I have a few minutes before getting Qavah ready for bed to fill you in on Katy’s day. The good news is that Katy’s amylase and lipase levels have dropped to reasonable numbers. Her back pain has subsided. Her GI doctors are also arranging to give her the next Remicade infusion a week early to avoid the bowel problems and bleeding that usually starts in the fifth week. The digestion problems remain. When Katy tries to swallow liquids they come back up, sometimes very forceful and unexpected. Her other labs do not show any strictures or bowel blockage. It is a mystery as to why this is all happening again. All attempts to place a feeding line into Katy’s small intestine failed today. Her body would not accept it and while they tried for over an hour to get the line placed she was not able to stop vomiting. It caused such intense vomiting that there was no point in continuing to try. I watched on the monitor while the doctor tried to advance the tube through the stomach into the duodenum and it was as though an invisible force pushed it away every time.
For Paul and I this challenge is in part mental. We have to continually pray for more strength as we observe Katy’s struggle. When something as basic as eating is disrupted for twenty-two days we are tempted to ask, “What if something doesn’t change?” I have questioned God these past few days. I’ve sobbed my way through telling Him that I don’t see His goodness and then feel guilty for saying it. The truth is, I have seen His hand of mercy in my own life as far back as I can remember. The last thing the doctor said before leaving the room this morning was, “For someone who hasn’t eaten in so long, Katy’s blood labs look remarkable. Her body is holding steady.” Lord, that is YOU holding Katy’s body steady. You are the giver and sustainer of life. Please sustain our faith in the same way. Show us your glory. Amen!Comments: