Saturday, October 06, 2007

Saturday night

I wanted to post a brief update. Katy has been home all day. Her body, joints, and abdomen, are aching, and the nausea has made it harder. Although I was very concerned this morning I didn’t want to take her back to the doctor. A friend of mine who is a Physician Assistant working with local GI doctors came to take a look at her this afternoon. She looked at the copies of labs we brought home, Katy’s hydration, and decided that we should just stay home from the hospital until we can see a different GI doctor. There is one that has expressed great interest in taking over her case but he is out of the country for two weeks. Before we left RMH I asked them to run pancreas function tests because Katy was telling me she felt similar to the way she did when she had pancreatitis. The levels of amylase and lipase were both high. That explained the nausea and why she wasn’t wanting to eat. However, the levels are not so high that she can’t drink fluids and keep them down, so hydration is not a problem. We are keeping her pain medications going around the clock which has helped her get some rest. We’ll know more in a couple of days of fasting where this is all going. Tonight we are setting up a DVD for Katy and Qavah to watch before bedtime and praying for a good night together at home.

When I read Sandy’s comment yesterday about finding the right doctor, it gave me so much hope. Your prayers for such a person mean so much to us. We know we have to keep looking for that one and do our part, but we also trust that God is preparing such a person even now.

  1. Lillian Oliveira Says:

    Dear Katy, Dawn and all of you. I’m so glad to see your note again, and that Katy is home, - home, that wonderful place! though still not over the top for recovery. How good that you got the info on the pancreatic enzymes, and that God brough by someone who could read the lab work meaninlyfully, and know what it is safe to do. We are anxious for that doctor to get home! Do you know the date of his coming? May he be the one to really dig into these mysteries and provide the help that Katy and all of you so desperately need.

    I’m praying that the Sabbath will be one of rest for all of you - emotionally, spiritually, and physicallyas well - for Katy, with the pain meds as needed. And I hope the DVD was a happy distraction, with lots of laughter with its own healing power by our Father’s design. Much love, Aunt Lil

  2. Jennifer S. :-) Says:

    I am so glad to hear that you are home, Katy. I know that it is more comfortable to sleep and rest in your own home and I am thankful for that. I pray that you sleep well tonight and have a blessed Sabbath–a day of rest–tomorrow.
    Love and prayers,
    Jen :-)

  3. Patricia Hagsten Says:

    If Katy can keep down fluids there are plenty of options from Ensure to the Quixtar nutritionally-balanced beverages to electrolyte-balancing fluids such as Gatorade or even, possibly, nectars such as pear or apricot which will give some bit of fiber. The various powdered or already-prepared nutritional drinks also have some which are high caloric …. and that, especially, might be beneficial at this time at Katy is in need of rebuilding and maintaining her strength following hospitalization so she doesn’t become prey to viruses in the air, etc.
    So glad she is in the home environment once again … not only for her and your sakes, but ESPECIALLY for Qavah …. as a reassurance to her and for stability in her new environement. Have a blessed Sabbath! Ib and Patricia

  4. Julie Says:

    What Sandy said about the struggles we in the HPS group (I am an HPS-like member of the group) have had in finding doctors who would not only be interested in our case but caring enough to follow through when they see conventional medical knowledge and practice aren’t explaining what is happening to our bodies. We all can share stories of the frustration and sometimes embarrassment in being made to feel like our illnesses and symptoms are emotional/psychological based, or that we are not following the prescribed medication plan or “if you would just eat” (I just love that one). Truth is, at least I would prefer to believe, is that doctors handling our cases are frustrated too. They see our pain and struggles and they can’t seem to find the answers. Our cases must be terribly frustrating for them as we don’t have medical issues that fit nicely and neatly into a disease category or a treatment plan. Standard treatments that work for others, don’t necessarily work for us.

    Anyway, we continue to pray for each of you as you go through this very challenging time. We pray that you keep heart and trust that you WILL find a doctor who WILL care for and follow through with trying to find answers or at least a treatment plan that will work for Katy.

  5. Karen Tillman Says:

    Dear Campbell family,
    I am so sry I have not checked in as much as I would like, but I think you know that I am having some of my own difficulties at the moment. I do understandabout doctors being out of the country. My normal GI doc has been out of the country for 15 days during this flare up, and my other doc was in a hiking accident. Maybe God is trying to teach all of us patience!! GRIN Anyway my GI will be back tomorrow, and i will be so glad. Just wanted you to know that I am still praying for Katy and the rest of you too, and thinking about all of you continually, and praying for Katy to have some relief.
    Love and many prayers
    Karen Tillman

  6. Patricia Hagsten Says:

    DITTO! With Lisa struggling with fibromyalgia we’ve also been the route of doctor challenges with something else that is an “it’s all in your head” syndrome.
    Most doctors had never heard of her diagnosis at 13 with costochondritis and even fewer have known how to diagnose and deal with these various manifestations of “syndromes” which show up in various peoples’ bodies in vastly different time frames and combinations when she was diagnosed with fibromyalgia at 18.
    Quite honestly, the frankest doctors will often simply state, honestly, “There’s a lot we don’t know in medicine and a lot we simply don’t have the answers for.” Life is a mystery which each generation seems to be unraveling and revealing more and more …. but we’ll only see clearly “some day.”
    One of our dearest friends from Purdue Univ. days died of dehydration with Krohn’s (I think she had 3 major resectioning of bowels and never weighed more than 76 lbs.) and another with M.S. who also has Krohn’s. Anyway, before church this morning I spoke with a local friend of mine who struggles with Krohn’s Disease and I knew she had begun a new combination of medicines several months ago and that she, too, had experienced horrible problems with Prednisone previously. She’s very pleased with a combination of 2 meds: Asacol, which she takes 4 of in the a.m. and 4 of each evening in combination with Entercort three times a day. Entercort is a synthetic steroid which does not have the adverse side effects, at least in her body, that Prednisone has. Additionally, she said the more recent “God send” for her was daily dosages of common, ordinary Caltrate. Just food for thought or discussion.
    Gotta run and take Ib to the airport!
    Love you guys!

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