I wanted to post a brief update. Katy has been home all day. Her body, joints, and abdomen, are aching, and the nausea has made it harder. Although I was very concerned this morning I didn’t want to take her back to the doctor. A friend of mine who is a Physician Assistant working with local GI doctors came to take a look at her this afternoon. She looked at the copies of labs we brought home, Katy’s hydration, and decided that we should just stay home from the hospital until we can see a different GI doctor. There is one that has expressed great interest in taking over her case but he is out of the country for two weeks. Before we left RMH I asked them to run pancreas function tests because Katy was telling me she felt similar to the way she did when she had pancreatitis. The levels of amylase and lipase were both high. That explained the nausea and why she wasn’t wanting to eat. However, the levels are not so high that she can’t drink fluids and keep them down, so hydration is not a problem. We are keeping her pain medications going around the clock which has helped her get some rest. We’ll know more in a couple of days of fasting where this is all going. Tonight we are setting up a DVD for Katy and Qavah to watch before bedtime and praying for a good night together at home.
When I read Sandy’s comment yesterday about finding the right doctor, it gave me so much hope. Your prayers for such a person mean so much to us. We know we have to keep looking for that one and do our part, but we also trust that God is preparing such a person even now.Comments: