Wednesday, February 25, 2009

What's Next? Rest!

Qavah and I got to North Carolina without any trouble. I had packed enough clothing to stay for a week. Once we arrived to her appointment, Qavah was taken to an area where she could play and work on crafts. Then the doctor spoke with me in another room about the long-term picture for Qavah. Now that the genetic testing lab wrote "appears to be Diamond Blackfan Anemia" in Qavah's report, the picture for her care has changed. The doctor explained to me that her previous tests showed bone morrow failure and because that test (taken at 10 months of age) indicated failure, that was also one of the reasons she needed transfusions. It is not simply a matter of her red cells being destroyed that transfusions are necessary. He further explained that bone morrow failure makes it impossible for him to use immunosuppressants because it would futher damage her bone morrow. So on the day we thought would be the start of a treatment plan, I had to sit and listen to the things that will happen to Qavah in the future. It was very very hard not to cry, but I managed to keep calm and ask as many questions as I could think of. I had a giant lump in my throat when I left the office and took Qavah to one of my favorite parks a mile from the hospital. Before driving back to Roanoke we went to Reynolda Gardens, where she played tag with me in the rose garden. We ran through the mazes together and I walked her down to the flower gardens where daffodils and purple pansies laughed back at us in the sunshine. I picked her up and kissed her before I put her in the car and she said, "We had a very happy day today! Happy, happy, me!"

Qavah has no concern about her future. She laughs and plays without a thought or worry for what is to come. I have decided to adopt that philosophy myself. Qavah and I have booked a flight to Florida next Tuesday where, Lord willing, we will stay in St. Petersburg and visit the white sandy beach of Fort De Soto together. It makes me smile to think of her digging in the sand and collecting sea shells. Aunt Lil and Uncle Tony have invited us to stay there with them. It is time for a rest from all the medical challenges, and time to enjoy the beauty of the gulf coast. God has given us peace and we still pray believing He is going to show us His power in bringing greater healing to Qavah.

Jesus said, "Come unto me all ye who are weary and heavy laden, and I will give you rest." (Matthew 21:11) We have such a perfect savior, One Who understands our human condition and promised to carry our burdens.

Father-like He tends and spares us,
Well our feeble frame He knows.
In His hand He gently bears us,
Rescues us from all our foes.
Alleluia, alleluia, widely yet His mercy flows.