey foam turned golden and brilliant, like God speaking to us, putting on a show for us, I said. I pray that the brilliant light of God’s love will put a great beam of beauty onto these ceaseless waves of trouble that are still coming and coming for you all.

    As I watched, I thought of Job 38, where God is speaking of creation, when He gave the waters boundaries, and He said “This far shall you come, and no farther, HERE will your proud waves halt.” Isn’t that beautiful! So He too will set the boundaries for your waves of trouble…But Oh, we wish, we PRAY that the waves will soon turn to a great calm. I’m so glad that Katy is at the new hospital, and I pray that the insurance matters were all worked out so that she is fully covered. Much love, Aunt Lil

  4. Jennifer Wellington Says:

    I am joining you in prayer.

  5. Sandy Says:

    I’m so sorry to hear that Katy is back in the hospital but grateful that your instincts were to get her to somewhere different. I hope these doctors respect her wisdom as the patient and can push forward with care that will lead to some sustained improvement. You are all in my thoughts and prayers.

  6. Jes Says:

    We continue to pray as well….If you need extra hands w/Qavah - please call!

    Love you all -
    Jess

  7. Jennifer Blugerman Says:

    Oh, Dawn. We are so sad to hear that Katy is back in the hospital! We are praying that these new doctors will indeed become mighty men on her behalf!

    -Jen

  8. Barbara Walker Says:

    Dear Dawn and Katy,

    I pray that you are in the right place at the right time - this has to be God’s timing! We need a David to stand up to the giants right NOW! I will be praying for this often. After all Katy has been through and to have it minimized by doctors who don’t know what to do is beyond terrible. I feel your pain!

    Love and prayers to you,

    Barbara

Tuesday, October 16, 2007

Short Post Tonight

Katy is doing pretty well. We’ll be glad when she is under the care of a new doctor. Her appointment with him is the end of October just before another Remicade treatment. We worked on getting insurance matters straightened around today. We are all going to bed early tonight. Rest is what is needed for now. Thank you for your prayers.

Comments:
  1. Patricia Hagsten Says:

    Until then, He will carry you through!

    How is Qavah dealing with all of this?

    Prayers,
    Patricia

Monday, October 15, 2007

Fullness of Joy

I want to thank all of those who fasted and prayed this past weekend. Prayer changes things! Katy is still nauseated and is experiencing abdominal pain but she is able to be out of bed and doing a few of the things she wants to do. She is feeling great about being down to 5mg of prednisone. It took all morning for her to get up and get around but she did it, and then Aleah came to visit this afternoon. Aleah’s June wedding plans are underway so there were many things they needed to discuss! The talk of medications, hospital stays, and pain problems were shelved and two friends talked of their studies, dresses, goals, and dreams. It was all so precious and “normal!”

Our efforts to replace some of Katy’s doctors are proceeding well enough that our hearts are at peace about all that. If anyone reading this blog is having struggles with their health, and your doctor is just not helping you meet your goals, I would highly recommend reading the book, How Doctors Think. I mentioned that just last week but it is worth repeating. We are holding on to the encouraging words from one of our blog readers, Sandy. She said it only takes one doctor who really cares to get things turned around.

Last night Katy stayed home with a friend of ours while Paul and I went to a little country church. Another friend of ours was being baptized. This man, a husband and father of three grown boys, has made a commitment to follow Christ, and demonstrated that in a public way by being baptized. His countenance was beaming. The pastor of the church spoke of the joy we have when we know we are forgiven by a loving and just God, and our eternal destination is settled. But he further expounded on the meaning of the phrase, “fullness of joy,” found in in 1 John chapter one. How can anyone have a heart filled with joy even though they suffer? First, trust God’s plan without allowing circumstances to control whether joy resides in your heart. Second, speak continually to Him in prayer remembering He is always present with us. And third, continue to ask forgiveness and let go of guilt which separates us from fellowship with God.

I’ve lived long enough to know that life takes sudden turns. Suddenly it can all be turned upside down, and the only One Who isn’t surprised or trembling is the God of Abraham, Isaac, and Jacob, Who led them with an outstretched arm and invites us to trust Him in the same way. He has led our family to the water’s edge, the sea has parted, and we’re running full speed toward the promised land. He’s right beside us and scripture tells us that in His presence there is fullness of joy. Although I am Presbyterian, I do believe a little Baptist preachin’ last night influenced me! Do I hear an amen?

Comments:
  1. Jennifer S. :-) Says:

    I will give a hearty amen to that! I needed to hear those encouraging words and I thank you for them. Trust is such a small word but such a huge, difficult action. I’m thankful to hear that Katy is doing ok and is able to enjoy being home. We’re continuing to pray for fuller healing.
    Love and prayers,
    Jen :-)

  2. Patricia Hagsten Says:

    Yes … resoundingly …. from a fellow Presbyterian!
    Patricia

  3. Aleah Yunger Says:

    Glad you enjoyed our little country home :) I dearly enjoyed your company today, Katy! Your home is always so inviting. Thanks for letting me share my excitement and future and life with you. I can feel God all around us in those moments, working in our hearts and minds. My prayers are with you tonight — sleep well! In love, Aleah

    PS — Qavah is simply too cute for words! ;)

  4. Jennifer Blugerman Says:

    Dawn, thank you for the reminder that true Joy transcends our circumstances. It’s not some giddy, emotional feeling of “happiness” that comes and goes with the wind. It is not the absence of sadness or pain, but the presence of God. We can have joy in our salvation regardless of what we’re going through. But without an eternal perspective, we are guided by our feelings and our experiences. As Christians we know that what God allows in our lives is ultimately in His will and will work for His glory and our benefit. Without that knowledge and comfort, we would be miserable in deed. Thanks be to God for His glorious plan and for revealing Himself to us that we might know true joy — knowing Him!

    -Jennifer

  5. Karen Tillman Says:

    Katy,
    I am so glad that you and Aleah had such a good time. I just LOVE weddings!!! I hope that your progress continues on the right path, and am happy that your family is at peace with the new doc hunt. I will also pray that progresses in a positive manner. Just wanted to stop by and let you know that I have been thinking about you.
    Love and prayers
    Karen Tillman

Friday, October 12, 2007

Interesting twists

Katy came home from the hospital last night. Paul went to get her and I stayed home to get her “hot tub” ready for a long, hot, soak when she got home. She took a bath and went right to bed and slept eighteen hours without pain medication. At four this morning I checked on Katy and her body was soaking wet. I woke her up and immediately she said, “Mom! My nausea is gone and I’m so hungry!” Today she is able to eat baby food. Her nausea and abdominal pain are low.

Four weeks ago our family and extended family joined together and fasted for 24 hours, dedicating ourselves to God in prayer for Katy and others in our family. We communicated by email throughout the day including our prayer requests for each other. Aunt Lil prayed that Katy’s adrenal glands would be miraculously healed. It was shortly after that when Katy got very sick.

One of the reasons Katy was sent back to the hospital was a fierce looking boil under her arm, that appeared immediately after her hospital visit last week. When I showed it to the doctor on Monday and asked him about MRSA he was very abrupt with me and told me that it was probably an ingrown hair follicle. I finally told him that whether it looked like it to him or not I thought a culture of it would be the wisest thing so he drained it and took a scraping of it. Although her blood tested negative for MRSA, her skin culture from the boil was positive for MRSA. At that same appointment, Katy told him that she was so extremely nauseated that she felt poisoned. She told him how the nausea, diarrhea, and finally vomiting, had plagued her for the past few weeks along with severe stomach and bowel pain, accompanied by another adrenal crash. Once in the hospital a strong antibiotic was started while the lab cultures were in incubation. Cultures begin to grow bacteria within twenty-four hours. Except for the nausea, she started to feel a little bit better on the antibiotic. The IV antibiotic was changed over to oral medication Wednesday night in an effort to continue her care at home. Katy began taking Bactrim by mouth that night. She started feeling a little stronger and the medication stayed down, so by late afternoon yesterday she was released to come home. Paul and I suspect that she did have a nasty bacteria in her stomach and bowel and that it had caused many of her problems over the last few weeks. If not for the boil, there would have been no obvious reason for the doctor to put her on an antibiotic.

Now here is the interesting twist. After Katy had experienced severe diarrhea for three weeks, we discovered last Saturday that all of her daily oral medications (including prednisone) had passed through her body that day, completely whole and unabsorbed. Although she was still experiencing abdominal pain and nausea, her adrenal system seemed to be working fine. Remembering Aunt Lil’s prayer, we began to discuss the possibility that Katy had already gone through a prednisone withdrawal. That would explain her adrenal instability and aching body for the past three weeks. Since she had absorbed no prednisone on Saturday, we asked Katy if she wanted to try cutting her prednisone from her normal 20mg to 10mg to see what would happen. She did, on Sunday, and nothing happened. She was fine. The next day she said, “I want to try 5mg today and see what happens.” Nothing happened! Since Monday she has been on 5mg of prednisone daily. Her blood sugar, pressure, and temperature are all in the normal range, and her blood levels were monitored daily because she was in the hospital this week to treat the infection. She has not needed additional potassium or magnesium for the past five days. To go from 20mg to 5mg so quickly without adrenal failure is a miracle. It was just last week that one of the GI doctors said that if we keep trying to lower her prednisone we could risk her life at this point. Her endocrinologist said last month that he would try to help her taper off prednisone gradually but it would take a year or more. At 5mg, Katy is on a low enough dose of prednisone that she will be seeing a huge improvement in bone density and muscle strength. Her skin had become very thin and marked with what is known as ribboning. That will all improve.

In what seemed at the time like a horrible nightmare, the past three weeks were about tearing her down to build her back up. She experienced one of her lowest times in this HPS journey (see the posts from September 28 to October 5). She would be the first to say that she wouldn’t want to have to do that again, but the pain has produced a great gain for her. This was prayer being answered. During that time of extreme suffering, we believed that God was up to something. Some of her doctors, believing Katy was anorexic or enjoying the attention, treated her so poorly that we have been on a quest to replace them! We have found some new ones who are excited to take on this HPS mystery, and she will begin seeing them before the end of the month.

Many of us will be fasting again on Saturday, October 13. Anyone could have looked at Katy during the past three weeks and said, “Where is your God now?” Even several of her doctors had deserted her. If not for our steadfast resolve to leave Katy in God’s care and to trust Him, this journey has the potential to destroy us. We choose to believe that God is with us and carrying us through the most difficult circumstances. During this ordeal, Katy and I meditated on words from Jeremiah and they strengthened us. Whatever your circumstances, whatever your heartache, hold on and savor these words: Your words are what sustain me; they are food to my hungry soul. They bring joy to my sorrowing heart and delight me. How proud I am to bear your name, O Lord. Jeremiah 15:16

Comments:
  1. Sandy Says:

    Oh how this post made me smile! I’m so glad Katy is home and that she is able to be on such low amounts of steroids after all this chaos with her health. Praise God for this incredible and unexpected twist!

    I hope you all have a wonderful weekend! Prayers continue from here always.

  2. Lillian Oliveira Says:

    PRAISE HIM, PRAISE HIM, TELL OF HIS EXCELLENT GREATNESS, PRAISE HIM, PRAISE HIM EVER IN JOYFUL SONG!

    He is Jehovah Rapha. the God who heals! Only medical people can perhaps understand how miraculous indeed is this miracle!

    Love, Aunt Lil

  3. Doris Harriff Says:

    When Katy has been at her worst, my inclination is to respond - what can I say, except that I’ll pray for her. And now - what can I say, except Praise the Lord! He has indeed done marvelous things!
    Aunt Doris

  4. Jes Says:

    Wow - and WOW!!! This is so wonderful! I’ve been checking the blog all day - now that I’m back at work - I find that during a spare minute here or there - I’ll check to see if there is any news….Praise the Lord for this amazing twist! I can’t fast with you all on the 13th because of feeding the baby - but I will pray ernestly tomorrow for God to continue to be glorified, for Katy’s strength to return and for this new chapter/season of life to be more wonderfully ‘normal’!

    We love ya’ll!
    Jess

  5. Lindsay Says:

    PRAISE THE LORD!!!!! Katy, I am so glad that you were able to sleep so well and able to eat some too :-) I will keep praying! Have a wonderful weekend with your family.

    Love,
    Lindsay

  6. Adam Thompson Says:

    Ww, ptl for such improvements. So much improvement since I talked with you two days ago!

    ~Adam

  7. Patricia Hagsten Says:

    Wow! As ever, God IS good! May ALL of you be refreshed not only in sprit but in body following this ordeal. Patricia

  8. Jennifer S. :-) Says:

    Katy,
    PRAISE GOD!! PRAISE OUR MERCIFUL LORD! I am in awe of His workings. I’m so thankful that you’re home, too, Katy. I pray that you will continue to feel better!!
    Love and prayers,
    Jen :-)

  9. LInda Burk Says:

    HI all, I continue to follow the blog. You are on such an incredible journey. I lift you up in prayer daily. We send our greetings to Qavah . May you all enjoy a healthy weekend with many special moments.
    Our family is well. Julianna is preparing her nursery with pink trimmings. Happy Fall, Linda burk

  10. Sabrina Chakhachiro Says:

    Wow. I never really understood what was going on. It sounds bad. I’m glad Katy is feeling better!

  11. Jennifer Wellington Says:

    Thank you for sharing. What an encouragement these words have been. I will continue to pray for Katy.

  12. Lillian Oliveira Says:

    Dawn and all - just wanted to say that EVERYBODY was praying for Katy’s adrenal’s to recover, I shouldn’t be given undue credit - esp. since we know Jesus does what He knows is best, out of His great love. Aunt Lil

  13. Aunt Carrie Says:

    It was a beautiful day here today! We spent time cleaning up the trees that have been down since our December windstorm (we’ll have lots of firewood THIS winter.) It was a joy to be outside in creation! A wren cam to sing to us (or perhaps scold us) as we worked. This might be our last really lovely day for a while…

    As I near the end of my 24hr fasting and prayer time for Katy. I am so thankful for the work that was done, in Katy’s body, although I know it was totally wrenching physically and spiritually. I was in tears more than once while reading the blog these past weeks.

    This has been a difficult week at work as well, so forcing the focus of this day to the results of hard labor, hard decisions, and hard fought fights has been more restorative than I expected. It is an honor to participate however remotely in your struggles.

    May you have a true Sabbath day.
    Blessings,
    Aunt Carrie

  14. Doris Harriff Says:

    I wish Katy could come in contact with a doctor named David Bish. Unfortunately, he is in Alabama. He is a DO, and has had a hard time getting a practice established because MD’s won’t refer anyone to him. He is extremely compassionate, and has dealt (successfully) with at least a couple of cases that other doctors claimed were hopeless. He is extremely compassionate, and has wanted to be a doctor since he was a little boy, and his mother was sick. His parents are members of our local church here. He went to Alabama because of apparent opportunity, and the opportunity didn’t materialize. He is trusting the Lord to put him where he wants him.