Sunday, April 19, 2009


Today a new friend through the HPS community arrived from Michigan. It was great to meet her and her mother in person. Over a year ago Sandy had emailed me while Kathryn was in the hospital and helped me by suggesting drugs that might help. The recommended drugs did work, and it was such a relief to know Sandy was out there with experience in working with doctors and drugs for a rare blood disorder. Her story is similar to Kathryn's. Only she was sick for nineteen years before it was discovered that she had a rare platelet disorder. We talked for seven hours non-stop today. Sandy and her mom Nancy were delightful guests and we have pictures of our day that Kathryn will post on her blog.

At one point this afternoon Sandy and Kathryn were walking amid the wildflowers in the garden on top of Mill Mountain. I took a picture of the two of them smiling together. With the amount of health challenges they have to live with, one might think that smiles would be few, but that was not the case. I have a snapshot of Sandy and Kathryn in my mind, and in that mental snapshot they are strong women who have victoriously overcome many obstacles to stand on top of a mountain smiling today. Sandy is a graduate student at the University of Michigan. She loves math, and to hear her talk about it and see the sparkle in her eye, she has made me consider that math might be fun.

Kathryn and Qavah have had a good weekend. Qavah came in from romping outdoors with her Daddy last night. I looked at her when she came inside for the night and discovered mud and grass all over her clothing along with pine needles in her hair. As I was picking the pine needles out of Qavah's hair I asked her if she had fallen down outside. Her smile broadened, and with a look of pure joy she said, "No, I wolled down the hill and it was willy fun."

Have a great Sabbath day. And if you really want to have some fun, woll down a hill!