I feel like a spectator watching a very interesting sports event. At any given moment things change and it sends a little awe through the crowd. A sudden change in direction is something I am poised and ready to cheer about. I’ve done some cheering today. Very early this morning, Katy and I went to see her GI doctor. While her pain levels and nausea are keeping her from eating and functioning well, all her lab work was better than it has been in a very long time. Even her amylase and lipase levels were in the high/normal range (126 and 192). So Katy was feeling exasperated over the fact that her body is telling her one thing, but her labs say another. It comes down to cells and inflammation and both are hard to examine. Her pancreas is still behaving like she has pancreatitis but she does not. So I asked the doctor what he thought about the fact that she has had so few calories over the last month but her labs are great. Actually I asked, “Is this a God thing?” He laughed and said, “Yes, I believe it is.” A good measure of that is her albumin level (4.0). It shows that her body and muscles are not breaking down. Although she has had an average of 200 calories a day for about a month now, and very little protein, her weight has stayed steady. So what we are looking at is God’s sustaining grace. As long as she can sip something a few times an hour it is enough to stay hydrated. So Katy has been sipping. Small sips are staying down. She was asked to stay on liquids for two more days then try baby food again. Katy is willing to do that in order to stay out of the hospital.
Qavah went to the hospital lab this afternoon for her cross-matching. The Red Cross will send a bag of transfusion blood to RMH for Qavah on Friday morning. I’ve asked people to pray for Qavah’s emotional maturity and today the result was astounding. She held out her little arm and did not even flinch when her blood was drawn. She had determined in her mind to be brave like “sister Katy” and she was! In the past she struggled so hard she had to be strapped to a board. That was traumatic for both of us! But today was different. She earned her Dora stickers and lunch at Burger King. The doctor’s office called this afternoon and told me her hemaglobin had dipped to 6.7. The nurse asked me if she was still getting up out of bed and playing. Not only was she out of bed, she was out on the driveway riding her bike. As I say, I am watching all this with interest. The girls have strength for every day although they both have these challenges. I think when I see that, it helps me to recognize that as God pours His strength into the girls, He is not limited by too few calories or red blood cells. It is a gift that builds my faith as I witness His provision daily.Comments: