Katy had a much better day and true to form, we don’t know why. We haven’t changed anything we are doing but she was able to eat a little baby food today and I cut back on her pain medication so she could think more clearly. We had a good afternoon and always have a short list so if we have to stop our activities it isn’t so much of a let-down. We weighed her this morning and she is still in a very healthy range considering she hasn’t eaten normally for over two months. I keep thanking God for the slowness of her metabolism at this time. Her GI doctor called today and they discussed more care options. She is going to take information from that conversation to the hematologist tomorrow. In this little corner of southwest Virginia, there are medical professionals willing to help improve Katy’s life, and today we could sense how hard some of them are working to figure things out. Because they have chosen to help her, I hope the Lord blesses their work greatly, and perhaps their knowledge will even help others with HPS in the future.
The Christmas packages we sent out along with sixty greeting cards are making their way across the United States right now. As I think about the many details we were able to accomplish when Katy and Qavah needed so much attention, I wonder how it all got done. Tonight I am focused on a little nativity set that was sent to us by a friend in Michigan to help us teach Qavah the Christmas story. We’ll be starting on that tomorrow night. We’ve improved her hand-washing skills by having her sing happy birthday while rubbing the soap into her hands until the end of the song when it is time to rinse. From anywhere in the house, several times a day she can be heard singing, “Happy birthday, dear Jesus, happy birthday to you!” Isn’t that a great Christmas song? I love having little people around.Comments: