Tuesday, February 10, 2009

Medical Update

Kathryn has been doing well. She is stable on all her medications although for some unknown reason she has a day or two during the month that things are not quite balanced with her digestive tract. She now has a very good sense about her pancreas being overworked and knows to stop eating when it isn't keeping up. The management of her care is largely in her hands now, and she has had a good winter thus far. We have stayed away from large gatherings and use hand-washing and germicide frequently. She has to play her harp with band-aids on her fingers because of some cuts that keep opening up on her finger tips but other than that she has been free to enjoy her work. She is very thankful and lives with an attitude of gratitude for every good day.

Qavah has been tired lately and is able to express that to me during the day. I attribute the tiredness to her anemia, but she is also growing very fast now. She is finally registering on the height chart. Our visit to Brenner's Childrens' Hospital is scheduled for February 24. Qavah will need one more transfusion here in Roanoke before then. She is very peaceful until her Daddy's car turns into the driveway around dinnertime. Then she lets out a shriek of joy that gets the dog barking. We enjoy these good days to the fullest.

You have made known to me the path of life; you will fill me with joy in your presence, with eternal pleasures at your right hand. Ps 16:11