I read over the notes I had taken when Katy last spent time with Jesus in Heaven. He told us to be honest in the blog writing about Katy’s condition but to not let people pity us, because everything we are going through will one day bring great blessing. So here with Katy’s permission I will write honestly about Katy’s issues of the past week and you will know why we have great reason to rejoice.
Last week, even with the Remicade treatment, Katy began having profound diarrhea which is typical of the HPS Crohn’s-like problems. Then she started bleeding. The problem became so intense that her electrolyte levels were thrown off, so much so that at times she would start with muscle spasms and I would literally cry out to God and ask, “Please show me which one of the minerals to give her!” Too much magnesium causes extreme fatigue and muscle weakness to the point of collapse. Too much calcium doubles the intensity of the spasms and adds to Katy’s misery.
One day last week just before dinner, Katy suddenly stiffened and her entire body was gripped in a full-body muscle lockup. Paul carried her to the sofa. Her body was like a stiff mannequin. This time her breathing was in short gasps and I quickly called her doctor. He gave us some things to do (blood pressure check, etc). We put a bag to her face to breathe into to get her oxygen level stable because she was hyperventilating, and when her breathing became regular she was able to open her mouth just a little bit. The phone rang again, it was her doctor, and while we were talking, Katy began to repeat “Bananas, bananas, Jesus said eat bananas tonight!” Paul went to the store for bananas. Her doctor, who understands that Jesus is the Great Physician, said joyfully, “Potassium! And the bananas will help with the diarrhea!” After more research he discovered that bananas also have magnesium in them. Two and a half bananas later, Katy was sitting up chatting happily and has had bananas every day since. They are keeping her electrolytes stable and today she is doing great. We had a terrific weekend and have not only captured a few hundred more dust balls, her walk-in closet is being remade into a small office. Now she will have her computer and all her school-related materials right in her very own room. She has a “project” and is extremely happy to have a new goal.
This is such a remarkable change from just a few days ago when I woke up, looked in on Katy, and knew it was going to be a rough day. Katy was crying softly and felt so bad. I prayed for something good to happen for her. An hour later, someone I had not heard from in a long time called and offered to bring the dramatic radio presentation of At Home In Mitford for us to borrow. When she brought it by she left the CDs on the back porch along with a beautiful card and fresh flowers for Katy. Again, I was a witness to the tender care the Lord sends Katy’s way just when she needs it most. His love and compassion are new every morning. So we rejoice over hearing directly from the Great Physician, restoration for Katy, and God showing us His love through a caring friend. That’s a marvelous way to start a new week.