Monday, November 26, 2007

Methotrexate Dose #2

This afternoon I called the pharmacy to see if I could crush the methotrexate Katy is now taking and put it into applesauce. She is supposed to take ten tablets each Monday. She took the first dose last week on her own so I failed to notice that the methotrexate was coated with an easy-to-swallow coating. When Katy takes drugs with a coating like that, they usually don’t even digest. We have had to start giving some of her medications in liquid form because of malabsorption problems. So after seeing the tablets were coated and clearing it with the pharmacy, I ground the tablets and she took them this afternoon.

Katy’s bruising and bleeding problems continue and that is due in part to the fact that the medication she should have been taking all this time (the one prescribed last week) has not been available in all of Roanoke. The pharmacy had to special order it and we believe that it will arrive by Fed-Ex tomorrow. This afternoon Katy woke up from a nap and started bleeding from her ear again. I have finally figured out that once a doctor has seen something of Katy’s condition, and makes a diagnosis, we just have to give the medications time to do their work and see if the problems go away. It is a frustrating position to be in; it takes qavah (hope and patience).

I do wonder every day, “How long, Lord, how long?” I wish I had a date to point to and know for certain Katy will be better. I wouldn’t be human if I didn’t. But still we see the blessings of God in so many ways, especially in the acts of kindness of others. Katy’s college adviser called today to help us with a plan to file an extension so that Katy can try once again to finish her two classes and graduate in the spring. They were cheerleaders for us today, and it encouraged me beyond words to hear the conviction in her adviser’s voice. There is a commitment on their part to see Katy meet this goal. Since some of them read the blog, let me say a hearty thank you for the phone call today!

Comments:
  1. Linda Kochendarfer Says:

    Dawn,
    We think of and pray for Katy so often; she continues to be an example of perseverance to Rich and me. We also petition God to give you and Paul strength, both physically and spiritually, for your days. Know that you are loved by the Father and by us.
    Rich and Linda Kochendarfer

  2. Sandy Says:

    I’m glad that you realized those pills might not work as given and called the pharmacy about it. Very smart!! I hope the other meds arrive soon. I take four prescriptions in total, and three of them have to be special ordered every time. One of the joys of rare disorders, I suppose! Of course, once you get into a routine with them, you can call ahead so there isn’t any gap. Everyone who works at my pharmacy knows exactly who I am because of my special meds!

    I totally know what you mean about wanting to know WHEN things will get better. When I was so very sick as a young adult (not able to be in school for years), it would have been so much easier to just relax if I had known in a very deep way that these better days that I have now were coming. For sure.

    Hang in there. Prayers continue from here. Always.

    Sandy

  3. Julie and Sarah Rehman Says:

    Katy,

    YOU WILL COMPLETE YOUR DEGREE!!!!
    We are following your health challenges as well as your desire to finish your Bachelor’s degree. First things first, of course, but stay as best you can on the path for finishing your degree. You have the advisor on your side and that means a LOT. We look forward to seeing stability return with your health, but also seeing a photo of you in a cap and gown attending your commencement ceremony. Keep your focus and you will overcome these life challenges.

    Love, Julie and Sarah Rehman (HPS group)

  4. Lillian Oliveira Says:

    Yes, Dawn, I, myself have written those words with regard to Katy more than once in my devotional diary, talking to the Lord. If its a clear night, go out and look up at the stars - think was a powerful, majestic, timeless God we have, who “chose us in Him BEFORE THE FOUNDATION OF THE WORLD!” Think how long He waited for Katy to be born, this especially chosen one…chosen to suffer as He was. Perhaps it will help us all understand that, though He knows well how long is each minute and aching hour, He also knows that in Katy’s eternal lifespan, it will be small. How wonderful that she has had some glimpses of the absolute wonder and joy of where that eternity will be! And I’m always praying that Jesus will give her another respite of joy. In the midst of acute pain He has come, would He also come in the middle of long-drawn out drudging misery? I pray so. Love, Aunt Lil