Kathryn woke up early this morning with strength. She looked radiant. We left the house before the sun was up and drove to the place this morning's seminar was being held. On the drive we watched the sky turn pink as the sun rose. We prayed for the people who would hear a difficult story, and for those in attendance that saw first-hand what Kathryn looked like just a few weeks ago. We prayed they would be blessed to see her standing. The room started filling up with a lot of white coats. Everyone made us feel welcome. Several of the hospital staff commented on our blog and I realized how far-reaching this story has become.
Her doctor began the presentation right on time and passed the microphone to Kathryn to fill in the details. He would introduce an aspect of HPS and allow her to tell the story of how those symptoms impacted her life. The time flew by and soon it was all over. As we were leaving, shaking the hands of many of the attendees, I felt that God had allowed all of us to look carefully at a serious situation and learn something from it. The question and answer time was quite interactive, and when it was all said and done we agreed that it was good seed planted. I hope the fruit that comes out of this morning's session will be sweet and bless doctors and patients alike in the years ahead. There were three people at the seminar this morning that took a personal interest in helping us move Kathryn from Prednisone to Methotrexate. They were our cheerleaders and they were there to see the results. I know they were blessed. The light in their eyes said so. How can we ever thank you enough?
From there we went to Kathryn's Remicade treatment. We were pretty surprised to discover something new. She just took her seventh dose of Methotrexate and it seems to enhance the effectiveness of the Remicade. She has stopped bleeding through her pores and her ears were not inflamed and itching like they had been before every other Remicade treatment. She was hearing well, and had no pain in her inner ear. Also, during the treatment her blood pressure stayed constant and she didn't break out in hives. In the past I had to pre-treat her with Benadryl or she would be scratching for hours. This week, there were no hives. Remicade day was so easy, and Kathryn so relaxed, that she slept through most of it while I wrote "Thank You" notes. It was a marvelous day in every way. When we returned home, little Qavah greeted us with a great deal of delight and I thought about how blessed we are to have her, too. Although it is only seven o'clock Kathryn is in bed for the night. As I think about today and seeing her inner beauty and grace, I am grateful for those of you who walked by faith with us during a long and difficult journey, praying for a day like this one.
"We don't learn to walk by faith until we've learned to walk in the dark."
- Jennifer Rothschild
- Jennifer Rothschild