We have had some marvelous times the past several days. I think it is remarkable how Kathryn's health is stabilizing and all the credit and glory goes to her Creator for training us and telling us what to do next. I remember reading about the treatments available for her when she was diagnosed with HPS and I said, "we'll try everything else before using those drastic measures!" We tried everything else, and now Remicade, Methotrexate, Xifaxin, Viamin B complex, Folic Acid, Nexium, a touch of Prednisone, and electrolytes have Kathryn in a holding pattern that has given her the hope of achieving some of her dreams. The "glue" that holds her together represents years of research by scientists, a lot of trial and error, doctors determined to find answers, and a Voice behind us saying, "This is the way, walk ye in it."
Kathryn and I went to a live production of The Diary of Anne Frank tonight. It was a special evening out for us. We met up with some friends and enjoyed the production very much. We used to do a lot of dreaming about doing things like that back when we spent so many nights at the hospital. We are now doing some of the things we talked about doing "when things get better." Since it was just the two of us out for the evening we had time to talk without spelling things out that we didn't want Qavah to hear. We talked about Qavah's life as it has unfolded over the last six months. She came to us speaking baby-talk gibberish and now speaks clearly and says everything she wants us to know. Around five-fifteen every day she watches for Paul's car to turn into the driveway from the upstairs window. Then she proclaims his arrival loud enough for all to hear, saying, "The king is home!"
When we got home tonight Paul had Qavah ready for bed and she was sipping a cup of decaf coffee while she waited for us. Her cello arrived today and Paul had kept it a secret from her until we got home tonight. We got the camera ready and Qavah delighted us with an impromptu concert. She even figured out that putting her left hand on the fingerboard changed the note. Paul promised her a cello lesson tomorrow evening. While he was packing it away in the case she scrambled up into my arms and said, "I'm happy Mama!" These are such good times and I'm tucking them all away in my heart!