Christmas being in the middle of the week has me really confused as to what day it is. I was also up caring for Katy most of the night. That makes it harder to think straight. Katy was having problems with a severe headache, nausea, shaking, and joint pain. Her face was flushed and she could hardly keep awake. I had to stop and consider every symptom because we have been down this road so many times before. I thought of calling the doctor but figured I’d be told to go to the ER. After taking her blood pressure, which was very low, I recalled that her symptoms were similar to last year when we were trying to wean her from the Fentanyl patch. I suddenly remembered that since Chistmas Eve, Katy has taken very little pain medication. For three months she has had to have Dilaudid for pain and when the pain stopped, she didn’t take it. The withdrawal from narcotics I believe has sent her adrenal system in a tailspin, so we are back to balancing electrolytes, prednisone, and pain medication until I can talk to someone about lowering her gradually. It is hard to take a huge step backwards after four wonderful days, but the last four days were a glimpse of what we believe is possible.
Paul and I had planned to celebrate our anniversary all day. However, Paul needed to spend the day fixing his car before the bad weather starts, Katy and Qavah were needy, and every attempt to sit down together was interrupted. It is good to know that being happy about being married is enough after thirty-four years. We’ll save the celebration for another day.Comments: