After Sandy responded to yesterday’s post I contacted her by email and that led to a day of investigating drugs with long names and trying to read the medical information without saying, “What in the world does this mean?” I sent Sandy’s email to one of Katy’s doctors who took the time to find out more about the drugs Sandy uses. He sent us some information. We need prayer for wisdom and understanding. There are more things that can be tried for Katy. Our hope is that we will have enough information under our belts to discuss the possibilities with her doctors. They don’t see her suffer day after day so to a large extent we believe it is our responsibility to keep pushing for help. We have had too many people with HPS tell us that things will get better to want to throw up our hands after a year and a half and say, “This may be as good as it gets.” Katy had a very bad day. She’s barely eating because of the pain. We wait on the Lord because it is not up to us as to when this will be resolved.
In the middle of the day we had a conference call from the state of Louisiana to discuss the long term plans for Qavah. She sat in Paul’s lap and grinned while we told of her progress. We are especially excited about the mature way she has faced potty training. We’ve had two successfully “dry” days. She sat with me on Katy’s bed today for a little while and we talked about pretty colors and clothes when someone pulled into the driveway. It was a friend from church with dinner! Qavah sparkles tonight because these friends bought a couple of princess outfits for her to play dress-up. She is pink and glittery from head to toe and dancing from room to room. Right smack in the middle of hardship, God has dropped this delightful little princess in our midst and we smile just thinking about the grace that we have been given.Comments: