Monday, September 29, 2008

Qavah's Turn

Kathryn, after two years, has finally reached a place with the right medications that she is now experiencing relief from many of the problems she was faced with at the time of the HPS diagnosis. It was a long and very hard road. Many times she had to wait for doctors to observe her condition for weeks and months before they were willing to prescribe things that finally worked for her. That is the nature of medical treatments for rare diseases.

Tomorrow we will be taking Qavah to the hospital in Charlottesville knowing that we may have to come home without many answers, but it is still worth pushing and trying every door. We believe one will open when the time is right. I would like to think that day has arrived. I've explained the visit with the doctor tomorrow and that she will most likely have to give them some of her blood to examine. Although she heard that part and considered it, she has talked of nothing else but taking a trip to Charlottesville with Mommy AND Daddy! I'm glad she sees this as a big treat. Cheerfulness seems to be the theme of her life.