Monday, October 22, 2007

Monday night

I have a few minutes before getting Qavah ready for bed to fill you in on Katy’s day. The good news is that Katy’s amylase and lipase levels have dropped to reasonable numbers. Her back pain has subsided. Her GI doctors are also arranging to give her the next Remicade infusion a week early to avoid the bowel problems and bleeding that usually starts in the fifth week. The digestion problems remain. When Katy tries to swallow liquids they come back up, sometimes very forceful and unexpected. Her other labs do not show any strictures or bowel blockage. It is a mystery as to why this is all happening again. All attempts to place a feeding line into Katy’s small intestine failed today. Her body would not accept it and while they tried for over an hour to get the line placed she was not able to stop vomiting. It caused such intense vomiting that there was no point in continuing to try. I watched on the monitor while the doctor tried to advance the tube through the stomach into the duodenum and it was as though an invisible force pushed it away every time.

For Paul and I this challenge is in part mental. We have to continually pray for more strength as we observe Katy’s struggle. When something as basic as eating is disrupted for twenty-two days we are tempted to ask, “What if something doesn’t change?” I have questioned God these past few days. I’ve sobbed my way through telling Him that I don’t see His goodness and then feel guilty for saying it. The truth is, I have seen His hand of mercy in my own life as far back as I can remember. The last thing the doctor said before leaving the room this morning was, “For someone who hasn’t eaten in so long, Katy’s blood labs look remarkable. Her body is holding steady.” Lord, that is YOU holding Katy’s body steady. You are the giver and sustainer of life. Please sustain our faith in the same way. Show us your glory. Amen!

  1. Bob, Amy, Emily, Meredith and Abby Says:

    Thank you for the update. We’ve been praying but wondering what was going on. We will add extra prayers for strength for Paul and Dawn. Please contact us if you need anything. We love you all!

  2. Aunt Carrie Says:

    How discouraging :~(
    Katy, you are already a miracle and a wonder. Your body and spirit continue to amaze everyone; sometimes with the amount of suffering (or healing) you experience, usually with the amount of grace with which you experience it. You continue in our prayers and our fervent hope is for easing in the near future.

    Dawn, as I was preparing for working with our youth group on Psalms, I noticed how many (almost 70) were Laments or part laments so many more than the joyous hymns. Pouring out your agony to God, is a completely valid and time-honored response to the suffering of your dear one. You and Paul remain in our prayers as well.

    (Aunt) Carrie

  3. Patricia Says:

    Mixed blessings once again … yet the agony is so very real for Katy and each of you. We have a friend whose daughter has had a tube permanently implanted below her stomach and liquids are really poured directly into her through that tube 3 times a day. That is inserted probably when she was less than a year old and she’s doing great now at 11. There are options but Godly wisdom and solutions are far preferable.

    On-going supplications and prayers.

  4. Jes Says:

    Dawn - It is so good to look back over those times of sustaining, healing and mercy. You have tasted and seen that the Lord is good, loving, kind and merciful. We love you guys and continue to lift you all up….

    Lord - I know that these are hard, dark days - in this vally but we pray that you will redeem this. We know you have a plan and a purpose. I pray that Katy will continue to feel the peace of Your presence today. I also pray for strength and courage for Paul, Dawn and Qavah as they continue to care for and love on your precious child, Katy. Thank you heavenly father - for keeping your hand on Katy today. I pray you would put a hedge of protection around this family. Thank you Father, for hearing our prayers and for caring about us so much! Amen.