Wednesday, October 10, 2007

Making a plan

This morning the bacteria tests came back negative for MRSA. That is a huge relief. The boils under Katy’s arm are not MRSA, which means that she can be released to come home. The cause of her pancreatic problems are unknown but we suspect one of the drugs Katy was taking (Imuran). It has now been taken out of Katy’s care plan. Imuran can cause problems with the pancreas and this usually happens after the first month of therapy. Katy was into her second month of using it. Therefore, some of the relief she has had in the past from taking it will be taken away as well. We have got to keep trusting that God knows and sees all of this.

Yesterday, throughout the day, there were several things that happened at the hospital that made us realize that the medical staff there is frustrated, too. They have done the best they can but we are hearing more often that “we need to take Katy somewhere else.” The comments and questions have seemed more like an attack than an effort to help. We just finished reading the book, How Doctors Think and found that it is quite common for physicians to become negative about a patient’s care after they have exhausted their ideas. I was glad that we read the book as it has given us an understanding that there are two sides of this story. However sometimes I want to get tough and say, “Look, Katy is the one suffering here so get over yourself!” I have managed to bite my tongue so far. We pray for all of her doctors every day, not just for wisdom but for their spouses and families. It helps us keep in perspective that they are human, and have other dimensions to their lives.

Katy is still very nauseated but is using a liquid food supplement to keep her strength up. We can manage these problems at home and plan to bring Katy home today if possible. Hospitals are places that offer healing but home is better and we feel it is time to manage her care here. We have had times of frustration with the symptoms of HPS, but are able to care for Katy without being frustrated with her.

  1. Karen Tillman Says:

    I am so relieved that she does not have MRSA. My friend Karen B had that and wound up incapacitated, and actually quadraplegic for several months. She was in the hospital for 10 months, and by God’s grace is able to walk again. We had almost given up hope that she wouldn’t die, but it was obvious God had other plans for her as well. So, today I am thanking God for the good news of no MRSA, and pray that you guys can find some answers to Katy’s care. Sometimes it seems that all of this is overwhelming, but I always take solace in the fact that God holds each of us in His hands, and He knows how to best use these situations to not only help us to grow, but to have us rely solely on Him, and hopefully bless a few others along the way.
    Love and many prayers
    Karen Tillman

  2. Heather Kirkwood Says:

    I’m so glad it wasn’t MRSA after all. That’s great news. I’m also reading that book right now, although I haven’t gotten very far because things have been so crazy at work.

  3. Sandy Says:

    That “How Doctors Think” book is great, and it really validated and explained some of my experiences with doctors. I’m glad you were able to read it.

    Please give Katy a hug from me. You all have been through a lot, and I know all of us e-friends wish we could be there to help and offer support. You continue to be in my prayers.

  4. Doris Harriff Says:

    I can understand doctors being frustrated when they know so little about a disease; I do, however, have problems with them taking that frustration out on the patient, and blaming them for their own illnesses.

    Continuing to pray for Katy’s wellbeing, and for God’s sustaining power for all you family members.

    Aunt Doris

  5. Lillian Oliveira Says:

    Sounds like a plan to me. (As my dear friend Helen likes to say!) And I know Someone Else has an even Greater Plan, this marvelous, mysterious Almighty, who “sustains the universe with His mighty power”, and works invisibly doing marvelous things. We pray that Katy’s new doctor will find something better for her GI problems, and that she will be able to eat with pleasure again, SOON. Do you know when she will see that doctor?

    Love, Aunt Lil

  6. Patricia Hagsten Says:

    Halleluja! God is good!

  7. Jes Says:

    Dawn -
    I’m so sorry that the medical community is still not being supportive. I read this and my heart aches for all of you. I know you can provide a more comforting enviornment for Katy at home right now and I’m so thankful that she can be there.

    Your previous post - about remembering the Sunday drive reminded me of something Spurgeon wrote: “Go back, then, a little way to the choice mercies of yesterday, and though all may be dark now, light up the lamps of the past, they shall glitter through the darkness and you shall trust in the Lord until the day breaks and the shadows flee away.”

    Thank you for your practical example - of how we can remember God’s mercies during trials. I am praying that God may bless you and your family today, my friend. For you are such a blessing to others!


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