Thursday, June 04, 2009

Sudden Changes

I just finished reading my last post. Qavah, who seemed so exhausted, went for her blood transfusion on Tuesday and after arriving at the hospital the nurse said, "Qavah doesn't need a transfusion today because her CBC is 10!" I could hardly believe my ears. I'm sure I must have looked stunned because I was speechless for a few moments. I asked the nurse how that could be possible and after discussing it she stated, "Maybe this is the miracle you have been praying for." Qavah's transfusions have been every two weeks. By that time her CBC is between 8-9. This time, because of her rashes and reaction to the last transfusion, we waited an extra week to have her transfused. So she should have been past due for a transfusion; instead she was healthy enough to leave the hospital without it. I have firmly believed that we are going to see a miracle where Qavah is concerned. We continue to pray for it and wait.

Kathryn on the other hand had been doing very well. However one of her doctors was unavailable to write her perscriptions for two of the medications that keep her body stable. She was without them for four days and suddenly yesterday her health took a sharp downward spriral. She is bleeding externally from several places and her body is covered in new bruises. She is unable to work. I will be taking her to her Remicade treatment today and the nurse will be able to document her condition. The pain and GI problems are back with a vengence. If only to see how much relief she is getting from her current meds, this has been a valuable learning experience.

Kathryn was up most of the night with electrolyte problems so I stayed with her. In spite of the demands of her body, and getting up to help her so often, we still had a great time talking about the mighty power of God in the middle of the night. There are some truths from scripture that have come alive for us on this HPS journey. In particular the idea that casting our cares upon Him keeps us free from walking around as though we are shouldering a great burden ourselves. As unbelievable as it seems, there is a lot of joy in this journey. Enjoying a close, continual walk with God and feeling His steady hand of comfort is beyond anything either of us can describe to others.