Thursday, March 20, 2008

Rare Things

Imagine having a blood disorder that is so rare that there is no known treatment. That's Qavah's situation. The doctor today diagnosed her rash as something other than Lichen Planus. Therefore we are back to not having any real proof of what is actually destroying Qavah's cells. We still suspect that the theory of graft versus host disease is correct. With no solid diagnosis, there is no treatment plan and we have been put into the position of having to trust that God will open doors to the medical intervention Qavah needs. It wasn't the outcome we were hoping for today. For those interested, the diagnosis for Qavah was Pityriasis Rosea. It runs its course in about eight to twelve weeks and the itching from the rash can be calmed by baths and soothing lotions. It is not contagious.

Kathryn struggled with her Methotrexate dose today and slept most of the day. Her doctor increased her dose. She likes to refer to those days as "pajama day." She is wide awake now because she had some fantastic news late this afternoon. Her professor emailed to say that the final rewrite of her thesis has been accepted. I'll quote her, "good conclusion - you're done!" Those four words are packed with meaning. Her cap and gown were ordered today and I have tears running down my face as I type this. The victory is so sweet. Congratulation, Kathryn!