Thursday, March 06, 2008

More Sunshine

Although Kathryn had a very hard night because of her earache, we still had a good day today with plenty of sunshine. I went to the pharmacy early this morning and talked to the pharmacist about the ear drops Kathryn was given. She may be having a reaction to them because the pain was worse last night. I found an over-the-counter medication that claimed to take the "ache" out of an earache and we discovered it really worked. After using those drops Kathryn had a better day with less pain and has gone to bed early tonight. She has been awake for two days with this ear problem. She also has a couple of places starting to bleed on her fingers for no apparent reason. It is a mystery. I told her yesterday that it would be much easier to care for her if she had come with instructions. She just laughed at me!

Qavah had a good day and her transfusion went smoothly. During the transfusion I held her in the recliner provided in the room. It didn't rock but it was enough like the recliner in her bedroom that after a story and a couple of songs she fell into a deep sleep. I blissfully held my sleeping girl for almost three hours when suddenly we were jolted into reality by a warm wet stream that soaked us both. After months of being potty trained, Qavah looked stunned! Two juice boxes and a dose of liquid Benadryl were a little too much for her to handle. I was able to give her a bath and had a change of clothes for her in the diaper bag. I drove home with wet pants down into my shoes, but before I left the hospital I was told by the nurses that I won the "Mother's badge of courage" for the day. I don't know if it's my age or experience but driving home with wet pants was not a bother. I looked at Qavah in the rearview mirror and saw that she looked and felt better and that was my goal!

I think Jess made the trip to New York with Qavah sound appealing when she mentioned the train in yesterday's comments. Qavah's records will be sent off to New York tomorrow and I am checking into insurance since she would be entering a research program. We have a lot of decisions ahead of us but a powerful prayer team behind us. We have a merciful, faithful God teaching us every day what it means to lay down our lives. I'm in awe of what I've been able to learn.