When I think back to our daily lives before HPS symptoms appeared it seems too long ago that Katy was able to sit down to a family meal and really enjoy it. But in other ways it seems that the whole year has flown by. Annelise was a newborn last Christmas; now she’s a toddler. Qavah was not even a thought in our heads, and tonight she is sound asleep in her own room upstairs. Before long we will have another little one running around. Colin and Jenn announced their new baby is due in June so we are happily looking forward to having another little Campbell around next Christmas. As a family we are so grateful for all God’s goodness to us.
We have more good news about Katy’s labs tonight. Her lipase level has dropped and liver function level is also dropping in the right direction. The drug, Urso, is beginning to work so I have been able to cut Katy’s doses of pain medication by half. Her labs indicate that the Methotrexate is doing the right thing in her body and she is adjusting to the drug beautifully. The dose will go up a little bit this week. After that she will maintain with a once a week dose, have blood labs drawn every two weeks, and liver function tests every fourth week. If it offers her a near-normal life for a while we will be so grateful. Her food intake is still less than two hundred calories a day but it seems to be just enough to keep her going. Yesterday she tried Beachnut Baby Food’s ginger chicken with vegetables. She liked it so well she suggested that I consider serving it over rice at a family meal. Perhaps if some of you would try a jar sometime, you can give her your review. She’d like to hear from you about that.
Colin and Jenn volunteered to take care of the girls Thursday while Paul and I get away overnight to celebrate our anniversary. We both need sleep so badly that we are thinking about finding a quiet place to rest and sleep as late as we want. That is our idea of a good time these days. We must be feeling our ages!Comments: