This morning the bacteria tests came back negative for MRSA. That is a huge relief. The boils under Katy’s arm are not MRSA, which means that she can be released to come home. The cause of her pancreatic problems are unknown but we suspect one of the drugs Katy was taking (Imuran). It has now been taken out of Katy’s care plan. Imuran can cause problems with the pancreas and this usually happens after the first month of therapy. Katy was into her second month of using it. Therefore, some of the relief she has had in the past from taking it will be taken away as well. We have got to keep trusting that God knows and sees all of this.
Yesterday, throughout the day, there were several things that happened at the hospital that made us realize that the medical staff there is frustrated, too. They have done the best they can but we are hearing more often that “we need to take Katy somewhere else.” The comments and questions have seemed more like an attack than an effort to help. We just finished reading the book, How Doctors Think and found that it is quite common for physicians to become negative about a patient’s care after they have exhausted their ideas. I was glad that we read the book as it has given us an understanding that there are two sides of this story. However sometimes I want to get tough and say, “Look, Katy is the one suffering here so get over yourself!” I have managed to bite my tongue so far. We pray for all of her doctors every day, not just for wisdom but for their spouses and families. It helps us keep in perspective that they are human, and have other dimensions to their lives.
Katy is still very nauseated but is using a liquid food supplement to keep her strength up. We can manage these problems at home and plan to bring Katy home today if possible. Hospitals are places that offer healing but home is better and we feel it is time to manage her care here. We have had times of frustration with the symptoms of HPS, but are able to care for Katy without being frustrated with her.Comments: