Monday, September 27, 2010


After calling all of Kathryn's physicians and finding that three of them were on vacation, it looked like the possibility for Kathryn to be treated today was hopeless.  The ER looked like the only option.  We knew that in Kathryn's state, she would be miserable waiting in the ER all day so we prayed. Paul prayed that God would do exceedingly beyond what we could ask or think.  Before noon today the door opened for Kathryn to see one of the partners in the practice where she is usually seen by her PCP.  From the start, the new doctor seemed to know a great deal about HPS.  That eliminated the need to explain everything, which usually takes an hour.  I finally asked him how he knew about HPS and discovered that he had worked with a doctor from Puerto Rico who taught him extensively about the genetic disorder.  While he was learning all of that as a resident I'm sure he did wonder if he would ever see a patient with HPS during his years as a physician.  

After the initial exam, the doctor started IV fluids right in the office.  To address the GI issues, he adjusted her dose of hydro-cortisone, and to investigate the problem further, he ordered labs for liver and pancreas function.  With extra cortisone and a bag of fluids, Kathryn felt so much better.  All of that took just four hours.  In addition, before we left the office, the nurse suggested we speak with the doctor about keeping IV fluids at home given the fact that Paul Burton can start an IV at home.  What started out to be a day where impossibilities seemed big, God went before us and made things possible even for future care to be easier.

I  know that there are some folks reading about our family life on this blog who find it hard to believe that we are in constant prayer and trust God for even the smallest things.  Considering that one prayer from my husband this morning yielded all of this wonderful fruit, I don't know of a better way to live.  To cry out to a loving God Who cares more about the events of our lives than we even know is a great privilege.  To be heard by Him is humbling.  I see how much He has moved on our behalf today and want to thank Him for His great love and mercy toward Kathryn. 

Heavenly Father, we thank You for the mercy You have shown us today. Let this be said of our family as we continue to trust You for the future:  "He is your praise; he is your God, who performed for you those great and awesome wonders you saw with your own eyes."  Deuteronomy 10:21

1 comment:

  1. God is good! So glad that Kathryn got the help she needed and that you might be able to arrange for home IV fluids. I am a veteran of many, many IV infusions, and they can be such a big help. You're all in my daily prayers!