“Although the wrong seems oft so strong, He is the ruler yet.” That is a line from the hymn, “This is my Father’s world,” one we like to sing often. Especially on the days that turn those words into a statement of faith. Today we tried to get an appointment for Katy to see a specialist. We would ask for prayer about that because no one could see her until late January. Her body is covered in unexplainable bruises, and she has little places on her body that just begin to bleed for no apparent reason. This afternoon she was napping and woke up with her pillow bloody. I looked on the side of her face, and from one tiny pore she had leaked a good bit of blood. This has happened once before, last June, and no one could explain it then either. She has had six little places that have done that in the past few days. The bleeding lasts a long time but when I wipe a cloth over the source of the bleeding it can hardly be seen with the naked eye. It literally looks like she has sprung a leak.
I see what is happening on the outside of her body and wonder about what is going on inside and if it is related to the problems she has with her pancreas. There are so many mysteries. We are finding that there are things like this that happen and there is no expert to call. That is why Paul and I so often find ourselves kneeling at the foot of her bed, begging God to give us wisdom. This has been our first experience with caring for an unusual illness and we have found that very often doctors, through no fault of their own, have no time for something too unusual. We hope and pray that the advancements in research at the NIH will yield many answers for those now living and yet to be born with this syndrome.Comments: